Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 , I'm not sure how old your daughter is. You could discover the areas of fine motor that she is behind in, buttons, shoe tying, life skills: tooth brushing, hair combing, and request the school O.T. (occupational therapist) to test your daughter due to your concerns. Request this in writing if you have a problematic school district. After they finish testing they will determine how much, if any, OT your daughter needs. This can be the tricky part, usually, but not always, districts err on the side of less is more. IF they test and don't see a need you can have her tested privately. If a need for OT is found by an OT outside the district, the district will be required to pay for that evaluation. The results of the testing usually determines the amount of therapy. For example, two thirty minute sessions a week. Most OT programs will include Sensory Integration which is very helpful as well. I'd be happy to answer any other questions. Good luck. Jill G. wrote: > I was talking to a friend who is a PT. She told me to > ask for an occupational therapist for my daughter as > services for autism. It's suppose to help with life > skills. Can anyone help me where and whom do I ask > for this service. Do I go to the pediatrician and > then request an IEP? Please help. > > __________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Jonah had that problem also Tort can cause sucking and swallowing issues, as it can affect all of those oral muscles. Craniosacral therapy helped this for him. Dara > > has anyone elses little one had eating problems because of the > plagio and tort. when my daughter would drink her bottle formula > would just come out of both sides of her mouth. weve been going to > ot and i have had to thicken it up. also because of the tort is > anyone elses little one kind of raspy sounding. thanks....we get > scanned for the star band tomorrow. yeah!!!!!!!!!!!!!!!!!!!!!!! > angela haiden > el cajon ca > tort/plagio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 what is craniosacaral therapy? thanks angela/ el cajon > > > > has anyone elses little one had eating problems because of the > > plagio and tort. when my daughter would drink her bottle formula > > would just come out of both sides of her mouth. weve been going to > > ot and i have had to thicken it up. also because of the tort is > > anyone elses little one kind of raspy sounding. thanks....we get > > scanned for the star band tomorrow. yeah!!!!!!!!!!!!!!!!!!!!!!! > > angela haiden > > el cajon ca > > tort/plagio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 No but my son throws up all the time . Now that has me thinking.darabeth2003 <dalewine@...> wrote: Jonah had that problem alsoTort can cause sucking and swallowing issues, as it can affect all of those oral muscles. Craniosacral therapy helped this for him.Dara> > has anyone elses little one had eating problems because of the > plagio and tort. when my daughter would drink her bottle formula > would just come out of both sides of her mouth. weve been going to > ot and i have had to thicken it up. also because of the tort is > anyone elses little one kind of raspy sounding. thanks....we get > scanned for the star band tomorrow. yeah!!!!!!!!!!!!!!!!!!!!!!!> angela haiden> el cajon ca> tort/plagioFor more plagio info, go to www.plagiocephaly.org/support Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Good luck with the scanning today Sandy Willow's Mom > > has anyone elses little one had eating problems because of the > plagio and tort. when my daughter would drink her bottle formula > would just come out of both sides of her mouth. weve been going to > ot and i have had to thicken it up. also because of the tort is > anyone elses little one kind of raspy sounding. thanks....we get > scanned for the star band tomorrow. yeah!!!!!!!!!!!!!!!!!!!!!!! > angela haiden > el cajon ca > tort/plagio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 My 13 year old son has started occupational therapy for his hands. I am not convinced it is helping. I thought therapy was to show you things to do at home, but his just seems like an ongoing thing that will never stop. It just seems like I am paying $80/hr for someone to play ping-pong with my son. Yes he does other things also in therapy. The dr also asked them to find a device to help him with his handwriting. He mentioned a smart pen, but said maybe the therapy people would know of something more appropriate. They say they can't find any device that would be helpful and have never heard of a smart pen. I did some research and found a 'ring pen'. I was just wondering if anyone can give me any insight on whether therapy is working for you, any device you may know of that helps with handwriting (those big spongy grips for pens don't help) and maybe what questions I need to direct to the therapy dept. Jerlyn ***Jerlyn, ask for a physical therapist to help work with your son and help him with his hands. They are much more knowlegeable about CMT, what works, etc. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Jerlyn, Talk to your sone school and have them put in an IEP that he needs to use a laptop and the school will have to provide him with one. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 Jerlyn, I think you need to ask your OT some questions.what their expectations are for the therapy, and if they could direct some therapy time to his writing needs. Gretchen's response about PT knowing more about CMT than an OT, I feel is not very accurate. I am not sure what that response is based on. As an OT and someone who has CMT, I have found both PTs and OTs who know a lot about CMT. Also, both OTs and PTs who barely know a thing about CMT. In OT, we use purposeful activity to reach therapeutic goals. so an activity like ping-pong might be directed to a variety of goals - all appropriate for a young person with CMT. In PT, they tend to not use purposeful activities and the results tend to be less effective - especially with children. Kids do better when they are engaged in activities that have a purpose.. rather than just doing repetitions of a muscle strengthening activity. Sometimes, PTs and OTs will prescribe a home based treatment program. But that usually is after a period of the therpiast doing a hands on treatment program. If you need a home based program for financial reasons, I would ask the therapist to help you. Fine motor activities, hand strength, dominance, control and strengthening, plus a variety of visual motor activities are all skills that will improve hand writing. Of course, if your son needs adaptive equipment – an OT could work with you on that. Actually, OT's have much more training in the use of adaptive equipment than PT's. I have heard of a few items called `smart pens'. Perhaps you could clarify which one the doctor is referring to. It sounds like your OT needs to give you more information and clarification on the therapeutic reasons for the activities your son is engaged in. I would ask him/ her directly to explain the purpose and goals.. and also to explore adapted writing equipment to help your son. Therapy is an expensive activity these days. I would ask your therapist directly for information and clarification. If per chance this is not the best therapist for your son, feel free to ask for another one. Therapists have different skills and strengths, just like the rest of us. Hope this helps, Vicki Quote Link to comment Share on other sites More sharing options...
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