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CONGRADULATIONS RONI!!!!!!!!!!!!!!!!!!!

That is great news I am really happy for you keep it up !!!

peace,

Sherry

> Hello Everyone!

>

> I just needed to share the good news! THis week I

> received a phone call from my rheumatologist with the

> results from the blood work. When I was first diagnosed

> with scleroderma 4 years ago my ANA was >5,000. Before

> I started the AP I had another blood test done for a new

> base line...it came out at 2,560. I had done a LOT of

> juicing, supplements and diet change(and prayer) prior

> to that blood test.

>

> I started the AP last November and the newest test is

> 640!!!! I am elated to say the least and so thankful.

>

> I went home (NY) this past week for a visit. Hadn't

> seen many people in over 2 years. The last time they

> saw me I was SICK. Now everyone tells me how healhy and

> youthful I look! Thank you everyone for your advice and

> just being there! God has been good to me to lead me to

> this group!

> Roni

>

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  • 1 year later...

Wow! What great news. Not only are you seeing someone top notch,

you are getting in quickly! It gets so frustrating when you have to

wait several weeks just for a 15 minute appointment!

You should go buy a lottery ticket today in case the luck

continues :)

Dane's mom DOC Grad

--- In Plagiocephaly@y..., " tender_heart_mom " <mitch_meier@h...>

wrote:

> I was told by Jordan's therapist that it would take at least 6-8

> weeks if not more before we could get in to see the specialist for

> Jordan as it's through BC Children's hospital and he's a top

> specialist for the Plagiocephaly. AWESOME news I received

yesterday

> in that there just happened to be a cancellation on November

25th!!!

> So we only have to wait three weeks to get in to see him. I am so

> happy to be able to get all this under way sooner than wondering

WHEN

> later!! I just thought I'd share that bit of good news.

>

> LUV AND HUGS

>

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:

That is good news! Much better to have just a 3 wk wait opposed to 6-

8 long wks! This will help get the ball rolling faster. I'm glad it

worked out for you :)

Debbie Abby's mom DOCgrad

MI

--- In Plagiocephaly@y..., " tender_heart_mom " <mitch_meier@h...>

wrote:

> I was told by Jordan's therapist that it would take at least 6-8

> weeks if not more before we could get in to see the specialist for

> Jordan as it's through BC Children's hospital and he's a top

> specialist for the Plagiocephaly. AWESOME news I received

yesterday

> in that there just happened to be a cancellation on November

25th!!!

> So we only have to wait three weeks to get in to see him. I am so

> happy to be able to get all this under way sooner than wondering

WHEN

> later!! I just thought I'd share that bit of good news.

>

> LUV AND HUGS

>

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, that is just wonderful. And to know that you are seeing someone who knows exactly what they are talking about. Keep us informed. Heidi, mom to Jeffry, Mn Good news!!! I was told by Jordan's therapist that it would take at least 6-8 weeks if not more before we could get in to see the specialist for Jordan as it's through BC Children's hospital and he's a top specialist for the Plagiocephaly. AWESOME news I received yesterday in that there just happened to be a cancellation on November 25th!!! So we only have to wait three weeks to get in to see him. I am so happy to be able to get all this under way sooner than wondering WHEN later!! I just thought I'd share that bit of good news.LUV AND HUGSFor more plagio info

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,

What great news! I love reading good news! Good luck on the 25th.

--- In Plagiocephaly@y..., " tender_heart_mom " <mitch_meier@h...>

wrote:

> I was told by Jordan's therapist that it would take at least 6-8

> weeks if not more before we could get in to see the specialist for

> Jordan as it's through BC Children's hospital and he's a top

> specialist for the Plagiocephaly. AWESOME news I received

yesterday

> in that there just happened to be a cancellation on November

25th!!!

> So we only have to wait three weeks to get in to see him. I am so

> happy to be able to get all this under way sooner than wondering

WHEN

> later!! I just thought I'd share that bit of good news.

>

> LUV AND HUGS

>

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,

That is great news! The 25th will be here before you know it, and

who knows, maybe there will be a sooner cancellation! ;o)

Niki

Kaylie & Danny (STAR grads)

Phila., PA

--- In Plagiocephaly@y..., " tender_heart_mom " <mitch_meier@h...>

wrote:

> I was told by Jordan's therapist that it would take at least 6-8

> weeks if not more before we could get in to see the specialist for

> Jordan as it's through BC Children's hospital and he's a top

> specialist for the Plagiocephaly. AWESOME news I received

yesterday

> in that there just happened to be a cancellation on November

25th!!!

> So we only have to wait three weeks to get in to see him. I am so

> happy to be able to get all this under way sooner than wondering

WHEN

> later!! I just thought I'd share that bit of good news.

>

> LUV AND HUGS

>

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  • 4 months later...
Guest guest

thanks carol. i've got to be sure and bring in my working while disabled

booklet. because i do not want to jeopardize my benefits. i'm sure i'll lose

my $10 a month food stamps though!! kathy in il c'mon mtx!!! keep up the

good work!!!!

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thanks tess, i am pretty excited about it too. i get to be back out in

society again and feel semi productive. i haven't worked in 2 years. i get

along with the dr his wife, his 2 nurses and the girl in pt. i feel like we

are already friends. plus i get paid to call up and hassle insurance

companies!!!! kathy in il

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Oh, Kathy ------ That's WONDERFUL news! I will be praying that your

health holds up, too.

Sending love your way,

Carol

[ ] good news!!!

i have accepted the position at my foot dr's office doing billing and

collections. i will start part time on tuesday. i do not know all the

details

yet. but pretty confident this will work out for me. yippee!!! kathy in

il

(hoping to stay healthy!!)

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Mazel Tov Kathi!!!!!!!!

All the best! It will be nice to have somewhere to go again and it sounds as

though they will work with you and your special needs. It looks like all

Heidi's tips were all right on the money!

Just don't overdo........I am literally climbing the walls here at home. I

hope that I can find something like that when the time is right.

Stay safe in those Chicago snow storms!

Gentle, tender, warm Southern angel hugs,

Debs

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thanks kathe!! i am pretty excited about it. i already know everyone but 2

people and we get along great. i just hope they do not get me in trouble by

socializing too much!! it'll take longer for my car to warm up then to drive

there!! it's only 3 degrees this morning!! i just have to do this. i do not

want to lose my home. kathy in il

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debs i am glad to see you post but sorry to hear of the long journey you have

had. that will be cool if they can fix the door and you are able to stay. i

am excited and scared about the job. i started with a little stuffy nose sore

throat yesterday, i know my immune sysytem is still compromised. but since it

is a podiatrist maybe the patients won't be sick. all i can do is try. if i

can't, at least i tried. it's only like 4hours a day. it'll fly by. she said

she'd let me get my hands on both billing and collections. (yeah i get paid

to call up insurance companies and give them crap!!!!) send out bills, set up

payments. i'm supposed to go out with a friend tonight. he said we'd

celebrate. (whatever that means!!) kathy in il

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now don't think that my life is just peachy now!! i had a flat tire. my son

has the cellphone with roadside assistance. he was out at his girlfriends

house. her dad is doing his brakes and rotors. so i called one of his

friends who came over and changed my tire. had my other friend stop by on her

way to work to drop off my movie rentals, so i wouldn't have to pay another

day. the tire place is closed today. but hopefully it will be done with no

problems tomorrow. kathy in il

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Guest guest

Kathy,

Congratulations on your new job. I am so happy for you.

Lynn (MeMom)

kringlemom@... wrote:

> i have accepted the position at my foot dr's office doing billing and

> collections. i will start part time on tuesday. i do not know all the details

> yet. but pretty confident this will work out for me. yippee!!! kathy in il

> (hoping to stay healthy!!)

>

>

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Hi Kathy!

That is great news. Congratulations!!! I am so happy for you.

Love and hugs,

Alan

> i have accepted the position at my foot dr's office doing billing

and

> collections. i will start part time on tuesday. i do not know all

the details

> yet. but pretty confident this will work out for me. yippee!!!

kathy in il

> (hoping to stay healthy!!)

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Guest guest

Me, too, Kathy! This is wonderful news. Sounds like this is just what

you were looking for.

Re: [ ] good news!!!

> Kathy,

> Congratulations on your new job. I am so happy for you.

> Lynn (MeMom)

>

> kringlemom@... wrote:

>

> > i have accepted the position at my foot dr's office doing billing

and

> > collections. i will start part time on tuesday. i do not know all

the details

> > yet. but pretty confident this will work out for me. yippee!!! kathy

in il

> > (hoping to stay healthy!!)

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  • 1 year later...
Guest guest

That is simply Outstanding. I am so happy for you and your family. The

advice with regards to timing the probiotics after yeast treatment is great.

We were using probiotics, but Dr. Goldberg told us to stop during the

Nizoral treatment. We too saw immediate high fever and immediate illness,

ear infections/regression. I stopped the Nizoral and refused to do it again.

Dr. Goldberg said the probiotics would be a waste, and that the pectin and

FOS was bad for our son. Error in judgment on our parts to have listened to

him. Thank you again for sharing the details. Our son too can't handle

strawberry's well, and OJ is still out of the question. Congratulations

again.

Good News!!!

> I sent this to a few people like Hope and on these boards Tuesday

but thought I'd share with all who I've read and helped me in my journey

with .....Started at 15 month MMR, diagnosed at 18 months ASD, is now

27 months...

>

> I have to share what we have been going through this last month with

. He was put on Diflucan for yeast and after 7 days had a 24 hour fever

(his first ever) he had improved immensely til then but then started

regressing bad. He was almost psychotic at times and biting, hitting

stimming if you moved the wrong or even right way it was horrible and I

thought my son and daughter in law would go out of their minds. She was

constantly in tears and he broke down a couple times and was ready to put

him on respidol SP?? After finishing the diflucan and more stimming,

headbanging and rages they saw their Dr and she found double ear infections

and out him on the famous pink amoxicillan and double probiotics. It seems

when treating for yeast you should always give probiotics to replenish the

good and bad that is depleted and you should always give then 2-3 hours

" after " the diflucan or antibiotic or all your doing is giving the

antibiotic more to kill. Since he had depleted sodiu!

> m on his very first yeast battle we also gave him a pinch of baking soda

daily to replenish the electrolytes. One week ago last Friday we tried GABA

and my son gave him an Epsom salt cream massage. It helped and within two

days he was finally coming back but still touchy but that Sunday at my

granddaughter's college graduation party he was great, more verbal, more

connected and was I surprised when he grabbed a piece of watermelon and a

strawberry and ate it...I was waiting for meltdown and nothing happened,

then he had some raspberries and blueberries and nothing happened. This

child has been on only pear and golden delicious apples due to phenol/amine

reactions for 5 mos and now he ate all that and nothing happened...first

milestone !! They took him back to the DR. last Monday to check the ears and

they were clear but the Dr. wanted them to see a friend of his who is a top

Pediatric Neurologist at The Cleveland Clinic because he still felt we were

missing something with !

> . The Neuro Dr.'s office called that Wednesday and they had a ca

> ncellation and could they bring him in which they did. The Neurologist

spent almost 2 hours with and took his history and interacted with

in play. He says there is something wrong but feels that with what

we've done will outgrow this and doesn't fit 2 of the 3 pillars of

autism. I don't know whether he went through a " healing crisis " or what but

he has steadily been improving and is like a little sponge...everything has

a name and he wants to know what it is and repeats it, he can count to 20,

knows all the letters of the alphabet and all his colors plus his shapes. It

was all in there waiting to come out !!! he still has pronunciation problems

with some things and has his own word for some things ...like yellow is

always yum. He was here yesterday for a few hours and was amazing , I have a

container of play food that he had to have me help him name, and a small

piano that he would usually just bang and then and my daughter in law went

from one key to anoth!

> er end to end and he did it and and then came back one key at a time. I

was in the backyard where I have pinwheels that he always played with for

hours but not yesterday, he would go behind the pool and sneak out and

surprise me and then run to me for me to catch him up and kiss him with a

big " Hi " Tonight he was here again and for the first time ever he pointed to

the title of a Blue's Clue's book and pointed to each letter and named it

and did the same on the button that says MODE on my exercise bike, and then

in the backyard I have a garden stone my granddaughter made me with glass

beads imbedded in it and he pointed to each bead and counted them. It was a

first and God blessed me in letting me be a part of it. I give credit to the

enzymes, the semi GFCF and SCD diet, very few supplements, Epsom salt baths

and creams and baking soda to replenish electrolytes and help digestion, the

yeast treatments and the GABA.... and can't rule out the Knesciology muscle

testing and c!

> learing these past four months either. The child I've seen the last fe

> w days is no longer on the ASD spectrum.....we never lost " contact " with

, except for a few months following his MMR, I think due to early

intervention with diet and researching constantly these last 8 months. This

new Dr wants to find the answer for what has been going through and

that's the kind of Dr. we all need and didn't rule out the catalyst was the

MMR vaccination with live viruses .He was also not crazy about the Primetime

Live piece. He is scheduled tomorrow for an MRI to see if there may be

myelin delay which mimics autism or to see if there is an inflammation or

infection, my fingers are crossed and my prayers said that he won't regress

from it for awhile but we're willing to take that chance to have some

answers,.....Had to share our good news...Take care....Shirley

>

> The MRI was yesterday and he came through it great and no regression. They

used Chlorhydate ? as a sedative and had wobblely legs for a while but was

playing with his fridge phonics last night. He also had about 4 bm's in 2

hours and the orange color of the sedative was in them but he was fine.

> Should get results today....

>

>

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  • 3 years later...
Guest guest

Good for you......Hurray, Hurray!!!

(this was a fireworks graphic, just in case it does not get through:))

With warm regards,

Matt

ville, FL

DX January 2005

Gleevec March 2005

Tasigna November 2008

This message (including any attachments) contains confidential information

intended for a specific individual and purpose, and is protected by law. If

you are not the intended recipient, you should delete this message, and please

advise me of your receipt. Any disclosure, copying, or distribution of this

message, or the taking of any action based on it, is strictly prohibited.

In a message dated 5/7/2008 11:39:25 A.M. Eastern Daylight Time,

bob-stewart@... writes:

Dear friends,

I had my Quant-PCR blood draw on 5/1/08 and got the results today. I'm

still PCRU--yep, a big zero!!! I'm excited.

My CT-scans for my kidney cancer is scheduled for 5/27--doubt if I get good

news there but at least I'm good to go as far as CML goes.

Wishing good blood draws for everyone.

Bob , Granger, Indiana

[Non-text portions of this message have been removed]

**************Wondering what's for Dinner Tonight? Get new twists on family

favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

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Dear friends,

I had my Quant-PCR blood draw on 5/1/08 and got the results today.  I'm still

PCRU--yep, a big zero!!!  I'm excited.

My CT-scans for my kidney cancer is scheduled for 5/27--doubt if I get good news

there but at least I'm good to go as far as CML goes.

Wishing good blood draws for everyone.

Bob , Granger, Indiana

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