New Member

[Guest guest]

Hi,

My name is Cari. My son was just diagnosed with ... I just joined your

group yesterady. Do any of your children have behavioral issues after an

episode?? My son has temper tantrums,is restless all night,and so whiney for 3

or 4 days after.I feel like by the time he is back to normal we start all over

again.It is so frustrating and exhausting.. any suggestions???

Cari in Saint sburg Florida

[Guest guest]

Hi,

My name is Cari. My son was just diagnosed with ... I just joined your

group yesterady. Do any of your children have behavioral issues after an

episode?? My son has temper tantrums,is restless all night,and so whiney for 3

or 4 days after.I feel like by the time he is back to normal we start all over

again.It is so frustrating and exhausting.. any suggestions???

Cari in Saint sburg Florida

[Guest guest]

Hi Cari

My daughter has terrible tantrums after an episode and cries over the

slightest thing. She kicks and cries out in her sleep for a couple

of nights after. Does your son have the steroid when he has an

episode? I put it down to that but thinking about it she used to be

like it before she started having it! It is so frustating because

they must still feel a bit lousy but at the same time it's hard going

on us poor parents!! I try to ignore the tantrums and praise her

good behaviour in these periods, I've found that any attention during

the tantrums makes her much much worse. It's still exhausting

though!!

Sally mum to Beth aged 3 (T & A in 4 weeks and counting!!)

Cheshire, England

[Guest guest]

Hi Cari

My daughter has terrible tantrums after an episode and cries over the

slightest thing. She kicks and cries out in her sleep for a couple

of nights after. Does your son have the steroid when he has an

episode? I put it down to that but thinking about it she used to be

like it before she started having it! It is so frustating because

they must still feel a bit lousy but at the same time it's hard going

on us poor parents!! I try to ignore the tantrums and praise her

good behaviour in these periods, I've found that any attention during

the tantrums makes her much much worse. It's still exhausting

though!!

Sally mum to Beth aged 3 (T & A in 4 weeks and counting!!)

Cheshire, England

[Guest guest]

Hi Cari

My daughter has terrible tantrums after an episode and cries over the

slightest thing. She kicks and cries out in her sleep for a couple

of nights after. Does your son have the steroid when he has an

episode? I put it down to that but thinking about it she used to be

like it before she started having it! It is so frustating because

they must still feel a bit lousy but at the same time it's hard going

on us poor parents!! I try to ignore the tantrums and praise her

good behaviour in these periods, I've found that any attention during

the tantrums makes her much much worse. It's still exhausting

though!!

Sally mum to Beth aged 3 (T & A in 4 weeks and counting!!)

Cheshire, England

[Guest guest]

Hi Beth,

The tantrums are terrible!! He is not normally a difficult child either.He was

just diagnosed,so he is not on a steroid as of yet.I try to ignore the

tantrums,but it is disruptive to the entire family.I was just wondering if

anyone else noticed behavioral changes like I do.I'm sure he still isn't feeling

100% even a few days later..that must be what it is.Thanks!!!

Cari St. Pete, Fl

[Guest guest]

Hi Beth,

The tantrums are terrible!! He is not normally a difficult child either.He was

just diagnosed,so he is not on a steroid as of yet.I try to ignore the

tantrums,but it is disruptive to the entire family.I was just wondering if

anyone else noticed behavioral changes like I do.I'm sure he still isn't feeling

100% even a few days later..that must be what it is.Thanks!!!

Cari St. Pete, Fl

[Guest guest]

My daughter is the same way. For a week or two she is a normal happy 2 year

old, then BAM she turns into a terror. The fever hits and when we finally get

it under control, she starts to not be able to sleep and does not listen. She

will cry over anything and have tantrums over nothing.

Christy and Chloe (2 years old)

[Guest guest]

Hey Cari, as someone once said to me, Glad you found us, Sorry you had to!

Welcome to the group. My son has been dealing with these episodes longer than

most kids here. He started at age 6 months and he is now 15 and a half years

old. Since time and episodes began, it has always taken a few days to recover

from an episode. They just take so much out of the kids. I dont think its

reasonable to expect that they were fevering one day and as soon as the fever is

gone, that they'll be back 100 percent.

It's harder on the little ones that cannot put into words exactly what they

are feeling but even now at 15 years, PJ still needs that recovery time, but he

doesnt have to have a temper tantrum to let me know that!

Pat

[Guest guest]

Hi Cari,

Welcome to the site. This is one place that I know other parents

understand what we are going through. No matter what treatment route

you take - you'll find someone on here with some experience, no doubt.

We experienced some of the tantrums - but thought that it was related to

the Prednisone. She got almost wild --- she would even hit (me and my

mother) - but she never gets that worked up any longer. She's a very

loving child, so we knew something was terribly wrong when she would get

that wild eyed look and start to hit. It got really bad right after the

birth of my son - and she was fevering every 10-12 days.

Dani was 2.5 years old when we did the T & A, and she still has moments

(but doesn't every 2 year old?) - but nothing like the out of control

tantrums. We have found her sleep is so much better now (since the

T & A). As a result of the better sleep - I've got to imagine that that

helps the temperament, too.

If you do decide to try Prednisone, my only advice is to use the

smallest effective dose you can. We found she wasn't quite as wild when

we only gave her 3 mls (for a 32 pound child). She was originally

prescribed 10 mls.

<http://geo./serv?s=97359714/grpId=2647977/grpspId=1705016061/m

sgId=21137/stime=1211309001/nc1=5349274/nc2=4763758/nc3=5202322>

Best of luck to you.

Ginger

Ginger

Daughter - le, almost 3 years old

(fevering since 7 months, diagnosed at 15 months, T & A on

12/11/07, Fever-free since 11/16/07)

Son - Jay, 1 year old

-----------------------------------------

====================================================

This message contains PRIVILEGED and CONFIDENTIAL

information that is intended only for use by the

named recipient. If you are not the named recipient,

any disclosure, dissemination, or action based on

the contents of this message is prohibited. In such

case please notify us and destroy and delete all

copies of this transmission. Thank you.

====================================================

[Guest guest]

Hi Cari,

Welcome to the site. This is one place that I know other parents

understand what we are going through. No matter what treatment route

you take - you'll find someone on here with some experience, no doubt.

We experienced some of the tantrums - but thought that it was related to

the Prednisone. She got almost wild --- she would even hit (me and my

mother) - but she never gets that worked up any longer. She's a very

loving child, so we knew something was terribly wrong when she would get

that wild eyed look and start to hit. It got really bad right after the

birth of my son - and she was fevering every 10-12 days.

Dani was 2.5 years old when we did the T & A, and she still has moments

(but doesn't every 2 year old?) - but nothing like the out of control

tantrums. We have found her sleep is so much better now (since the

T & A). As a result of the better sleep - I've got to imagine that that

helps the temperament, too.

If you do decide to try Prednisone, my only advice is to use the

smallest effective dose you can. We found she wasn't quite as wild when

we only gave her 3 mls (for a 32 pound child). She was originally

prescribed 10 mls.

<http://geo./serv?s=97359714/grpId=2647977/grpspId=1705016061/m

sgId=21137/stime=1211309001/nc1=5349274/nc2=4763758/nc3=5202322>

Best of luck to you.

Ginger

Ginger

Daughter - le, almost 3 years old

(fevering since 7 months, diagnosed at 15 months, T & A on

12/11/07, Fever-free since 11/16/07)

Son - Jay, 1 year old

-----------------------------------------

====================================================

This message contains PRIVILEGED and CONFIDENTIAL

information that is intended only for use by the

named recipient. If you are not the named recipient,

any disclosure, dissemination, or action based on

the contents of this message is prohibited. In such

case please notify us and destroy and delete all

copies of this transmission. Thank you.

====================================================

[Guest guest]

Hi Cari,

Welcome to the site. This is one place that I know other parents

understand what we are going through. No matter what treatment route

you take - you'll find someone on here with some experience, no doubt.

We experienced some of the tantrums - but thought that it was related to

the Prednisone. She got almost wild --- she would even hit (me and my

mother) - but she never gets that worked up any longer. She's a very

loving child, so we knew something was terribly wrong when she would get

that wild eyed look and start to hit. It got really bad right after the

birth of my son - and she was fevering every 10-12 days.

Dani was 2.5 years old when we did the T & A, and she still has moments

(but doesn't every 2 year old?) - but nothing like the out of control

tantrums. We have found her sleep is so much better now (since the

T & A). As a result of the better sleep - I've got to imagine that that

helps the temperament, too.

If you do decide to try Prednisone, my only advice is to use the

smallest effective dose you can. We found she wasn't quite as wild when

we only gave her 3 mls (for a 32 pound child). She was originally

prescribed 10 mls.

<http://geo./serv?s=97359714/grpId=2647977/grpspId=1705016061/m

sgId=21137/stime=1211309001/nc1=5349274/nc2=4763758/nc3=5202322>

Best of luck to you.

Ginger

Ginger

Daughter - le, almost 3 years old

(fevering since 7 months, diagnosed at 15 months, T & A on

12/11/07, Fever-free since 11/16/07)

Son - Jay, 1 year old

-----------------------------------------

====================================================

This message contains PRIVILEGED and CONFIDENTIAL

information that is intended only for use by the

named recipient. If you are not the named recipient,

any disclosure, dissemination, or action based on

the contents of this message is prohibited. In such

case please notify us and destroy and delete all

copies of this transmission. Thank you.

====================================================

[Guest guest]

, one word,Prednizone, given at the start of the fever and its gone in an

hour instead of 4 to 5 days of piggybacking tylenol and motrin. We give our girl

liquid orapred and she still has some of the behavior as if shes fevering but

she has no fever. People say the episodes come faster on the steroids but I

havent noticed any of that, also when there coming every two weeks how much

faster can they come? We gained control of our lives again and you can too.

Steve, dad to Randi 4 . Fevering since 6 months.

[Guest guest]

Hi Alena

Wow it sounds like you have a very hectic life and are coping extremely well

with what you've been dealt! You're an inspiration, really. Most of us struggle

JUST living with and for you it's just one in a loooong list of

challenges.

Sending you lots of strength to continue being so positive!

Take care

Inga

__________________________________________________________

Sent from .

A Smarter Email http://uk.docs./nowyoucan.html

[Guest guest]

wow...all i can say is GOD BLESS YOU ALENA!

[Guest guest]

Wow - that is an alphabet soup of stuff. When you mentioned that you don't do

biomedical,

does that mean that you don't use medicine to control or alleviate symptoms? I

would be

interested in hearing what kinds of things you do use to help with the various

situations you

undoubtedly deal with. Our older son has ADHD, sensory integration issues,

anxiety, and

dysgraphia. We have chosen to address his ADHD through a variety of things such

as diet

modifications, keeping a pretty tight ship on schedules and behavior

expectations,

occupational therapy for the dysgraphia, but he also uses Straterra with great

success.

Our younger son has the and some limited sensory integration issues,

probable

hearing loss in one ear, but seems to be clear of the anxiety and the dysgraphia

(so far). We

don't feel that he has the ADHD but we also may be more immune to thinking his

behavior is

wacky compared to the older one. We are pretty aggressive with motrin on the

fevers but try

to stay away from antibiotics. We have not yet needed prenidsone (sp?).

[Guest guest]

Wow - that is an alphabet soup of stuff. When you mentioned that you don't do

biomedical,

does that mean that you don't use medicine to control or alleviate symptoms? I

would be

interested in hearing what kinds of things you do use to help with the various

situations you

undoubtedly deal with. Our older son has ADHD, sensory integration issues,

anxiety, and

dysgraphia. We have chosen to address his ADHD through a variety of things such

as diet

modifications, keeping a pretty tight ship on schedules and behavior

expectations,

occupational therapy for the dysgraphia, but he also uses Straterra with great

success.

Our younger son has the and some limited sensory integration issues,

probable

hearing loss in one ear, but seems to be clear of the anxiety and the dysgraphia

(so far). We

don't feel that he has the ADHD but we also may be more immune to thinking his

behavior is

wacky compared to the older one. We are pretty aggressive with motrin on the

fevers but try

to stay away from antibiotics. We have not yet needed prenidsone (sp?).

[Guest guest]

Wow - that is an alphabet soup of stuff. When you mentioned that you don't do

biomedical,

does that mean that you don't use medicine to control or alleviate symptoms? I

would be

interested in hearing what kinds of things you do use to help with the various

situations you

undoubtedly deal with. Our older son has ADHD, sensory integration issues,

anxiety, and

dysgraphia. We have chosen to address his ADHD through a variety of things such

as diet

modifications, keeping a pretty tight ship on schedules and behavior

expectations,

occupational therapy for the dysgraphia, but he also uses Straterra with great

success.

Our younger son has the and some limited sensory integration issues,

probable

hearing loss in one ear, but seems to be clear of the anxiety and the dysgraphia

(so far). We

don't feel that he has the ADHD but we also may be more immune to thinking his

behavior is

wacky compared to the older one. We are pretty aggressive with motrin on the

fevers but try

to stay away from antibiotics. We have not yet needed prenidsone (sp?).

[Guest guest]

Alena,

I had to read your post 2xs to take it all in. I must say, I am amazed by your

humor and positive matter of fact approach, I guess the only way to deal with

these challenges is with a bit of humor. My son only has the and I have a

hard time keeping my act together, I am amazed that you have been able to get

your PHD through all this, you must have lots of energy and focus. Can I have

some?

[Guest guest]

Alena,

I had to read your post 2xs to take it all in. I must say, I am amazed by your

humor and positive matter of fact approach, I guess the only way to deal with

these challenges is with a bit of humor. My son only has the and I have a

hard time keeping my act together, I am amazed that you have been able to get

your PHD through all this, you must have lots of energy and focus. Can I have

some?

[Guest guest]

Alena,

I had to read your post 2xs to take it all in. I must say, I am amazed by your

humor and positive matter of fact approach, I guess the only way to deal with

these challenges is with a bit of humor. My son only has the and I have a

hard time keeping my act together, I am amazed that you have been able to get

your PHD through all this, you must have lots of energy and focus. Can I have

some?

[Guest guest]

Hi. Good luck I have been doing this for 14 years. my son is the sweetest boy

until an episode then I don't even know him. it's hard but you just have to

remember they can't control any part of this syndrome. his dr. says it's like

he has PMS twenty eight days out of the month. and it's true. you just got to

love and remember to count to 10, it doesn't get any easier life is pretty

much the same from day to day. If your not going threw an episode your on pins

and needles waiting for the bomb. i know your looking for some way to stop

the anger but you can't. and they don't need any more drugs in there lives. i

think all the meds are part of the problem. take care and welcome char.

**************

Get trade secrets for amazing burgers. Watch " Cooking with Tyler

Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & amp;

?NCID=aolfod00030000000002)

[Guest guest]

In a message dated 6/17/2008 6:15:21 AM Mountain Daylight Time,

pmwatt@... writes:

I am wondering if anyne in NC, or close by might be willing to share

a baby and a little starter tea to get me going? I would be happy

to purchase it and pay for shipping.

Hi Pam,

While I am not that close, I do have some Scoby's available. If you cannot

get anyone closer than ID, please email me privately and I will be happy to

send you one. These are not babies, but great big huge strong grown up

offspring of my original. Should give you nice Kombucha.

Pam in ID

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

[Guest guest]

Martha Cortez wrote:

> hello everyone,

>

> i live in the bay area and started teaching a " lotions and potions " summer

class 2007 and this summer too. the age range is 8 to 10 yrs old. i wanted to

teach something that i'm interested in but knew nothing about so that i could

learn new things. it was quite fun and very successful.

> so my range of studies would be geared towards young children. so i need to

find ways to create potions that would be easy and unharmful to children. i am

looking for easy recipes and ideas so would welcome any leads about them, even

books or people to talk to.

> i am excited to do this again this summer. i start teaching the end of June.

>

> martha

>

Hi Martha

That's sort of short notice, but here are some suggestions. To make sure

you're working within fragrance industry guidelines that may or may not

be too restrictive, but it's safer to err on the side of caution due to

liability issues, I'll first send you to the IFRA site:

http://www.ifraorg.org/Home/Code,+Standards+Compliance/IFRA+Standards/page.aspx/\

56

You can type in the name of any aromatic you're considering to use and

see if they have a set limit for the percentage allowed in a leave-on

product.

You might also get Tisserand's book

http://www.amazon.com/Essential-Oil-Safety-Health-Professionals/dp/0443052603/re\

f=pd_bbs_2?ie=UTF8 & s=books & qid=1213716565 & sr=8-2

for an expansive list of essential oils and the safety data on them.

I'd check out Jeanne Rose's books because they're full of great

aromatherapy recipes. http://jeannerose.net or amazon.

Jeanne is in the Bay Area and perhaps you can take a course from her for

better ideas for your future classes.

--

Anya's Garden http://AnyasGarden.com - perfumes, aromatics, classes,

consultation

Natural Perfumers Guild + blog with daily updates

1500+ member Natural Perfumery group -

/

[Guest guest]

> From: Martha Cortez <marthacortez1@...>

>

> hello everyone,

>

> i live in the bay area and started teaching a " lotions

> and potions " summer class 2007 and this summer too. the

> age range is 8 to 10 yrs old.

>.

> so my range of studies would be geared towards young

> children. so i need to find ways to create potions that

> would be easy and unharmful to children. i am looking for

> easy recipes and ideas so would welcome any leads about

> them, even books or people to talk to.

> i am excited to do this again this summer. i start

> teaching the end of June.

>

> martha

>

>

>

Hi Martha

When my daughter was very young I was approached to write a book about creating

soap on the kitchen table.... without lye...

You could look at The Soapmaker by Janita by collins & brown... milled

recipes using natural colours and recipes that are safely worked out for you...

The soapballs are a particular favourite 'Alchemy' changes colour in front of

your very eyes. I gave a demo to some boy scouts a few years back and they just

loved it and made some for their mums to take home...

Underlying this is my serious attention to the naturals and milled perfume soap

making and love of natural perfume.... so some of the recipes contain quite a

few ingredients... but they are fun and there are recipes with just rose or a

lavender and mint .... you could always check it out at the library first to see

if it's what you are looking for.

hope this helps....

with every good wish, Janita

Janita Haan Natural Perfume

__________________________________________________________

Sent from .

A Smarter Email http://uk.docs./nowyoucan.html