Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Hi April, the itching is all part of the AIH. It's miserable I know. I mostly itched on my legs when I was first diagnosed about a year ago. I used some benadryl lotion and it helped some. Good luck. in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 a, Margot Thieniemann at Stanford is excellent. We would have wanted her to " treat " our daughter, but she was only available for consultation. She does lead a teen OCD group, and we're hoping our daughter can be part of that. Yes, there would seem to be even less for a 7 year old than for a teen, and there's almost no intensive program for a teen! I'm glad we found the one we did in Kansas. We also feel that County services are to hit and miss. We want to find people who really know what they're doing. Our school district has taken the position that " tutoring " can't be among the services. I wonder if this is any different under the County Mental Health AB 3632. I'd like the County to pay for a psychologist WE find, who has expertise in ERT. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 candidiasis AOA ALL GROUP MEMEBERS i wanna ask some question about citric acid production now a day 1.if we use candida lipolytica Y-1095 and also use syger cane mollasses 2. if we used above thing and additional n-paraffin is used?what effect of productivity of citric acid? 3. if we used above both condition add ferric nitrite ?wat effect of productivity of citric acid? 4.if we used another n-alkane source ?whose sourse we used?which is cheper cost and get optimum citric acid production 5.i ask what is hydrolysed paper to get cellulose?can we used that sourse as n-alkane in optimum production of citric acid ?and maintain pH 5.0 why?????????? i m wait for ur reply i hope u help me --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 I can see both sides of this. I use the online versions all the time as they are so easy to search. I also bought the originals. Regarding the copyright issue, Dr makes it clear in her copyright notice that she gives permission to make copies of her books for non-commerial purposes. Dr. also makes income from seminars but may not be able to do many of those. So I offer thanks to Mr. Willems, but at the same time, urge people to buy the books. Dick > Message: 6 > Date: Tue, 30 Sep 2003 10:37:55 -0700 (PDT) > From: Jan Bolen <jurimed@...> > Subject: Re: Online: The Cure For All Advanced Cancers > > This is Jan Bolen (Tim & Jan Bolen - JuriMed) > > At this point, I need to add my 'two bits.' > > 1. the Dr. Research Association is Amrein (.net, .com) The money he collects goes to him, not to Dr. . > > 2. The sale of the books are virtually Dr. 's only source of income to be able to defend herself. You are taking that away by publishing her books online. Even though I think you are doing it to help people, you should cease and desist from publishing her books online. > > Jan Bolen > > daan <daan.sales@...> wrote: > > >Sorry Niels, but that doesn't help the dr association raising money > >for their research. Someone would do this any way, but putting whole books > >on the net is simply copyright fraud. Maybe you should ask dr for a > >license agreement. > > > >I have added an electronic version of the book > > " The Cure For All Advanced Cancers " to my homepage: > >www.nielswillems.org > > > >Other books on my homepage are: > > " The Cure for all Diseases " , > > " The Cure for all Cancers (1998 edition) " and > > " Syncrometer Science Laboratory Manual " > > > >All books are in Word'97 format. > >(There is a free Word viewer available for Windows) > > > >Enjoy! > > > >Niels Willems, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 In a message dated 12/28/04 6:35:06 AM Mountain Standard Time, SSRI medications writes: > Of course, I never felt rested and > complained that the fatigue was worse. Doctor's solution was to > increase the dosage. Dear Lynn: Welcome to the group. I am so happy that we have provided you with information and solace about the problems you experienced with these evil drugs. What never ceases to amaze me is that when a person suffers side effects from the medication, as you did and as I did too, that their answer is to up the dose, or even double the dose as they did in my case. Can you imagine taking, say, penicillin, having a series of side effects, and then the doctor telling you to actually DOUBLEyour dose instead of getting the hell off the drug asap??? Well, that's the analogy I always use in railing against the ineptitude and stupidity of these doctors when they prescribe psychiatric drugs. The side effects are a warning, no different than if that pill were an antibiotic or something similar. The same goes for food -- if you were to eat something that made you deathly ill, would you continue to eat it in double the quantities that made you sick??? It's insane what they've done to us and even crazier is their rationale for doing it. There are probably some nutritional things you could do to speed your recovery -- you should check out the group Withdrawal and Recovery which has a high rate of success in helping people such as yourself, and even your husband. Cheers. " Blind Reason " a novel of pharmaceutical intrigue Think your antidepressant is safe? Think again. It's Unsafe At Any Dose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 The logo - its so cute!!!!! 1-888-456-1211 cathy@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 On 12/17/2005 wrote: > 4. Now, put one over the left eye, and one under the right cheekbone > for 5 minutes. > > 5. Put one over the right eye, and one under the left cheekbone for > 5 minutes. Just for clarity's sake (and for the nitwits out there)... When you say 'over the left/right eye', you mean *above*, as in, on the eyebrow, not directly on the eye - right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 located on the forehead above the eyebrow, or on the cheek below the bone. How's that? good question, i would think. bob > > 4. Now, put one over the left eye, and one under the right cheekbone > > for 5 minutes. > > > > 5. Put one over the right eye, and one under the left cheekbone for > > 5 minutes. > > Just for clarity's sake (and for the nitwits out there)... > > When you say 'over the left/right eye', you mean *above*, as in, on the > eyebrow, not directly on the eye - right? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 I don't know if you speaking of someone who you go to, who can schedule a child every hour or if this is a person who comes to your home or to your child's school. I am language therapist who privately tutors children in their schools. I am paid by the parents of these students and I charge $33 an hour. I can fit 3 students in a day only because they all have lunch and different times their teachers will allow them to be pulled out. I have to drive to each and every school, one of my student's schools is 15 miles away. That's almost 30 minutes both ways. Then I have my prep time at home, preparing each lesson for each child individually. I also must pay for all of my own supplies, which are many. In the end, I really don't make that much. If someone assumed I got paid for 8 hours a day, I wouldn't be doing too badly, but $100 a day is far less than any school teacher gets paid, yet I am busy the entire school day either teaching or prepping, just like a school teacher. It's funny how people forget these kinds of things but I've heard them from many of my student's parents. They just have no idea of what all is involved. They think of my time as just that one hour I'm with their child but that hardly comes remotely even close. Karin > From: <PDDTeacher@...> I interview countless numbers of people who are > asking for an astronomical salary to work. One person asked for $35/hour > without knowing what ABA stands for, and no educational background or > hands-on experience with autism. Another asked for $75/hour as a special > educator. If this teacher were to apply to a school district for a > classroom teaching job, she would make somewhere around $40,000 for the > school year.. at the most. To work in my company at the hourly rate of $75, > she would be making $108,000/year. Who can afford to pay that salary? Not > me! Especially since my company charges much less than $75/hour for ABA > services! And... who actually MAKES that salary in this field? If people > ARE making that salary, I think it's a sin. I do not pull that large a > salary and I'm the director of my company for heaven's sake. > > Money is a sensitive topic, and I think that's why it is rarely discussed in > a field that is supposed to focus on helping children live better lives. > However, because the topic seems to be ignored more than discussed, the > rates are growing and growing. At what point will people start taking a > look at what is being charged for a service and put a cap on it? It is > infuriating to think there is such a large price tag attached to receiving > aid for a disabled child. And how must that family feel who has a child > with autism but can't afford what society calls a " qualified " > instructor/consultant to help? How many of those families wonder if the > reason their child didn't recover from autism was because they didn't pay > enough money to get someone who holds a BCBA to help them? > > There are countless families who mortgage their properties two times over, > max out their credit, and borrow money that they can never pay back, to take > a chance on recovering their child(ren). Now some of those kids are > teenagers, still with autism, and I've been witness to a BCBA saying to some > of these families when asked for help " it's too bad you didn't come to me > when your child was younger, because then I would have been able to help > you... but now he's too old " . What must that do to a family unit who is > already financially and emotionally drained? It is unethical and immoral > what is happening to some families, all under the guise of holding a BCBA. > When the BACB decided to form a certification, they did not intend for these > things to occur. They were doing what was needed to be done, which was make > people in this field be accountable for the recommendations they give to > families/schools by demonstrating at least a minimum knowledge-base in the > field. They cannot control whether or not people who hold a BCBA will be > ethical participants in the field of behavior analysis. > > The only solution I foresee is if school administrators and families start > to refuse to pay above a certain dollar amount for services. But how does > one do that? If a school is bound by an IEP and cannot find affordable > programming, they have no choice but to pay the person/company that has > staff availability, regardless of their fees. If a family has a child with > autism and cannot find affordable instructors, they are not going to decide > to get zero help, unless they are financially incapable of paying the > high-priced people. > > If you look at this problem behaviorally, the behavior of charging a high > rate for services has been reinforced by everyone, because the payor finds a > way to pay. So over the course of these past years, as this behavior of > charging high rates has been reinforced, the behavior (rates) has been > continuously rising. How do you eliminate (or at least try and reduce) this > behavior (aka rate)? You do what you always do for an attention-seeking > behavior: place it on extinction. > > Stacie > > > > >From: " rjlabell " <rjlabell@...> > >Reply-autism > >autism > >Subject: Re: Behavior Assessment Letter and Response - > >Feedback please > >Date: Sat, 25 Mar 2006 00:37:11 -0000 > > > >I have to say that there is a part of me that agrees with you about > >others getting their degrees in areas that they really do not have a > >lot of experience in. However, I have only been working with children > >placed along the spectrum for two years now, and I am just someone > >with an undergrad. I feel that I have dedicated my heart and soul to > >these children and I feel that I do have the potential to continue on > >in this area. I apologize if I sound frank but the " kids " looking to > >further their career in autism or BCBA is not an issue. These " kids " > >need to be given a chance. You were at that point in your career also. > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 4 > Date: Sat, 25 Mar 2006 12:22:43 EST > From: LornaBerry@... > Subject: Re: Just The Way He Is > > Wouldnt change my guy either ! > > CB's Granny > > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 5 > Date: Tue, 28 Mar 2006 01:15:39 -0000 > From: " amwysaski " <amwysaski@...> > Subject: Re: Behavior Assessment Letter and Response - Feedback please > > The current/last year requirement for supervision hours is 1000 > hours. The 4 hours a month is face-to-face time with the consultant, > like you stated, but you also have to complete 1000 hours of working > with children, on programs, and everything else needed to become a > consultant. > > > > > > > > > I am not implying that people who are just starting in the field > are not in > > it for the right reasons. I apologize if that's the impression I > gave. > > This is a difficult field to work in, and most would like to think > that the > > people involved in this field are in it to help families, not to > profit off > > others' troubles. I am talking about the people who have gotten > their BCBA, > > haven't worked in the field much if at all, and claim to be autism > experts, > > charging high fees for services. I've been in this field for > quite some > > time now and I still do not make the claim of being an expert in > this field. > > There is always something new to learn, research to study, and > workshops > > to attend. People who represent themselves as knowing all aspects > of > > behavior analysis, especially people fresh out of a college > program > > (regardless of age), are most likely stretching the truth. Then > for these > > people to have the audacity to charge a ridiculous hourly rate for > their > > services borders unethical. > > > > Someone made a comment about not being able to apply for the BCBA > exam until > > an 18-month internship working with kids with autism is > completed. This is > > actually a new standard that the BACB has just put into place. > The > > standards prior to this year have been a 9-month supervision of 4 > hrs/mth. > > This 4 hrs/mth is face-to-face time with a supervisor, but is NOT > spent > > being supervised working with children. It is a 2-hour meeting > twice a > > month to discuss behavioral programming. For obvious reasons, the > BACB has > > made modifications to these standards to include some direct > instruction > > with children on the spectrum via a supervisor. I am sure there > will be > > additional modifications to these standards in the future, as the > BACB > > receives more feedback on how trained people are becoming based on > the > > standards. > > > > Someone else stated that it is not just families who are being > charged these > > crazy rates, but schools as well. You are 100% correct! A school > district > > can end up paying an unmentionably excessiive amount of money for > a private > > consultant (or a company) to help classroom teachers with > behavioral > > strategies for students. Not to mention if a child has a home > component > > that involves an over-priced consultant. > > > > It really is a shame what's been going on in this field when it > comes to > > high-priced services. I interview countless numbers of people who > are > > asking for an astronomical salary to work. One person asked for > $35/hour > > without knowing what ABA stands for, and no educational background > or > > hands-on experience with autism. Another asked for $75/hour as a > special > > educator. If this teacher were to apply to a school district for > a > > classroom teaching job, she would make somewhere around $40,000 > for the > > school year.. at the most. To work in my company at the hourly > rate of $75, > > she would be making $108,000/year. Who can afford to pay that > salary? Not > > me! Especially since my company charges much less than $75/hour > for ABA > > services! And... who actually MAKES that salary in this field? > If people > > ARE making that salary, I think it's a sin. I do not pull that > large a > > salary and I'm the director of my company for heaven's sake. > > > > Money is a sensitive topic, and I think that's why it is rarely > discussed in > > a field that is supposed to focus on helping children live better > lives. > > However, because the topic seems to be ignored more than > discussed, the > > rates are growing and growing. At what point will people start > taking a > > look at what is being charged for a service and put a cap on it? > It is > > infuriating to think there is such a large price tag attached to > receiving > > aid for a disabled child. And how must that family feel who has a > child > > with autism but can't afford what society calls a " qualified " > > instructor/consultant to help? How many of those families wonder > if the > > reason their child didn't recover from autism was because they > didn't pay > > enough money to get someone who holds a BCBA to help them? > > > > There are countless families who mortgage their properties two > times over, > > max out their credit, and borrow money that they can never pay > back, to take > > a chance on recovering their child(ren). Now some of those kids > are > > teenagers, still with autism, and I've been witness to a BCBA > saying to some > > of these families when asked for help " it's too bad you didn't > come to me > > when your child was younger, because then I would have been able > to help > > you... but now he's too old " . What must that do to a family unit > who is > > already financially and emotionally drained? It is unethical and > immoral > > what is happening to some families, all under the guise of holding > a BCBA. > > When the BACB decided to form a certification, they did not intend > for these > > things to occur. They were doing what was needed to be done, > which was make > > people in this field be accountable for the recommendations they > give to > > families/schools by demonstrating at least a minimum knowledge- > base in the > > field. They cannot control whether or not people who hold a BCBA > will be > > ethical participants in the field of behavior analysis. > > > > The only solution I foresee is if school administrators and > families start > > to refuse to pay above a certain dollar amount for services. But > how does > > one do that? If a school is bound by an IEP and cannot find > affordable > > programming, they have no choice but to pay the person/company > that has > > staff availability, regardless of their fees. If a family has a > child with > > autism and cannot find affordable instructors, they are not going > to decide > > to get zero help, unless they are financially incapable of paying > the > > high-priced people. > > > > If you look at this problem behaviorally, the behavior of charging > a high > > rate for services has been reinforced by everyone, because the > payor finds a > > way to pay. So over the course of these past years, as this > behavior of > > charging high rates has been reinforced, the behavior (rates) has > been > > continuously rising. How do you eliminate (or at least try and > reduce) this > > behavior (aka rate)? You do what you always do for an attention- > seeking > > behavior: place it on extinction. > > > > Stacie > > > > > > > > >From: " rjlabell " <rjlabell@...> > > >Reply-autism > > >autism > > >Subject: Re: Behavior Assessment Letter and > Response - > > >Feedback please > > >Date: Sat, 25 Mar 2006 00:37:11 -0000 > > > > > >I have to say that there is a part of me that agrees with you > about > > >others getting their degrees in areas that they really do not > have a > > >lot of experience in. However, I have only been working with > children > > >placed along the spectrum for two years now, and I am just someone > > >with an undergrad. I feel that I have dedicated my heart and > soul to > > >these children and I feel that I do have the potential to > continue on > > >in this area. I apologize if I sound frank but the " kids " > looking to > > >further their career in autism or BCBA is not an issue. > These " kids " > > >need to be given a chance. You were at that point in your career > also. > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 6 > Date: Mon, 27 Mar 2006 18:18:25 EST > From: JRae32566@... > Subject: Re: compulsive eating > > i agree.. mine eats like a puppy too,... boredom and risperdol etc... have > everything locked which is a big drag for everyone..jen > > " I know of nobody who is purely autistic or purely neurotypical. Even God > had some autistic moments, which is why the planets spin. " > --Jerry Newport > > > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 7 > Date: Mon, 27 Mar 2006 17:57:57 EST > From: pkuenstler@... > Subject: Re: Just The Way He Is > > Hi, CB's Granny, I haven't heard from you in a long time. What is going on > with CB? Pat K > > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 8 > Date: Mon, 27 Mar 2006 18:01:25 EST > From: pkuenstler@... > Subject: Re: compulsive eating > > How old is your son? Is he on a medication that causes him to eat like that? > Karac ate like that on Risperdal. Now that he is off of all antipsychotics > he doesn't have an eating problem. Pat K > > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 realalive, Charlie -- > > Hi reallive...I know what you mean about feeling lethargic. It does come with lexapro, and you will experience that for maybe a month. Its important to get yourself out and exercise. Keep your doc imformed. Best to you. > Charlie > > Ditto. I found that getting up from my desk at work and walking around helped, and definitely continuing my daily walks and twice a week at the gym. Hard at first, but it kept we awaking during the first month, when I was also a sleepyhead. -- njg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Hey Sister Survivors. . .FYI/my 2 cents only When I was diagnosed, my menstral cycle slowed down and stopped; but I was at that age . . . due for menopause. I have heard of younger sister survivors who went into early menopause/had no change in their cycle at all/were unable to conceive/and Amy has precious Brent. I have Livka and the others who want to conceive in my prayers and remember. . . Each of us is a statistic to the Specialists; but each of us is an Individual in our Survival. Take care, I have ALL in my prayers. . . " K " " K " " I AIN'T FINISHED YET " !!! Quote Link to comment Share on other sites More sharing options...
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