Rea

[Guest guest]

Does this Rea have a website?

theresa

>

> I really don't want to argue on line about all these

points on the

> subject of neutralization. Call me and I will explain it on the

phone. A few

> hundred Doctors in the country are doing it. I am just making you

guys

> aware that those of us who understand environmental medicine

understand that

> it is an integral part of getting someone well. Patel said it

unassumingly

> like she wasn't trying to ram it down people's throats! They were

> allergists etc studying the subject of neutralization. Really you

are being

> too literal about every word I say. I am trying to expose you to

that which

> you are skipping. And you can ignore me. I am just advising to

look into

> what environmental docs consider essential. If you guys haven't

heard about

> it then it is because you haven't seen an environmental

physician. These

> are people who focus in toxic exposures of all kinds. Most of us

have more

> problems than just mold. AAEM.com lists them all and I would

first ask

> whether they do neutralization and Provocation by subcutaneous

injection.

> I can't explain it all to you that is your job to learn about

now. The

> first thing they usually test and treat for is inhalants (molds,

danders,

> pollens, dust, feathers, trees, weeds, grasses), then there are

foods,

> chemicals, mycotoxins neurotransmitters.

> Please don't be so harsh on line about this towards me. I am

just

> giving you a chance at improvement that I have had. No one

referred me for

> treatment and I was extremely upset about that-- even doctors who

specialize

> in 'mold patients'! I thought it was ridiculous that I wasn't

told who

> could really make me well! I want to let others have the chance

to get well

> and be referred.

> I am not selling a product. I do not have to defend all

of the

> practice of environmental medicine. Most of us think Rea will win

a Nobel

> Prize and is unbelievably brilliant (as are many of his

trainees). Not

> everyone gets well. But did you think that everyone would respond

equally

> after having different levels of exposure to different

pollutants? Give me

> a call after 10 am east coast time before 10 pm and I can tell you

more if

> you want. Sincerely, Nagy 508 693 3048

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Re: ReA

Hi Jeannie,

The best way to be pro active is to participate in the group. Posting this email

you sent to me would be a great way to start! I'm sure there are many members

that can relate to your problem with your relatives. It's a busy time of year

but maybe you could encourage members to reply. The more message we have being

distributed the less members feel alone. As I'm sure you know that can be a real

problem this time of year!

On Fri, Dec 26, 2008 at 5:12 PM, jeanfyl147 <jeanfyl@...> wrote:

Rick,

I don't have ReA but my son does. v He is in this early thirties. I

am consumed with my thoughts on its debilitating nature and how it

has altered his life so dramatically. First episode was about 9

years ago, last year flared up (about 6 mos) but undiagnosed and

this year's flare up was diagnosed (almost 12 mos this year).

I am angered by an immediate family member who doesn't share the

same opinion of this disease as I do. He also never became involved

in any aspect, including caregiving. He does believe there is a

disease, there is nothing he can do about it, and strongly feels

that it is not a reason to stop working.

While trying to educate myself on this disease, I have come across

so many other immune disorders, and as I read about them I always

seem to come across the words such as, " cause unknown " or " unknown

cure " .

My questions are these. What am I missing here? How or is the

medical community fighting for answers for people with immune

disorders? Is there such a thing as an " immunologist " for immune

disorders. I certainly know there are allergist/immunology. But

what about for your members. How can I help fight this cause?

I most certainly realize that you are very active in this fight. I

would like to be pro-active too.

Thank you for this site.

Jeannie

[Guest guest]

Hi Jeannie,

We all have different degrees of diseases. This is not a set fix of

symptoms and meds. Like Asthma, some can control it with one med,

others need 3 to just live without getting sick.

I myself have 3 diseases, they fight each other and sometimes one

wins. I worked for quite some time, not knowing what was wrong. Then

I colapsed at work and knew I had to find a specialist right away. He

diagnosed me the first visit with Reactive Arthritis, then

Fibromyalgia on the next visit.

Fatigue is one of my biggest issues, making work impossible anymore.

I cannot walk more than 20 min in a store and the DR has given me a

handicapped parking pass now. The cold in PA is awful on my legs, I

hurt so much if I go out.

I can usually do one trip to a store, or one chore like 2 loads of

wash, or one load of dishes. I no longer can use a vacuum and it has

only been 3 years. I never went into remission. Luckily, my hubby has

good insurance and a good job so I could quit working. I was approved

for SSD, maybe your son could look into that? It sure helps and he

could get medical help if he was on disablity.

Tell your son to educate himself about his issues, including the

mental ones like depression and suggest he come here and read some of

the info. He can email me anytime, I will answer within a day usually.

As far as my DRs, the Rhuemetologist is the best one for me. However,

my eye dr, family dr, and dentist all work together sending reports

and I make sure all know what RXs I am taking and what doses.

Good luck, your a great encouraging mom.

MK