introduction

[Guest guest]

hi,

when i was a child the doctors told my parents i could never have

kids, my parents never said why.I had three all c-section it was hard

but i did it.

they never me a name of what was wrong with me years later i would know. I was

in my 20's when i started having big problems,i had a car accident. hit from the

back, things were pretty much down hill from there.

they said i had scoliosis side to side on the right. they also said i would be

in a wheel chair because of nerve damage still no name given.

growing up i fall alot my shoes were all worn out on the sides.

9yrs. later car wreck this time head on.

Scoliosis is now to the left side to side lumbar.spina bifida occulta

at S1 arthritis,degenerative joint disease. peroneal motor and sensory

neuropathy. this year my family doctor after 2 heart attacks tells

me, you have CMT.

he put me on some new meds. they worked after all these years. now i'm looking

for information. and i use a cane. i understand most doctors never treated cmt

and infro. is hard to come by.

jeannie