New Member

[Guest guest]

Hi Jaima!

My mother herniated her C7 about 2 years ago. She suffered for about 1

month until the doctors figured out what it was. They scheduled her surgery,

and she was in the hospital for 1 night. With her surgery they had to cut

through her throat to to get to the disks. When she got home she had to wear

a neck brace 24/7 for two weeks. After the two weeks she did not need the

brace anymore and could function without. She really didn't have any

restrictions, except that when she took the brace off she had to turn her

entire body, she couldn't turn with her neck, but only for a couple off

weeks. Your situation, being that it is a lumbar spine may be a different

story. I would definitely recommend going in and talking with your doctor

about surgery. You have to remember that if you don't fix it now it is only

going to get worse. I am sure everything will work out for you. Good luck,

and let me know what you decide to do!

On 10/22/05, Jaima <jaimabrown@...> wrote:

>

> Hi Amy!

>

> A support partner would be great! Since I have not done this program

> before it would be great to have that added help and support (maybe

> you could help me get on the right track with this program...)

>

> I plan to get all of my measurements today, plan goals, take some

> before photos and all...

>

> My biggest obstacle will be getting my family to eat right also.

> It's really difficult when they can eat all the 'junk' and aren't

> really too interested in making any changes...but I'm working on it.

>

> If you would like to e-mail me, that would be great. Or, my IM

> is jaimabrown.

>

> Thanks and talk to you soon!

> Jaima

>

>

> >

> > Hi jaima,

> > I too am starting my challenge on Monday and wondered if you need

> a support partner.. This will be my 3rd challange.. I weigh in at

> 153 @ 5'4 " .. I know the program and know exactly what I need to do

> but I have been far less on track then in previous challenges.. In

> the last year I have really let myself and my eating get out of

> control.. So... I will be posting my goals on Sunday night and also

> want to try to set myself an accountabilty post for the day..

> >

> > Well, welcome and hope to hear back from you soon.. I don;t know

> about the back injury, but I hope someone else will be able to

> answer your questions..

> >

> > take care,

> > Amy

> >

>

>

>

>

>

>

>

>

[Guest guest]

Thanks ! I have thought I would rather do it now than wait

until I'm not only older, but could possibly have more damage. My

husband had surgery on his lumbar about 2 years ago and he has done

fine. He was back to work in five weeks. (He's a firefighter

though...so he had to stay off a little while longer than he felt

like he needed to).

I've dealt with surgeries to spine before...not only hubby, but my

children were in a car accident in 2002 with my mom and my daughter

broke her back and my son broke his neck. So...we've been through

the braces and surgeries and all. I feel for your mom...my son had a

really hard time coming out of his neck brace though...we had

to 'weane' him off of it. But, he was only 10 at the time...I would

have been scared too!

I'm going to just go in and see what he thinks. I took a Vicodin a

little while ago and feel pretty good right now, lol, but can't do

this forever!

Thanks again~

Jaima

>

> Hi Jaima!

> My mother herniated her C7 about 2 years ago. She suffered for

about 1

> month until the doctors figured out what it was. They scheduled

her surgery,

> and she was in the hospital for 1 night. With her surgery they had

to cut

> through her throat to to get to the disks. When she got home she

had to wear

> a neck brace 24/7 for two weeks. After the two weeks she did not

need the

> brace anymore and could function without. She really didn't have

any

> restrictions, except that when she took the brace off she had to

turn her

> entire body, she couldn't turn with her neck, but only for a

couple off

> weeks. Your situation, being that it is a lumbar spine may be a

different

> story. I would definitely recommend going in and talking with your

doctor

> about surgery. You have to remember that if you don't fix it now

it is only

> going to get worse. I am sure everything will work out for you.

Good luck,

> and let me know what you decide to do!

>

>

[Guest guest]

>> not, but I've got another situation. I have a herniated disc in my

> lumbar spine, this has been ongoing for about two months now. I

have

> been through aqua therapy and physical therapy...no relief there.

> Medicated I am okay, but I can't live on Vicodin forever, lol. Has

> anyone here had to deal with this type of injury? If so, did you

> choose surgery, time, meds, etc??? I am supposed to go for a

> surgical consult on Monday, but am scared...scared that I will

still

> have back pain, but will this hinder my getting back in shape?

>

I have 2 herniated discs in my neck C5-6 and C6-7 and carpal tunnel.

I have been on Vicodin, Robaxin, and Ibuprofen since 1995. I have now

gotten it down to a minimal amount but I don't think I'll ever be

pain free. What helped get my meds down was Bowen Therapy

www.bowtech.com

I have no advice re: surgery since mine is cervical they rarely do

surgery. I say go see the doc and ask him the pros and cons and see

if that helps you make a decision. Good luck. Being in pain is the

pits!

Colleen

[Guest guest]

There is a good cookbook called "Eating well after weight loss surgery" that could help her find some more tolerable foods. The book is on amazon.com for 11$. Many of my bypass pts tolerate most everything with just 2-3 exceptions. However, for the ones that have some difficulties I encourage them to introduce one new food per week in a very small amount. Many times they have avoided foods they had a bad experiance with early on and just need to retry. A few times I have recommened a mech soft texture to start until they become comfortable enough to take a small bite. Hope some of this helps.

Jerry marli_behn <marli_behn@...> wrote:

Hi I just joined the group. I am a dietitian at a health club and have a client who is 5 years post-op for gastric bypass surgery. I'm looking for some guidance and I hope you can help. I am looking for information on foods that patients are usually able to tolerate. The client seems to know what foods she can tolerate and which ones she cannot, however she consumes the same foods for fear of not tolerating something new. Besides telling her to try things in small portions do you have any other suggestions, or reference where I can get a list of foods that people are usually able to tolerate. She feels she wastes food when she goes out and can only tolerate a few bites and therefore doesn't like doing this. I also need some guidance on behavior modification. Any suggestions on helping

post-gastric bypass patients with eating in social situatins and not having to explain to everyone that they had surgery, especially in cultures where it's an insult not to eat a lot of food. Any help would be appreciate.Thank you

FareChase - Search multiple travel sites in one click.

[Guest guest]

The patient should go to a Gastric Bypass

Support Group.

Social situations (like the dining out) are

frequently addressed nicely at group meetings

The patient should ask their surgeon’s

office for a local support group, Wt Loss Surgery or other websites (Obesity

Help.com, etc) may list support groups by location

From:

[mailto: ]

On Behalf Of jeremiah elizondo

Sent: Sunday, November 06, 2005

8:58 PM

Subject: Re:

New member

There is a good cookbook called " Eating well after weight loss

surgery " that could help her find some more tolerable

foods. The book is on amazon.com for 11$. Many of my bypass

pts tolerate most everything with just 2-3 exceptions. However, for the

ones that have some difficulties I encourage them to introduce one

new food per week in a very small amount. Many times they have avoided

foods they had a bad experiance with early on and just need to retry. A

few times I have recommened a mech soft texture to start until they become

comfortable enough to take a small bite. Hope some of this helps.

Jerry

marli_behn

<marli_behn@...> wrote:

Hi I just joined the

group. I am a dietitian at a health club and

have a client who is 5 years post-op for gastric

bypass surgery.

I'm looking for some guidance and I hope you can

help. I am looking

for information on foods that patients are usually

able to tolerate.

The client seems to know what foods she can tolerate

and which ones

she cannot, however she consumes the same foods

for fear

of not tolerating something new. Besides

telling her to try things

in small portions do you have any other

suggestions, or reference

where I can get a list of foods that people are

usually able to

tolerate. She feels she wastes food when she

goes out and can only

tolerate a few bites and therefore doesn't like

doing this. I also

need some guidance on behavior modification.

Any suggestions on

helping post-gastric bypass patients with eating

in social situatins

and not having to explain to everyone that they

had surgery,

especially in cultures where it's an insult not to

eat a lot of

food.

Any help would be appreciate.

Thank you

FareChase - Search multiple travel sites in one click.

[Guest guest]

Oh yeah - sudden " relapse " for sure. My son has the same " germ " fears. Only

will eat with paper plates, bowels, utensils, etc. See, your son was

probably FULL of anxiety just waiting for her to make him use the " public

recorder. "

He knew it was coming. Poor thing... that alone is enough to send over the

edge. My son too was diagnosed at around 11 also. He's now 14 and a lot of

his " refusals " during middle school turned into behavior issues - it was

horrible. Are his teachers aware of this particular fear? Make sure they are

and

remind them if you have to. Just out of curiousity - what does your son's room

look like? My son's room is a disaster, but he says that " that's only paper

and stuff " not germs as in dishes, other people's germs.

In a message dated 11/12/2005 9:23:21 AM Eastern Standard Time,

clflmng@... writes:

Ya right, one

that somebody else has put their hands and mouth on!!!! Anyway, since

that day he has again been out of control with his thoughts and

actions, ie., scrubbing his hands and arms until raw, using peroxide to

get the germs out of his nose..... Would a situation like this cause a

sudden relapse?

[Guest guest]

Hi! I vote " yes " that the situation could trigger a " waxing " phase

for his OCD. Stress alone can do that. I'm sure his therapist will

work with him. That's great that the therapy/med has already helped

his OCD lessen. What medication is he taking and dosage? Just

curious as to if he's on a low dosage or the recommended dosage for

OCD (OCD usually requires higher dosages).

My son is now 16. OCD came into his life at the beginning of 6th

grade. Is the rest of school going OK? We had to get a 504 Plan to

help my son with school. He didn't have contamination issues, at

least not to any OCD degree, but had a lot of things that prevented

him from doing his work or slowed him down at it, etc.

>

> My 11 yr old son was diagnosed about 2 months ago w/ OCD and has

> started therapy and medication. His fears have always been about

germs

> and disease ever since I can remember.

>

[Guest guest]

Thank you for your response. He is currently taking 100mg Zoloft.

We have been gradually increasing the dosage as he started out with

only 25mg. My guess is it must help him because he will remind me

every morning.

> >

> > My 11 yr old son was diagnosed about 2 months ago w/ OCD and has

> > started therapy and medication. His fears have always been about

> germs

> > and disease ever since I can remember.

> >

>

[Guest guest]

His room is an absolute " pig pen " !! I have wondered why the mess

doesn't seem to bother him.

I am not having to much luck with the school. When he

first " spiraled out of control " I couldn't seem to find help

anywhere, I was actually at a desparate point, I was afraid he was

going to hurt himself. I finally call his guidance counselor to see

if she could advise me on where to go. Her first response was, are

you sure he's just not trying to get attention, I will talk to him.

I didn't even go any farther with her. A month later I get a phone

call about something he had done, and she (the guidance counselor)

told me he had not been acting quite right the past month and wanted

to know if something was wrong (she was not nice about it) Needless

to say I kinda of went off on her since I tried to confide in her to

begin with.

What I have found out is that his guidance counselor and teacher have

no idea what OCD is and how it affects the children. I tried to

explain but they really don't seem interested. I have asked his

therapist to call the school. I have also thought about buying a

book for the counselor so she can understand. She really needs to be

more familiar with the disease. Right now, I am at my wits end with

the school!!!!!

>

> Oh yeah - sudden " relapse " for sure. My son has the same " germ "

fears. Only

> will eat with paper plates, bowels, utensils, etc. See, your son

was

> probably FULL of anxiety just waiting for her to make him use

the " public recorder. "

> He knew it was coming. Poor thing... that alone is enough to send

over the

> edge. My son too was diagnosed at around 11 also. He's now 14 and

a lot of

> his " refusals " during middle school turned into behavior issues -

it was

> horrible. Are his teachers aware of this particular fear? Make

sure they are and

> remind them if you have to. Just out of curiousity - what does

your son's room

> look like? My son's room is a disaster, but he says that " that's

only paper

> and stuff " not germs as in dishes, other people's germs.

>

> In a message dated 11/12/2005 9:23:21 AM Eastern Standard Time,

> clflmng@y... writes:

> Ya right, one

> that somebody else has put their hands and mouth on!!!! Anyway,

since

> that day he has again been out of control with his thoughts and

> actions, ie., scrubbing his hands and arms until raw, using

peroxide to

> get the germs out of his nose..... Would a situation like this

cause a

> sudden relapse?

>

>

>

[Guest guest]

Hi there and welcome to the list. Yes certainly the situation you describe

could trigger a relapse. Just make sure his therapist knows about this and

can switch gears to focus on contamination issues if needed. When my child

first started making improvements (with meds and later, therapy), it was a

bumpy road for sure, but she came out a bit better each time there was a

relapse, and eventually the full-blown relapses were fewer and farther

between. My girl is 11 now, too. Sudden " surprise " situations such as your

son experienced were always worse in their effect than situations she had

anticipated.

If I were you, for now, I would tell his teachers about the contamination

issues if you haven't already or if these are not already addressed in a 504

or IEP (sounds like they are not.) I found I sometimes had to be

direct-- " Do not insist that my child use the classroom instruments " rather

then more vague things such as " My child is afraid of germs " . Yes this is

accommodating the OCD, but it is just for the meanwhile while he is getting

ramped up on his SSRI and working so hard in therapy.

Later, when his symptoms are low and stable, he will probably not need these

types of accommodations to handle his day to day life comfortably. However,

the line between normal and OCD is thin sometimes, and probably many non-OCD

people

would hesitate to use classroom wind instruments, for example. They would

probably not be thrown into severe decontamination compulsions though, as

your son has been.

Take care,

Kathy R. in Indiana

----- Original Message -----

From: " clflmng " <clflmng@...>

> My 11 yr old son was diagnosed about 2 months ago w/ OCD and has

> started therapy and medication. His fears have always been about germs

> and disease ever since I can remember.

>

> To keep this short, since he started therapy and meds the intensity of

> the OCD lessoned a bit until this week. He was in music class and

> forgot his recorder (flute) at home. He received a " referral " from the

> music teacher because it wasn't until half way through the class she

> found out he wasn't doing anything. He was suppose to ask to use one

> of the " class " recorders, and then gave him one to use. Ya right, one

> that somebody else has put their hands and mouth on!!!! Anyway, since

> that day he has again been out of control with his thoughts and

> actions, ie., scrubbing his hands and arms until raw, using peroxide to

> get the germs out of his nose..... Would a situation like this cause a

> sudden relapse?

[Guest guest]

Yes it can. You will also have good days and bad just like anyone

would. What I have found with meds and therapy is that when there is

a waxing of symptoms, they tend to be less severe and more short

lived. Since your son is new to therapy and meds, it might be a

little more difficult than you should expect down the road. If he is

not better over the next couple of days, you might want to call the

psychiatrist for a checkup in addition to your therapy.

Best wishes,

Bonnie

>

> My 11 yr old son was diagnosed about 2 months ago w/ OCD and has

> started therapy and medication. His fears have always been about

germs

> and disease ever since I can remember.

>

> To keep this short, since he started therapy and meds the intensity

of

> the OCD lessoned a bit until this week. He was in music class and

> forgot his recorder (flute) at home. He received a " referral " from

the

> music teacher because it wasn't until half way through the class

she

> found out he wasn't doing anything. He was suppose to ask to use

one

> of the " class " recorders, and then gave him one to use. Ya right,

one

> that somebody else has put their hands and mouth on!!!! Anyway,

since

> that day he has again been out of control with his thoughts and

> actions, ie., scrubbing his hands and arms until raw, using

peroxide to

> get the germs out of his nose..... Would a situation like this

cause a

> sudden relapse?

>

[Guest guest]

Welcome to the Family, !

I know you will have loads of fun here, meeting the greatest people

on earth, and knowing that you have a group who will stand by you,

thru thick and thin.

Now...I will be, as I know others here will be too, trying to learn

about your disabilities, so as to be able to understand what you are

going thru, and maybe even be able to help you on your bad days.

By the way...I am known as Nanna Dot...and I adopt everyone as

MINE...I broke my back in 2003, had severe nerve damage from it, it

developed into neuropathies, and is getting worse...I do have a lot

of severe pain, and doc just dx'd me with arthritis...I walk with a

wheeled walker, and get around ok with it...but, I am living every

Moment as if it is my last. Taking it one moment at a time is the

best thing to do, because it's hard to worry about tomorrow, when

all we really have is Right Now.

I have three kids, seven grandkids, two cats, one dog, one bird, one

Betta fish, and am about to get a guinney pig, when it gets old

enough to be seperated from Mommy. Have been married to since

June 23, 1999. And, it took me a long time to get here, but I will

be 56 this Saturday! Yaaa!!! Enough about me.

Take your time and just jump in the conversations as you see fit to.

If you have a bad day, and feel like talking about it, please do, as

we all have them, and support each other with gentle hugs and open

arms. We share so much of our lives, we ARE Family!

Talk with you later. Welcome to your new Family!

Nanna Dot

>

> hi there i just wanted to let you all know more about

> me

> my name is i live in utah. i am learning

> disabled have cerebal palsy and restless leg problems

> and overactive bladder problems i wear hearing aids

> and don't see out of my right eye at all not even

> light. my hobbies are reading painting sunchatchers

> collecting postcards and keychains and any thing with

> smowman on them i alkso to latch hooks. i don't want

> my email posted for everyone right now. my birthay is

> 05-12* i have 2 cats. and i love to watch everybody

> loves raymond golden girls er and i love lucy on tv. i

> also love the color light blue green and purple. i

> hope to make lots of friends here and mabey learn more

> about others with disablits and ambey lear better ways

> to treat my disablitys. thanks for letting me join.

>

>

>

> TAylor

>

> __________________________________________________

>

[Guest guest]

hi angela, my name is evelyn. i have three children. i joined because my six year old son has cystic fibrosis. i wanted to meet people who knew what it was like taking care of someone with an illness. i like to watch golden girls to. the other day there was a golden girls marathon on. i hope you make lots of new friends to. feel free to email me anytime you like. evelyn <rahiscool00@...> wrote: hi there i just wanted to let you all know more aboutmemy name is i live in utah. i am learningdisabled have cerebal palsy and restless leg problemsand overactive bladder problems i wear hearing aidsand don't see out of my right eye at all not evenlight. my hobbies are reading painting

sunchatcherscollecting postcards and keychains and any thing withsmowman on them i alkso to latch hooks. i don't wantmy email posted for everyone right now. my birthay is05-12* i have 2 cats. and i love to watch everybodyloves raymond golden girls er and i love lucy on tv. ialso love the color light blue green and purple. ihope to make lots of friends here and mabey learn moreabout others with disablits and ambey lear better waysto treat my disablitys. thanks for letting me join. TAylor__________________________________________________

[Guest guest]

My son saw Dr. Amy Woodward at Children's Hospital Boston. She is a

Pediatric Rheumatologist, and assisted with Jack's diagnosis.

This was 2-3 years ago, but I thinks she is still there. We liked

her, and she was excellent about follow-up e-mail correspondence for

any questions in between episodes. I recall other members on this

site seeing someone else (a male) at Children's, whom they all raved

about, but I can't recall the name. Hope this helps.

>

> Hi my name is Cheryl and I am the mother of 3 year old Madison who

was

> just diagnosed with syndrome. We actually go to back to

Boston

> Childrens Hospital in the morning to meet with the ID doctor again

and

> discuss the treatment plan. We have been to so many doctors and

shes

> had so many tests allergy, immunology and Infectious disease - very

> frustrating. I have NEVER heard of this before, nor had my

peditrican

> or the infectious disease doctor at our local community hospital. I

> was just wondering if anyone knows of a doctor that specializes in

> syndrome?? Hopefully in the Ma / RI area ???

>

[Guest guest]

hi there thanks for the welcome i am glad to be in

this group i look forward to making friends and mabey

learning something along rthe way to hope you have a

god day.

__________________________________

FareChase: Search multiple travel sites in one click.

http://farechase.

[Guest guest]

Cheryl,

My son sees Dr Lawrence Zemel. He volunteers at the Shriners Hospital

in Springfield Massachusetts. His main office is in Hartford, CT at

CT Childrens Hospital. I am not sure where you live, but maybe this

is closer than Boston.

-Tara

Mom to Evan age 5 1/2 (Pfapa diagnosis since 18 months old)

and age 7

>

> Hi my name is Cheryl and I am the mother of 3 year old Madison who

was

> just diagnosed with syndrome. We actually go to back to

Boston

> Childrens Hospital in the morning to meet with the ID doctor again

and

> discuss the treatment plan. We have been to so many doctors and

shes

> had so many tests allergy, immunology and Infectious disease - very

> frustrating. I have NEVER heard of this before, nor had my

peditrican

> or the infectious disease doctor at our local community hospital. I

> was just wondering if anyone knows of a doctor that specializes in

> syndrome?? Hopefully in the Ma / RI area ???

>

[Guest guest]

thanks for all you said to me nanna dot i will jump in

to conversations when i see fit to do so and thanks

for saying i could vent about how i am feeling on my

bad days.right now i hate being a girl cause its that

time of month again and my you knows are very bad i am

on meds to help make them better but it does not work

much so it is an soso day today. well take care of

your self and again thats for the warm welcome

TAylor

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Welcome . My name is Martha. I have nerve and spine damage, MVP,

Epilepsy, Scoliosis, Migraines, Depression and Anxiety. I have been married

for almost 24 years to the same man and have two grown children on their

own. I have a puggle name Lady Rose who is my furbaby now. Glad to meet

ya'. Martha

Re: new Member

> Welcome to the Family, !

> I know you will have loads of fun here, meeting the greatest people

> on earth, and knowing that you have a group who will stand by you,

> thru thick and thin.

> Now...I will be, as I know others here will be too, trying to learn

> about your disabilities, so as to be able to understand what you are

> going thru, and maybe even be able to help you on your bad days.

>

> By the way...I am known as Nanna Dot...and I adopt everyone as

> MINE...I broke my back in 2003, had severe nerve damage from it, it

> developed into neuropathies, and is getting worse...I do have a lot

> of severe pain, and doc just dx'd me with arthritis...I walk with a

> wheeled walker, and get around ok with it...but, I am living every

> Moment as if it is my last. Taking it one moment at a time is the

> best thing to do, because it's hard to worry about tomorrow, when

> all we really have is Right Now.

> I have three kids, seven grandkids, two cats, one dog, one bird, one

> Betta fish, and am about to get a guinea pig, when it gets old

> enough to be separated from Mommy. Have been married to since

> June 23, 1999. And, it took me a long time to get here, but I will

> be 56 this Saturday! Yaaa!!! Enough about me.

>

> Take your time and just jump in the conversations as you see fit to.

> If you have a bad day, and feel like talking about it, please do, as

> we all have them, and support each other with gentle hugs and open

> arms. We share so much of our lives, we ARE Family!

>

> Talk with you later. Welcome to your new Family!

> Nanna Dot

>

>

>

>

> >

> > hi there i just wanted to let you all know more about

> > me

> > my name is i live in utah. i am learning

> > disabled have cerebral palsy and restless leg problems

> > and overactive bladder problems i wear hearing aids

> > and don't see out of my right eye at all not even

> > light. my hobbies are reading painting sunchatchers

> > collecting postcards and keychains and any thing with

> > snowman on them i alkso to latch hooks. i don't want

> > my email posted for everyone right now. my birthday is

> > 05-12* i have 2 cats. and i love to watch everybody

> > loves golden girls er and i love lucy on tv. i

> > also love the color light blue green and purple. i

> > hope to make lots of friends here and mabey learn more

> > about others with disablits and ambey lear better ways

> > to treat my disabilities. thanks for letting me join.

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

hey cathy, my name is evelyn and my six year old son has cystic fibrosis and asthma. email me anytime. evelyn <cathyp@...> wrote: Hi, my name is , I'm 44 years old, have cystic fibrosis, chronic pancreatitis (being treated with long term pain meds), restless leg syndrome, chronic depression, post traumatic stress disorder (I was abused as a child), have hearing loss due to medications I was given when I was younger (in my 20's and early 30's) and have started wearing my hearing aids finally, plus, and this is the one I'm struggling with most at the moment, I'm a newly diagnosed diabetic. My diabetes is Cystic Fibrosis Related Diabetes, which means I'm insulin dependent right off the bat. No oral meds for me. It also means that I

can have sugar so long as I count the carbs and take insulin. The only problem with that is insulin is a growth hormone which means if I eat like I was eating before, I'll gain weight, which I really don't want to do since I'm a bit overweight already. Not a lot, but certainly I don't want to gain anymore. My birthday is 7-26-61. My big hobby is polymer clay, followed by spending time on the computer, shopping (both online and off), reading, and photography. I also love looking through catalogs. I am married to a most wonderful man, whose name is Ernie. He's 8 years my junior. We have two dogs, and earlier this year were adopted by one of the neighbor's cats (I guess he decided he got more attention over here), then started feeding a kitten she was going to take to be adopted (she works with rescue animals) that got loose and now that one is ours too. She has just recently started coming in the house, so we now have

two dog doors, two dogs, and two indoor/outdoor cats. Well, we also feed two of the neighbor's other cats, but they are strictly outdoor. We don't consider them ours. I have not worked in 5 1/2 years, having medically retired after working 18 years, 14 of which was as a pharmacy technician, a job I really enjoyed. So, you now know more about me than my mother does at the moment. But that's another story. Thanks for letting me join and reading this far. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email:

-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ ***

~~~~

[Guest guest]

Hi There!

I agree. I use tylenol and advil to treat our son's fevers. We have

used the orapred only once for the purpose of diagnosing, but frankly the

side-effects of steroids make me uncomfortable. Therefore, we have opted to

primarily treat with the anti-pyretics. We have had pretty good results.

Braden's fevers used to last a full week, but his last one was about 3 and 1/2

days. I'm grateful for even the smallest sign of improvement!

Blessings to you and your son.

is, mother to Braden (22mo, ) and Tanner, 5

dmb2r <benson.236@...> wrote:

Hello - We have an almost 3 y/o son provisionally dx'd w/ ,

pending Ig's, complement, ANA, TRAPs, etc. I wonder if anyone has had

success w/ alternating tylenol / ibuprofen every 3-4 hours to abort /

treat a febrile episode? It seems early recognition and getting anti-

fever medicine on board immediately often results in duration of ~2-3

days instead of the usual 5-6 for our son. Kind regards, Don

[Guest guest]

At 01:33 PM 11/21/2005, you wrote:

>Hello all,

>I'm so thrilled to be in this group and share aroma

>info with you. I've been a certified aromatherapist

>for about 5 years...mainly using it as a medicinal

>alternative for myself and family. Recently I've

>become interested in perfumery and I am hoping to

>learn and share with all of you on this subject.

>I live in San Francisco with my husband.

>until next time...AH

Hi Aimee

Welcome to the group. Check out my article on the website in my signature

to see my take on aromatherapists becoming natural perfumers ;-) Also, I

posted recently about a Mandy Aftel event in SF on the 1st. Perhaps you can

attend and give us a report.

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

/

Join to study natural perfumery

" The Age of the Foodie is passé. It is now the Age of the Scentie. "

[Guest guest]

We certainly do have a new family member on line.

Welcome Patty from the Sierra Nevada foothills of California.

I have 3 weeks of tx left to do and I am undetectable for the

virus....tell us about yourself.

Dick

At 05:16 AM 11/27/2005, you wrote:

Hey, gang, we have a

new member. Welcome, Patty. Hope you’ll jump in and make

yourself at home. We’re a crazy, but loving family here.

You’ll be our 2nd Patty, although technically the other one is

Pat.

I’m a/k/a De, 48, in Georgia, single mom to 2 teens. Clear,

so far, Praise God, after treatment throughout 2004.

De

[Guest guest]

We certainly do have a new family member on line.

Welcome Patty from the Sierra Nevada foothills of California.

I have 3 weeks of tx left to do and I am undetectable for the

virus....tell us about yourself.

Dick

At 05:16 AM 11/27/2005, you wrote:

Hey, gang, we have a

new member. Welcome, Patty. Hope you’ll jump in and make

yourself at home. We’re a crazy, but loving family here.

You’ll be our 2nd Patty, although technically the other one is

Pat.

I’m a/k/a De, 48, in Georgia, single mom to 2 teens. Clear,

so far, Praise God, after treatment throughout 2004.

De

[Guest guest]

I wanted to correct a typo in my message. I apologize. I meant to

say that it does make him feel better faster using the Tyelnol

suppositories opposed to the oral dose. Thank you.

>

> Hello. My name is Kate and I have a 20 month old son with

,

> asthma, allergies, and GERD. He is about to have his second ear

tube

> surgery. I wondered if anyone else has had problems with ear

> infection with their child. It seems that he gets an ear infection

a

> couple of days after every fever. I also wanted to know if anyone

> experiences a fever that rises very quickly. Braiden goes from a

> normal body temp to 106 in 15 minutes. His ID told us to start

> expecting seizures when it goes up this fast and that terrifies

me.

> One thing that I found brings his fever down quickly is Tylenol

> suppositories. The oral medicine didn't do much of anything but

the

> suppoitories bring him down to 104 easily. I am more comfortable

> with a fever of 104, and so is Braiden! While it doesn't get rid

of

> it, it doesn't make him feel better so I thought some of you might

> want to try it. I use it along with oral ibuprofen and it is the

> miracle drug for fevers!! Please let me know anything else I can

do

> to make these episodes a little easier on him. Thank you, Fran,

for

> providing an outlet for stress out and concerned parents of .

> My prayers are with you and your son.

>

> Kate Murray

> katie_luv_2003@y...

> Mother to Braiden, 20 months old, , asthma, allergies,

GERD,and

> chronic ear infections

>

[Guest guest]

Hi ,

WELCOME! WOW! you found out very early. That is good if any treatment

has to be done. Here is my opinion. I'd call back and find out the

degree of the curve. make them measure it and tell you. If it is

greater than 20 degrees, in my opinion, i wouldn't wait three months.

you need to get an MRI as soon as possible to find out if it is

idiopathic or congenital. In three months,Evan will be almost 7

months old. at seven months, my son cole's curve was at 40 degrees

already. i don't want to scare you, but i think the general senses

here is not waiting at all. if he has idiopathic scoliosis, and it is

greater than 20 degrees, he may qualify and benefit from a cast.

because he is so young, his time in it would be relativeley short.

you should check into the cast done by shrineres salt lake and

shiriner erie, PA. They do a casting technique that fixes the curve,

and most other docs. casts and braces only stop the curve from

progressing.

we found out cole had idiopathic scoliosis about two months ago. he

was 7 months old and already at 40 degrees. our local ortho. surg.

wanted to wait and see for three months too. i wasn't happy with

that, and found out about the casting technique everyone on this

board talks about, and cole is already in a cast and our " three

month " follow up isn't for another month. by then cole will be in his

second cast. In his cast, he is at 20 degrees, and we expect

continued improvement as new casts are applied.we have been told to

expect him in a cast for 12-18 months. that seems like a long time,

but our local ortho. ped. surg. was talking about several surgeries,

growing rods, spine fusing that would last 16+ years.

, this is all just my opinion and experience. please do what you

feel is best for evan and your family as you learn more about this.

things eventually will be fine. evan may never need any treatment if

the curve is small. please feel free to e-mail me directly at

michelle_r_baird@... if you have any questions or just want to

talk, or just post here. these moms on this board are great and have

lots of experience and knowledge when it comes to infantile

scoliosis, and everyone is always happy to help and share advice and

opinions.

good luck.

michelle

mom to twin 9 month olds Cole and Jack, and to cute as pie Lily 2 1/2

years

>

> My son Evan is 16 weeks old and we had noticed a curve in his back-

his

> first visit to a Ped. Orthopedic specialist was yesterday. They

told us

> that he has infantile scoliosis-but didn't tell us the degree of

the

> curve. Since he is so young, they said that they would monitor him

> closely and that they would do a re-eval in 3 mos (March 1st) and

if it

> had gotten worse, they would consider a cast or brace but if it

didn't

> get any worse, they would prob. just let it go. He also has

torticollis

> and is having PT for that. I was just wondering if anyone was in my

> same situation- we could use someone else's stories or advice to

help

> us out. My dd Gracie is 2 1/2 and we have been blessed to not have

any

> medical problems w/her up to this point. Thanks in advance!

>

>

>