Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I also told my son that if he is gay it would not change my feeings for him at all. He replies that he is attracted to girls and is totally confused by these sexual thoughts that continue to pop in his head and wonders if it means that he could be bisexual. We have also explained that many people who suffer with OCD have sexual thoughts. He still feels like he's the only person who has this. I hope some day to find a group therapy for him or at least someone his age online he can communicate with and know that he's not alone. Thanks for your reassuring words. How old is Hannah? Has she been successful with any meds or therapy? kelleydinkins@... wrote: My oldest daughter, Hannah, thought she was gay for awhile also. I told her that if she was my feelings for her and about her would not change and that worrying that one might be gay was one of the most common OCD thoughts around. This seemed to alleviate the worry in her mind. I also tell my girls regularly that sexual thoughts are completely normal and that it is the OCD that makes them seem bad. I know that both of them are frequently bothered by sexual thoughts and that they feel very guilty. It sounds like your son is bothered by them too. Have you ever come right out and said that many many people with OCD have sexual thoughts that bother them? My oldest was pretty sure she was the only one! Kelley in NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Glenda, My brother in law (with OCD) used to fixate on lips and that could mean lips of either gender. Obviously focusing on a guy's lips brought on feelings that he may be gay, also. I think he has these thoughts because OCD takes our worst fears and makes the take over our children's lives. Obviously, this is something that would be very distressing for him. Did you ever get the book " The imp of the mind? " There is a whole section on treating a person who has homosexual thoughts - and no, he did not turn out to gay, neither did my brother in law, who is happily married and has three children. Do you have your new appointment tomorrow? Glenda ez <g_mart1971@...> wrote: I also told my son that if he is gay it would not change my feeings for him at all. He replies that he is attracted to girls and is totally confused by these sexual thoughts that continue to pop in his head and wonders if it means that he could be bisexual. We have also explained that many people who suffer with OCD have sexual thoughts. He still feels like he's the only person who has this. I hope some day to find a group therapy for him or at least someone his age online he can communicate with and know that he's not alone. Thanks for your reassuring words. How old is Hannah? Has she been successful with any meds or therapy? kelleydinkins@... wrote: My oldest daughter, Hannah, thought she was gay for awhile also. I told her that if she was my feelings for her and about her would not change and that worrying that one might be gay was one of the most common OCD thoughts around. This seemed to alleviate the worry in her mind. I also tell my girls regularly that sexual thoughts are completely normal and that it is the OCD that makes them seem bad. I know that both of them are frequently bothered by sexual thoughts and that they feel very guilty. It sounds like your son is bothered by them too. Have you ever come right out and said that many many people with OCD have sexual thoughts that bother them? My oldest was pretty sure she was the only one! Kelley in NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Glenda, My brother in law (with OCD) used to fixate on lips and that could mean lips of either gender. Obviously focusing on a guy's lips brought on feelings that he may be gay, also. I think he has these thoughts because OCD takes our worst fears and makes the take over our children's lives. Obviously, this is something that would be very distressing for him. Did you ever get the book " The imp of the mind? " There is a whole section on treating a person who has homosexual thoughts - and no, he did not turn out to gay, neither did my brother in law, who is happily married and has three children. Do you have your new appointment tomorrow? Glenda ez <g_mart1971@...> wrote: I also told my son that if he is gay it would not change my feeings for him at all. He replies that he is attracted to girls and is totally confused by these sexual thoughts that continue to pop in his head and wonders if it means that he could be bisexual. We have also explained that many people who suffer with OCD have sexual thoughts. He still feels like he's the only person who has this. I hope some day to find a group therapy for him or at least someone his age online he can communicate with and know that he's not alone. Thanks for your reassuring words. How old is Hannah? Has she been successful with any meds or therapy? kelleydinkins@... wrote: My oldest daughter, Hannah, thought she was gay for awhile also. I told her that if she was my feelings for her and about her would not change and that worrying that one might be gay was one of the most common OCD thoughts around. This seemed to alleviate the worry in her mind. I also tell my girls regularly that sexual thoughts are completely normal and that it is the OCD that makes them seem bad. I know that both of them are frequently bothered by sexual thoughts and that they feel very guilty. It sounds like your son is bothered by them too. Have you ever come right out and said that many many people with OCD have sexual thoughts that bother them? My oldest was pretty sure she was the only one! Kelley in NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Hi Dawn, I can relate to what you say, although in my case it's with my son. We both have Ank Spon. I find it very difficult to know whether my son is up to doing stuff, like tidying his room, or if he's just being lazy. It's very tiring being behind him all the time so half the time I just give up and do what ever needs doing myself. I also went through the same stuff when my husband (now passed) had an accident that left him partially disabled many years ago. I dish out the 'tough love', get what is needed to be done done, but end up feeling rotten. Worrying if I've done the right thing by pushing or not. Very much a double edged sword. I've asked him to do his room this morning. He say's he's in pain and tired. But guess who is going out tonight! Room being tidied as I key in. (((((hugs))))) AngieDawn <ladymariann@...> wrote: Hi my name is Dawn and I'm not sick However my husband is Russ has muscular dystrophy and a few years ago broke his hip in 3 places and is now wheelchair bound. He is very weak now in many regards, yet strong in others. He can take care of his daily needs and is mobile in that he can transfer himself from chairs and beds using a transfer board. But he's weak in that each task tires him greatly. And lately he's using that as an excuse. Its my belief that if he voluntarily goes into the night - he won't return. So I pull on him and struggle and tell him to do it and he does and all seems fine. Our relationship is great but his lack of wanting to do more is draining me. But not because I have to do more but because I have no one to talk to about this. I'm hoping this group helps with that. I look forward to meeting everyone, but especially looking to connect with others with spouses that are physically challenged - but not incapaciated. From Cape Cod - we give you all a hearty hello! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Welcome Dawn, I am the sickie here. I try not to be too much of a burden. Our house looks like hell. oh well it gets cleaned every 2 weeks, we have a cleaning service!! I don't do a lot of dinner making, cleaning, shopping etc. Our kids (22 & 24) are starting to pitch in and help there. Great kids. Nick is 24, a pharm tech and healthy, saving for grad school. is 22, a college student majoring in mechanical engineering (my husband is one of those) and also happens to have cystic fibrosis. She takes care of herself. I am 46 and I have fibro plus asthma, allergies and a sinus infection that has been going on all summer. I am finally having a CT scan today. I have a slight feeling I could have cf too. I also have a bunch of other problems including anxiety & depression. I am on about 25 Rx meds for all of it. I feel for you having to care for your husband esp if he seems to be getting the feeling of giving up. Is he on antidepressants? just wondering? all us sickies seem to need them. We just returned to church last Sunday after a looong absence. It was nice, we decided to try a different church, same denomination. We liked it. I have joined Thurs am bible study and am volunteering too, jump right in with both feet right! My pain eval was postponed seems I failed to keep an appt with the pscyh. I could have been there just got confused. oh well I still think I will get in. love to all and have a good weekend! God bless! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Hi Dawn: I know exactly what your husband is going through I have MD (FSH) almost for 30 years. It's so depressing when you try and try to keep your independence but it just slips out of your hands and there isnt a darn thing you can do about it. You just want to give up and quit doing things that make you happy which is definately not good. I know when I became wheelchair bound I grew a chip on my shoulder as big as the Grand Canyon and became angry at the world including my family. It seemed like it was the end of the world because I truly was being treated differently by my co-workers (when I was working full time I am now retired) and the public. Instead of just being physically challenged people thought I was mentally challenged because i am in a wheelchair. This drove me nuts and I began telling people off left and right when they would talk to the person that was with me instead of me or just ignore me like I was invisible when I would be by myself. It sounds like your husband needs an adjustment period and get use to this new obstacle in his life. I think tough love will help him get some of his independence back I know that is what my family did for me, also anti-depressants helped me along. I still get depressed when more of my independence is taken away but I know I was given this disease for a reason but it sure hurts terribly somedays. I hope things get better for you. Take Care Sharon .. > > Welcome Dawn, > I am the sickie here. I try not to be too much of a burden. Our house looks like hell. oh well it gets cleaned every 2 weeks, we have a cleaning service!! > > I don't do a lot of dinner making, cleaning, shopping etc. Our kids (22 & 24) are starting to pitch in and help there. Great kids. Nick is 24, a pharm tech and healthy, saving for grad school. is 22, a college student majoring in mechanical engineering (my husband is one of those) and also happens to have cystic fibrosis. She takes care of herself. > > I am 46 and I have fibro plus asthma, allergies and a sinus infection that has been going on all summer. I am finally having a CT scan today. I have a slight feeling I could have cf too. I also have a bunch of other problems including anxiety & depression. I am on about 25 Rx meds for all of it. I feel for you having to care for your husband esp if he seems to be getting the feeling of giving up. Is he on antidepressants? just wondering? all us sickies seem to need them. > > We just returned to church last Sunday after a looong absence. It was nice, we decided to try a different church, same denomination. We liked it. I have joined Thurs am bible study and am volunteering too, jump right in with both feet right! > > My pain eval was postponed seems I failed to keep an appt with the pscyh. I could have been there just got confused. oh well I still think I will get in. > > love to all and have a good weekend! God bless! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 welcome to the group kathy. sorry to hear you have so many difficulties but there are a great many people here to offer you support. evelyncookie1152 <cookie1152@...> wrote: hi my name is kathy i am 53yrs old i have disbeted type 2 have had it for almost 20 yrs because of it i am losing my eye sight i have high b/p and i am anemic i had a stroke 3yrs ago praise the lord i had no side effects from it mt hubby ialso has diabetes How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 Hi Robbie, I am somewhat new myself, and I had a liver biopsy a few days ago. It was not nearly as big a deal as I thought it would be. I believe it is the only way to determine the extent of the damage to the liver. Don't know if I will be starting treatment anytime soon, but my RNA is 4.3 mil so it's highly likely. Anyway, welcome to the Group! This group has been a God send to me since I got diagnosed in August. There is so much mis-information out there on the internet,and even from doctors, that I feel blessed to hear from those who have actually experienced this disease first hand. Good luck with your doctor's appt; remember to bring a list of all of your questions and make sure you get them answered to your satisfaction! Blessings, Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 Robbie-welcome on board! I can't help you because I am the wife of a nonresponder..but you will get a slew of advise from the experts! This is a great group! They have a volume of information All the best! Kathy --- Robbie J <robbiej4@...> wrote: --------------------------------- Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 hello rob.information is here on both sides of treatment,i hope you can get all your questions answered. --- Robbie J <robbiej4@...> wrote: --------------------------------- Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Tim Parsons knoxville,tn 37931 865-588-2465 x107 work www.knoxville1.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 WELCOME Robbie,, you will love our group,, let us know if you have any questions and we will really try to find answers for you!!! jaxRobbie J <robbiej4@...> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2006 Report Share Posted October 16, 2006 Dear Robbie, I would say pretty much everybody in the group has had a liver biopsy. If you have questions about it we would be glad to share our experiences with you. Any thing that we can do to help you through this we are here for you. Love JanetRobbie J <robbiej4@...> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Take the ordinary things of life, and make them your own. Do the impossible with a smile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2006 Report Share Posted October 16, 2006 Welcome to the group Robbie , I didn't have a biopsy before I treated the first time . But I have since learned it is important to have one , so each time before I treat now I get biopsies . New Member Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2006 Report Share Posted October 16, 2006 Robbie...Yep, my liver guy kept wanting me to have biopsy also, saying he couldn't really tell the seriousness of the problem without it. I had put it off because I don't like people poking holes in me and, frankly, I was scared. Finally, I let them book me for it. The appointment time came and the procedure was over but there were a couple of things I wish I had known beforehand. One, was that the tech left the room and was apparently talking to me over a PA system from behind a window somewhere....telling me things to do. The PA wasn't the greatest and it took me while before I realized I was being given instructions. I felt the tech was a bit annoyed with me because I didn't have immediate grasp of what was going on. Two, it is apparently VERY important that you lie absolutely still while all this is going on. Nobody said that but later there were indications that "the patient's movements caused problems". Now it sounds like this is more of a problem with a lack of communication on the part of the technician and this would probably not be the case at another location....however, I just pass this along to you so you might ask what to expect pre-test and what you are expected to do. I feel some things that should have been made clear to me, were not. Ask them to let you know what is going on. I wish someone had told me this. Good Luck, gwen Re: New Member Dear Robbie, I would say pretty much everybody in the group has had a liver biopsy. If you have questions about it we would be glad to share our experiences with you. Any thing that we can do to help you through this we are here for you. Love JanetRobbie J <robbiej4hotmail> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Take the ordinary things of life, and make them your own. Do the impossible with a smile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2006 Report Share Posted October 16, 2006 Thank You all so much for your kind welcoming words. The reason I ask about biopsy is I went to a doctor who wanted to start me on treatment without a biopsy or even a viral load and the more I read the more this worried me so I am going for a second opinion this week. I have to say when I started this journey in July I did not have insurance and I think the doctor was trying to save me money but I would rather run up my credit cards and be sure than take a shot in the dark (oops didn't mean that pun but I will stand by it now that it is out). I now have insurance (thank goodness) so I can get any lab test for free as long as I have it done at my office (I work in a hospital). I have been sick for a couple of years and I have had tons of tests and x rays and everything and finally we came to this diagnosis in that time I closed my business and went to work at the hospital so I could have insurance. All that brings me here to you and I am so glad I have already learned more just reading previous posts than anywhere. I am so glad to hear from people who are also taking this journey. Sorry this was so Long Robbie From: Janet <doc_jade@...>Reply-Hepatitis C To: Hepatitis C Subject: Re: New MemberDate: Mon, 16 Oct 2006 05:44:10 -0700 (PDT) Dear Robbie, I would say pretty much everybody in the group has had a liver biopsy. If you have questions about it we would be glad to share our experiences with you. Any thing that we can do to help you through this we are here for you. Love JanetRobbie J <robbiej4hotmail> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Take the ordinary things of life, and make them your own. Do the impossible with a smile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2006 Report Share Posted October 16, 2006 Robbie, Glad you found us, like you I would rather have the biopsy, and test done to find out my viral load than jump off into treatment without all the proper information. A second opinion is a great idea. This group is amazing. We have very knowledgeable staff here as well as many of our members are on the ball about finding out the latest and greatest ways to treat this disease. And they provide a wonderful support group for everyone who joins our group. Sometimes it is hard for me to realize that we are not all living right next door to one another because of the feeling of closeness this group provides. We have members who stretch the globe here, so you might see a post from the UK, Australia, and many other places. Glad to see you posting and you are always welcome here. Love JanetRobbie J <robbiej4@...> wrote: Thank You all so much for your kind welcoming words. The reason I ask about biopsy is I went to a doctor who wanted to start me on treatment without a biopsy or even a viral load and the more I read the more this worried me so I am going for a second opinion this week. I have to say when I started this journey in July I did not have insurance and I think the doctor was trying to save me money but I would rather run up my credit cards and be sure than take a shot in the dark (oops didn't mean that pun but I will stand by it now that it is out). I now have insurance (thank goodness) so I can get any lab test for free as long as I have it done at my office (I work in a hospital). I have been sick for a couple of years and I have had tons of tests and x rays and everything and finally we came to this diagnosis in that time I closed my business and went to work at the hospital so I could have insurance. All that brings me here to you and I am so glad I have already learned more just reading previous posts than anywhere. I am so glad to hear from people who are also taking this journey. Sorry this was so Long Robbie From: Janet <doc_jade >Reply-Hepatitis C To: Hepatitis C Subject: Re: New MemberDate: Mon, 16 Oct 2006 05:44:10 -0700 (PDT) Dear Robbie, I would say pretty much everybody in the group has had a liver biopsy. If you have questions about it we would be glad to share our experiences with you. Any thing that we can do to help you through this we are here for you. Love JanetRobbie J <robbiej4hotmail> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Take the ordinary things of life, and make them your own. Do the impossible with a smile Take the ordinary things of life, and make them your own. Do the impossible with a smile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Robbie I think you are correct to get a second opinion and NOT do ANYTHING until you have had a biopsy and know how much damage you do or do not have and what genotype you are.. the ONLY way YOU CAN make an INFORMED decision is to have all the facts,, thats insane to just push you onto tx without gathering all the facts.. Im glad you are not letting anyone force you onto tx without making sure that you want to tx,, jaxRobbie J <robbiej4@...> wrote: Thank You all so much for your kind welcoming words. The reason I ask about biopsy is I went to a doctor who wanted to start me on treatment without a biopsy or even a viral load and the more I read the more this worried me so I am going for a second opinion this week. I have to say when I started this journey in July I did not have insurance and I think the doctor was trying to save me money but I would rather run up my credit cards and be sure than take a shot in the dark (oops didn't mean that pun but I will stand by it now that it is out). I now have insurance (thank goodness) so I can get any lab test for free as long as I have it done at my office (I work in a hospital). I have been sick for a couple of years and I have had tons of tests and x rays and everything and finally we came to this diagnosis in that time I closed my business and went to work at the hospital so I could have insurance. All that brings me here to you and I am so glad I have already learned more just reading previous posts than anywhere. I am so glad to hear from people who are also taking this journey. Sorry this was so Long Robbie From: Janet <doc_jade >Reply-Hepatitis C To: Hepatitis C Subject: Re: New MemberDate: Mon, 16 Oct 2006 05:44:10 -0700 (PDT) Dear Robbie, I would say pretty much everybody in the group has had a liver biopsy. If you have questions about it we would be glad to share our experiences with you. Any thing that we can do to help you through this we are here for you. Love JanetRobbie J <robbiej4hotmail> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 I went to the doctor yesterday and he was great it was like night and day. I already knew I was genotype 3 which they tell me is the easiest to cure. He ordered tons of other tests including a viral load and I have a biopsy on the 27th so I will find out a lot more after that. There is a possibility that I have rheumatoid arthritis and if I do I can't use interferon. The other doctor knew I was being treated as if I had RA and he never mentioned that interferon could make it worse. This doctor is a lot more through and I don't think he even noticed whether I had insurance or not. I also really liked his nurse who I will have a lot of contact with she was genuinely kind. He also told me that he wanted me to be an active participant in my own treatment which is something that really impresses me. Between this group and his attitude I am feeling much more comfortable with my future. I have had some depression in the past so he wants me to see a therapist before I start treatment incase the interferon causes depression. Anyway I feel a lot better about it all now. Thanks for the Support, Robbie From: Jackie on <redjaxjm@...>Reply-Hepatitis C To: Hepatitis C Subject: Re: New MemberDate: Wed, 18 Oct 2006 22:52:30 -0700 (PDT) Robbie I think you are correct to get a second opinion and NOT do ANYTHING until you have had a biopsy and know how much damage you do or do not have and what genotype you are.. the ONLY way YOU CAN make an INFORMED decision is to have all the facts,, thats insane to just push you onto tx without gathering all the facts.. Im glad you are not letting anyone force you onto tx without making sure that you want to tx,, jaxRobbie J <robbiej4hotmail> wrote: Thank You all so much for your kind welcoming words. The reason I ask about biopsy is I went to a doctor who wanted to start me on treatment without a biopsy or even a viral load and the more I read the more this worried me so I am going for a second opinion this week. I have to say when I started this journey in July I did not have insurance and I think the doctor was trying to save me money but I would rather run up my credit cards and be sure than take a shot in the dark (oops didn't mean that pun but I will stand by it now that it is out). I now have insurance (thank goodness) so I can get any lab test for free as long as I have it done at my office (I work in a hospital). I have been sick for a couple of years and I have had tons of tests and x rays and everything and finally we came to this diagnosis in that time I closed my business and went to work at the hospital so I could have insurance. All that brings me here to you and I am so glad I have already learned more just reading previous posts than anywhere. I am so glad to hear from people who are also taking this journey. Sorry this was so Long Robbie From: Janet <doc_jade >Reply-Hepatitis C To: Hepatitis C Subject: Re: New MemberDate: Mon, 16 Oct 2006 05:44:10 -0700 (PDT) Dear Robbie, I would say pretty much everybody in the group has had a liver biopsy. If you have questions about it we would be glad to share our experiences with you. Any thing that we can do to help you through this we are here for you. Love JanetRobbie J <robbiej4hotmail> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie Stay in touch with old friends and meet new ones with Windows Live Spaces Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 I have RA and I have treated 4 times ...so far I don't notice any difference or increased problems with the ra . Re: New Member I went to the doctor yesterday and he was great it was like night and day. I already knew I was genotype 3 which they tell me is the easiest to cure. He ordered tons of other tests including a viral load and I have a biopsy on the 27th so I will find out a lot more after that. There is a possibility that I have rheumatoid arthritis and if I do I can't use interferon. The other doctor knew I was being treated as if I had RA and he never mentioned that interferon could make it worse. This doctor is a lot more through and I don't think he even noticed whether I had insurance or not. I also really liked his nurse who I will have a lot of contact with she was genuinely kind. He also told me that he wanted me to be an active participant in my own treatment which is something that really impresses me. Between this group and his attitude I am feeling much more comfortable with my future. I have had some depression in the past so he wants me to see a therapist before I start treatment incase the interferon causes depression. Anyway I feel a lot better about it all now. Thanks for the Support, Robbie From: Jackie on <redjaxjm >Reply-Hepatitis C To: Hepatitis C Subject: Re: New MemberDate: Wed, 18 Oct 2006 22:52:30 -0700 (PDT) Robbie I think you are correct to get a second opinion and NOT do ANYTHING until you have had a biopsy and know how much damage you do or do not have and what genotype you are.. the ONLY way YOU CAN make an INFORMED decision is to have all the facts,, thats insane to just push you onto tx without gathering all the facts.. Im glad you are not letting anyone force you onto tx without making sure that you want to tx,, jaxRobbie J <robbiej4hotmail> wrote: Thank You all so much for your kind welcoming words. The reason I ask about biopsy is I went to a doctor who wanted to start me on treatment without a biopsy or even a viral load and the more I read the more this worried me so I am going for a second opinion this week. I have to say when I started this journey in July I did not have insurance and I think the doctor was trying to save me money but I would rather run up my credit cards and be sure than take a shot in the dark (oops didn't mean that pun but I will stand by it now that it is out). I now have insurance (thank goodness) so I can get any lab test for free as long as I have it done at my office (I work in a hospital). I have been sick for a couple of years and I have had tons of tests and x rays and everything and finally we came to this diagnosis in that time I closed my business and went to work at the hospital so I could have insurance. All that brings me here to you and I am so glad I have already learned more just reading previous posts than anywhere. I am so glad to hear from people who are also taking this journey. Sorry this was so Long Robbie From: Janet <doc_jade >Reply-Hepatitis C To: Hepatitis C Subject: Re: New MemberDate: Mon, 16 Oct 2006 05:44:10 -0700 (PDT) Dear Robbie, I would say pretty much everybody in the group has had a liver biopsy. If you have questions about it we would be glad to share our experiences with you. Any thing that we can do to help you through this we are here for you. Love JanetRobbie J <robbiej4hotmail> wrote: Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie Stay in touch with old friends and meet new ones with Windows Live Spaces Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Hi Robbie and welcome to the group. You have found a great place to come to for support and answers. Having experienced 2 biopsys myself, I would suggest you have them go straight in and NOT through your side between your ribs. It is done both ways and I found by going straight in there is not discomfort afterwards. Good luck and keep us posted. Valarie --- Robbie J <robbiej4@...> wrote: --------------------------------- Hi, I am new to the group I have Hep C and am going to see a new doctor on Wednesday and may be starting treatment soon. Everything is very confusing right now and I am more than a little nervous about starting treatment. I do have a question. Has everyone who is here that is hep c positive had a liver biopsy? Well it is good to be here. Robbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Hi Jenn and welcome from another newbie I am sorry to hear of your health problems, sounds like you have a lot to deal with... I am Heidi, 33 from Sydney Australia. I suffer from 25% loss of back, 15% loss of legs, Rheumatoid arthritis, fibromyalgia, ankylosing spondylitis, epilepsy and restless legs syndrome.. I also suffer from bipolar.. I guess I get my inspiration from within, I tend to try not to let things get me down, but on days when the pain is bad and I feel like crying you sometimes wonder.. But I know there are so many people out there worse off than me... Hugs Heidi -- New Member Hello Everyone-My name is Jenn. I live in Ontario, Canada. I havecerebral palsy, chronic pain and a movement disordercalled dystonia. It is similar to Parkinson's Disease.I also have celiac disease, which is an allergy towheat, rye, oats, barley. I joined the list because Iam in constant pain and almost always feel stuck athome. I feel as if I am existing, rather than living.I use a power wheelchair, with tilt and recline. I canstill walk short distances, but not without pain. Ihave not been able to complete school due to pain, butI want so much to help others and hopefully become atherapist. I am feeling stuck right now, in that allof the medicines I am taking are not really helpingfor pain. I use alternative therapies likecraniosacral therapy, Trager bodywork and therapeuticriding, but wonder what else I can do, whom else toask for help.I just detest struggling. The weather is bad tonight,with cold, rain and blowing winds, so that makesthings worse. Does anyone have any inspiration tooffer or hope to give?THANK YOU SO MUCH FOR YOUR HELP AND SUPPORT!Jenn Don't Quit.Don't quit when the tide is lowest,For it's just about to turn;Don't Quit over doubts and questions,For there's something you may learn.Don't quit when the night is darkest,For it's just a while 'til dawn;Don't quit when you've run the farthest,For the race is almost won.Don't quit when the hill is steepest,For your goal is almost nigh;Don't quit, for you're not a failureUntil you fail to try.~ Author unknown~The word 'Impossible' itself spells - "I'm possible". Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Welcome Jenn, I don't know if you read my earlier post but I am w/ fibromyalgia among a few other health issues. My daughter has cystic fibrosis and I am being tested to see if I have it too. I am sorry you have to be in a wheelchair. We can still walk at least! I am sure you will find lots of friends and support on this group. It is a great group for anyone with any kind of illness or disability. love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Congratulations !!! Love, N On 10/30/06 8:05 PM, " " <laurenmarie791@...> wrote: > My boyfriend Rob just joined the list...say hi sweetie, dont be shy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Hey , I tried emailing you, off list, but it came back " undeliverable, user unknown " Has your addy changed? Angie On Monday 30 October 2006 21:05, wrote: > My boyfriend Rob just joined the list...say hi sweetie, dont be shy > > -- Angie Please visit my favourite websites: for Ford Model A enthusiast http://www.recap.on.ca a memorial website of my father http://www.roybebee.ca The Monarchs (50's & 60's band my Uncle plays in) http://www.the-monarchs.ca a chapter of Model A Owners of Canada Inc http://www.trilliumchapter.ca an electric wheelchair hockey league http://www.cewha.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 sure does sound like you have a lot going on at such a young age. but you do sound like a very strong person who knows what to do and what she wants. you have come to the right place to make friends and get support. i look forward to hearing from you in the future. evelyn" D. Gilbertson" <jennd@...> wrote: Hello everyone. I am new to the group. My name is or you may call me Bubbles like all my friends do. I am 24 and a single mother of three wonderful children. I have one daughter, age 5, and two sons, ages 3 and 2. The three year old is a special needs child, suffering from reactive attachment disorder and long-term effects from when his father beat him at age 2 months. I live in Fargo, ND (yes it is getting cold here). I have psoriasis, psoriatic arthritis, spondylolisthesis, ankylosing spondylitis, lichen simplex, fibromyalgia, and undifferentiated connective tissue disorder. I also suffer from post-meningitis migraines. I also help care for my mother who has AVM, scleroderma, multiple sclerosis, focal segmental glumerosclerosis, acute pancreatitis, degenerative disk disease, lichen simplex, mixed connective tissue disease, and some other minor ones. I am currently on SSI and do some data entry from home. I am currently going to college to get my associates in medical administrative support with an emphasis in medical coding. I am currently taking sulfasalazine for the AS, psoriatic arthritis, and psoriasis; flexeril for the fibromylagia; ultram for pain; procardia for raynauds; and was just put on amytriptyline for both the fibro and migraines.I look forward to meeting you all and getting to know you.Take care, or Bubbles Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
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