Newbie

[Guest guest]

Afternoon !

I'm Ellen from South Florida by way of New York. It's lovely to meet

you, sorry it had to be this way. You sound like a positive, upbeat

kind of woman and that will help you tremendously!

Tom is right,by the way, we are a family; odd as it may sound. You

will get used to all the names, don't push knowing it all right now

and you'll get to know us all individually as well. We all have our

stories, some might sound familiar to you through your own experience

and others might leave you scratching your head. We vent here,

celebrate things here, just express ourselves and gain insight and

information. There are other sites you might want as well that are,

in a way, " part " of us. I will send them to you via email if you wish.

Just let me know if you want them. I'm not about to overwhelm you

with all kinds of things.

Anyway, I'm 44 years old and was diagnosed almost 13 years ago now. I

had an eleven day stint in the resort for that one until they finally

decided. By the way, tell me if this sounds familiar; I had five

doctors trying to figure out what was wrong with me. Sound familiar?

We are an unusual select group.

For now, my dear, rest. Take your meds, eat well and correctly and

try to get some activity in your daily routine if you can. Welcome to

the family.

Take care and be well.

Ellen

[Guest guest]

Afternoon !

I'm Ellen from South Florida by way of New York. It's lovely to meet

you, sorry it had to be this way. You sound like a positive, upbeat

kind of woman and that will help you tremendously!

Tom is right,by the way, we are a family; odd as it may sound. You

will get used to all the names, don't push knowing it all right now

and you'll get to know us all individually as well. We all have our

stories, some might sound familiar to you through your own experience

and others might leave you scratching your head. We vent here,

celebrate things here, just express ourselves and gain insight and

information. There are other sites you might want as well that are,

in a way, " part " of us. I will send them to you via email if you wish.

Just let me know if you want them. I'm not about to overwhelm you

with all kinds of things.

Anyway, I'm 44 years old and was diagnosed almost 13 years ago now. I

had an eleven day stint in the resort for that one until they finally

decided. By the way, tell me if this sounds familiar; I had five

doctors trying to figure out what was wrong with me. Sound familiar?

We are an unusual select group.

For now, my dear, rest. Take your meds, eat well and correctly and

try to get some activity in your daily routine if you can. Welcome to

the family.

Take care and be well.

Ellen

[Guest guest]

Dear ,

Welcome to the group.

I think KT will help you immensely. The most important thing is that it boosts

your immune system and drives unwanted bacteria out, which is what people like

you and me need the most.

I myself have a thyroid problem, I used to be cold not any more.

My daily KT intake is about 16-32oz. Also I eat raw coconut oil daily, and 2 tbs

of butter, grass-fed meat, bone broths. (My doc is waiting for my inevitable

wight gain, he was also very skeptical about KT), but I still keep it at 100

lbs, I believe KT helps me a lot.

Here is some info that might be of interest to you:

http://www.earthclinic.com/Remedies/kombucha_tea.html

Be well and good luck with KT brewing.

> From: <michellejacksonb@...>

> Subject: Newbie

> kombucha tea

> Date: Friday, November 21, 2008, 3:25 PM

> Please forgive me! I am new to the group and new to

> kombucha. Right now, I buy GT's Kombucha from Whole

> Foods. It is expensive about $4.00 a bottle. Will Kombucha

> tea help with my thyroid problem? I have extreme

> sensitivity to cold. In fact, I am never hot.

>

> thanks for your time

>

[Guest guest]

My doc is waiting for my inevitable wight gain, he was also very skeptical

about KT), but I still keep it at 100 lbs

Kellie,

" It " = total weight, or amount " overweight " ? Or don't you want to answer

that question?

I put " overweight " in quotes, because the only objective measure that I

know of is BMI, which (in my opinion) is totally ridiculous, as it only

takes into account one independent variable (height).

Besides (as I've read before) " You're not unhealthy because you're

overweight--you're overweight because you're unhealthy! " .

J.

[Guest guest]

Hello, my name is Elly and I am the greeter for our and now your group.I am so

sorry you are so sick, but I promise you, you will feel at home here in no time

at all.Everyone here has had an experience very similar yet different from

everyone else.I am not sure what your name is or if you are female or mail?I am

guessing your name might be /Jim,please let us know in order to keep the

posts to you correct.We are a growing but very close group which we consider a

second family.So come on in and have a seat and put your feet up and rest a

while.Do you have family? If so tell them we would welcome their imput.You can

write if you feel like venting,this disease can make you frustrated sad,crazy

and just plain confused,but we are all here to help each other.By the way,where

do you live,state,country etc.I hope your new meds will help you and I would

love to tell you about it,but I have not been on it,I'm sure someone will have

some knowledge of it.Good

Luck and welcome home

Elly

[Guest guest]

Hey Elly,

My name is and I am female,and 42 yrs old, and before I had to go on

Medical leave I was a nurse, then went on to be a Physician assistant, I did not

get to enjoy being a PA for very long before I had to go on leave. I know what

you are thinking, how did you get out of J, my parents never used my

first name growing up its Jackie. I live in Beebe, Arkansas. I have one son who

is 18 yr old, and a freshman at Arkansas State University, he has been wonderful

through this ordeal. I have a wonderful support team, a best friend who should

be a Saint, and my Mom who takes me to appts when I cannot drive. My team of

Drs. are great but, unfortunately I leave them confused quite a bit. And it will

be wonderful to chat with people who actually have the disease. I have been told

that no 2 cases are alike, and that it can be a process of elimination to find a

good combo of meds. Are there very many people on pain medication? I hate pain

meds, but

my rheumatologist insists I take something and not wait until I am hurting so

bad I can't stand it, she said by then it is harder to get relief. I am unable

to take anti-inflammatory meds now that my stomach has been removed, bummer. I

have cried, screamed and punched my son's punching bag to take out my

frustration, but that was not a good idea, the next morning my hands let me know

" Don't do that again " . Any suggestions on exercise would be great, I have done

Tai Chi in the past, that has been put on hold until we can get control of the

current situation. Thanks for welcoming me into your group, I am anxious to get

to know everyone.

Subject: RE: Newbie

To: stillsdisease

Date: Sunday, November 30, 2008, 11:20 PM

Hello, my name is Elly and I am the greeter for our and now your group.I am so

sorry you are so sick, but I promise you, you will feel at home here in no time

at all.Everyone here has had an experience very similar yet different from

everyone else.I am not sure what your name is or if you are female or mail?I am

guessing your name might be /Jim,please let us know in order to keep the

posts to you correct.We are a growing but very close group which we consider a

second family.So come on in and have a seat and put your feet up and rest a

while.Do you have family? If so tell them we would welcome their imput.You can

write if you feel like venting,this disease can make you frustrated sad,crazy

and just plain confused,but we are all here to help each other.By the way,where

do you live,state,country etc.I hope your new meds will help you and I would

love to tell you about it,but I have not been on it,I'm sure someone will have

some knowledge of it.Good

Luck and welcome home

Elly

[Guest guest]

Hey Elly,

My name is and I am female,and 42 yrs old, and before I had to go on

Medical leave I was a nurse, then went on to be a Physician assistant, I did not

get to enjoy being a PA for very long before I had to go on leave. I know what

you are thinking, how did you get out of J, my parents never used my

first name growing up its Jackie. I live in Beebe, Arkansas. I have one son who

is 18 yr old, and a freshman at Arkansas State University, he has been wonderful

through this ordeal. I have a wonderful support team, a best friend who should

be a Saint, and my Mom who takes me to appts when I cannot drive. My team of

Drs. are great but, unfortunately I leave them confused quite a bit. And it will

be wonderful to chat with people who actually have the disease. I have been told

that no 2 cases are alike, and that it can be a process of elimination to find a

good combo of meds. Are there very many people on pain medication? I hate pain

meds, but

my rheumatologist insists I take something and not wait until I am hurting so

bad I can't stand it, she said by then it is harder to get relief. I am unable

to take anti-inflammatory meds now that my stomach has been removed, bummer. I

have cried, screamed and punched my son's punching bag to take out my

frustration, but that was not a good idea, the next morning my hands let me know

" Don't do that again " . Any suggestions on exercise would be great, I have done

Tai Chi in the past, that has been put on hold until we can get control of the

current situation. Thanks for welcoming me into your group, I am anxious to get

to know everyone.

Subject: RE: Newbie

To: stillsdisease

Date: Sunday, November 30, 2008, 11:20 PM

Hello, my name is Elly and I am the greeter for our and now your group.I am so

sorry you are so sick, but I promise you, you will feel at home here in no time

at all.Everyone here has had an experience very similar yet different from

everyone else.I am not sure what your name is or if you are female or mail?I am

guessing your name might be /Jim,please let us know in order to keep the

posts to you correct.We are a growing but very close group which we consider a

second family.So come on in and have a seat and put your feet up and rest a

while.Do you have family? If so tell them we would welcome their imput.You can

write if you feel like venting,this disease can make you frustrated sad,crazy

and just plain confused,but we are all here to help each other.By the way,where

do you live,state,country etc.I hope your new meds will help you and I would

love to tell you about it,but I have not been on it,I'm sure someone will have

some knowledge of it.Good

Luck and welcome home

Elly

[Guest guest]

Thanks Sue, glad to be a member. I just recently have gotten really able to

start researching the web for answers, I just have not felt like it. I am sure

you know how it is, tons of Drs. appointments, then the days that you just can't

do anything. But, you are right about my best friend, she is the one who gives

me a kick in the pants, we were always very active before all of this, our sons

are best friends, we go to church together, and many other things. She calls

daily or every other day(she is afraid she will wake me if I am taking a nap)

she will call and say I am coming to get you and I say I really don't feel like

it, she says you can lay on my couch just as well as yours. She has been to

every surgery and is at any hospital stays. But it will be nice to have others

to remind me with a kick in the pants. I have been asking everyone who emails

where they live

 

Lots of hugs

From: <jmreed0410yahoo (DOT) com>

Subject: Re: RE: Newbie

To: Stillsdisease@ yahoogroups. com

Date: Sunday, November 30, 2008, 11:50 PM

Hey Elly,

My name is and I am female,and 42 yrs old,

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[Guest guest]

Thanks Sue, glad to be a member. I just recently have gotten really able to

start researching the web for answers, I just have not felt like it. I am sure

you know how it is, tons of Drs. appointments, then the days that you just can't

do anything. But, you are right about my best friend, she is the one who gives

me a kick in the pants, we were always very active before all of this, our sons

are best friends, we go to church together, and many other things. She calls

daily or every other day(she is afraid she will wake me if I am taking a nap)

she will call and say I am coming to get you and I say I really don't feel like

it, she says you can lay on my couch just as well as yours. She has been to

every surgery and is at any hospital stays. But it will be nice to have others

to remind me with a kick in the pants. I have been asking everyone who emails

where they live

 

Lots of hugs

From: <jmreed0410yahoo (DOT) com>

Subject: Re: RE: Newbie

To: Stillsdisease@ yahoogroups. com

Date: Sunday, November 30, 2008, 11:50 PM

Hey Elly,

My name is and I am female,and 42 yrs old,

MARKETPLACE

From kitchen basics to easy recipes - join the Group from Kraft Foods

Change settings via the Web (Yahoo! ID required)

Change settings via email: Switch delivery to Daily Digest | Switch format to

Traditional

Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe

Recent Activity

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Yahoo! Health

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Meditation and

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A Yahoo! Group

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Y! Groups blog

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to stay informed

on Groups news!

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[Guest guest]

,   I am 46 yrs with a 22 yr old daughter who lives 3 1/2 hours away in

South Carolina.  I live in Pinehurst, NC, where my husband golfs when he's not

working and I foster kittens, when I'm well enough.  I currently have three 3

week old kittens I am bottle feeding and two 11 wk old kittens getting over

ringworm.  Then they will be ready for adoption.  I have 4 cats of my own.  My

husband suffers! LOL.  But it keeps me sane and off the streets!  Besides, he

has his golf, which I don't do.

 

I use to have a friend who sounds so much like your best friend.  Then she had

to move to Florida and then I moved to Pinehurst.  Most of my neighbors are in

their 70's and 80's which make for great medical care around here, but not so

much for making friends that can help!

Well, I've got to feed the babies and get my self to bed.  Then they need to be

fed again in about 5 hours.  Good thing I don't sleep through the night anyways!

Hugs,

Sue

Subject: Re: RE: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 4:16 AM

Thanks Sue, glad to be a member. I

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[Guest guest]

,   I am 46 yrs with a 22 yr old daughter who lives 3 1/2 hours away in

South Carolina.  I live in Pinehurst, NC, where my husband golfs when he's not

working and I foster kittens, when I'm well enough.  I currently have three 3

week old kittens I am bottle feeding and two 11 wk old kittens getting over

ringworm.  Then they will be ready for adoption.  I have 4 cats of my own.  My

husband suffers! LOL.  But it keeps me sane and off the streets!  Besides, he

has his golf, which I don't do.

 

I use to have a friend who sounds so much like your best friend.  Then she had

to move to Florida and then I moved to Pinehurst.  Most of my neighbors are in

their 70's and 80's which make for great medical care around here, but not so

much for making friends that can help!

Well, I've got to feed the babies and get my self to bed.  Then they need to be

fed again in about 5 hours.  Good thing I don't sleep through the night anyways!

Hugs,

Sue

Subject: Re: RE: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 4:16 AM

Thanks Sue, glad to be a member. I

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[Guest guest]

Thanks for letting me join. Cytoxan is a chemo drug used to fight

lymphoma, has been used some in lupus and in rheumatoid arthritis. We are going

to try to kill two things with one stone. I had biopsies of the lymph nodes in

my neck and a place on the under side of my tongue 2 weeks ago, I didn't know

you could sew up a tongue, it hurt, and for anyone who ever has to have that

part done, don't if at all possible. Anyway, my biopsies in my neck showed a

type of B-cell that were abnormal, so we are trying the Cytoxan as sort of a

preventative for that and it is being used as an experimental drug for Still's

cases that are not responding to other treatment. Only bad thing is the dose is

almost at a therapeutic level for the lymphoma prevention, so that means hair

loss and nausea, and all those good things. I have a nickname at the oncology

office, it's the energizer bunny, I just keep going and going. Where do you

live? I like asking where people

are, it gives me ideas for travel plans. Our family goes somewhere every year

to explore different states, and there history. My son and I are big history

buffs, so we research possible places to go to, we have been everywhere on the

East coast, and are working on the midwest now. We missed last year and this

year because of my illness, so we have got some time to make up.. My son's goal

is to travel the orient, he teaches Martial arts, he just got his got his 4th

black belt in his 4th different type of martial arts. That would be his ultimate

trip. We are a family of fighters, never give up, my son was diagnosed with

Juvenille diabetes when he was 12, he refuses to let that slow him down.

 

Later

Hugs!!!

Subject: RE: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 2:03 AM

Hi and welcome. My nickname here is and I was diagnosed 31

years ago at the age of 19. My Still's is now in remission. I love this

family here and wouldn't trade them for anything in the world.

I haven't heard of the medication you're speaking of but the best of luck

when trying it. I hope it will be your magic.

Again welcome and we look forward to being your friends.

_____

On Behalf Of jmreed0410

Subject: Newbie

HI everyone, I am newly dx with Stills. I have been researching for

info on Still's, any help would be appreciated if the Cytoxan does

not work its off to the Mayo clinic.

____________ _________ _________ _________ _________ _________ _

Easy-to-use, advanced features, flexible phone systems. Click here for more

info.

http://thirdpartyof fers.netzero. net/TGL2241/ fc/PnY6ryAzrQZv8 MKNqUsz1cdkQBfzw

zaJQLpUidfJDgHFE 6ve0zL22/

[Guest guest]

Thanks for letting me join. Cytoxan is a chemo drug used to fight

lymphoma, has been used some in lupus and in rheumatoid arthritis. We are going

to try to kill two things with one stone. I had biopsies of the lymph nodes in

my neck and a place on the under side of my tongue 2 weeks ago, I didn't know

you could sew up a tongue, it hurt, and for anyone who ever has to have that

part done, don't if at all possible. Anyway, my biopsies in my neck showed a

type of B-cell that were abnormal, so we are trying the Cytoxan as sort of a

preventative for that and it is being used as an experimental drug for Still's

cases that are not responding to other treatment. Only bad thing is the dose is

almost at a therapeutic level for the lymphoma prevention, so that means hair

loss and nausea, and all those good things. I have a nickname at the oncology

office, it's the energizer bunny, I just keep going and going. Where do you

live? I like asking where people

are, it gives me ideas for travel plans. Our family goes somewhere every year

to explore different states, and there history. My son and I are big history

buffs, so we research possible places to go to, we have been everywhere on the

East coast, and are working on the midwest now. We missed last year and this

year because of my illness, so we have got some time to make up.. My son's goal

is to travel the orient, he teaches Martial arts, he just got his got his 4th

black belt in his 4th different type of martial arts. That would be his ultimate

trip. We are a family of fighters, never give up, my son was diagnosed with

Juvenille diabetes when he was 12, he refuses to let that slow him down.

 

Later

Hugs!!!

Subject: RE: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 2:03 AM

Hi and welcome. My nickname here is and I was diagnosed 31

years ago at the age of 19. My Still's is now in remission. I love this

family here and wouldn't trade them for anything in the world.

I haven't heard of the medication you're speaking of but the best of luck

when trying it. I hope it will be your magic.

Again welcome and we look forward to being your friends.

_____

On Behalf Of jmreed0410

Subject: Newbie

HI everyone, I am newly dx with Stills. I have been researching for

info on Still's, any help would be appreciated if the Cytoxan does

not work its off to the Mayo clinic.

____________ _________ _________ _________ _________ _________ _

Easy-to-use, advanced features, flexible phone systems. Click here for more

info.

http://thirdpartyof fers.netzero. net/TGL2241/ fc/PnY6ryAzrQZv8 MKNqUsz1cdkQBfzw

zaJQLpUidfJDgHFE 6ve0zL22/

[Guest guest]

Thanks for letting me join. Cytoxan is a chemo drug used to fight

lymphoma, has been used some in lupus and in rheumatoid arthritis. We are going

to try to kill two things with one stone. I had biopsies of the lymph nodes in

my neck and a place on the under side of my tongue 2 weeks ago, I didn't know

you could sew up a tongue, it hurt, and for anyone who ever has to have that

part done, don't if at all possible. Anyway, my biopsies in my neck showed a

type of B-cell that were abnormal, so we are trying the Cytoxan as sort of a

preventative for that and it is being used as an experimental drug for Still's

cases that are not responding to other treatment. Only bad thing is the dose is

almost at a therapeutic level for the lymphoma prevention, so that means hair

loss and nausea, and all those good things. I have a nickname at the oncology

office, it's the energizer bunny, I just keep going and going. Where do you

live? I like asking where people

are, it gives me ideas for travel plans. Our family goes somewhere every year

to explore different states, and there history. My son and I are big history

buffs, so we research possible places to go to, we have been everywhere on the

East coast, and are working on the midwest now. We missed last year and this

year because of my illness, so we have got some time to make up.. My son's goal

is to travel the orient, he teaches Martial arts, he just got his got his 4th

black belt in his 4th different type of martial arts. That would be his ultimate

trip. We are a family of fighters, never give up, my son was diagnosed with

Juvenille diabetes when he was 12, he refuses to let that slow him down.

 

Later

Hugs!!!

Subject: RE: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 2:03 AM

Hi and welcome. My nickname here is and I was diagnosed 31

years ago at the age of 19. My Still's is now in remission. I love this

family here and wouldn't trade them for anything in the world.

I haven't heard of the medication you're speaking of but the best of luck

when trying it. I hope it will be your magic.

Again welcome and we look forward to being your friends.

_____

On Behalf Of jmreed0410

Subject: Newbie

HI everyone, I am newly dx with Stills. I have been researching for

info on Still's, any help would be appreciated if the Cytoxan does

not work its off to the Mayo clinic.

____________ _________ _________ _________ _________ _________ _

Easy-to-use, advanced features, flexible phone systems. Click here for more

info.

http://thirdpartyof fers.netzero. net/TGL2241/ fc/PnY6ryAzrQZv8 MKNqUsz1cdkQBfzw

zaJQLpUidfJDgHFE 6ve0zL22/

[Guest guest]

Is your daughter married? I posted a reply to about why I ask where you

live, our family takes a big vacation every year, and my son and I are big

history buffs, so we research our ideas of places to go. I love animals too!!

Currently I have a Jack Terrier who is wonderful, my son got her for me

when I first started having surgeries, and she is a wonderful companion, when I

don't feel good she comes and curls up beside me, when I am feeling well enough

she loves to go on walks, somehow she senses if I get tired and she pulls on her

leash back towards the house. My son is studying Criminal Justice in college and

we are fixing to add to our pet population, he is getting a German shepard puppy

to do drug detection, bomb detection, and search & rescue. Hopefully you kind

find another friend to fill the void of your other friend having to move. Have a

good nights rest, I do the same thing about sleeping, I don't sleep through the

night either.

 

Hugs!!!

From: <jmreed0410yahoo (DOT) com>

Subject: Re: RE: Newbie

To: Stillsdisease@ yahoogroups. com

Date: Monday, December 1, 2008, 4:16 AM

Thanks Sue, glad to be a member. I

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[Guest guest]

Is your daughter married? I posted a reply to about why I ask where you

live, our family takes a big vacation every year, and my son and I are big

history buffs, so we research our ideas of places to go. I love animals too!!

Currently I have a Jack Terrier who is wonderful, my son got her for me

when I first started having surgeries, and she is a wonderful companion, when I

don't feel good she comes and curls up beside me, when I am feeling well enough

she loves to go on walks, somehow she senses if I get tired and she pulls on her

leash back towards the house. My son is studying Criminal Justice in college and

we are fixing to add to our pet population, he is getting a German shepard puppy

to do drug detection, bomb detection, and search & rescue. Hopefully you kind

find another friend to fill the void of your other friend having to move. Have a

good nights rest, I do the same thing about sleeping, I don't sleep through the

night either.

 

Hugs!!!

From: <jmreed0410yahoo (DOT) com>

Subject: Re: RE: Newbie

To: Stillsdisease@ yahoogroups. com

Date: Monday, December 1, 2008, 4:16 AM

Thanks Sue, glad to be a member. I

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A Yahoo! Group

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....

[Guest guest]

Hi

Welcome to the group. My son was recently diagnosed with Stills (he is 32) and

I joined the group so I can be a support to him. (He isn't ready to join

yet)...

Anyway....I just want to say that this group is really a group of experts. They

have experienced the disease first-hand and have valuable insight. I don't know

who started the group...but it has made a world of difference to all the people

who are affected by this crazy disease.

Take care and again, welcome.

Re: RE: Newbie

[Guest guest]

Hi

Welcome to the group. My son was recently diagnosed with Stills (he is 32) and

I joined the group so I can be a support to him. (He isn't ready to join

yet)...

Anyway....I just want to say that this group is really a group of experts. They

have experienced the disease first-hand and have valuable insight. I don't know

who started the group...but it has made a world of difference to all the people

who are affected by this crazy disease.

Take care and again, welcome.

Re: RE: Newbie

[Guest guest]

Hi

I am Liz

I live in NJ about 7 miles from Philadelphia

I am a hodge podge of rheumatological complaints now, but in 1972 1981 and

1990 I had 100% Stills with all the classic symptoms. The first episode lasted

about 9 months. The first 4 months were the worst. The other flares I was

also ill about8 months. Not as severely as the first time.

I am reading you are an energizer!! Yeah Send me some, I am not good with

energy. I am 52 and sometimes feel 92.

Ok

I am positive tho and keep on going.

Good luck with your treatment.

Congrats to your son on those Belts!! Wow Wonderful!!

Hugs

Your friend

Liz

stown NJ

**************Life should be easier. So should your homepage. Try the NEW

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[Guest guest]

Hi

I am Liz

I live in NJ about 7 miles from Philadelphia

I am a hodge podge of rheumatological complaints now, but in 1972 1981 and

1990 I had 100% Stills with all the classic symptoms. The first episode lasted

about 9 months. The first 4 months were the worst. The other flares I was

also ill about8 months. Not as severely as the first time.

I am reading you are an energizer!! Yeah Send me some, I am not good with

energy. I am 52 and sometimes feel 92.

Ok

I am positive tho and keep on going.

Good luck with your treatment.

Congrats to your son on those Belts!! Wow Wonderful!!

Hugs

Your friend

Liz

stown NJ

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002)

[Guest guest]

Hi

I am Liz

I live in NJ about 7 miles from Philadelphia

I am a hodge podge of rheumatological complaints now, but in 1972 1981 and

1990 I had 100% Stills with all the classic symptoms. The first episode lasted

about 9 months. The first 4 months were the worst. The other flares I was

also ill about8 months. Not as severely as the first time.

I am reading you are an energizer!! Yeah Send me some, I am not good with

energy. I am 52 and sometimes feel 92.

Ok

I am positive tho and keep on going.

Good luck with your treatment.

Congrats to your son on those Belts!! Wow Wonderful!!

Hugs

Your friend

Liz

stown NJ

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002)

[Guest guest]

Welcome as a new member, I am sorry but I am not sure what your name is but

hello anyway.

You have really been attacked by Stills, I am afraid I cannot be of much

help but I hope that the IV cytoxan is going to be the one to make a

difference. If you need to talk or anything that helps please feel free to

unload.

Best Wishes

Joan U.K.

[Guest guest]

Thanks Joan, my name is , I am 42 yrs old, and have one son who is 18yrs

old.Occasionally there is a need to unload, at some point I will probably bend

your ear. I will hopefully find out at tomorrow's Drs. visit what we are going

to do.

 

Lots of hugs

Subject: RE: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 11:43 AM

Welcome as a new member, I am sorry but I am not sure what your name is but

hello anyway.

You have really been attacked by Stills, I am afraid I cannot be of much

help but I hope that the IV cytoxan is going to be the one to make a

difference. If you need to talk or anything that helps please feel free to

unload.

Best Wishes

Joan U.K.

[Guest guest]

Thanks Joan, my name is , I am 42 yrs old, and have one son who is 18yrs

old.Occasionally there is a need to unload, at some point I will probably bend

your ear. I will hopefully find out at tomorrow's Drs. visit what we are going

to do.

 

Lots of hugs

Subject: RE: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 11:43 AM

Welcome as a new member, I am sorry but I am not sure what your name is but

hello anyway.

You have really been attacked by Stills, I am afraid I cannot be of much

help but I hope that the IV cytoxan is going to be the one to make a

difference. If you need to talk or anything that helps please feel free to

unload.

Best Wishes

Joan U.K.

[Guest guest]

Hey Liz,

 

Thanks for the e-mail, its all about how you look at things. Keep the postive

attitude and it makes the days easier. I know there are days you just want to

curl and go hide believe me I have had those, but then you remember your

children and friends and your family and think I don't want them to see me give

up. I forgot to mention that when I was 26 years old I had much the same problem

but not as bad as I have now, but I was hospitalized with the fever, high WBC,

and goofy lab. It only lasted  about 6 weeks and went away. I was left

undiagnosed at the time and my dx was fever of unknown origin. My physicians now

are trying to get a hold of those records, they believe its when the Still's

probably started. They say it probably smoldered over the years and then had a

really big blow up. They wanted to see if there is anything they can use for

future use to help other patients. Well I got to get moving this morning its 28

degrees here and no one wants to

get up this morning.

 

Lots of Hugs!!!

Subject: Re: Newbie

To: Stillsdisease

Date: Monday, December 1, 2008, 1:05 PM

Hi

I am Liz

I live in NJ about 7 miles from Philadelphia

I am a hodge podge of rheumatological complaints now, but in 1972 1981 and

1990 I had 100% Stills with all the classic symptoms. The first episode lasted

about 9 months. The first 4 months were the worst. The other flares I was

also ill about8 months. Not as severely as the first time.

I am reading you are an energizer!! Yeah Send me some, I am not good with

energy. I am 52 and sometimes feel 92.

Ok

I am positive tho and keep on going.

Good luck with your treatment.

Congrats to your son on those Belts!! Wow Wonderful!!

Hugs

Your friend

Liz

stown NJ

************ **Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol. com/?optin= new-dp & icid= aolcom40vanity & ncid=emlcntaolco

m00000002)