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Re: 13 new messages in 8 topics - digest

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in Health, Medicine and Natural Healing 08

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Guest guest

Posted
Posted

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my WNL

in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after reading

your post; I know how overwhelming it can be due to several Sister Survivors

dubbing me Queen of the Side Effects and I became somewhat of a 'Cheerleader'

for the group due to my 'upbeat' attitude in spite of my overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I will

get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

thankx tracey for the advice and terry i thnk its awsome of you to help

this mother with her son's dilema. wow this group is so important to hv

no other place can one vent the way we do here you r all great human

beeings may the creator give all of us the continued stregnth to keep

fighting

aliza yaffa

rochester n.y.

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Posted
Posted

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed

on January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweety@...> wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my WNL

in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after reading

your post; I know how overwhelming it can be due to several Sister Survivors

dubbing me Queen of the Side Effects and I became somewhat of a 'Cheerleader'

for the group due to my 'upbeat' attitude in spite of my overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I will

get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

Hi Jo-Dee, welcome to this wonderful site. I too am from Ohio, a little south

of cleveland.

What meds are you on, and do you go to a cml specialist? Also, what led you

to go to the doctor when you were diagnosed? This is a good site, lots of folks

with lots of info, and lots of compassion. Bobby

Jo-Dee McKibben <flyjod2007@...> wrote:

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed on

January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweety@...> wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my WNL

in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after reading

your post; I know how overwhelming it can be due to several Sister Survivors

dubbing me Queen of the Side Effects and I became somewhat of a 'Cheerleader'

for the group due to my 'upbeat' attitude in spite of my overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I will

get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

Well hi Jo-Dee,

I will let someone else tell you all the details. I was dx in 2004 and you

ask what to expect???

Expect to live a long happy life!!

We are very fortunate!!

Bless you

Sharon

On Tasigna 400mg for l month and feel great!!!

_____

From: [mailto: ] On Behalf Of Jo-Dee

McKibben

Sent: Monday, April 07, 2008 8:05 AM

Subject: Re: [ ] Re: 13 new messages in 8 topics - digest

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed

on January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweetysbcglobal (DOT) <mailto:kttweety%40sbcglobal.net> net>

wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my

WNL in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after

reading your post; I know how overwhelming it can be due to several Sister

Survivors dubbing me Queen of the Side Effects and I became somewhat of a

'Cheerleader' for the group due to my 'upbeat' attitude in spite of my

overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I

will get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

Hi Jo-Dee,

Welcome to the club that nobody really wants to be a member of.

Based on your WBC of 62000 you have reached the first milestone in your

Gleevec treatment which is CHR or a Complete Hematological Response. The

next step will be to achieve a MCR (Major Cytogenic Response) followed by a

CCR (Complete Cytogenic Response).

Achieving CCR within one year just about guarantees you that your CML will

be a chronic disease requiring only one pill a day to live a full life. CCR

also gets you a number in the Zero Club and I am looking forward to

assigning one to you soon.

Continue to ask questions. This group is very knowledgeable when it comes to

CML.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.2 log reduction Jun/07

3.6 log reduction Sep/07

3.5 log reduction Feb/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of Jo-Dee

McKibben

Sent: April 7, 2008 11:05 AM

Subject: Re: [ ] Re: 13 new messages in 8 topics - digest

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed

on January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweetysbcglobal (DOT) <mailto:kttweety%40sbcglobal.net> net>

wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my

WNL in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after

reading your post; I know how overwhelming it can be due to several Sister

Survivors dubbing me Queen of the Side Effects and I became somewhat of a

'Cheerleader' for the group due to my 'upbeat' attitude in spite of my

overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I

will get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

Hi! thanks for the reply!

I am on 400 mg of Gleevec once a day. I don't know if my

hemotologist/oncologist is a specialist but he seems very knowledgeable.

I believe God has a plan for everyone and everything. I went to see my family

doctor because I was able to stop taking high blood pressure meds last summer.

She checks on me about every three months. I was in the waiting room and the

doctor took back the patient before me. I was put in a room and no one came.

Much later, the nurse stuck her head in and asked if would be willing to see the

nurse practioner as my doctor was violently ill in the restroom. (later dx with

gall bladder that had to be removed.)

The NP was looking over my file and suggested a complete blood screen since it

had been more that two years since I had had one.

I had blood drawn on Friday, January 4th at 7:30 am. On Saturday morning at

8:08 am the doctor on call telephoned me that she felt my blood count was higher

than a simple infection would make them. I was admitted to the hospital on

Sunday evening, bone marrow biopsy on Tuesday morning and that afternoon we got

what my nurse daughter calls, " The best worst news we could have gotten. " CML!

My highest WBC was 177,000 one week before I started Gleevec. The next week

it was 156,000 and then 40,000 and then 6200.

When I had blood drawn at the end of March my numbers were all good except

that platlets were a little low. (Normal 140,000 to 150,000? mine were 123,000)

I have so many questions!!

I am leaving work now, so I will talk to you later!!

Jo-Dee

ROBERTA DOYLE <rcd1929@...> wrote:

Hi Jo-Dee, welcome to this wonderful site. I too am from Ohio, a

little south of cleveland.

What meds are you on, and do you go to a cml specialist? Also, what led you to

go to the doctor when you were diagnosed? This is a good site, lots of folks

with lots of info, and lots of compassion. Bobby

Jo-Dee McKibben <flyjod2007@...> wrote:

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed on

January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweety@...> wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my WNL

in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after reading

your post; I know how overwhelming it can be due to several Sister Survivors

dubbing me Queen of the Side Effects and I became somewhat of a 'Cheerleader'

for the group due to my 'upbeat' attitude in spite of my overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I will

get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

Truly Blessed!!

Thanks,

Jo-Dee

Sharon & Denny <onthewtr@...> wrote:

Well hi Jo-Dee,

I will let someone else tell you all the details. I was dx in 2004 and you

ask what to expect???

Expect to live a long happy life!!

We are very fortunate!!

Bless you

Sharon

On Tasigna 400mg for l month and feel great!!!

_____

From: [mailto: ] On Behalf Of Jo-Dee

McKibben

Sent: Monday, April 07, 2008 8:05 AM

Subject: Re: [ ] Re: 13 new messages in 8 topics - digest

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed

on January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweetysbcglobal (DOT) <mailto:kttweety%40sbcglobal.net> net>

wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my

WNL in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after

reading your post; I know how overwhelming it can be due to several Sister

Survivors dubbing me Queen of the Side Effects and I became somewhat of a

'Cheerleader' for the group due to my 'upbeat' attitude in spite of my

overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I

will get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

Great!

Thanks for the info. I will have the blood test for my hopeful CHR in May!!

Jo-Dee

Zavie miller <zmiller@...> wrote:

Hi Jo-Dee,

Welcome to the club that nobody really wants to be a member of.

Based on your WBC of 62000 you have reached the first milestone in your

Gleevec treatment which is CHR or a Complete Hematological Response. The

next step will be to achieve a MCR (Major Cytogenic Response) followed by a

CCR (Complete Cytogenic Response).

Achieving CCR within one year just about guarantees you that your CML will

be a chronic disease requiring only one pill a day to live a full life. CCR

also gets you a number in the Zero Club and I am looking forward to

assigning one to you soon.

Continue to ask questions. This group is very knowledgeable when it comes to

CML.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.2 log reduction Jun/07

3.6 log reduction Sep/07

3.5 log reduction Feb/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of Jo-Dee

McKibben

Sent: April 7, 2008 11:05 AM

Subject: Re: [ ] Re: 13 new messages in 8 topics - digest

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed

on January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweetysbcglobal (DOT) <mailto:kttweety%40sbcglobal.net> net>

wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my

WNL in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after

reading your post; I know how overwhelming it can be due to several Sister

Survivors dubbing me Queen of the Side Effects and I became somewhat of a

'Cheerleader' for the group due to my 'upbeat' attitude in spite of my

overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I

will get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Posted
Posted

Oops,

6200 not 62000.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.2 log reduction Jun/07

3.6 log reduction Sep/07

3.5 log reduction Feb/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of Jo-Dee

McKibben

Sent: April 8, 2008 4:34 PM

Subject: RE: [ ] Re: 13 new messages in 8 topics - digest

Great!

Thanks for the info. I will have the blood test for my hopeful CHR in May!!

Jo-Dee

Zavie miller <zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca> wrote:

Hi Jo-Dee,

Welcome to the club that nobody really wants to be a member of.

Based on your WBC of 62000 you have reached the first milestone in your

Gleevec treatment which is CHR or a Complete Hematological Response. The

next step will be to achieve a MCR (Major Cytogenic Response) followed by a

CCR (Complete Cytogenic Response).

Achieving CCR within one year just about guarantees you that your CML will

be a chronic disease requiring only one pill a day to live a full life. CCR

also gets you a number in the Zero Club and I am looking forward to

assigning one to you soon.

Continue to ask questions. This group is very knowledgeable when it comes to

CML.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.2 log reduction Jun/07

3.6 log reduction Sep/07

3.5 log reduction Feb/08

e-mail: zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

Jo-Dee

McKibben

Sent: April 7, 2008 11:05 AM

groups (DOT) <mailto:%40> com

Subject: Re: [ ] Re: 13 new messages in 8 topics - digest

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed

on January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweetysbcglobal (DOT) <mailto:kttweety%40sbcglobal.net> net>

wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my

WNL in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after

reading your post; I know how overwhelming it can be due to several Sister

Survivors dubbing me Queen of the Side Effects and I became somewhat of a

'Cheerleader' for the group due to my 'upbeat' attitude in spite of my

overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I

will get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Guest guest

Guest guest

Posted
Posted

Hi Jo-Dee, I am just new to this too . You have a great outlook, I am going to

try and follow your lead. Thanks; Eva

From: Jo-Dee McKibben

Sent: Tuesday, April 08, 2008 4:28 PM

Subject: RE: [ ] Re: 13 new messages in 8 topics - digest

Truly Blessed!!

Thanks,

Jo-Dee

Sharon & Denny <onthewtr@...> wrote:

Well hi Jo-Dee,

I will let someone else tell you all the details. I was dx in 2004 and you

ask what to expect???

Expect to live a long happy life!!

We are very fortunate!!

Bless you

Sharon

On Tasigna 400mg for l month and feel great!!!

_____

From: [mailto: ] On Behalf Of Jo-Dee

McKibben

Sent: Monday, April 07, 2008 8:05 AM

Subject: Re: [ ] Re: 13 new messages in 8 topics - digest

Hi!

My name is Jo-Dee. I am a newbie to this chat and also CML. I was diagnosed

on January 8, 2008. I am 43, almost 44 years old and I live in Ohio. I am on

Gleevec (400 mg).

I am married and have two children, one married and one at home.

My WBC is 6200. Can you tell me what to expect next?

Thank you and Blessings!!

Jo-Dee

IAintFinishedYet <kttweetysbcglobal (DOT) <mailto:kttweety%40sbcglobal.net> net>

wrote:

Hey Elise & Newbies. . .

I am a 5-year Survivor who sends out a 'Welcome Newbie Letter' to newly

diagnosed Sister & Brother Survivors. Please post or email me your complete

email address and I will get the WNL out to you ASAP. I began sending out my

WNL in early 2005 after I Survived a very morbid mortality with 15+

fatal/terminal/Chronic Diseases. . .all of which I call Chronic Illnesses.

I get Newbies email addresses from their posts to the groups and after

reading your post; I know how overwhelming it can be due to several Sister

Survivors dubbing me Queen of the Side Effects and I became somewhat of a

'Cheerleader' for the group due to my 'upbeat' attitude in spite of my

overall health.

I have been ill and hospitalized and while catching up on my mail, I realize

that I have missed newbie Sister & Brother survivors. Please email me and I

will get the WNL out to you.

Take care, know that I have added you to my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Guest guest

Guest guest

Posted
Posted

Greetings,

I have noticed the word " digest " in several e-mails.

What does it mean on this chat site? Like what does

this subject line mean? Can you tell that I am a

newbie?

I have had problems with a Gleevec rash and have had

to stop the Gleevec again. I am now on prednisone and

the rash is going away. I look forward to starting it

again.

Luckily, some of you veterans have suggested that I

e-mail Dr. Druker and his nurse Carolyn which I have

done. They have been great and I have an appointment

with Dr. Druker on May 1. That makes me feel very

optimistic.

Thanks for all of the information and support exchange

that each of you offers. I have benefitted greatly

and I am grateful.

I haven't made much progress since I was diagnosed on

Dec. 31-07. I have real problems having my body

accept the Gleevec. I hope that I will cooperate with

Gleevec when I restart itthis time.

Jan

--- Zavie miller <zmiller@...> wrote:

> Oops,

> 6200 not 62000.

> Zavie

>

> Zavie (age 69)

> 67 Shoreham Avenue

> Ottawa, Canada, K2G 3X3

> dxd AUG/99

> INF OCT/99 to FEB/00, CHF

> No meds FEB/00 to JAN/01

> Gleevec since MAR/27/01 (400 mg)

> CCR SEP/01. #102 in Zero Club

> 2.8 log reduction Sep/05

> 3.0 log reduction Jan/06

> 2.9 log reduction Feb/07

> 3.2 log reduction Jun/07

> 3.6 log reduction Sep/07

> 3.5 log reduction Feb/08

> e-mail: zmiller@...

> Tel: 613-726-1117

> Fax: 309-296-0807

> Cell: 613-202-0204

> ID: zaviem

> YM: zaviemiller

> Skype: Zavie

>

> _____

>

> From:

> [mailto: ] On Behalf Of Jo-Dee

> McKibben

> Sent: April 8, 2008 4:34 PM

>

> Subject: RE: [ ] Re: 13 new messages in 8 topics

> - digest

>

> Great!

>

> Thanks for the info. I will have the blood test for

> my hopeful CHR in May!!

>

> Jo-Dee

>

> Zavie miller <zmillersympatico (DOT)

> <mailto:zmiller%40sympatico.ca> ca> wrote:

> Hi Jo-Dee,

>

> Welcome to the club that nobody really wants to be a

> member of.

>

> Based on your WBC of 62000 you have reached the

> first milestone in your

> Gleevec treatment which is CHR or a Complete

> Hematological Response. The

> next step will be to achieve a MCR (Major Cytogenic

> Response) followed by a

> CCR (Complete Cytogenic Response).

>

> Achieving CCR within one year just about guarantees

> you that your CML will

> be a chronic disease requiring only one pill a day

> to live a full life. CCR

> also gets you a number in the Zero Club and I am

> looking forward to

> assigning one to you soon.

>

> Continue to ask questions. This group is very

> knowledgeable when it comes to

> CML.

>

> Zavie

>

> Zavie (age 69)

> 67 Shoreham Avenue

> Ottawa, Canada, K2G 3X3

> dxd AUG/99

> INF OCT/99 to FEB/00, CHF

> No meds FEB/00 to JAN/01

> Gleevec since MAR/27/01 (400 mg)

> CCR SEP/01. #102 in Zero Club

> 2.8 log reduction Sep/05

> 3.0 log reduction Jan/06

> 2.9 log reduction Feb/07

> 3.2 log reduction Jun/07

> 3.6 log reduction Sep/07

> 3.5 log reduction Feb/08

> e-mail: zmillersympatico (DOT)

> <mailto:zmiller%40sympatico.ca> ca

> Tel: 613-726-1117

> Fax: 309-296-0807

> Cell: 613-202-0204

> ID: zaviem

> YM: zaviemiller

> Skype: Zavie

>

> _____

>

> From: groups (DOT)

> <mailto:%40> com

> [mailto:groups (DOT)

> <mailto:%40> com] On Behalf Of

> Jo-Dee

> McKibben

> Sent: April 7, 2008 11:05 AM

> groups (DOT)

> <mailto:%40> com

> Subject: Re: [ ] Re: 13 new messages in 8 topics

> - digest

>

> Hi!

>

> My name is Jo-Dee. I am a newbie to this chat and

> also CML. I was diagnosed

> on January 8, 2008. I am 43, almost 44 years old and

> I live in Ohio. I am on

> Gleevec (400 mg).

>

> I am married and have two children, one married and

> one at home.

>

> My WBC is 6200. Can you tell me what to expect next?

>

> Thank you and Blessings!!

> Jo-Dee

>

> IAintFinishedYet <kttweetysbcglobal (DOT)

> <mailto:kttweety%40sbcglobal.net> net>

> wrote:

> Hey Elise & Newbies. . .

> I am a 5-year Survivor who sends out a 'Welcome

> Newbie Letter' to newly

> diagnosed Sister & Brother Survivors. Please post or

> email me your complete

> email address and I will get the WNL out to you

> ASAP. I began sending out my

> WNL in early 2005 after I Survived a very morbid

> mortality with 15+

> fatal/terminal/Chronic Diseases. . .all of which I

> call Chronic Illnesses.

> I get Newbies email addresses from their posts to

> the groups and after

> reading your post; I know how overwhelming it can be

> due to several Sister

> Survivors dubbing me Queen of the Side Effects and I

> became somewhat of a

> 'Cheerleader' for the group due to my 'upbeat'

> attitude in spite of my

> overall health.

> I have been ill and hospitalized and while catching

> up on my mail, I realize

> that I have missed newbie Sister & Brother

> survivors. Please email me and I

> will get the WNL out to you.

> Take care, know that I have added you to my prayers.

> . . " K "

>

> " K "

> " I AIN'T FINISHED YET " !!!

>

> [Non-text portions of this message have been

> removed]

>

> ---------------------------------

> You rock. That's why Blockbuster's offering you one

> month of Blockbuster

> Total Access, No Cost.

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

> ---------------------------------

> You rock. That's why Blockbuster's offering you one

> month of Blockbuster

> Total Access, No Cost.

>

> [Non-text portions of this message have been

> removed]

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals./tc/blockbuster/text5.com

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