Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 Hi Tamra-- 's sensitivity to noises don't seem to happen in restaurants. It's *scary* noises like sudden *booms* or 'scary music' on the TV. He can watch the show, but has to turn the volume down or off because it frightens him. He's watched full shows w/out any sound at all- and he's fine! I guess this is a coping mechanism of his to avoid feeling anxious. I've suspected that certain sounds are magnified in his brain- especially the 'scary sounds.' He LOVES rollercoasters and NEVER turns down a ride. The scarier, the better. However, one day recently, he had looked forward to a particular coaster alllll week, but the *hiss* sound that the hydrolic breaks made, well... he turned and walked away and could NOT ride the rollercoaster. This was a FIRST!! He's a daredevil and can ride anything! But, that *hiss* made him turn pale. Here's another example: He has always LOVED fireworks, but hates the noise. When he was 2 yo, he'd say, 'Mom, turn the sound OFF! It scares my ears!' I still haven't figured out how to turn the sound off of fireworks yet, but if I do, I'll let you know! Hang in there. Joni > Joni: > > It's nice to know someone who deals the loud noise problem. Sometimes McDs > can be too loud. Have you found anyway to help with it. I've tried ear > plugs, but they were " not comfortable " . It's hard when the other sibling > want s to go somewhere and it is too noisy (eg basketball game). Let me > know if you have any ideas. > > Tamra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2001 Report Share Posted May 27, 2001 Welcome to the list. You must be very proud of your son to be a college graduate! Have you contacted the Medical School in Dallas to see who they recommend? It is important that your son get the proper treatment and with a trained Cognitive Behvior Therapist. I have a 17 y/o who has been taking Celexa. He recently told his Dr. that he doesn't like taking it because it makes him feel happy. This certainly made me sad! I reccomend you spend some time looking in the archives and files of this list. There is such a wealth of information. Contacting the Obsessive Compulsive Foundation is another way you could find out more. Although I can not make my son well, being informed and in touch with others has helped me to deal with this. Hope you find what can help, good luck and let us know how things are going. Vivian in WA. ST. > I have been receiving emails for the last couple of days but have not sent any myself. I have a son that is 22 years old and has OCD. He graduated from college in Dallas a week ago today. We brought him home on Sunday. We live in a small town in southeast Arkansas so we are very limited with resources. He was seeing Dr. Minirth in Dallas for his meds. and Dr. Les for his therapy. Our family doctor has been in touch with them and plans to consult with them from here. Does anybody have any recommendations as to someone who specializes in OCD within a 5 hour radius? Also, is there someone in Dallas that is an OCD specialist? He was put on Luvox the first three weeks but did not do well at all, then was changed to Celexa and Xanax. Gradually they added Risperdal and about 3 weeks ago started on Buspar. As of now, he has been on meds for 8 or 9 months. He seems worse on Buspar and we started decreasing it this week, and increasing the Celexa and risperdal. He has more obsessions than compulsions, and they started out religious and relational. Now they are the same thing over and over all day long, about his relationship with his now ex-girlfriend. I had a meltdown myself today because I am so worried about him. Having to see him like this is really hard on me. My husband is a very strong person, but he is also feeling the stress. Any time frame on these meds to stop the obsessions would be of help and encouragement. We have decided that the talk therapy hasn't done any good except to drain us financially. We have no mental health coverage on our health insurance policy. Peyton took a Claritin for an allergy attack on Wed. and became suicidal within a couple of hours. I believe it is very much a chemical imbalance, but we are at our wits end. Please advise! p.s. We are going up on Celexa from 60mg. to 80 and from .25 risperdal to .5 He takes 1/4th of a .25 Xanax three times a day and 1/2 of a .25 Xanax at bedtime. Thanks, Sheila W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 HI Sheila: Welcome to the list. We also have a spinoff list for parents with adult children with OCD. You may want to join that list. YOu are also very welcome to be on this list. YOu do not mention that your son has done any CBT with E & RP (exposure and response prevention). Traditional " talk therapy " is ineffective for OCD although it is something that many of us have found for our kids as a first step. Medications generally produce a 40-60% of OCD symptoms. If your son has moderately severe to severe OCD like my son, Steve, had, medications alone will not be enough to allow him to resume a mostly typical life. YOu might want to check out the OCF website for recommendations for OCD support groups in your area, networking with other parents has been the way we finally got the right help for our son. It has made all the difference to him. Congratulations to Peyton on graduating from college. You must be very proud of him. This is a major transition time for him going from college back home and on with the rest of his life. These transitions are particularly difficult for people with NBDs who often suffer from chronic inflexibility and find change extra challenging. Obsessing about people and relationships is a very common symptom and one that can be successfully addressed through E & RP. I hope you can find someone nearby to help your son as it sounds like life involves a lot of suffering for him right now. Our Steve also has depression and I have learned to pay a lot of attention to this. You might want to discuss what can be done to help with his depression. It seems from the meds that his anxiety is being addressed and I encourage you to contact his p-doc and let them know what is going on right now with Peyton. Good luck, take care, aloha, Kathy (h) kathyh@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Are you increasing Celexa and Risperdal at the same time? My psychiatrist strongly discourages this because if there is a negative reaction you don't know what med is doing it. My son (9 yrs old) is on Celexa and Risperdal and it has worked well. I am sorry I don't know any psychiatrists in your area. My sister lives in Dallas and her bosses' son has OCD and has great success with his psych. and therapist. Glad you're on the list, it's great to hear what others are doing to help their children. I've gotten great ideas for therapy, etc. Tamra (ocdmom2001) new member I have been receiving emails for the last couple of days but have not sent any myself. I have a son that is 22 years old and has OCD. He graduated from college in Dallas a week ago today. We brought him home on Sunday. We live in a small town in southeast Arkansas so we are very limited with resources. He was seeing Dr. Minirth in Dallas for his meds. and Dr. Les for his therapy. Our family doctor has been in touch with them and plans to consult with them from here. Does anybody have any recommendations as to someone who specializes in OCD within a 5 hour radius? Also, is there someone in Dallas that is an OCD specialist? He was put on Luvox the first three weeks but did not do well at all, then was changed to Celexa and Xanax. Gradually they added Risperdal and about 3 weeks ago started on Buspar. As of now, he has been on meds for 8 or 9 months. He seems worse on Buspar and we started decreasing it this week, and increasing the Celexa and risperdal. He has more obsessions than compulsions, and they started out religious and relational. Now they are the same thing over and over all day long, about his relationship with his now ex-girlfriend. I had a meltdown myself today because I am so worried about him. Having to see him like this is really hard on me. My husband is a very strong person, but he is also feeling the stress. Any time frame on these meds to stop the obsessions would be of help and encouragement. We have decided that the talk therapy hasn't done any good except to drain us financially. We have no mental health coverage on our health insurance policy. Peyton took a Claritin for an allergy attack on Wed. and became suicidal within a couple of hours. I believe it is very much a chemical imbalance, but we are at our wits end. Please advise! p.s. We are going up on Celexa from 60mg. to 80 and from .25 risperdal to .5 He takes 1/4th of a .25 Xanax three times a day and 1/2 of a .25 Xanax at bedtime. Thanks, Sheila W. You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Hi Randy, Welcome to this list. I don't post alot but do enjoy reading and learning from this list. We have a son, Gene, who just turned 13 yesterday. We have another son, Drew, who is 10 and a daughter, Melinda, 6. We live in Grand Rapids, MI. We too struggle with those old IEPs but this year, finally for the first time, I took alot of training in this area and feel more empowered than ever. We are heading into our third reconvening of the IEP next week. Gene attends a regular 5th grade classroom and has an aide...presently me and an aide in training. He had a great party at school yesterday. We had " Gene's Birthday Party " on his schedule board in the AM and he yelled " NO PARTY " and ripped it off. After several kids came up to him and excitedly said " Is today your party, Gene? " and he yelled " NO PARTY " back, we took the hint and told everyone not to mention it again till it actually happened. We positioned him by the fish tank for a few minutes while the clown walked in and sure enough, when all the kids gathered on the floor, Gene, pushed his way to the middle and sat down to watch. The show was magic, juggling, and then he blew balloon shapes for all 48 kids in the room ( this is a team taught classroom ). He stood up for his birthday song, blew out the candles and then opened some gifts the kids brought. One of the mom's took some extra class funds and bought him a Michigan teeshirt and Michigan shorts. ( That Uof M...not Michigan State ). Overall, it was a great day. Trying to keep Gene included has always been a fight but after yesterday, when things fall so beautifully into place, I am glad we keep fighting. Anyway, a little off the topic there, but again welcome and hi to Andy and your family. To S regarding Matt...I think I would homeschhool too ...it is really unbelievable that your principal could be so immature as to cast stones for things she is allowing her own staff to do. Yikes!! Lauri in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 In a message dated 5/31/2001 8:26:18 AM Eastern Daylight Time, jmedlen@... writes: > > > Dear list: > Wow a list where I can belong. Thanks for the opportunity to belong again. > > I have a son who has Down syndrome and autistic spectrum disorder his name > is > ANDY (what a weird consequence the listowners sons name is Andy also). My > Andy is 10 and is the youngest of three sons. My middle son is Kristopher > and > he has a profound hearing loss. And my oldest is married and teaching at > the > University of MO in Columbia in Mathematics. I am not sure he is mine! > Math > was never my thing. My wife reminds me he is mine. Only a joke!!! I love > my > children and pray for them always. I just wanted to stop by and say thanks > for the opportunity to network with other parents this is a wonderful idea. > > Please let me know about you and your families. Please let me know where > you > live as I am always looking for help in improving those crazy IEPs. Love > and > Prayers > Randy Vaught > Hi Randy, I am from Ct. and have three children,The oldest is 27 ,married with two girls,my daughter is 21 today,yeh,and is a music ed major,the youngest is 8 and has DS and whatever,depending on the day.I am always looking for help writing the IEP as I usually do most of it.I seem to always forget something.The 2000-2001 I forgot to include teacher supports! I shouldn't have to do this but our district will give nothing unless it's on paper and then you fight anyway.I am in the process of finishing all this for my meeting next week.I probably won't sleep next week worrying about all of this.I might just get it right this year.Welcome. Charlyne,Pete,Cait 21 Today!,Zeb DS-8?, 27 & Tammy + girls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Welcome Randy and family , This is so true , this list is truly a Bless to belong . We live in San , Texas . We meaning my husband Jim and our 3 sons . Our oldest 23 yrs. old , lives in Dallas . Our 2 other sons, living with us, 14 yr.old Rick and then 12 , going on 13 in July . is also our youngest and has DS/ASD . Our lives has changed in the right direction this year, THANKS to Joan ( listowner ) , especially for introducing The Disability Solutions Newsletters on the diagnosis about Down Syndrome ,( I never expected ) Autistic Spectrum Disorder . Irma , 12 , DS/ASD . -- In @y..., jmedlen@q... wrote: > Dear list: > Wow a list where I can belong. Thanks for the opportunity to belong again. > I have a son who has Down syndrome and autistic spectrum disorder his name is > ANDY (what a weird consequence the listowners sons name is Andy also). My > Andy is 10 and is the youngest of three sons. My middle son is Kristopher and > he has a profound hearing loss. And my oldest is married and teaching at the > University of MO in Columbia in Mathematics. I am not sure he is mine! Math > was never my thing. My wife reminds me he is mine. Only a joke!!! I love my > children and pray for them always. I just wanted to stop by and say thanks > for the opportunity to network with other parents this is a wonderful idea. > Please let me know about you and your families. Please let me know where you > live as I am always looking for help in improving those crazy IEPs. Love and > Prayers > Randy Vaught > Proud parent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Hello Randy, Welcome, I also just joined the group. I understand what you mean about finding a place to fit in with Ds/ASD. My son, Josh, has not yet been diagnosed, we are waiting for an appointment at the assessment clinic. I have always felt he was different than other kids with Ds alone, so this will not be much of a shock. He is almost 8 yo and also has ADHD so with all the behaviours he can be quite challenging. We have him fully integrated in grade one with a full time aide. This has been a great experience for him as well as us. We also have a daughter , Makenna, she just had her first birthday. We live in a small town in Alberta and have a hard time finding others with this dual diagnosis. Although since I've been on the internet I have connected with a few people. I have not posted much yet but have gained some insight into a few things just reading the posts. Take care... New member > Dear list: > Wow a list where I can belong. Thanks for the opportunity to belong again. > I have a son who has Down syndrome and autistic spectrum disorder his name is > ANDY (what a weird consequence the listowners sons name is Andy also). My > Andy is 10 and is the youngest of three sons. My middle son is Kristopher and > he has a profound hearing loss. And my oldest is married and teaching at the > University of MO in Columbia in Mathematics. I am not sure he is mine! Math > was never my thing. My wife reminds me he is mine. Only a joke!!! I love my > children and pray for them always. I just wanted to stop by and say thanks > for the opportunity to network with other parents this is a wonderful idea. > Please let me know about you and your families. Please let me know where you > live as I am always looking for help in improving those crazy IEPs. Love and > Prayers > Randy Vaught > Proud parent > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Glad your son is doing well with his Celexa. Do you mind me asking about his dosage? I havn't contacted the medical school in Dallas, but since Peyton is now home in Ark., I hope to find someone closer we can work with . I have called the OCfoundation today, but need to try again. Thanks for your input, Sheila W. Re: new member > Welcome to the list. You must be very proud of your son to be a > college graduate! > Have you contacted the Medical School in Dallas to see who they > recommend? > It is important that your son get the proper treatment and with a > trained Cognitive Behvior Therapist. > I have a 17 y/o who has been taking Celexa. He recently told his Dr. > that he doesn't like taking it because it makes him feel happy. > This certainly made me sad! > I reccomend you spend some time looking in the archives and files of > this list. There is such a wealth of information. > Contacting the Obsessive Compulsive Foundation is another way you > could find out more. Although I can not make my son well, being > informed and in touch with others has helped me to deal with this. > Hope you find what can help, good luck and let us know how things are > going. > Vivian in WA. ST. > > > > > > I have been receiving emails for the last couple of days but have > not sent any myself. I have a son that is 22 years old and has OCD. > He graduated from college in Dallas a week ago today. We brought him > home on Sunday. We live in a small town in southeast Arkansas so we > are very limited with resources. He was seeing Dr. Minirth in > Dallas for his meds. and Dr. Les for his therapy. Our family > doctor has been in touch with them and plans to consult with them > from here. Does anybody have any recommendations as to someone who > specializes in OCD within a 5 hour radius? Also, is there someone in > Dallas that is an OCD specialist? He was put on Luvox the first three > weeks but did not do well at all, then was changed to Celexa and > Xanax. Gradually they added Risperdal and about 3 weeks ago started > on Buspar. As of now, he has been on meds for 8 or 9 months. He > seems worse on Buspar and we started decreasing it this week, and > increasing the Celexa and risperdal. He has more obsessions than > compulsions, and they started out religious and relational. Now they > are the same thing over and over all day long, about his relationship > with his now ex-girlfriend. I had a meltdown myself today because I > am so worried about him. Having to see him like this is really hard > on me. My husband is a very strong person, but he is also feeling > the stress. Any time frame on these meds to stop the obsessions > would be of help and encouragement. We have decided that the talk > therapy hasn't done any good except to drain us financially. We have > no mental health coverage on our health insurance policy. Peyton > took a Claritin for an allergy attack on Wed. and became suicidal > within a couple of hours. I believe it is very much a chemical > imbalance, but we are at our wits end. Please advise! p.s. We are > going up on Celexa from 60mg. to 80 and from .25 risperdal to .5 He > takes 1/4th of a .25 Xanax three times a day and 1/2 of a .25 Xanax > at bedtime. Thanks, Sheila W. > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 I have joined the spinoff list, and no, I don't think the therapy he had in Dallas was CBT, although I am confused as to what that involves. I am familiar with the E & RP and I know he hasn't had that for sure.We are working with a family doctor here who is talking to the psychiatrist in Dallas about the med. adjustments. I was under the impression that it is strictly biochemical and neurological, and that it's a matter of finding the right combination for his brain. The more I read from these lists, the more I'm beginning to question and Peyton is gettting more discouraged with each passing day. Sheila W. Re: new member > HI Sheila: > > Welcome to the list. We also have a spinoff list for parents with adult > children with OCD. You may want to join that list. YOu are also very > welcome to be on this list. > > YOu do not mention that your son has done any CBT with E & RP (exposure and > response prevention). Traditional " talk therapy " is ineffective for OCD > although it is something that many of us have found for our kids as a first > step. > > Medications generally produce a 40-60% of OCD symptoms. If your son has > moderately severe to severe OCD like my son, Steve, had, medications alone > will not be enough to allow him to resume a mostly typical life. YOu might > want to check out the OCF website for recommendations for OCD support > groups in your area, networking with other parents has been the way we > finally got the right help for our son. It has made all the difference to > him. > > Congratulations to Peyton on graduating from college. You must be very > proud of him. This is a major transition time for him going from college > back home and on with the rest of his life. These transitions are > particularly difficult for people with NBDs who often suffer from chronic > inflexibility and find change extra challenging. Obsessing about people > and relationships is a very common symptom and one that can be successfully > addressed through E & RP. I hope you can find someone nearby to help your > son as it sounds like life involves a lot of suffering for him right now. > > Our Steve also has depression and I have learned to pay a lot of attention > to this. You might want to discuss what can be done to help with his > depression. It seems from the meds that his anxiety is being addressed and > I encourage you to contact his p-doc and let them know what is going on > right now with Peyton. > > Good luck, take care, aloha, Kathy (h) > kathyh@... > > > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 We are increasing the Celexa and Risperdal at the same time as well as reducing the Buspar. We are doing it gradually though. We went up this week from 60mg.s of Celexa to 70. We went up on the Risperdal from one .25 pill at night to one and one half pills at night. We have reduced the Buspar from 30 mgs. per day to less than 10 per day. I keep thinking this is why we're having such a tough week, all the medication changes . How much does your son take of each? Also, if we have to go back to Dallas in case we don't find help closer, I may get a recommendation from your sister's boss. Thanks, Sheila W. new member I have been receiving emails for the last couple of days but have not sent any myself. I have a son that is 22 years old and has OCD. He graduated from college in Dallas a week ago today. We brought him home on Sunday. We live in a small town in southeast Arkansas so we are very limited with resources. He was seeing Dr. Minirth in Dallas for his meds. and Dr. Les for his therapy. Our family doctor has been in touch with them and plans to consult with them from here. Does anybody have any recommendations as to someone who specializes in OCD within a 5 hour radius? Also, is there someone in Dallas that is an OCD specialist? He was put on Luvox the first three weeks but did not do well at all, then was changed to Celexa and Xanax. Gradually they added Risperdal and about 3 weeks ago started on Buspar. As of now, he has been on meds for 8 or 9 months. He seems worse on Buspar and we started decreasing it this week, and increasing the Celexa and risperdal. He has more obsessions than compulsions, and they started out religious and relational. Now they are the same thing over and over all day long, about his relationship with his now ex-girlfriend. I had a meltdown myself today because I am so worried about him. Having to see him like this is really hard on me. My husband is a very strong person, but he is also feeling the stress. Any time frame on these meds to stop the obsessions would be of help and encouragement. We have decided that the talk therapy hasn't done any good except to drain us financially. We have no mental health coverage on our health insurance policy. Peyton took a Claritin for an allergy attack on Wed. and became suicidal within a couple of hours. I believe it is very much a chemical imbalance, but we are at our wits end. Please advise! p.s. We are going up on Celexa from 60mg. to 80 and from .25 risperdal to .5 He takes 1/4th of a .25 Xanax three times a day and 1/2 of a .25 Xanax at bedtime. Thanks, Sheila W. You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Hi ! Lauri , Happy Birthday to your son Gene , glad it turned out nice . Its funny how our kids don't want anything to do with their B-day celebrations , but I know when that negative mood is on ,they are still paying attention . My son attends Middle School in a self- contain class and we have been fortunate to be Bless with great Educators , Para-professionals , Pinciples , coaches , and the list goes on . Today was the end of his school year and a celebration was given to two of his classmates that will attend High School next school year . The reason I brought this up was because, I was just glad to see his behavior has improved and was participating well in the celebration . Monday we'll be flying out to visit my in-laws in South Bend , Ind . , aren't you about 100 miles away ? Hope the weather is nice up there . Here in Tx. its upper 90's . Take Care . Irma , 12 , DS/ASD . - In @y..., timothytlstein@c... wrote: > Hi Randy, > > Welcome to this list. I don't post alot but do enjoy reading and learning > from this list. We have a son, Gene, who just turned 13 yesterday. We have > another son, Drew, who is 10 and a daughter, Melinda, 6. We live in Grand > Rapids, MI. We too struggle with those old IEPs but this year, finally for > the first time, I took alot of training in this area and feel more empowered > than ever. We are heading into our third reconvening of the IEP next week. > Gene attends a regular 5th grade classroom and has an aide...presently me and > an aide in training. > > He had a great party at school yesterday. We had " Gene's Birthday Party " on > his schedule board in the AM and he yelled " NO PARTY " and ripped it off. > After several kids came up to him and excitedly said " Is today your party, > Gene? " and he yelled " NO PARTY " back, we took the hint and told everyone not > to mention it again till it actually happened. We positioned him by the fish > tank for a few minutes while the clown walked in and sure enough, when all > the kids gathered on the floor, Gene, pushed his way to the middle and sat > down to watch. The show was magic, juggling, and then he blew balloon shapes > for all 48 kids in the room ( this is a team taught classroom ). He stood up > for his birthday song, blew out the candles and then opened some gifts the > kids brought. One of the mom's took some extra class funds and bought him a > Michigan teeshirt and Michigan shorts. ( That Uof M...not Michigan State ). > Overall, it was a great day. Trying to keep Gene included has always been a > fight but after yesterday, when things fall so beautifully into place, I am > glad we keep fighting. > > Anyway, a little off the topic there, but again welcome and hi to Andy and > your family. > > To S regarding Matt...I think I would homeschhool too ...it is > really unbelievable that your principal could be so immature as to cast > stones for things she is allowing her own staff to do. Yikes!! > > Lauri in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 please remove my name from your list. thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Hi Randy,You have found the right place as a parent of a child with d.s. and a.s.d. and other problems.This list can answer so many of your questions and concerns and when they post so often you will say " my kid does that too!!! " . It is such a relief to find that there are other kids out there who do not fit the mold of the sweet little placid D.S. kid.I am from New Jersey as is my grandson who is 9 years old. He just started on Concerta which has done such great things for him when other meds made him angry and aggresive.He is going to be student of the month tomorrow which considering his behavior this year seems like a miracle!I am what they calll a lurker here and do not post much as i am just a grandmom but i have learned so much and then in turn relay the info to my daughter and s-i-l. has gone to a special needs school for 5 years but next year will be going to a regular school where he will do specials and lunch with a regular class . I really think he will do well there as they will have one teacher and four kids instead of the present 12 kids 1 teacher and 2 aides. I am also a respite worker for kids of many different problems.We kind of have a bad name as some are not reliable but the ones i know are very caring and knowledgeable about the job and we got intensive training.Welcome to the list !! Carole jmedlen@... wrote: Dear list: Wow a list where I can belong. Thanks for the opportunity to belong again. I have a son who has Down syndrome and autistic spectrum disorder his name is ANDY (what a weird consequence the listowners sons name is Andy also). My Andy is 10 and is the youngest of three sons. My middle son is Kristopher and he has a profound hearing loss. And my oldest is married and teaching at the University of MO in Columbia in Mathematics. I am not sure he is mine! Math was never my thing. My wife reminds me he is mine. Only a joke!!! I love my children and pray for them always. I just wanted to stop by and say thanks for the opportunity to network with other parents this is a wonderful idea. Please let me know about you and your families. Please let me know where you live as I am always looking for help in improving those crazy IEPs. Love and Prayers Randy Vaught Proud parent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Sheila, How are things going for your son? > Glad your son is doing well with his Celexa. Do you mind me asking about his dosage? I don't mind at all. He is taking 120mg per day. He started at 20, then 40 and on up to 80. His annoyance level was still high so the Dr. decided, with our input, to try more. He has been at the 120 for 3 weeks now. We are trying the higher dose first before changing meds. He tried prozac and luvox before but they didn't work out because he didn't like taking the med. so he stopped. He would like to stop the Celexa but I am very against it. We left the Dr. office last time with the aggreement he would take it for another month at least. I have > called the OCfoundation today, but need to try again. Have you tried to e-mail them? I don't know how easy it is to reach someone by phone there. Good luck with finding someone in your area. Please let us know how it is going. My son was seeing someone at one time who thought Buspar would work well for him...is your son still taking it? Vivian in wa.st. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Hi Sheila, OCD *is* biochemical and neurological, but SSRI therapy is not the only way to alter the brain's function. Cognitive Behavior Therapy, to include Exposure and Response Prevention, has also been shown to alter the brain's function, reducing or eliminating OCD symptoms, and the effects are long-lasting and persist after therapy ends. In contrast, most relapse after stopping SSRI therapy. Many kids represented on this list have been able to reduce or eliminate their SSRI following successful CBT for their OCD. Kathy R. in Indiana ----- Original Message ----- From: " Welch " <raw@...> > I have joined the spinoff list, and no, I don't think the therapy he had in > Dallas was CBT, although I am confused as to what that involves. I am > familiar with the E & RP and I know he hasn't had that for sure.We are working > with a family doctor here who is talking to the psychiatrist in Dallas about > the med. adjustments. I was under the impression that it is strictly > biochemical and neurological, and that it's a matter of finding the right > combination for his brain. The more I read from these lists, the more I'm > beginning to question and Peyton is gettting more discouraged with each > passing day. Sheila W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Hello , . My name is Donna i'am also new to the board,i have only been on a few weeks i have a 12 year old son with downs syndrome will will be 13 on august 7,i also have a 6 year old little girl who has autism, and they are the light of my life, we live in new jersey. so good to see you on ,nice to meet you! . Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Ruth, We are leaving in a while to go out of town and to a wedding. Don't know how Peyton made the morning as he hasn't made it in for lunch yet. He started work at the bank this week, but had a bad afternoon yesterday. They put him in a cubicle by himself entering data in a computer, and he started obsessing about , the ex girlfriend and their relationship failing, etc...the same thing that is always his obsessions and as usual, he had to call me as he was having a meltdown. We are up to 70mgs. on Celexa and we are decreasing Buspar as he has seemingly felt worse in the last month, the same time Buspar was started. We hope the decrease in Buspar will help and we want the Celexa dosage increase to show some improvement soon. We are supposed to eventually get up to 80mgs. Peyton weighs only 132 so I " m not sure if this would have any effect on the dosages or not. Good luck with the meds for your son. Peyton wants the meds, so we are lucky in that way! Sheila W. in AR Re: new member > Sheila, How are things going for your son? > > > Glad your son is doing well with his Celexa. Do you mind me asking > about his dosage? > I don't mind at all. He is taking 120mg per day. He started at 20, > then 40 and on up to 80. His annoyance level was still high so the > Dr. decided, with our input, to try more. He has been at the 120 for > 3 weeks now. We are trying the higher dose first before changing > meds. He tried prozac and luvox before but they didn't work out > because he didn't like taking the med. so he stopped. He would like > to stop the Celexa but I am very against it. We left the Dr. office > last time with the aggreement he would take it for another month at > least. > > I have > > called the OCfoundation today, but need to try again. > Have you tried to e-mail them? I don't know how easy it is to reach > someone by phone there. Good luck with finding someone in your area. > Please let us know how it is going. > My son was seeing someone at one time who thought Buspar would work > well for him...is your son still taking it? Vivian in wa.st. > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Ruth, We are leaving in a while to go out of town and to a wedding. Don't know how Peyton made the morning as he hasn't made it in for lunch yet. He started work at the bank this week, but had a bad afternoon yesterday. They put him in a cubicle by himself entering data in a computer, and he started obsessing about , the ex girlfriend and their relationship failing, etc...the same thing that is always his obsessions and as usual, he had to call me as he was having a meltdown. We are up to 70mgs. on Celexa and we are decreasing Buspar as he has seemingly felt worse in the last month, the same time Buspar was started. We hope the decrease in Buspar will help and we want the Celexa dosage increase to show some improvement soon. We are supposed to eventually get up to 80mgs. Peyton weighs only 132 so I " m not sure if this would have any effect on the dosages or not. Good luck with the meds for your son. Peyton wants the meds, so we are lucky in that way! Sheila W. in AR Re: new member > Sheila, How are things going for your son? > > > Glad your son is doing well with his Celexa. Do you mind me asking > about his dosage? > I don't mind at all. He is taking 120mg per day. He started at 20, > then 40 and on up to 80. His annoyance level was still high so the > Dr. decided, with our input, to try more. He has been at the 120 for > 3 weeks now. We are trying the higher dose first before changing > meds. He tried prozac and luvox before but they didn't work out > because he didn't like taking the med. so he stopped. He would like > to stop the Celexa but I am very against it. We left the Dr. office > last time with the aggreement he would take it for another month at > least. > > I have > > called the OCfoundation today, but need to try again. > Have you tried to e-mail them? I don't know how easy it is to reach > someone by phone there. Good luck with finding someone in your area. > Please let us know how it is going. > My son was seeing someone at one time who thought Buspar would work > well for him...is your son still taking it? Vivian in wa.st. > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 HI to and all other new members. My name is S, and I have 5 children, the youngest having DS/ASD. Matt is 10, almost 11 years old, in 3rd grade, and like just about everyone else on this list, we came to a realization at one time that he was not progressing as other children with Down syndrome. Our first indications were behavior, along with no growth in language for such a long time, and an aversion to other people. I guess we were lucky, as we had the diagnosis relatively early, about 4 years old, but just getting the diagnosis was not enough. After having it, we have found we have to 'prove " over and over again, that just because you can 'See " the Down syndrome and not the autism, it is the autism that is actually much more debilitating, and yes, it is there, and the strategies used for children with autism are in general, much more effective for Matt. I am very interesting in foreign travel (We live in Las Vegas, NV), and my husband and I have visited Switzerland twice. Where do you live in Switzerland? How are the services, schools, etc.... for children with disabilities? I'm sorry that I dont' know of anyone in Europe who can help you (I have trouble finding anyone in Vegas knowledgable!), but I'll bet that someone on this list knows someone, or can put you on the right track. It is a great list, and a great place to find support. We have all been in the " I dont' really belong anywhere " looking for support. I'm so thankful that we have each other. Welcome, S ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 Hi Nice to meet you and welcome to the group. Everyone here is very nice and always has lots of information. I have a son, , who has DS-ASD . He is 11 years old. We live in California. Kathy New Member > Hello > I'm , married, mother of three, two girls 12 and 7 and Fabio 10 with DS/?. We live in Switzerland. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 HI Sheila: I am sorry to read about Peyton's OCD symptoms interfering with his new job. I know he used to see Dr. Mansueto. Does he have a CBT therapist now? It sounds like this would be a good time for him to get some booster E & RP around dealing with relationship OCD. Medications often help our kids quite a bit. If they have moderate to severe OCD typically they do not help enough to allow adequate functioning in all important life spheres. The E & RP with meds combo is the way to go for people with more severe OCD. My son Steve had a CY-BOCS of 32/40 and last time he did it with his CBT he was 3/40!!! Incredible, but true. I hope you enjoy your trip out of town and the wedding. Good luck, take care, aloha, Kathy (h) kathyh@... At 12:22 PM 06/01/2001 -0500, you wrote: >Ruth, We are leaving in a while to go out of town and to a wedding. Don't >know how Peyton made the morning as he hasn't made it in for lunch yet. He >started work at the bank this week, but had a bad afternoon yesterday. They >put him in a cubicle by himself entering data in a computer, and he started >obsessing about , the ex girlfriend and their relationship failing, >etc...the same thing that is always his obsessions and as usual, he had to >call me as he was having a meltdown. We are up to 70mgs. on Celexa and we >are decreasing Buspar as he has seemingly felt worse in the last month, the >same time Buspar was started. We hope the decrease in Buspar will help and >we want the Celexa dosage increase to show some improvement soon. We are >supposed to eventually get up to 80mgs. Peyton weighs only 132 so I " m not >sure if this would have any effect on the dosages or not. Good luck with >the meds for your son. Peyton wants the meds, so we are lucky in that way! >Sheila W. in AR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Hi, Alice! Welcome to the group. I am just a mom of a 15 yo son with OCD, but many of the behaviors you describe sound like OCD. The nighttime rituals and handwashing ary very typical of OCD. My son also has begun reading aloud and rereading sentences since OCD struck. Cognitive Behavior Therapy (CBT) and Exposure and Responce Prevention Therapy (E & RP) are instrumental in recovery. Medications are often needed to reduce the anxiety so the E & RP can be facilitated. There are many meds, many of which are Selective Seratonin Reuptake Inhibitors (SSRIs). My son was started on an SSRI (Paxil) but it made him so sleepy he couldn't function at school. He was taken off and now refuses other meds. We are working with a therapist and trying E & RP at home. I think you will find a great deal of help from this group. I certainly did. There is a lot of cumulative information and experience in this group. I found that just knowing we were not alone in this was a big help. Please keep us updated on your daughter's progress. Melinds S. Dallas, Texas > > Hello everyone, > > I am quite new to your group, but have been reading the emails - all of > them!!!- for a few weeks now. > I believe my 11 year old daughter has ocd, and has probably suffered with it > since the age of 5, when she was expelled from school for outlandish, > disruptive behaviour including dancing nickerless on the piano and kicking > the headmistress! At the time she was sweetness and light at home, and I > didn't know whether I was coming or going. Looking back it seemed to stem > from lack of stimulation at school, and in the next, big, bustling, mixed > sex school she's done great. However looking back from even further now, > this could have been the start of ocd. After that she started to act out at > home much more, until today when she is very rude (potty mouth I believe) > and VERY controlling. > For a long while there have been issues with toilet tissue, and her private > parts. For years she wore a wad a big as two tennis balls in her > knickers...saying she was " wet " . She would also openly " fiddle " with > herself infront of any of her brothers friends (boys are now 10 and 13) > There was no pathology, though she did see a couple of psychologists. > Neither ever mentioned ocd. Now she just uses a wad of tissue to wipe > throughout the day and carries it everywhere. When she goes to the toilet > to wee she has started recently wiping so much that on two occasions I found > spots of blood. It takes 20 minutes to finish in the toilet after a wee. > Shes also started having to rearrange her curtains at night for ages, then > touch the corners five times. She has to open and close each drawer and > touch the corners. She changes her knickers 4 times a day. She finds it > easier now to read aloud though she is very able with English, and often > repeats a sentence time and time again. She is hand-washing so often her > hands are like little old ladies hands. All of these apart from the tissue > thing have started in the last two months or so. I haven't discovered any > obsessive thoughts, but we have these compulsive symptoms. She can repeat > questions time and time again. > Does this sound like ocd to you guys? > You may have gathered from my language I am from England (Surrey). Am I the > only one? > My General Practitioner has told me just to be patient with her and look > after myself. He says the psychiatric and psychology services for such > problems are useless. Even if there was help out there privately, I could > not afford it. It seems that with help from all of you, I must treat this > myself. I'm learning slowly from the group. Trying not to enable, though > I'm not certain what this is. There is no way not to wash mountains of > (clean - no discharge , wee, or poo or anything, and still smelling of the > washing powder when she discards them) knickers- she'd melt down totally and > not sleep if there was no clean ones. I have also encouraged her to use a > milder soap to wash hands. If her quality of life deteriorated a lot, I > think my General Practitioner (GP) may be would to prescribe medication, > based on your advice! We are back-ward aren't we? > For the moment, apart from bed times taking ages, and a fortune being spent > on toilet tissue, she is not really suffering. She still has friends, and > still does well at school. She's in all the sports teams which is great for > her self-esteem. > It is strange to read about all of you with your medical insurance, > psychologists and things at school, which are so alien from over here. What > is the same is the disorder. > I look forward to hearing you have received this mail. Your thoughts on > whether this is ocd. If it comes to medication I shall ask you which is > best, at which doses etc. I understand that one doesn't work for all, but > to get an idea where to start. I am interested in inositol, which I may > find over here. What is the dosage for an 11 year old. I have found it as > part of a multi-vitamin at 5mg. > I'd love to know if there is anyone else from England in this group. Surely > my Ami can't be the only child with this? > Take care, and thanks for all the useful mails. > Alice aj@a... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 hello and welcome! i'm new here too. and just reading your post makes me say very kindly to you to please go get some help for your daughter. i'm not an expert, but she sounds like her symptoms are more then you can handle treating yourself. and the worst of it is, she's only going to get worse, not better. an ocd childs brain is very, very active and needs the meds to straighten out the thinking, along with therapy. you could do the therapy yourself, but she definitely in my opinion needs medication. go to another dr. if you need to to get the help for your daughter. the sooner she gets on the meds, the sooner the symptoms will start to go away. best wishes to you in getting the help that you need, amy New Member > >Hello everyone, > >I am quite new to your group, but have been reading the emails - all of >them!!!- for a few weeks now. >I believe my 11 year old daughter has ocd, and has probably suffered with it >since the age of 5, when she was expelled from school for outlandish, >disruptive behaviour including dancing nickerless on the piano and kicking >the headmistress! At the time she was sweetness and light at home, and I >didn't know whether I was coming or going. Looking back it seemed to stem >from lack of stimulation at school, and in the next, big, bustling, mixed >sex school she's done great. However looking back from even further now, >this could have been the start of ocd. After that she started to act out at >home much more, until today when she is very rude (potty mouth I believe) >and VERY controlling. >For a long while there have been issues with toilet tissue, and her private >parts. For years she wore a wad a big as two tennis balls in her >knickers...saying she was " wet " . She would also openly " fiddle " with >herself infront of any of her brothers friends (boys are now 10 and 13) >There was no pathology, though she did see a couple of psychologists. >Neither ever mentioned ocd. Now she just uses a wad of tissue to wipe >throughout the day and carries it everywhere. When she goes to the toilet >to wee she has started recently wiping so much that on two occasions I found >spots of blood. It takes 20 minutes to finish in the toilet after a wee. >Shes also started having to rearrange her curtains at night for ages, then >touch the corners five times. She has to open and close each drawer and >touch the corners. She changes her knickers 4 times a day. She finds it >easier now to read aloud though she is very able with English, and often >repeats a sentence time and time again. She is hand-washing so often her >hands are like little old ladies hands. All of these apart from the tissue >thing have started in the last two months or so. I haven't discovered any >obsessive thoughts, but we have these compulsive symptoms. She can repeat >questions time and time again. >Does this sound like ocd to you guys? >You may have gathered from my language I am from England (Surrey). Am I the >only one? >My General Practitioner has told me just to be patient with her and look >after myself. He says the psychiatric and psychology services for such >problems are useless. Even if there was help out there privately, I could >not afford it. It seems that with help from all of you, I must treat this >myself. I'm learning slowly from the group. Trying not to enable, though >I'm not certain what this is. There is no way not to wash mountains of >(clean - no discharge , wee, or poo or anything, and still smelling of the >washing powder when she discards them) knickers- she'd melt down totally and >not sleep if there was no clean ones. I have also encouraged her to use a >milder soap to wash hands. If her quality of life deteriorated a lot, I >think my General Practitioner (GP) may be would to prescribe medication, >based on your advice! We are back-ward aren't we? >For the moment, apart from bed times taking ages, and a fortune being spent >on toilet tissue, she is not really suffering. She still has friends, and >still does well at school. She's in all the sports teams which is great for >her self-esteem. >It is strange to read about all of you with your medical insurance, >psychologists and things at school, which are so alien from over here. What >is the same is the disorder. >I look forward to hearing you have received this mail. Your thoughts on >whether this is ocd. If it comes to medication I shall ask you which is >best, at which doses etc. I understand that one doesn't work for all, but >to get an idea where to start. I am interested in inositol, which I may >find over here. What is the dosage for an 11 year old. I have found it as >part of a multi-vitamin at 5mg. >I'd love to know if there is anyone else from England in this group. Surely >my Ami can't be the only child with this? >Take care, and thanks for all the useful mails. >Alice aj@... > > > > > >You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Hello Alice and welcome to the list. I'm a Mom of a 7 yo girl with OCD and yes, much or all of what you write about your daughter's behavior sounds very familiar to me. You are not the only UK member of the list though I am drawing a blank at the moment re the others! I am hoping the other Kathy on the list, Kathy H. will jump in with the details of an OCD resource group she knows of in the UK. The doctor you spoke with is, thankfully, dead wrong and his suggestion will only facilitate OCD worsening (though the suggestion to take care of yourself is a good one! :-) There are two very effective treatments for OCD: selective seratonin reuptake inhibitors (SSRIs) such as Prozac, Zoloft and Celexa (there are others) and a particular type of behavior therapy called Exposure and Response Prevention. Some kids do well with the therapy alone, some need an SSRI at least to begin with, and others do best on a combination of the two. I'm glad your daughter continues to do well in school and with her friends, but OCD is a miserable disorder and from your description your daughter has quite a lot of it to contend with. I think you are quite right to pursue a diagnosis and treatment options for her. To familiarize yourself with OCD and its treatments, I highly recommend you read the Obsessive Compulsive Foundation's website, www.ocfoundation.org You may also want to buy or borrow from a library Dr. March and Mulle's therapy manual, " OCD in Children and Adolescents " which is very readable with examples of ERP therapy, and I would also highly recommend Dr. Tamra Chansky's " Freeing your Child From Obsessive-Compulsive Disorder. " Armed with all this info, you will become an OCD expert quickly, and be able to sort through treatment options and not waste time or money on those providers who won't be helpful for your daughter. Not to scare you, but untreated OCD does tend to worsen, and can intensify rather suddenly around time of puberty. I do encourage you to act on your concerns for your daughter and help her find some relief from her OCD symptoms. Good luck, write again, Kathy R. in Indiana p.s. Inositol is a B vitamin, and I believe it, dosage, etc. is discussed on the OC Foundation website mentioned above. ----- Original Message ----- From: " ajhodges.freeserve.co.uk " <aj@...> > I believe my 11 year old daughter has ocd, and has probably suffered with it > since the age of 5, when she was expelled from school for outlandish, > disruptive behaviour including dancing nickerless on the piano and kicking > the headmistress! At the time she was sweetness and light at home, and I > didn't know whether I was coming or going. Looking back it seemed to stem > from lack of stimulation at school, and in the next, big, bustling, mixed > sex school she's done great. However looking back from even further now, > this could have been the start of ocd. After that she started to act out at > home much more, until today when she is very rude (potty mouth I believe) > and VERY controlling. > For a long while there have been issues with toilet tissue, and her private > parts. For years she wore a wad a big as two tennis balls in her > knickers...saying she was " wet " . She would also openly " fiddle " with > herself infront of any of her brothers friends (boys are now 10 and 13) > There was no pathology, though she did see a couple of psychologists. > Neither ever mentioned ocd. Now she just uses a wad of tissue to wipe > throughout the day and carries it everywhere. When she goes to the toilet > to wee she has started recently wiping so much that on two occasions I found > spots of blood. It takes 20 minutes to finish in the toilet after a wee. > Shes also started having to rearrange her curtains at night for ages, then > touch the corners five times. She has to open and close each drawer and > touch the corners. She changes her knickers 4 times a day. She finds it > easier now to read aloud though she is very able with English, and often > repeats a sentence time and time again. She is hand-washing so often her > hands are like little old ladies hands. All of these apart from the tissue > thing have started in the last two months or so. I haven't discovered any > obsessive thoughts, but we have these compulsive symptoms. She can repeat > questions time and time again. > Does this sound like ocd to you guys? > You may have gathered from my language I am from England (Surrey). Am I the > only one? > My General Practitioner has told me just to be patient with her and look > after myself. He says the psychiatric and psychology services for such > problems are useless. Even if there was help out there privately, I could > not afford it. It seems that with help from all of you, I must treat this > myself. I'm learning slowly from the group. Trying not to enable, though > I'm not certain what this is. There is no way not to wash mountains of > (clean - no discharge , wee, or poo or anything, and still smelling of the > washing powder when she discards them) knickers- she'd melt down totally and > not sleep if there was no clean ones. I have also encouraged her to use a > milder soap to wash hands. If her quality of life deteriorated a lot, I > think my General Practitioner (GP) may be would to prescribe medication, > based on your advice! We are back-ward aren't we? > For the moment, apart from bed times taking ages, and a fortune being spent > on toilet tissue, she is not really suffering. She still has friends, and > still does well at school. She's in all the sports teams which is great for > her self-esteem. > It is strange to read about all of you with your medical insurance, > psychologists and things at school, which are so alien from over here. What > is the same is the disorder. > I look forward to hearing you have received this mail. Your thoughts on > whether this is ocd. If it comes to medication I shall ask you which is > best, at which doses etc. I understand that one doesn't work for all, but > to get an idea where to start. I am interested in inositol, which I may > find over here. What is the dosage for an 11 year old. I have found it as > part of a multi-vitamin at 5mg. > I'd love to know if there is anyone else from England in this group. Surely > my Ami can't be the only child with this? > Take care, and thanks for all the useful mails. Quote Link to comment Share on other sites More sharing options...
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