Disibility case tomorrow

[Guest guest]

Hi all,

Just wanted to write and let you all know something. I have a

disibility hearing tomorrow. I have been fighting for over 2 years

for this. Today I talked to my doctor and told him about this group

and what I have learned. I was told I have fibro. several years

back. A few months ago I was told that I have a lot of the

samethings going on that is with CMT. With my daughter having CMT I

stand a good chance of having it and not knowing. This maybe what

has been wrong with me for years and why I am not getting any

better, but worse. ( The doctors have always said they feel like

got the CMT from me/my side of the family.) I just have

never been checked because I was told it was fibro. Now that I have

read on here how many have been told the same thing, I have to

wonder.

So now I need to set up a appointment and have the nerve test done.

If it comes out that I do have CMT then that would explain a lot of

things. Why I have so much pain and no energy.

I got so up set with my lawyer the other day because he said that in

my records the doctors have never found the reason for my lower back

and leg problems. They only say it is from strains or pulls and

from the fibro. Same thing with my leg pain. He said doctors say

you have fibro when they can't find any other reason. He asked me

if I had ever went to mental health and been told that I create my

illness in my head. I got so mad.

After 26 operations for female problems(Endo., Scar tissue, ect.

Years of pain and not being able to do the things I once could, the

depression, not being able to sleep and one failed marriage. He

wants to know if it's in my head??? I wished.

Now I am having real bad pain in my hips, can't hardly get up. Real

bad pains in the joints of my fingers and swelling along with some

of my fingers going numb all the time. Not sure what that is all

about. Plus, my hands shake now. I was told that my hip has

burcitus<---not sure how to spell it. This has been going on for 6

months. I don't fall a lot or anything like that. My balance is not

wat it use to be and if I close my eyes while standing I sway real

bad.

Any way I say all this to ask that you remember me tomorrow and say

a little prayer. Does it sound like I may have CMT too? Even with

knowing what has went through with her CMT, I am not to the

point she is. I am so upset tonight and depressed. I feel like I

am so useless and I am never going to get better. Sorry for this

being so long, I just need to talk to people who understand. It just

really hurts when doctors, lawyers or who ever don't want to beleave

you. They want to say it's in your head or nothing is wrong. When

you know in your heart something is. Thank you for listening.

Janet

[Guest guest]

My prayers are with you for tomorrow, Janet. Hang in there!!

Bobbie