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Re: welcome Butch

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Hi Butch and welcome,

Being a recently diagnosed CMTer I understand your fears. The past few weeks

have been a roller coaster ride of emotions and they seem to not be ending quite

yet. I know they will. As soon as I come to terms with this, get the right

medication and realize that I can still do the things I enjoy. Maybe not as

often or for as long but right now the only thing that slows me down is fatigue.

Unfortunately, pain is a big part of my life at the moment and has been for

about a year. I'm hoping to get some relief with a plantar fascia surgery soon

and a higher dosage of Neurontin. CMT is very scary at first especially when

you don't know what's in store for the future. But I am trying to look at

things as " enjoy today as much as I can " . It doesn't

always work and I too am very scared. I'm trying to remain confident and learn

to take things a little slower. Keep posting and again welcome!

Elaina/NY

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