Re: welcome Barb/why I joined

[Guest guest]

Barb,

I joined the group on behalf of my son, who was diagnosed before

Christmas, 04. When he was an infant, I noted a shortened last finger.

At 10, a friend-American doctor noticed that one of his legs was shorter

by 3 cm.

By high school, his schoolmates queried why he walked differently. I

noticed that he was having problems with " pincer grips. " At 16, he had a seizure

and a stroke like attacks diagnosed by Pediatric Neurologist as BMD (a migraine

complication). At the same time, he had micro-feet surgery to correct above

deformity.

Everything went well though I noticed that his lower legs didn't develop enough

muscles. His hands had difficulty opening bottles buttoning his shirt. But

inspite of these, he still is good in " building computers. " Before Christmas

last year, he had his 2nd attack with same signs/symptoms (when he was 16). Now

with the dx., we don't know whether to be happy/sad?? He started to wear braces

which he claims is helping him to walk steadily....A worried, but hopeful

mom!!!!

Tessie