Fw: OCD Questionnaire for parents

[Guest guest]

Mitzi has recently returned to the OCD-L and posted a request for

individuals to fillout her questionnaire with the answers to be features in

a book on " Helping " childern and teens with OCD that she is wriiting

The questionnaire which follows appears to be one of information gathering.:

a survey. As it is now constructed, it appears to be just the accumulation

of many questions I have seen on other questionnaires.

Personally, i see it as a new resource to document OCd in our family

[including myself], and plan to use it to that end at the least.

Re: OCD Questionnaire for parents

>>There are nearly 80 families subscribed to the email list.

>>Would you like me to post your request there ? Or perhaps the

questionnaire

>>itself.

>

>Thanks -- I would very much like to post my questionnaire to your list. I

appreciate your help :-) Please remind folks to send their completed

questionnaires directly to me rather than to the list, though (unless they

would also like to discuss them there, which is fine as long as they also

send them to me) -- Mitzi Waltz

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>OCD Questionnaire July 3, 1999

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>Dear patients and parents:

>Thank you for offering to help me with my research. My book has a working

title of _Obsessive-Compulsive Disorder: A Guide to Helping Children and

Teens_. It will be published in Spring 2000 by O¹Reilly & Associates as part

of its Patient-Centered Guides series. This is my third book for this

series. For more information about O¹Reilly¹s Patient-Centered Guides, see

http://www.patientcenters.com/

>I¹m sending these questions to many teenagers with OCD who have expressed

interest, and to the parents of younger children with OCD. I will quote from

your answers in my book. I truly appreciate your insight, and I know that

reading about your experiences will make this a better book for others who

need information and help. This is by no means a scientific survey, but our

experiences and opinions count a _lot_. We are the people who have

experienced these disorders in ourselves or our children first-hand.

>Please feel free to make your answers as long as you wish. If there are

questions you don¹t want to answer, that¹s OK. If there are questions I

haven¹t asked that you think should be addressed, tell me more. You can copy

and distribute this questionnaire to other people you know who might have

something valuable to say. -- Mitzi Waltz

>

>Please return your questionnaire via e-mail to: infobahn@...

>or via mail to: Mitzi Waltz, 75 NE Going St., Portland OR 97211

>

>_Questions for Teens With OCD/Parents of Children With OCD_

>

>First name:

>If you are a parent, child¹s first name:

>May I use the information above in the book? Please put an ³X² next to your

answer:

> Yes

> No [if you mark ³No,² I will use a

pseudonym]

>

>Permission is granted to O¹Reilly & Associates, Inc. for non-exclusive

world rights in all languages, for use of the material indicated below, in

the book by Mitzi Waltz titled _Obsessive-Compulsive Disorder_ and for any

subsidiary use, promotional use, future revisions, and future editions of

the same. Please put an ³X² next to your answer:

> Yes

> No

>

>1. How old are you/how old is your child with an OCD diagnosis?

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>2. How old were you/your child when the diagnosis was first made?

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>3. Who made the diagnosis (neurologist, psychiatrist, etc.)?

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>4. What are your/your child¹s primary OCD behaviors (counting, checking,

touching, washing, over-thinking, etc.)?

>

>5. If you/your child have additional medical or psychiatric diagnoses,

please list them.

>

>6. Have you/your child ever had tics (repetitive compulsive movements, such

as eye-blinking or saying words for no particular reason), with or without a

diagnosis of a tic disorder or Tourette¹s Syndrome?

>

>7. Have you/your child ever had difficulties with extreme agitation and

anger, as in a temper tantrum or rage? If so, does this seem to be connected

to OCD in any way (such as rage occurring when a compulsive behavior is

interrupted)?

>

>8. Have you/your child ever had a problem with strep infection (strep

throat, frequent ear infections) or other infectious disease? Have you

noticed any change in symptoms that seems to be connected with this?

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>9. Were early questions about your/your child¹s behavior shrugged off? Were

you/your child ever misdiagnosed with something else?

>

>10. What medications have you/your child tried, and with what results?

(example: Paxil, helped somewhat but discontinued due to dry mouth)

>

>11. Have you/your child had adverse reactions to medications? What

happened, and do you know why? (I hope that answers to this question can

help others avoid problems.)

>

>12. Have you/your child tried herbal remedies, naturopathic remedies,

homeopathic medicines, a special diet, or vitamins? If so, what results did

you have? (example: St. ¹s Wort, did not seem to help)

>

>13. Do you/your child see a therapist? If so, what approach does this

therapist use (i.e., cognitive-behavioral therapy, traditional

psychoanalysis, etc.), and has this helped in any way?

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>14. What has your experience been with family therapy, if any?

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>15. Have you/your child ever been hospitalized due to OCD or related

behaviors? What was the situation, and how did it work out?

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>16. Can you recommend‹or strongly advise others against‹a particular

hospital, clinic, residential facility, or school/school district? Please

list and explain.

>

>17. Do you have insurance coverage? If not, how are you getting by??? If

so, have you had problems in getting general medical care, assessments, or

direct services?

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>18. If you/your child attends or attended school, what type(s) of school?

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>19. Have particular education methods, teaching styles, or school settings

worked particularly well or poorly with you/your child? Which ones? How have

you coped with the academic and social pressures of school?

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>20. How has OCD (the diagnosis, behaviors, cost of medical careŠ) affected

your relationships with others (parents, siblings, friends, extended

family)?

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>21. Have you found community resources that have been especially helpful or

enjoyable for you/your child? (example: Scouting, religious community,

sports program, etc.)

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>22. What part of this disorder do you think has been most stressful and

difficult for you/your child to handle?

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>23. Where do you turn most often for personal support?

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>24. When you think of yourself/your child as an adult, what are your hopes?

Your fears? (If your child is already an adult, how is he or she faring in

the adult world?)

>

>25. If I could wave a magic wand and put you in charge of helping people

like yourself ‹ with a generous budget and the best staff, of course ‹ what

would you do?

>

>26. Where do you live? (I will not use the name of your city in the book,

but I hope that answers to this question will show any differences in

services and experiences that occur in various states, regions, and

countries)

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>Thank you for your time!

>

>Mitzi Waltz * Author and Editor * http://www.teleport.com/~infobahn

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