Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Good Luck Bobby , Hope all goes well!! Eva From: ROBERTA DOYLE Sent: Friday, April 18, 2008 8:13 PM Subject: [ ] XL228 Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 THANK YOU EVA, LEN HAS VERY FEW SIDE EFFECTS, THE WORST NOT BEING ABLE TO GET TO FAR FROM THE JON !! THAT WOULD WORK FOR ME, MAYBE TAKE OF THE 20 I JUST PUT ON!! BOBBY Eva <evaob365@...> wrote: Good Luck Bobby , Hope all goes well!! Eva From: ROBERTA DOYLE Sent: Friday, April 18, 2008 8:13 PM Subject: [ ] XL228 Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Hope all goes well with you.. Keep us posted ROBERTA DOYLE <rcd1929@...> wrote: Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 That's very exciting Bobby. I'm looking forward to hearing about your experience with the new drug! Tracey > > Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby > > a (Bobby) Doyle > Brecksville, Ohio, USA > DX 05/1995 > 02/2000 - Gleevec Trial/OHSU > 06/2002 - Gleevec/Trisenox Trial/OHSU > 06/2003 - Gleevec/Zarnestra Trial/OHSU > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > #840 - Zavie's Zero Club > 09/2006 - out of CCR > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Hi Bobby, We are all so very happy and excited for you. Knock them dead (the Phillies). Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 3.5 log reduction Feb/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: April 18, 2008 8:14 PM Subject: [ ] XL228 Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Best of luck Bobby - hope it goes well for you. Will look forward to hearing about your progress. Regards, from Downunder _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: Saturday, 19 April 2008 10:14 AM Subject: [ ] XL228 Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 All the best to you, Bobby! We'll be watching for reports. You're in my thoughts and I'm thinking positively. [ ] XL228 Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Bobby, I wish you all the luck and we are all saying prayers for you. I know in my heart that this will work for you. Sharon Tasigna 39 days Feeling great After several other meds. I feel there is one out there for everyone. Best of luck _____ From: [mailto: ] On Behalf Of seloew12 Sent: Sunday, April 20, 2008 6:57 AM Subject: Re: [ ] XL228 All the best to you, Bobby! We'll be watching for reports. You're in my thoughts and I'm thinking positively. [ ] XL228 Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Bobby I wish you the very best success on the XL228. Here is hoping and praying!! Keep all of us posted on your experience. You deserve the best!! Love Barb > > From: ROBERTA DOYLE > Sent: Friday, April 18, 2008 8:13 PM > > Subject: [ ] XL228 > > Hi Group, well, there I was today, having a good chat with Len and Ernie Paschal at our condo in Port Clinton, OH, when the U. O Mich in Ann Arbor called. Dr Talpaz wants to see me on Mon., he is putting me in the XL228 trial, that is the one Len is in. Len and Ernie and I were only spending the weekend there, and the nurse said I would have to be in Ann Arbor at least 3 days, so I left them there and came home to pack up a few things. My, things can happen fast! Will keep you posted, I was 5.5% pcr when tested March 7. Bobby > > a (Bobby) Doyle > Brecksville, Ohio, USA > DX 05/1995 > 02/2000 - Gleevec Trial/OHSU > 06/2002 - Gleevec/Trisenox Trial/OHSU > 06/2003 - Gleevec/Zarnestra Trial/OHSU > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > #840 - Zavie's Zero Club > 09/2006 - out of CCR > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi Bobby, From one buckeye to another, I just wanted to wish you the best of luck. Ur tough as nails (just like Lottie) and I know you will do well! Blessings, Don > > HI EVERYONE, FIRST, THANKS FOR YOUR KIND WORDS, PRAYERS, BLESSINGS AND GOOD THOUGHTS. > NOW FOR ANN ARBOR AND XL228. FIRST OF ALL ERNIE AND LEN AND I THOUGHT IT WAS ODD THAT THEY MIGHT START ME ON A NEW DRUG WITHOUT BEING SURE I WAS OFF THE PRESENT DRUG FOR A CERTAIN AMOUNT OF TIME. AND WE WERE SO RIGHT. I CANNOT START IT UNTIL NEXT WEEK. BUT THAT'S OK, I DID THE LABS, EKG, URINE TEST, MORE BLOOD, MORE URINE TEST, VISITED WITH DR. TALPAZ AND HAD THE STRANGEST BMB/BMA EVER, AND I'VE HAD ABOUT 40. FOR SOME REASON, AFTER SHE NUMBED THE LEFT SIDE, SHE COULD NOT GET A DRAW, AT ALL, AND WE DECIDED TO DO THE OTHER SIDE. THAT WAS FINE, SHE GOT GREAT RESULTS, BUT ALL IN ALL I WAS ON MY STOMACH ONE WHOLE HOUR. AND THAT , FOR SOME REASON, NUMBED MY NECK, MADE ME DIZZY AND I COULD HARDLY WALK. IT WAS SO STRANGE, BUT DEAR SWEET ERNIE PUSHED ME OUT OF THERE IN A WHEEL CHAIR. BY THE TIME WE GOT TO THE MOTEL, AND I HAD TWO CUPS OF STRONG COFFEE AND A GIANT PIECE OFCHERRY PIE, I FELT GOOD ENOUGH TO DRIVE THE170 MILES HOME. SO, HERE I AM UNTIL MON, TUES, AND WED, OF > NEXT WEEK, WHEN THEY WILL START ME ON DOUBLE WHATEVER LEN IS ON NOW. > I ASKED WHY I AM GOING ON THIS DRUG, DR. TALPAZ EXPLAINED MY PCR HAD DOUBLED, AND HE WAS AFRAID IT MIGHT KEEP DOING SO, AND WHILE WAITING FOR THE ARIAD TRIAL HE PREFERRED ME TO BE ON SOMETHING HE THOUGHT MIGHT CONTROL THE PCR BETTER THAN THE SPRYCEL. > AFTER I START ON IT NEXT WEEK, I WILL HAVE TO DRIVE TO ANN ARBOR ONCE A WEEK, THEY PREFER I HAVE THE INFUSION, AND SPEND THE NIGHT, TO BE SURE I AM THERE IN CASE OF A REACTION. A FRIEND I MET IN HUSTON CAME OFF THE XL228 LAST WEEK, DUE TO A REACTION THAT PUT HER IN EMERGENCY. BUT THEY THINK IT WAS DUE TO PRE-EXISTING PROBLEMS, NOT THE DRUG ITSELF. > LEN IS LOOKING FABULOUS, SO FAR SHE HAS NO ADVERSE REACTIONS TO THE DRUG, AND WE HAD A GREAT VISIT. > SO THAT'S IT FOR NOW, WILL KNOW MORE NEXT WEEK. HAPPY BIRTHDAY TO THOSE WITH BIRTHDAYS, KUDOS TO THOSE WITH GOOD PCRS AND LABS, AND ABOUT ALCOHOL AND SPRYCEL, IT GIVES ME ACID REFLUX, BUT I WAS ONLY ON 40 MG. A DAY, NOT 100. MOST LIKELY BETTER TO LEAVE IT ALONE, BUT THAT ISN'T MUCH FUN. > AND LOTTIE? I FINALLY CAUGHT UP WITH YOU, TRIAL # 5 COMING UP, BUT WHO SAID THIS WAS A RACE? I FEEL LIKE YOU, I HAVE BEEN ON BORROWED TIME FOR THE LAST 8 YEARS, AND TRUTHFULLY, I THINK THESE TRIALS ARE EXCITING. NEW PLACES, NEW PEOPLE, AND A GREATER APPRECIATION OF LIFE, NOW I'M GETTING CORNY, NITE ALL, LOVE, BOBBY > > > a (Bobby) Doyle > Brecksville, Ohio, USA > DX 05/1995 > 02/2000 - Gleevec Trial/OHSU > 06/2002 - Gleevec/Trisenox Trial/OHSU > 06/2003 - Gleevec/Zarnestra Trial/OHSU > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > #840 - Zavie's Zero Club > 09/2006 - out of CCR > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 a you are in my thoughts and prayers...you go get em girl. Eva From: ROBERTA DOYLE Sent: Monday, April 21, 2008 10:12 PM Subject: [ ] XL228 HI EVERYONE, FIRST, THANKS FOR YOUR KIND WORDS, PRAYERS, BLESSINGS AND GOOD THOUGHTS. NOW FOR ANN ARBOR AND XL228. FIRST OF ALL ERNIE AND LEN AND I THOUGHT IT WAS ODD THAT THEY MIGHT START ME ON A NEW DRUG WITHOUT BEING SURE I WAS OFF THE PRESENT DRUG FOR A CERTAIN AMOUNT OF TIME. AND WE WERE SO RIGHT. I CANNOT START IT UNTIL NEXT WEEK. BUT THAT'S OK, I DID THE LABS, EKG, URINE TEST, MORE BLOOD, MORE URINE TEST, VISITED WITH DR. TALPAZ AND HAD THE STRANGEST BMB/BMA EVER, AND I'VE HAD ABOUT 40. FOR SOME REASON, AFTER SHE NUMBED THE LEFT SIDE, SHE COULD NOT GET A DRAW, AT ALL, AND WE DECIDED TO DO THE OTHER SIDE. THAT WAS FINE, SHE GOT GREAT RESULTS, BUT ALL IN ALL I WAS ON MY STOMACH ONE WHOLE HOUR. AND THAT , FOR SOME REASON, NUMBED MY NECK, MADE ME DIZZY AND I COULD HARDLY WALK. IT WAS SO STRANGE, BUT DEAR SWEET ERNIE PUSHED ME OUT OF THERE IN A WHEEL CHAIR. BY THE TIME WE GOT TO THE MOTEL, AND I HAD TWO CUPS OF STRONG COFFEE AND A GIANT PIECE OFCHERRY PIE, I FELT GOOD ENOUGH TO DRIVE THE170 MILES HOME. SO, HERE I AM UNTIL MON, TUES, AND WED, OF NEXT WEEK, WHEN THEY WILL START ME ON DOUBLE WHATEVER LEN IS ON NOW. I ASKED WHY I AM GOING ON THIS DRUG, DR. TALPAZ EXPLAINED MY PCR HAD DOUBLED, AND HE WAS AFRAID IT MIGHT KEEP DOING SO, AND WHILE WAITING FOR THE ARIAD TRIAL HE PREFERRED ME TO BE ON SOMETHING HE THOUGHT MIGHT CONTROL THE PCR BETTER THAN THE SPRYCEL. AFTER I START ON IT NEXT WEEK, I WILL HAVE TO DRIVE TO ANN ARBOR ONCE A WEEK, THEY PREFER I HAVE THE INFUSION, AND SPEND THE NIGHT, TO BE SURE I AM THERE IN CASE OF A REACTION. A FRIEND I MET IN HUSTON CAME OFF THE XL228 LAST WEEK, DUE TO A REACTION THAT PUT HER IN EMERGENCY. BUT THEY THINK IT WAS DUE TO PRE-EXISTING PROBLEMS, NOT THE DRUG ITSELF. LEN IS LOOKING FABULOUS, SO FAR SHE HAS NO ADVERSE REACTIONS TO THE DRUG, AND WE HAD A GREAT VISIT. SO THAT'S IT FOR NOW, WILL KNOW MORE NEXT WEEK. HAPPY BIRTHDAY TO THOSE WITH BIRTHDAYS, KUDOS TO THOSE WITH GOOD PCRS AND LABS, AND ABOUT ALCOHOL AND SPRYCEL, IT GIVES ME ACID REFLUX, BUT I WAS ONLY ON 40 MG. A DAY, NOT 100. MOST LIKELY BETTER TO LEAVE IT ALONE, BUT THAT ISN'T MUCH FUN. AND LOTTIE? I FINALLY CAUGHT UP WITH YOU, TRIAL # 5 COMING UP, BUT WHO SAID THIS WAS A RACE? I FEEL LIKE YOU, I HAVE BEEN ON BORROWED TIME FOR THE LAST 8 YEARS, AND TRUTHFULLY, I THINK THESE TRIALS ARE EXCITING. NEW PLACES, NEW PEOPLE, AND A GREATER APPRECIATION OF LIFE, NOW I'M GETTING CORNY, NITE ALL, LOVE, BOBBY a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hey Bobby I had a horrible experience with a BMB BMA a year ago. The same thing happened with me. They could not get a sample ( dry tap) and so they ended up going to the other side. If you read up on lidocaine overdose you will see what it does to the central nervous system: and it isn't good. My best guess is that you had too much lidocaine at one setting. I had the same symptoms and as well: siezures, shaking, drop in BP and an IV that took about 30 minutes to bring me back to normal. My husbamd had to come get me as I couldn't drive home ( 18 miles) and I was shakey for about 24 hours. Lidocaine is a tough cookie to take. Be well, good luck and let me know how it all goes. Love Barb > > HI EVERYONE, FIRST, THANKS FOR YOUR KIND WORDS, PRAYERS, BLESSINGS AND GOOD THOUGHTS. > NOW FOR ANN ARBOR AND XL228. FIRST OF ALL ERNIE AND LEN AND I THOUGHT IT WAS ODD THAT THEY MIGHT START ME ON A NEW DRUG WITHOUT BEING SURE I WAS OFF THE PRESENT DRUG FOR A CERTAIN AMOUNT OF TIME. AND WE WERE SO RIGHT. I CANNOT START IT UNTIL NEXT WEEK. BUT THAT'S OK, I DID THE LABS, EKG, URINE TEST, MORE BLOOD, MORE URINE TEST, VISITED WITH DR. TALPAZ AND HAD THE STRANGEST BMB/BMA EVER, AND I'VE HAD ABOUT 40. FOR SOME REASON, AFTER SHE NUMBED THE LEFT SIDE, SHE COULD NOT GET A DRAW, AT ALL, AND WE DECIDED TO DO THE OTHER SIDE. THAT WAS FINE, SHE GOT GREAT RESULTS, BUT ALL IN ALL I WAS ON MY STOMACH ONE WHOLE HOUR. AND THAT , FOR SOME REASON, NUMBED MY NECK, MADE ME DIZZY AND I COULD HARDLY WALK. IT WAS SO STRANGE, BUT DEAR SWEET ERNIE PUSHED ME OUT OF THERE IN A WHEEL CHAIR. BY THE TIME WE GOT TO THE MOTEL, AND I HAD TWO CUPS OF STRONG COFFEE AND A GIANT PIECE OFCHERRY PIE, I FELT GOOD ENOUGH TO DRIVE THE170 MILES HOME. SO, HERE I AM UNTIL MON, TUES, AND WED, OF > NEXT WEEK, WHEN THEY WILL START ME ON DOUBLE WHATEVER LEN IS ON NOW. > I ASKED WHY I AM GOING ON THIS DRUG, DR. TALPAZ EXPLAINED MY PCR HAD DOUBLED, AND HE WAS AFRAID IT MIGHT KEEP DOING SO, AND WHILE WAITING FOR THE ARIAD TRIAL HE PREFERRED ME TO BE ON SOMETHING HE THOUGHT MIGHT CONTROL THE PCR BETTER THAN THE SPRYCEL. > AFTER I START ON IT NEXT WEEK, I WILL HAVE TO DRIVE TO ANN ARBOR ONCE A WEEK, THEY PREFER I HAVE THE INFUSION, AND SPEND THE NIGHT, TO BE SURE I AM THERE IN CASE OF A REACTION. A FRIEND I MET IN HUSTON CAME OFF THE XL228 LAST WEEK, DUE TO A REACTION THAT PUT HER IN EMERGENCY. BUT THEY THINK IT WAS DUE TO PRE-EXISTING PROBLEMS, NOT THE DRUG ITSELF. > LEN IS LOOKING FABULOUS, SO FAR SHE HAS NO ADVERSE REACTIONS TO THE DRUG, AND WE HAD A GREAT VISIT. > SO THAT'S IT FOR NOW, WILL KNOW MORE NEXT WEEK. HAPPY BIRTHDAY TO THOSE WITH BIRTHDAYS, KUDOS TO THOSE WITH GOOD PCRS AND LABS, AND ABOUT ALCOHOL AND SPRYCEL, IT GIVES ME ACID REFLUX, BUT I WAS ONLY ON 40 MG. A DAY, NOT 100. MOST LIKELY BETTER TO LEAVE IT ALONE, BUT THAT ISN'T MUCH FUN. > AND LOTTIE? I FINALLY CAUGHT UP WITH YOU, TRIAL # 5 COMING UP, BUT WHO SAID THIS WAS A RACE? I FEEL LIKE YOU, I HAVE BEEN ON BORROWED TIME FOR THE LAST 8 YEARS, AND TRUTHFULLY, I THINK THESE TRIALS ARE EXCITING. NEW PLACES, NEW PEOPLE, AND A GREATER APPRECIATION OF LIFE, NOW I'M GETTING CORNY, NITE ALL, LOVE, BOBBY > > > a (Bobby) Doyle > Brecksville, Ohio, USA > DX 05/1995 > 02/2000 - Gleevec Trial/OHSU > 06/2002 - Gleevec/Trisenox Trial/OHSU > 06/2003 - Gleevec/Zarnestra Trial/OHSU > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > #840 - Zavie's Zero Club > 09/2006 - out of CCR > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 --Hey guys, I to had the same experience with the lidocaine, they used 2%. It is alittle stronger, then what is typically used. It was on the one try but, I had the shakes so bad and dizziness. My mind was okay, but I could not control my body. Took about an hour and some juice and crackers. The Dr. said that it was a reaction to the lidocaine and they will be prepared more for it in the future. Oh well, what to do. Mel - In , " Barb Stanley " <barbarastanley@...> wrote: > > > Hey Bobby > > I had a horrible experience with a BMB BMA a year ago. The same thing > happened with me. They could not get a sample ( dry tap) and so they > ended up going to the other side. If you read up on lidocaine overdose > you will see what it does to the central nervous system: and it isn't > good. My best guess is that you had too much lidocaine at one setting. > I had the same symptoms and as well: siezures, shaking, drop in BP and > an IV that took about 30 minutes to bring me back to normal. My husbamd > had to come get me as I couldn't drive home ( 18 miles) and I was shakey > for about 24 hours. Lidocaine is a tough cookie to take. > > Be well, good luck and let me know how it all goes. > > Love > > Barb > > > > > > > > > HI EVERYONE, FIRST, THANKS FOR YOUR KIND WORDS, PRAYERS, BLESSINGS AND > GOOD THOUGHTS. > > NOW FOR ANN ARBOR AND XL228. FIRST OF ALL ERNIE AND LEN AND I THOUGHT > IT WAS ODD THAT THEY MIGHT START ME ON A NEW DRUG WITHOUT BEING SURE I > WAS OFF THE PRESENT DRUG FOR A CERTAIN AMOUNT OF TIME. AND WE WERE SO > RIGHT. I CANNOT START IT UNTIL NEXT WEEK. BUT THAT'S OK, I DID THE LABS, > EKG, URINE TEST, MORE BLOOD, MORE URINE TEST, VISITED WITH DR. TALPAZ > AND HAD THE STRANGEST BMB/BMA EVER, AND I'VE HAD ABOUT 40. FOR SOME > REASON, AFTER SHE NUMBED THE LEFT SIDE, SHE COULD NOT GET A DRAW, AT > ALL, AND WE DECIDED TO DO THE OTHER SIDE. THAT WAS FINE, SHE GOT GREAT > RESULTS, BUT ALL IN ALL I WAS ON MY STOMACH ONE WHOLE HOUR. AND THAT , > FOR SOME REASON, NUMBED MY NECK, MADE ME DIZZY AND I COULD HARDLY WALK. > IT WAS SO STRANGE, BUT DEAR SWEET ERNIE PUSHED ME OUT OF THERE IN A > WHEEL CHAIR. BY THE TIME WE GOT TO THE MOTEL, AND I HAD TWO CUPS OF > STRONG COFFEE AND A GIANT PIECE OFCHERRY PIE, I FELT GOOD ENOUGH TO > DRIVE THE170 MILES HOME. SO, HERE I AM UNTIL MON, TUES, AND WED, OF > > NEXT WEEK, WHEN THEY WILL START ME ON DOUBLE WHATEVER LEN IS ON NOW. > > I ASKED WHY I AM GOING ON THIS DRUG, DR. TALPAZ EXPLAINED MY PCR HAD > DOUBLED, AND HE WAS AFRAID IT MIGHT KEEP DOING SO, AND WHILE WAITING FOR > THE ARIAD TRIAL HE PREFERRED ME TO BE ON SOMETHING HE THOUGHT MIGHT > CONTROL THE PCR BETTER THAN THE SPRYCEL. > > AFTER I START ON IT NEXT WEEK, I WILL HAVE TO DRIVE TO ANN ARBOR ONCE > A WEEK, THEY PREFER I HAVE THE INFUSION, AND SPEND THE NIGHT, TO BE SURE > I AM THERE IN CASE OF A REACTION. A FRIEND I MET IN HUSTON CAME OFF THE > XL228 LAST WEEK, DUE TO A REACTION THAT PUT HER IN EMERGENCY. BUT THEY > THINK IT WAS DUE TO PRE-EXISTING PROBLEMS, NOT THE DRUG ITSELF. > > LEN IS LOOKING FABULOUS, SO FAR SHE HAS NO ADVERSE REACTIONS TO THE > DRUG, AND WE HAD A GREAT VISIT. > > SO THAT'S IT FOR NOW, WILL KNOW MORE NEXT WEEK. HAPPY BIRTHDAY TO > THOSE WITH BIRTHDAYS, KUDOS TO THOSE WITH GOOD PCRS AND LABS, AND ABOUT > ALCOHOL AND SPRYCEL, IT GIVES ME ACID REFLUX, BUT I WAS ONLY ON 40 MG. A > DAY, NOT 100. MOST LIKELY BETTER TO LEAVE IT ALONE, BUT THAT ISN'T MUCH > FUN. > > AND LOTTIE? I FINALLY CAUGHT UP WITH YOU, TRIAL # 5 COMING UP, BUT WHO > SAID THIS WAS A RACE? I FEEL LIKE YOU, I HAVE BEEN ON BORROWED TIME FOR > THE LAST 8 YEARS, AND TRUTHFULLY, I THINK THESE TRIALS ARE EXCITING. NEW > PLACES, NEW PEOPLE, AND A GREATER APPRECIATION OF LIFE, NOW I'M GETTING > CORNY, NITE ALL, LOVE, BOBBY > > > > > > a (Bobby) Doyle > > Brecksville, Ohio, USA > > DX 05/1995 > > 02/2000 - Gleevec Trial/OHSU > > 06/2002 - Gleevec/Trisenox Trial/OHSU > > 06/2003 - Gleevec/Zarnestra Trial/OHSU > > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > > #840 - Zavie's Zero Club > > 09/2006 - out of CCR > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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