Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 Hi Theresa, June and list, Theresa wrote: > June I really sympathize with you. My daughter and I just had > another round of her trying to get out of going to school this > morning. She finally made it at 10:00.I had a guidance counselor > waiting to talk to her .Right now,my will to make her obey seems to be > stronger than hers to stay at home. I called the school psychologist > and we are going to try this,because I'm exhausted and have had a > headache all day. The school is going to designate someone to come to > our house and take her to school on the mornings she decides she is > not going. I think this will work with my daughter because she knows I > will call the school. I don't know if this will help you or not, but > it's worth a try. Theresa School avoidance was a big problem for many, many years for our daughter which severely affected her and the rest of our family. Before we had any idea what our daughter Tori had, we felt her school avoidance was triggered by anxieties. If her morning routine went wrong or if there were issues of stress for her at school (social and self - image, academics) getting to school was difficult. Once she entered the building everything " seemed " fine. But in reality she suffered every minute. She was determined to not feel humiliated if her peers found out, in her words, that she was a " FREAK " . In the junior grades she would start off the school year fine but three-quarters through she was stressed out. By grade six Tori could barely handle the stresses after the first quarter. Teachers started to see she was constantly 'day dreaming', as Tori would put it " it's more like a foggy trance " . To feel safe she would draw her little ladies in pretty dresses hundreds of times over, filling the margins of her workbooks. At this time Tori was starting to get caught up in a power struggle with us. We started to use the school attendance councilor. This worked for a little while. Then this councilor would come to our home in a van with her two very large German Shepherds. Tori is very afraid of dogs so I put a stop to that. We started seeing a " trained specialist " who dealt with OCD in children and adolescence. Her advice to us was to get Tori to school, " even if you have to role her up in a rug and drag her in " . We continued the battle. We never went as far as using a rug! We tried to follow the doctor's guidance even though in the back of my mind I kept thinking; why would anyone throw someone afraid of snakes into a pit filled with them without first dealing with the problem of fear in a safe and caring way?!!! I should have listened to that voice :-( The anger and rage built up to explosive levels and of course at this same time her contamination fears developed to a debilitating level. My wife and I lived through a time of great pain. Having our daughter wake us in the middle of the night begging us to kill her. We would pray that the next morning wouldn't be so bad. Hoping she was getting ready for school, only to find her in her room holding a butcher knife to her chest. A terrible time. We tried to set up something with the school but they were less then cooperative. Tori did not go back to grade 7 after the end of Jan. Tori was now taking Luvox which later had to be stopped because of tremors and it's effect on her vision. After the summer break many things calmed down. Tori felt she wanted to go back for grade 8. That first half day at school sent her into a tailspin. Her OCD and anxieties were back at full throttle. It took almost three months to see her calm down all because of a few hours of school. She carried rage in her for a long time. Tori also fell into her first real bout with depression. We feel this all happened because she had lost trust in everyone around her. Even trust in herself. We gave up on that doctor, or maybe she gave up on Tori. Her new doctor is very caring and has along with us spent time to build her trust back. She gets home instruction now but Tori talks about going to school next year. Although Tori is much more stable she is still locked in her OCD. She has also been recently dx with AS which helps explain some of her social difficulties. Her doctor does not feel she is ready yet to go back to school. I hope I've not gone on too long. But I felt I needed to share our experience so others can evaluate against it to see where their own situation may be. School issues or not. I believe OCD children and their caregiver(s) can lose site of the real issues within OCD. I have wondered many times what truly generates the label of ODD put upon an OCD child? In fear don't we all sometimes fight back? Within all we go through with our special kids I feel it can make us look at even bigger questions. Are we as a society doing the best we can for all children? Society enforces it's doctrine of 'normalness' on us all, is there room for change? Will it change? Questions too big for us just trying to get by ... Take care, in Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 Hi , I've been thinking about the same issue. The majority of the society defines " nomalness " and of course, it can not cover everybody. The current school system is a very traditional one and is of course defined by the " nomal " people and fits the normal people. No wonder it does not fit our special kids. I sometimes wonder if I'm asking a 16 year old, to cut his feet to fit in the wrong shoes. I know the reason why I'm doing this. I do not know the alternatives. If does not go to school, what should he do? Homeschooling of course could be a way. But, is not a person with good self discipiine. Therefore, it' not a good choice for us. What I meant is that I still expect him to go through college to complete the education. I know lots of people still achieve something greatly without going through colleges. Mabye I should not make to go through the same route as the majority do to get in and complete the college. But, if he does not go through colleges, how can I help or guide him. To respond to your question about " room for change " , I believe there is " room to be different " , if you are willing to be different. My problem have been that I want to follow the majority's step. In another words, I want hime to be normal as the rest, do the same thing as the rest, although he can not. Actually, that is where the pains and strugglings are from. Both and I want him to be " normal " . If we both give up on this criteria, we both would be much happier. Maybe that will ease the tension for OCD and cure it! How is Tori's grade in school? I think may fail at least one subject this year, I worry about how he could get into the next grade without passing all subjects. How is Tori evaluated when she stayed home for instuctions. Does she have to take some tests in order to get into the next grade? With failing course(s), I believe you may not be able to even graduate from the high school. After joining this mailing list, I found that avoiding school appears to be a common problem t o the OCDers. This actually makes me feel better and changed my altitude towards this issue. Take care. TC Hansen <hansenj@...> on 04/29/99 02:59:33 PM Please respond to onelist onelist cc: (bcc: Tse Chao/JerseyCity/iNautix) Subject: Re: school/not school is that the question From: Hansen <hansenj@...> Hi Theresa, June and list, Theresa wrote: > June I really sympathize with you. My daughter and I just had > another round of her trying to get out of going to school this > morning. She finally made it at 10:00.I had a guidance counselor > waiting to talk to her .Right now,my will to make her obey seems to be > stronger than hers to stay at home. I called the school psychologist > and we are going to try this,because I'm exhausted and have had a > headache all day. The school is going to designate someone to come to > our house and take her to school on the mornings she decides she is > not going. I think this will work with my daughter because she knows I > will call the school. I don't know if this will help you or not, but > it's worth a try. Theresa School avoidance was a big problem for many, many years for our daughter which severely affected her and the rest of our family. Before we had any idea what our daughter Tori had, we felt her school avoidance was triggered by anxieties. If her morning routine went wrong or if there were issues of stress for her at school (social and self - image, academics) getting to school was difficult. Once she entered the building everything " seemed " fine. But in reality she suffered every minute. She was determined to not feel humiliated if her peers found out, in her words, that she was a " FREAK " . In the junior grades she would start off the school year fine but three-quarters through she was stressed out. By grade six Tori could barely handle the stresses after the first quarter. Teachers started to see she was constantly 'day dreaming', as Tori would put it " it's more like a foggy trance " . To feel safe she would draw her little ladies in pretty dresses hundreds of times over, filling the margins of her workbooks. At this time Tori was starting to get caught up in a power struggle with us. We started to use the school attendance councilor. This worked for a little while. Then this councilor would come to our home in a van with her two very large German Shepherds. Tori is very afraid of dogs so I put a stop to that. We started seeing a " trained specialist " who dealt with OCD in children and adolescence. Her advice to us was to get Tori to school, " even if you have to role her up in a rug and drag her in " . We continued the battle. We never went as far as using a rug! We tried to follow the doctor's guidance even though in the back of my mind I kept thinking; why would anyone throw someone afraid of snakes into a pit filled with them without first dealing with the problem of fear in a safe and caring way?!!! I should have listened to that voice :-( The anger and rage built up to explosive levels and of course at this same time her contamination fears developed to a debilitating level. My wife and I lived through a time of great pain. Having our daughter wake us in the middle of the night begging us to kill her. We would pray that the next morning wouldn't be so bad. Hoping she was getting ready for school, only to find her in her room holding a butcher knife to her chest. A terrible time. We tried to set up something with the school but they were less then cooperative. Tori did not go back to grade 7 after the end of Jan. Tori was now taking Luvox which later had to be stopped because of tremors and it's effect on her vision. After the summer break many things calmed down. Tori felt she wanted to go back for grade 8. That first half day at school sent her into a tailspin. Her OCD and anxieties were back at full throttle. It took almost three months to see her calm down all because of a few hours of school. She carried rage in her for a long time. Tori also fell into her first real bout with depression. We feel this all happened because she had lost trust in everyone around her. Even trust in herself. We gave up on that doctor, or maybe she gave up on Tori. Her new doctor is very caring and has along with us spent time to build her trust back. She gets home instruction now but Tori talks about going to school next year. Although Tori is much more stable she is still locked in her OCD. She has also been recently dx with AS which helps explain some of her social difficulties. Her doctor does not feel she is ready yet to go back to school. I hope I've not gone on too long. But I felt I needed to share our experience so others can evaluate against it to see where their own situation may be. School issues or not. I believe OCD children and their caregiver(s) can lose site of the real issues within OCD. I have wondered many times what truly generates the label of ODD put upon an OCD child? In fear don't we all sometimes fight back? Within all we go through with our special kids I feel it can make us look at even bigger questions. Are we as a society doing the best we can for all children? Society enforces it's doctrine of 'normalness' on us all, is there room for change? Will it change? Questions too big for us just trying to get by ... Take care, in Canada ------------------------------------------------------------------------ Grow your list the most and receive a $5000 donation to the charity of your choice. See our homepage for details on our new ONEreach incentive programs. ------------------------------------------------------------------------ The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 Hi , I read your post with many tears. Your post echoes the experience's of OCD that we've had. There is one thing that I've learned through all of this, and that is to trust your own instincts. Take care and God Bless! mary Hansen wrote: > From: Hansen <hansenj@...> > > Hi Theresa, June and list, > > Theresa wrote: > > > June I really sympathize with you. My daughter and I just had > > another round of her trying to get out of going to school this > > morning. She finally made it at 10:00.I had a guidance counselor > > waiting to talk to her .Right now,my will to make her obey seems to be > > stronger than hers to stay at home. I called the school psychologist > > and we are going to try this,because I'm exhausted and have had a > > headache all day. The school is going to designate someone to come to > > our house and take her to school on the mornings she decides she is > > not going. I think this will work with my daughter because she knows I > > will call the school. I don't know if this will help you or not, but > > it's worth a try. Theresa > > School avoidance was a big problem for many, many years for our daughter > which severely affected her and the rest of our family. Before we had > any idea what our daughter Tori had, we felt her school avoidance was > triggered by anxieties. If her morning routine went wrong or if there > were issues of stress for her at school (social and self - image, > academics) getting to school was difficult. Once she entered the > building everything " seemed " fine. But in reality she suffered every > minute. She was determined to not feel humiliated if her peers found > out, in her words, that she was a " FREAK " . In the junior grades she > would start off the school year fine but three-quarters through she was > stressed out. By grade six Tori could barely handle the stresses after > the first quarter. Teachers started to see she was constantly 'day > dreaming', as Tori would put it " it's more like a foggy trance " . To feel > safe she would draw her little ladies in pretty dresses hundreds of > times over, filling the margins of her workbooks. At this time Tori was > starting to get caught up in a power struggle with us. We started to use > the school attendance councilor. This worked for a little while. Then > this councilor would come to our home in a van with her two very large > German Shepherds. Tori is very afraid of dogs so I put a stop to that. > We started seeing a " trained specialist " who dealt with OCD in children > and adolescence. Her advice to us was to get Tori to school, " even if > you have to role her up in a rug and drag her in " . We continued the > battle. We never went as far as using a rug! We tried to follow the > doctor's guidance even though in the back of my mind I kept thinking; > why would anyone throw someone afraid of snakes into a pit filled with > them without first dealing with the problem of fear in a safe and caring > way?!!! I should have listened to that voice :-( The anger and rage > built up to explosive levels and of course at this same time her > contamination fears developed to a debilitating level. My wife and I > lived through a time of great pain. Having our daughter wake us in the > middle of the night begging us to kill her. We would pray that the next > morning wouldn't be so bad. Hoping she was getting ready for school, > only to find her in her room holding a butcher knife to her chest. A > terrible time. We tried to set up something with the school but they > were less then cooperative. Tori did not go back to grade 7 after the > end of Jan. Tori was now taking Luvox which later had to be stopped > because of tremors and it's effect on her vision. After the summer break > many things calmed down. Tori felt she wanted to go back for grade 8. > That first half day at school sent her into a tailspin. Her OCD and > anxieties were back at full throttle. It took almost three months to see > her calm down all because of a few hours of school. She carried rage in > her for a long time. Tori also fell into her first real bout with > depression. We feel this all happened because she had lost trust in > everyone around her. Even trust in herself. We gave up on that doctor, > or maybe she gave up on Tori. Her new doctor is very caring and has > along with us spent time to build her trust back. She gets home > instruction now but Tori talks about going to school next year. Although > Tori is much more stable she is still locked in her OCD. She has also > been recently dx with AS which helps explain some of her social > difficulties. Her doctor does not feel she is ready yet to go back to > school. > > I hope I've not gone on too long. But I felt I needed to share our > experience so others can evaluate against it to see where their own > situation may be. School issues or not. I believe OCD children and their > caregiver(s) can lose site of the real issues within OCD. I have > wondered many times what truly generates the label of ODD put upon an > OCD child? In fear don't we all sometimes fight back? Within all we go > through with our special kids I feel it can make us look at even bigger > questions. Are we as a society doing the best we can for all children? > Society enforces it's doctrine of 'normalness' on us all, is there room > for change? Will it change? Questions too big for us just trying to get > by ... > > Take care, > in Canada > > ------------------------------------------------------------------------ > Grow your list the most and receive a $5000 donation > to the charity of your choice. > > See our homepage for details on our new ONEreach incentive programs. > ------------------------------------------------------------------------ > The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 Hi TC, and list, I was glad to read the thoughtful responses from my post. tchao@... wrote: > Hi , > > I've been thinking about the same issue. The majority of the society defines > " nomalness " and of course, it can not cover everybody. The current school > system is a very traditional one and is of course defined by the " nomal " people > and fits the normal people. No wonder it does not fit our special kids. I > sometimes wonder if I'm asking a 16 year old, to cut his feet to fit in > the wrong shoes. I know the reason why I'm doing this. I do not know the > alternatives. If does not go to school, what should he do? This says it all for the many of us who feel something is wrong but feel we have not been exposed to the solution. But if we were to live our lives without the knowledge of the colour green it still would not mean we would have missed out on it's beauty. I therefore feel the answer must be somewhere within us. > Homeschooling > of course could be a way. But, is not a person with good self discipiine. > Therefore, it' not a good choice for us. Self discipline is a tough one for most teens. Tori has AS and this alone is an added challenge especially when it comes to her tolerating any topics outside of her own narrow interests (obsessions). Still there must be other choices for education out there. > What I meant is that I still expect him > to go through college to complete the education. I know lots of people still > achieve something greatly without going through colleges. Mabye I should not > make to go through the same route as the majority do to get in and > complete the college. But, if he does not go through colleges, how can I help > or guide him. We need to be there for support. We can help out by explaining the possible outcomes of their choices but we can't hold their hands and guard them from all dangers. Our children have to take on decisions for their own sake. I have hopes Tori will get her high school but I have not voiced my opinion about her getting further education. Gaining further education has to be an expectation of our children's responsibility towards themselves. Tori is a bright and resourceful so I feel it's best for her to make her own successes and/or failures as she heads out on her own. For her to learn how she can make her own way towards a self-reliant healthy life is far more important than 'making' her go to college. > > > To respond to your question about " room for change " , I believe there is " room > to be different " , if you are willing to be different. My problem have been that > I want to follow the majority's step. In another words, I want hime to be > normal as the rest, do the same thing as the rest, although he can not. > Actually, that is where the pains and strugglings are from. Both and I > want him to be " normal " . If we both give up on this criteria, we both would be > much happier. Maybe that will ease the tension for OCD and cure it! sounds motivated. Does he get CBT? We all know those of us who don't fit into " normal " can carry quite unfairly the burden of society's stigmatization. I think our goals have to be re-directed. All the Chris' and Tori's have to be seen as beautiful as they are. They are just as frail as all other man or womankind. For the OCD discomforts our children suffer we have to trust our own faith and the spirit of others who do believe in the goal to help get our children well. > > > How is Tori's grade in school? I think may fail at least one subject > this year, I worry about how he could get into the next grade without passing > all subjects. How is Tori evaluated when she stayed home for instuctions. Does > she have to take some tests in order to get into the next grade? With failing > course(s), I believe you may not be able to even graduate from the high school. Tori, as I've said gets Home Instruction (HI). This instruction is only two times a week for a total of 4 hours. The instruction by law does not have to include anything more than math and language. It is a program that was never meant to be used over the long term. It's for students who because of short term health reasons can't get into the school. I do know here where I live there is little to no accountability for a passing grade level to enter into gr. 9. Anybody who is age appropriate has the right to enroll in high school. I could not believe this when I found this out. Our government has brought in a brand new high school curriculum which is more demanding especially so for many of our special needs children. Still when I read over the fine print the schools still will bend over backwards, and will accommodate almost anything just to keep the 'slipping' students in school. Still there seems to be only a thin guise of accountability. So is it possible to push or kids through the system without a decent education.... sure! The school has no responsibility to grade her when she is in HI. But because we are looking at applying for public school granting for a home tutor she has been tested by the school and one of her doctors. She scored a 98 percentile in everything except grammar and punctuation, 76 percentile, for her grade and her age level . She's a smart one. > > > After joining this mailing list, I found that avoiding school appears to be a > common problem t o the OCDers. This actually makes me feel better and changed my altitude towards this issue. School sure can be a difficult issue for OCD children. It's great to be able to collectively share our stories, our successes and failures on this list. What we all have to give is important. Take care from Canada > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 , Yes, I agree with your point. Our OCD'ers have to define for themself what they want and how they should go about. I actually understand this. But, I sometimes keeps worrying and attempt to define a " normal " future for Chris. I need to brainwash myself. We are looking for a good therapist. We tried with some sort of " exposure " techniques and it only helped the showering part ( used to take more than 1 hour shower). Chris's rituals change over time. Therefore, the shower ritual could be just phasing out anyway. It sounds like Tori has the talent and capability. It's good that the home instruction is working for you. Tori must be a motivated young lady with good self-discipline. I found quite a few OCD'ers on this list to be quite bright and would be very good achievers if we can find the right treatment for them. Thanks for the ideas. Take care TC Quote Link to comment Share on other sites More sharing options...
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