Re: intro...and PANDAS

[Guest guest]

Hi Eleanor and list, awhile back I said I would post some PANDAS sites. I'm

sorry it's taken this long, here are a few to get started with. Someone

suggested the shared files and I will check out posting these there soon.

I'll post more sites when I get a chance to wade through my bookmarks.

PANDAS sites:

Official PANDAS web page (NIMH)

http://intramural.nimh.nih.gov/research/pdn/web.htm

(current research, recent publications, general information, FAQs)

University of Pittsburgh OCD PANDAS slide show

http://www.wpic.pitt.edu/ocd/riddle/sld001.htm

Mental Health Net

http://mhnet.org/articles/ocd3.htm

(discussion of PEX and IVIG to treat autoimmune OCD)

OC Foundation PANDAS

http://ocfoundation.org/ocf_0001.htm

(overview by Dr. Jenike)

Neurobiological Disorders in Children and Adolescents

http://www.schizophrenia.com/ami/diagnosis/kids.html

(scroll about halfway down for discussion of PANDAS, strep, treatments, and

D8/17 antigen marker)

Kathy R. in Indiana

> From: eleanorbell@...

(snip)

> A neuro told me about PANDAS and I am looking for info on this.

> Tommy was dx w/ADHD in 10/98 (1st grade) after a successful K & PK

> experience. He went on Adderall. It helped him focus & sit still

> but also, in the long run, depressed him. He developed an adversion

> to paper around 1/99. He had an OT (occupational therapy) eval in

> March 1999 w/dx of SID (sensory integration dysfunction). The

> paper adversion was thought to be connected to his tactile defensiveness.

(snip)

> Since the first strep infection we have noticed the following... biting

> of the nails (hand/at times feet),bouncing of a basketball, inability

> to be calm (always wound up). The bouncing of the ball we have let

> slide, attributing to his SID as his body seeks movement & needs

> movement. But after the neuro mentioned PANDAS, are now wondering....

(snip)