Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Welcome Sonya! My son is 10yo with OCD, and is a NEW and IMPROVED child at the moment thanks to ERP therapy AND medication. His life has DRASTICALLY turned around since May now that: 1) I'm no longer enabling (or feeding) his fears by reassuring him that he won't get sick. His therapy has helped pull me OUT of the dependency cycle thanks to the moderators on this list (wendy, kathy r, kathy h, etc..) and a Top Notch therapist (with a PHD in behavior mod) who has never had an OCD patient before. was her 'guinea pig', and she gets an A+ To give myself a little credit, I went in to therapy with a mission-- and wasn't about to leave without what I wanted! 2)We found the right medication. I'm not a fan of medicating my child, but it has given me my life back, and restored my son's childhood. He's taking Luvox for OCD, and Risperdal for the moodiness. Life is GOOD! 3)I'm Back In Charge. Last year at this time, I was depressed and hopeless. When would stay in the shower for over an hour, I gave in and let him. I had no fight left in me. Things are so much different this year. We stay IN FRONT of the problems, predict them and set rules before they happen. He was late 36 times to school last year. This year: zero. Anyway... I'm sure you're aware of all the pitfalls of parenting a child with OCD, so I share the above info with the GROUP (not to you personally). 's school is totally amazed at the turn-around and gains he's made in a few short months. I have to give ALOT of credit to this group of amazingly strong, educated and dedicated parents!!! Good luck and continue to keep us posted! Joni Mom of (20), (18, ADHD+mild OCD) and (10, OCD) > Just wanted to take a moment and introduce myself and my family. My > daughter was diagnosed in January with OCD. We believe her symptoms > began at about age 3. She continued to go down hill until January of > this year and she was taken out of school. Her physician is Dr. > at University of Florida/Shands. Her therapist is Dr. > Lemli (he works with CBT). Her doctors believe she has PANDAS > OCD. My daughter is eight years old and has a younger brother who is > almost six. She is back in school at the moment. When she is well > she has only a few OCD symptoms, which only require minimum CBT to > stop. When she is ill she stops functioning. She can no longer > write, dress herself, turn on and off light switches and faucets, > pump soap dispensers. She has paths that she has to take around the > house, certain ways of getting on and off furniture and out of > rooms. She gets stuck everywhere. We have to lift her up and carry > her to two tiles in our family room. She wants us to place her on > these tiles twice, facing East. During this time she washes her > hands often and nothing " feels right " . Her movements become odd and > she becomes oppositional after about 10 days after the flare up > begins. She will hit, bite, pinch, tear up her room, etc. The > therapist cannot offer anything but emotional support because she > wont listen to anything he says. She has walked out on sessions > during her flare ups. She gets very hyper and wont sit still for > him. During her last flare up she was diving over the back of his > couch and rolling on to the floor over and over again. She also > can't pick up anything off the floor. She is taken out of school at > this time and takes tests orally and I write for her. She will say > when she is ready to go back to school and around this time her OCD > symptoms will start dropping off. Her therapist says it is like > night and day...sick and well. When she is well she is a straight A > student and active in sports and theatre...when she is sick she sits > on the couch and watches I Love Lucy reruns all day. It ususally > takes about four weeks before she is back in school again. > > One thing we have found with is that strep doesn't look like > strep. No red or swollen throat, no fever, just a flare up in her > OCD. We are checking into plasma exchange. In the meantime we use > NAET treatments to keep her immune system built up (www.NAET.com). > Sometimes it helps, sometimes it just speeds up the recovery time. > There is no support group where we live and we are thankful to have > heard about this sight. We are members of the OCD foundation. If > you have any questions, feel free to ask. My husband and I certainly > understand the struggles that you go through, including school > situations, needing to work for extra income and not being able to, > long, long periods of not " getting out " . We look forward to talking > with you. Sonya Haywood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Thanks for the information Joni, actually when is well she does quite well with exposure and response. She is extremely easy to work with and usually only needs a " remember what you are working on " statment from us and she immediately stops doing the ritual. It is when she is ill that the therapist cannot work with her. He likens it to night and day. She goes from being very compliant and open to working on it to a point where you can look into her eyes and tell that she is not even there anymore. It takes about four weeks after being on an antibiotic for the symptoms to calm down and then she is right back to where she was before the illness. In @y..., " Joni " <lyricaldreamer@y...> wrote: > Welcome Sonya! > My son is 10yo with OCD, and is a NEW and IMPROVED child at the > moment thanks to ERP therapy AND medication. His life has > DRASTICALLY turned around since May now that: > 1) I'm no longer enabling (or feeding) his fears by reassuring him > that he won't get sick. His therapy has helped pull me OUT of the > dependency cycle thanks to the moderators on this list (wendy, kathy > r, kathy h, etc..) and a Top Notch therapist (with a PHD in behavior > mod) who has never had an OCD patient before. was her 'guinea > pig', and she gets an A+ To give myself a little credit, I went in > to therapy with a mission-- and wasn't about to leave without what I > wanted! 2)We found the right medication. I'm not a fan of medicating my > child, but it has given me my life back, and restored my son's > childhood. He's taking Luvox for OCD, and Risperdal for the > moodiness. Life is GOOD! > 3)I'm Back In Charge. Last year at this time, I was depressed and > hopeless. When would stay in the shower for over an hour, I > gave in and let him. I had no fight left in me. Things are so much > different this year. We stay IN FRONT of the problems, predict them > and set rules before they happen. He was late 36 times to school > last year. This year: zero. > > Anyway... I'm sure you're aware of all the pitfalls of parenting a > child with OCD, so I share the above info with the GROUP (not to you > personally). 's school is totally amazed at the turn-around nd > gains he's made in a few short months. I have to give ALOT of credit > to this group of amazingly strong, educated and dedicated parents!!! > > Good luck and continue to keep us posted! > Joni > Mom of (20), (18, ADHD+mild OCD) and (10, OCD) > > > > > > Just wanted to take a moment and introduce myself and my family. > My > > daughter was diagnosed in January with OCD. We believe her > symptoms > began at about age 3. She continued to go down hill until January > of > > this year and she was taken out of school. Her physician is Dr. > > at University of Florida/Shands. Her therapist is Dr. > > Lemli (he works with CBT). Her doctors believe she has > PANDAS > > OCD. My daughter is eight years old and has a younger brother who > is > > almost six. She is back in school at the moment. When she is well > > she has only a few OCD symptoms, which only require minimum CBT to > > stop. When she is ill she stops functioning. She can no longer > > write, dress herself, turn on and off light switches and faucets, > > pump soap dispensers. She has paths that she has to take around > > house, certain ways of getting on and off furniture and out of > > rooms. She gets stuck everywhere. We have to lift her up and > carry > > her to two tiles in our family room. She wants us to place her on > > these tiles twice, facing East. During this time she washes her > > hands often and nothing " feels right " . Her movements become odd > and > > she becomes oppositional after about 10 days after the flare up > > begins. She will hit, bite, pinch, tear up her room, etc. The > > therapist cannot offer anything but emotional support because she > > wont listen to anything he says. She has walked out on sessions > > during her flare ups. She gets very hyper and wont sit still for > > him. During her last flare up she was diving over the back of his > > couch and rolling on to the floor over and over again. She also > can't pick up anything off the floor. She is taken out of school > at > > this time and takes tests orally and I write for her. She will say > > when she is ready to go back to school and around this time her OCD > > symptoms will start dropping off. Her therapist says it is like > > night and day...sick and well. When she is well she is a straight > A > > student and active in sports and theatre...when she is sick she > sits > > on the couch and watches I Love Lucy reruns all day. It ususally > > takes about four weeks before she is back in school again. > > > > One thing we have found with is that strep doesn't look > > strep. No red or swollen throat, no fever, just a flare up in her > > OCD. We are checking into plasma exchange. In the meantime we use > > NAET treatments to keep her immune system built up (www.NAET.com). > > Sometimes it helps, sometimes it just speeds up the recovery time. > > There is no support group where we live and we are thankful to have > > heard about this sight. We are members of the OCD foundation. If > > you have any questions, feel free to ask. My husband and I > certainly > > understand the struggles that you go through, including school > > situations, needing to work for extra income and not being able to, > > long, long periods of not " getting out " . We look forward to > talking > > with you. Sonya Haywood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Dear Sonya, Welcome to our group!! I think you will find, as we all did, that having some support helps tremendously with the stress of raising a child with OCD. I also have a daughter with OCD. She has just turned nine. I also have a son who will turn six next month. My daughter had a sudden onset of OCD when she was four after a bout with encephalitis, although she was clearly predisposed to anxiety before then. She too can have periods during which she seems almost completely well, and then periods when she is very ill (though not nearly as ill as your poor daughter). She fits the criteria for PANDAS completely, except that her strep titers have always come out negative. There is some other immune system connection which no one has worked out yet, apparently. You sound as if you are providing your daughter with excellent care. The one good thing I can say about having a young child with OCD is that they accept treatment and even if later they refuse to participate (which seems quite common among teens) they have already learned the foundation of CBT, which will last a lifetime. In the two years that my daughter has been in therapy she has learned so much about dealing with OCD - she amazes me sometimes. Best wishes to you, and keep writing. Your story sounds so familiar, i can't even tell you - especially the diving over the couch bit. Been there, done that... , mother of Annie (9) with OCD and Ben (soon to be six, who just suffers from having to live with a sister with OCD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Yes, there is definently a connection between the immune system and a worsening of the OCD. gets worse with strep, but has also had other illnesses that made her OCD flare up. I am not convinced the the blood work or cultures always show the strep. When I took her for a NAET treatment after these tests were done and were negative, strep was still showing up. Some believe that the strep hides itself in the body, kind of like yeast. It is in the body, but only shows up as a yeast infection at certain times. The problem is that it is difficult to plan anything because you never can tell when a child is going to get sick. My husband came home last night and said that we are running out of money (we have put and in a private school this year. They really work with and her OCD)from having to pay the school tuition. He said that I need to get out there and get a job, but not a night job. I said " Oh yeah, I can see it now. We would love to hire you Mrs. Haywood. We are very impressed with your resume and skills. When can you start? " " Well, I can start right away. " " By the way, there will probably be several times a year when I will be gone for about three to four weeks at a time to help my daughter who has OCD. Is that OK " . I am sure that the answer will be " you look like you could do such great work, that we are willing to make that sacrifice " . HAHAHAHAHAHAHAHAHAHAHAHAHAHA!!!!!!!! You just gotta laugh, keeps you sane. Sonya mother of (8 with OCD) and (almost six and has learned to copy 's OCD to try to get out of doing things) > Dear Sonya, > Welcome to our group!! I think you will find, as we all did, that > having some support helps tremendously with the stress of raising a child > with OCD. I also have a daughter with OCD. She has just turned nine. I also > have a son who will turn six next month. My daughter had a sudden onset of > OCD when she was four after a bout with encephalitis, although she was > clearly predisposed to anxiety before then. She too can have periods during > which she seems almost completely well, and then periods when she is very ill > (though not nearly as ill as your poor daughter). She fits the criteria for > PANDAS completely, except that her strep titers have always come out > negative. There is some other immune system connection which no one has > worked out yet, apparently. > You sound as if you are providing your daughter with excellent care. > The one good thing I can say about having a young child with OCD is that they > accept treatment and even if later they refuse to participate (which seems > quite common among teens) they have already learned the foundation of CBT, > which will last a lifetime. In the two years that my daughter has been in > therapy she has learned so much about dealing with OCD - she amazes me > sometimes. > Best wishes to you, and keep writing. Your story sounds so familiar, i > can't even tell you - especially the diving over the couch bit. Been there, > done that... > , > mother of Annie (9) with OCD and Ben (soon to be six, who just suffers from > having to live with a sister with OCD) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Hi Sonya, Welcome to ! You mentioned in your post that there are no OCD support groups where you live. This group does a great job of filling that void. In terms of , perhaps she would be interested in OCDKidsSupportGroup. It's an online support group for kids 7-12 and it works pretty much like this list does. I am the list moderator and keep an eye out for saftey issues, etc. If you are interested in having her subscribe, let me know and I can give you the sub info. Kathy -- Kathy Mac, LICSW email: macdonald@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Hi Sonja, Yes, I know the feeling...but we do what we have to. You might try a hospital where there are lots of employees who can fill in when you are needed at home. Good luck to you-- (who has a full time job, two part time jobs, and teach at my son's school so I can keep an eye on him) Re: New Member Yes, there is definently a connection between the immune system and a worsening of the OCD. gets worse with strep, but has also had other illnesses that made her OCD flare up. I am not convinced the the blood work or cultures always show the strep. When I took her for a NAET treatment after these tests were done and were negative, strep was still showing up. Some believe that the strep hides itself in the body, kind of like yeast. It is in the body, but only shows up as a yeast infection at certain times. The problem is that it is difficult to plan anything because you never can tell when a child is going to get sick. My husband came home last night and said that we are running out of money (we have put and in a private school this year. They really work with and her OCD)from having to pay the school tuition. He said that I need to get out there and get a job, but not a night job. I said " Oh yeah, I can see it now. We would love to hire you Mrs. Haywood. We are very impressed with your resume and skills. When can you start? " " Well, I can start right away. " " By the way, there will probably be several times a year when I will be gone for about three to four weeks at a time to help my daughter who has OCD. Is that OK " . I am sure that the answer will be " you look like you could do such great work, that we are willing to make that sacrifice " . HAHAHAHAHAHAHAHAHAHAHAHAHAHA!!!!!!!! You just gotta laugh, keeps you sane. Sonya mother of (8 with OCD) and (almost six and has learned to copy 's OCD to try to get out of doing things) > Dear Sonya, > Welcome to our group!! I think you will find, as we all did, that > having some support helps tremendously with the stress of raising a child > with OCD. I also have a daughter with OCD. She has just turned nine. I also > have a son who will turn six next month. My daughter had a sudden onset of > OCD when she was four after a bout with encephalitis, although she was > clearly predisposed to anxiety before then. She too can have periods during > which she seems almost completely well, and then periods when she is very ill > (though not nearly as ill as your poor daughter). She fits the criteria for > PANDAS completely, except that her strep titers have always come out > negative. There is some other immune system connection which no one has > worked out yet, apparently. > You sound as if you are providing your daughter with excellent care. > The one good thing I can say about having a young child with OCD is that they > accept treatment and even if later they refuse to participate (which seems > quite common among teens) they have already learned the foundation of CBT, > which will last a lifetime. In the two years that my daughter has been in > therapy she has learned so much about dealing with OCD - she amazes me > sometimes. > Best wishes to you, and keep writing. Your story sounds so familiar, i > can't even tell you - especially the diving over the couch bit. Been there, > done that... > , > mother of Annie (9) with OCD and Ben (soon to be six, who just suffers from > having to live with a sister with OCD) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Welcome Sonya, I have a 17 year old son who was DX at age 12. He probably had OCD at a younger age but we never could figure it out until it got 'full blown'. He also was unable to attend school, but for him, in 6th grade there was a great self induced shame. So when he was better it was hard for him to face the others at school. He is taking Celexa and it seems to have helped a lot. Now he is a Junior in H.S. and has been able to attend with no problems this year. (lets hope it stays this way!) There are others on this list who have kids with similar symptoms like your . It is great to feel like folks know what you are experiencing. That was so helpful to me when I found this list. I will look forward to reading your posts. Vivian in WA ST --- sjrhaywood@... wrote: > Just wanted to take a moment and introduce myself > and my family. My > daughter was diagnosed in January with OCD. We > believe her symptoms > began at about age 3. She continued to go down hill > until January of > this year and she was taken out of school. Her > physician is Dr. > at University of Florida/Shands. Her > therapist is Dr. > Lemli (he works with CBT). Her doctors > believe she has PANDAS > OCD. My daughter is eight years old and has a > younger brother who is > almost six. She is back in school at the moment. > When she is well > she has only a few OCD symptoms, which only require > minimum CBT to > stop. When she is ill she stops functioning. She > can no longer > write, dress herself, turn on and off light switches > and faucets, > pump soap dispensers. She has paths that she has to > take around the > house, certain ways of getting on and off furniture > and out of > rooms. She gets stuck everywhere. We have to lift > her up and carry > her to two tiles in our family room. She wants us > to place her on > these tiles twice, facing East. During this time > she washes her > hands often and nothing " feels right " . Her > movements become odd and > she becomes oppositional after about 10 days after > the flare up > begins. She will hit, bite, pinch, tear up her > room, etc. The > therapist cannot offer anything but emotional > support because she > wont listen to anything he says. She has walked out > on sessions > during her flare ups. She gets very hyper and wont > sit still for > him. During her last flare up she was diving over > the back of his > couch and rolling on to the floor over and over > again. She also > can't pick up anything off the floor. She is taken > out of school at > this time and takes tests orally and I write for > her. She will say > when she is ready to go back to school and around > this time her OCD > symptoms will start dropping off. Her therapist > says it is like > night and day...sick and well. When she is well she > is a straight A > student and active in sports and theatre...when she > is sick she sits > on the couch and watches I Love Lucy reruns all day. > It ususally > takes about four weeks before she is back in school > again. > > One thing we have found with is that strep > doesn't look like > strep. No red or swollen throat, no fever, just a > flare up in her > OCD. We are checking into plasma exchange. In the > meantime we use > NAET treatments to keep her immune system built up > (www.NAET.com). > Sometimes it helps, sometimes it just speeds up the > recovery time. > There is no support group where we live and we are > thankful to have > heard about this sight. We are members of the OCD > foundation. If > you have any questions, feel free to ask. My > husband and I certainly > understand the struggles that you go through, > including school > situations, needing to work for extra income and not > being able to, > long, long periods of not " getting out " . We look > forward to talking > with you. Sonya Haywood > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Dear Sonja, I want to welcome you to this group. It sounds like you have and still are going through the wringer! My son exhibited similar types of behavior to your daughter when his OCD began at about age 3. At that time, we were basically told that we were not parenting effectively and that he needed more discipline! Thank goodness I didn't believe that diagnosis! You are correct in saying that a strep infection does not necessarily show up on the blood tests. Dr. Chansky, one of our professional list advisors has told me that she has seen children who get a virus and they become symptomatic! Her book, Freeing Your Child From Obsessive Compulsive Disorder has a good section on PANDAS. It is wonderful that you are looking into different avenues of treatment. As most of us on this list know and understand, what is a lifesaver for one child, may not do anything for another. Some children experience OCD so mildly that only CBT is necessary, others (like my child) cannot function without a combination of medication and CBT and ERP. As you described, when my son is highly symptomatic, life virtually stops for him and me. It stops for him for obvious reasons, for me for not so obvious ones. When my son is in a gravely ill state, I do not have anyone to assist in helping to care for him. School would not keep him as his behavior is too disruptive, my husband is not as skilled as I am in working with my son when he is like this and even my most trusted friends and relatives would not be able to handle him. I have not felt comfortable with the idea of going back to work, as THERE IS NO EMPLOYER who will keep your job for you if you constantly need to take off for a family members problems. Even if you take a leave under the family leave legislation, they will find other ways to fire you if you are not performing the job function you were hired to do. In this economy, in particular, it would not be looked upon favourably if a person, particularly a new person were to take off often because of family problems. The feelings of being trapped I have always found to be almost as difficult to deal with as the OCD itself! I am in the process myself of starting to look for work as my husband has been unemployed for the last 9 months, but the responsibility for taking care of the needs of the children will still fall in my lap! Sorry this is so long, keep posting and I know that you will find the help and encouragement that you need at this most difficult time. Best wishes, in Southeastern PA sjrhaywood@... wrote: Just wanted to take a moment and introduce myself and my family. My daughter was diagnosed in January with OCD. We believe her symptoms began at about age 3. She continued to go down hill until January of this year and she was taken out of school. Her physician is Dr. at University of Florida/Shands. Her therapist is Dr. Lemli (he works with CBT). Her doctors believe she has PANDAS OCD. My daughter is eight years old and has a younger brother who is almost six. She is back in school at the moment. When she is well she has only a few OCD symptoms, which only require minimum CBT to stop. When she is ill she stops functioning. She can no longer write, dress herself, turn on and off light switches and faucets, pump soap dispensers. She has paths that she has to take around the house, certain ways of getting on and off furniture and out of rooms. She gets stuck everywhere. We have to lift her up and carry her to two tiles in our family room. She wants us to place her on these tiles twice, facing East. During this time she washes her hands often and nothing " feels right " . Her movements become odd and she becomes oppositional after about 10 days after the flare up begins. She will hit, bite, pinch, tear up her room, etc. The therapist cannot offer anything but emotional support because she wont listen to anything he says. She has walked out on sessions during her flare ups. She gets very hyper and wont sit still for him. During her last flare up she was diving over the back of his couch and rolling on to the floor over and over again. She also can't pick up anything off the floor. She is taken out of school at this time and takes tests orally and I write for her. She will say when she is ready to go back to school and around this time her OCD symptoms will start dropping off. Her therapist says it is like night and day...sick and well. When she is well she is a straight A student and active in sports and theatre...when she is sick she sits on the couch and watches I Love Lucy reruns all day. It ususally takes about four weeks before she is back in school again. One thing we have found with is that strep doesn't look like strep. No red or swollen throat, no fever, just a flare up in her OCD. We are checking into plasma exchange. In the meantime we use NAET treatments to keep her immune system built up (www.NAET.com). Sometimes it helps, sometimes it just speeds up the recovery time. There is no support group where we live and we are thankful to have heard about this sight. We are members of the OCD foundation. If you have any questions, feel free to ask. My husband and I certainly understand the struggles that you go through, including school situations, needing to work for extra income and not being able to, long, long periods of not " getting out " . We look forward to talking with you. Sonya Haywood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Welcome, . As the mother of an eight yr old with autism, I would value any input you have to offer from your own point-of-view. Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Welcome ! Penny - Mom to Jacqui, 6 1/2 HFA-------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away. " --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hey , it's me cheryl or chezmark. glad you finally got on here. You will find some interesting emails come on here. bye Cheryl New Member Hello all, My name is . I live in U.S. I am 22 and 1/2 years old. I have AS. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hi Sonya, ----- Original Message ----- " The problem is that it is difficult to plan anything because you never can tell when a child is going to get sick. My husband came home last night and said that we are running out of money " ~~~~~~~~~~~~~~~~~~~~~~~~~Don't we all know that line. I quit my job 3 1/2 years ago to help our son get better. I thought it would be six months, a year tops. HA HA HA, think I was very delusional back then. Money and my sanity sent me back to work part-time, with the promise of help from hubby. I work per deim, so I have no benefits (except I make my own schedule), so when I don't work, I don't get paid. On the other hand, hubby has 2000 hours of sick time and about 400 hours of vacation time. That sick time can be tapped for caring for our son (family leave). I just stayed home for 4 1/2 days taking care of all things for Mike,(I'll post about this latter). Ok, hubby did have a good excuse, he is in management and his post office is closed because of anthrax; I have hardly seen him the last week because of the hours he had to work. In jest, it seems that the anthrax was convenient for him-doesn't have to get Mike into a day hospitalization or look for a therapeutic school...!!In my next life I will be a dad!!! " He said that I need to get out there and get a job, but not a night job. " ~~~~~~~~OF COURSE!~~~~~~~~~~~~~~~ I said " Oh yeah, I can see it now. We would love to hire you Mrs. Haywood. We are very impressed with your resume and skills. When can you start? " " Well, I can start right away. " " By the way, there will probably be several times a year when I will be gone for about three to four weeks at a time to help my daughter who has OCD. Is that OK " . I am sure that the answer will be " you look like you could do such great work, that we are willing to make that sacrifice " . HAHAHAHAHAHAHAHAHAHAHAHAHAHA!!!!!!!! You just gotta laugh, keeps you sane. Sonya mother of (8 with OCD) and (almost six and has learned to copy 's OCD to try to get out of doing things) ~~~~~~~~~~~~~~~~~~~~~I am still laughing with you Sonya!!!!!! Hubby can't be the primary care taker as it would ruin his dependable professional reputation. We take a job and become undependable employees, and that's ok. UGH!! I say anyday I get to work is a good day, and it is easier than what I do at home for free. At least I can get paid for going to work... Hugs to you, in NJ~~~~~~~~~~~~~~~~~~~~~~ > Dear Sonya, > Welcome to our group!! I think you will find, as we all did, that > having some support helps tremendously with the stress of raising a child > with OCD. I also have a daughter with OCD. She has just turned nine. I also > have a son who will turn six next month. My daughter had a sudden onset of > OCD when she was four after a bout with encephalitis, although she was > clearly predisposed to anxiety before then. She too can have periods during > which she seems almost completely well, and then periods when she is very ill > (though not nearly as ill as your poor daughter). She fits the criteria for > PANDAS completely, except that her strep titers have always come out > negative. There is some other immune system connection which no one has > worked out yet, apparently. > You sound as if you are providing your daughter with excellent care. > The one good thing I can say about having a young child with OCD is that they > accept treatment and even if later they refuse to participate (which seems > quite common among teens) they have already learned the foundation of CBT, > which will last a lifetime. In the two years that my daughter has been in > therapy she has learned so much about dealing with OCD - she amazes me > sometimes. > Best wishes to you, and keep writing. Your story sounds so familiar, i > can't even tell you - especially the diving over the couch bit. Been there, > done that... > , > mother of Annie (9) with OCD and Ben (soon to be six, who just suffers from > having to live with a sister with OCD) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hi Its nice to have you here. My name is Tracey and I have a 9 year old autistic daughter named Skylar. I look forward to hearing your opinions on some of our questions. Tracey lighthouses53110@... wrote: > Hello all, My name is . I live in U.S. I am 22 and 1/2 years > old. I have AS. Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi , I'm , My daughter is ie Jo, she's 11 and wonderful, as are all of our Angels! I think you will really find this a great place to be, I do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Hi Sonya, and welcome to the group! I am so very jealous, that your doctor is . My daughter (7 now, onset at 4.11 yrs.) participated in a study at U of F, Dr. was so very good and impressive that we considered moving to Florida so Kel could have her as her doctor. So much of what you've written is very familiar to me--right down to my daughter also being an athlete and and actor! She is successful in these areas and the positive feedback is wonderful for her self-esteem. My daughter's OCD is more stable than yours at this point now, though she was dysfunctional at onset and for the first few months following that. It must be extremely difficult for you and your child to cope with the dramatic ups and downs. I read the page you posted about NAET, it sounds a little " out there " , but I'm glad it seems to help your child. Again, welcome, Kathy R. in Indiana ----- Original Message ----- From: <sjrhaywood@...> > Just wanted to take a moment and introduce myself and my family. My > daughter was diagnosed in January with OCD. We believe her symptoms > began at about age 3. She continued to go down hill until January of > this year and she was taken out of school. Her physician is Dr. > at University of Florida/Shands. Her therapist is Dr. > Lemli (he works with CBT). Her doctors believe she has PANDAS > OCD. My daughter is eight years old and has a younger brother who is > almost six. She is back in school at the moment. When she is well > she has only a few OCD symptoms, which only require minimum CBT to > stop. When she is ill she stops functioning. She can no longer > write, dress herself, turn on and off light switches and faucets, > pump soap dispensers. She has paths that she has to take around the > house, certain ways of getting on and off furniture and out of > rooms. She gets stuck everywhere. We have to lift her up and carry > her to two tiles in our family room. She wants us to place her on > these tiles twice, facing East. During this time she washes her > hands often and nothing " feels right " . Her movements become odd and > she becomes oppositional after about 10 days after the flare up > begins. She will hit, bite, pinch, tear up her room, etc. The > therapist cannot offer anything but emotional support because she > wont listen to anything he says. She has walked out on sessions > during her flare ups. She gets very hyper and wont sit still for > him. During her last flare up she was diving over the back of his > couch and rolling on to the floor over and over again. She also > can't pick up anything off the floor. She is taken out of school at > this time and takes tests orally and I write for her. She will say > when she is ready to go back to school and around this time her OCD > symptoms will start dropping off. Her therapist says it is like > night and day...sick and well. When she is well she is a straight A > student and active in sports and theatre...when she is sick she sits > on the couch and watches I Love Lucy reruns all day. It ususally > takes about four weeks before she is back in school again. > > One thing we have found with is that strep doesn't look like > strep. No red or swollen throat, no fever, just a flare up in her > OCD. We are checking into plasma exchange. In the meantime we use > NAET treatments to keep her immune system built up (www.NAET.com). > Sometimes it helps, sometimes it just speeds up the recovery time. > There is no support group where we live and we are thankful to have > heard about this sight. We are members of the OCD foundation. If > you have any questions, feel free to ask. My husband and I certainly > understand the struggles that you go through, including school > situations, needing to work for extra income and not being able to, > long, long periods of not " getting out " . We look forward to talking > with you. Sonya Haywood > > > > You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 > My name is , and I am the parent of a 16 year > old boy,, who has OCD. Do > any of you have other children that do not want to > deal with their OCD and try to ignore it? Hi , and welcome to this great list! My name is Marlys, and my 16-yr old daughter has OCD, and yep, she doesn't want to admit it's that (though she knows it's SOMETHING), and she doesn't want me to advocate for her in school, and she doesn't want treatment, esp. drugs! So, you and are not the only ones trying to deal with this nasty disorder. Many of us have found that school is the worst (most difficult) place for our kids and their ocd - I know that's true for my daughter. I have found a lot of support from this list, and hope that you do also. I don't have any specific advice for you, but hope you will stick around and get acquainted! Lots of people on this list know more than I do! Marlys in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 Hi , I too have a 16 yr old son with OCD. When we figured out what it was, he would acknowledge that he had it because of the emotional pain he was in, but he refused to go for help. Being bigger than me I knew I couln't drag him there. So we wasted 2 years before beginning treatment. We just started meds (luvox) this past January 2001. He also hated school and every day would tell me he wasn't going to make it there (high school) much longer- He wasn't going to live much longer. Neither one of us could talk about OCD until the last 3 or 4 months (denial on my part - embarassment on his). We are just now beginning to share with others. It is a very difficult time for our sons. Not only do they have to deal with OCD - which has some very hard to understand and cope with symptoms - but they have to deal with all the changes that come with adolescence as well. A tall order for them and us! I ended up having to homeschool my kiddo this year (lack of cooperation with the school) and the medicine is helping, but it is a slow, uphill battle. Hang in there and know that you are not alone - others have been there, are there now, and it is hard. PS My son has contamination OCD. Sharon in Oklahoma >From: Robbins <kelrobb@...> >Reply- > >Subject: New member >Date: Tue, 20 Nov 2001 07:44:10 -0800 (PST) > >Hi, > > My name is , and I am the parent of a 16 year >old boy,, who has OCD. His OCD is a little >unusual in that his fear are of things poking him in >the eyes. He normally will cover up is face or wear >things around his face for protection. He also covers >and moves object in our home that disturb him. He >really has trouble with writing objects so school is >an on going struggle. He absolutely hates school and >it is a trigger for his OCD along with driving a car >and other stresses. He takes 70 mg. of Prozac, but he >feels like a Zombie. He found relief from >exposure/response therapy. He began feeling better >and then decided to go off meds. Bad ideal. He went >back on meds but is struggling. He is in denial. He >doesn't like me to speak of it b/c he thinks that >makes it worse. I try to advocate for him at school, >but he does a little as he can to get by. I find it >very difficult to know if I am enabling him or not >advocating enough for him at school. I know he is >suffering, but he makes everything so difficult with a >negative attitude. The only thing that keeps him in >school is goal to be in the fishing industry. He >absolutely loves to fish and is very good at it. Do >any of you have other children that do not want to >deal with their OCD and try to ignore it? > >Sincerely, > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 Hi & Marlys, My name is Phyllis, and my almost 16-yr old daughter, Chelle has TS, OCD, & ADHD. Her name gets added to the list after and as a child who also has been in denial, doesn't want me to advocate for her in school, doesn't want E & RP therapy, and doesn't like me to talk about OCD because she says that makes it worse. She says she doesn't think about it unless I mention it. Of course, I see the behavior that results from it that she doesn't see. Do your kids have many friends; or, as Chelle, only one friend? She is slowly warming up to a couple of girls in her school, but they live about 1/2 hour away from us. Chelle takes meds, finally after many years, without a terrible struggle. The meds have helped tremendously with her symptoms, especially her TS tics. I'm not sure what to attribute it to, because she receives Dexedrine prior to coming home from school; but she is wiped out after school and sleeps sometimes until 7 or 8 o'clock. Needless to say, homework rarely gets done. She's very bright but failing school. We did have a major breakthrough last week. Chelle went to her first OCD support group for children and teens. There were 6 kids there including Chelle. This was the first time she met other kids who were diagnosed with OCD. They were just like other kids, except for a few noticable quirks. She got along well with them and said she wants to go back next week. I think she felt rather safe with them. This may give her some of the emotional security she needs with peers. I have found that school has been an extremely difficult place for her since 1st grade. Middle school was the worst you could imagine. She was teased and taunted unmercifully. Things are not quite so bad now that she's in 10th grade, but she's still considered a " problem child " and her teachers are not as supportive as she needs. Are your kids in the public schools? What kinds of accomodations do you have on their IEP's? Chelle's currently in an alternative school that is not working for her. We're looking for an approved private school for her to attend, but I don't know if that is the answer either. I want her to be able to experience as much of a normal teen time as possible, but I'm so concerned about her emotional health in the public school system. I absolutely cannot stand how our kids are treated by their peers, teachers, and the system. We have another IEP meeting coming up in about three weeks. Any one have any words of wisdom for me? Progress, not perfection Phyllis ppepe40@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 Hi , welcome! I have a 12 y/o son, , who also does NOT like to talk about his OCD or like ME to talk about it. And, depending on my mood/patience, I'll do either! LOL I, at times, feel like ignores it; sort of just goes along with his OCD behavior until he can finish it. And then I feel like he's not trying. On the other hand, when at times here/there he has really had prolonged episodes (like having to repeat an action over & over), I can actually see how tired he gets (tearful sometimes), just wanting to get through it and be able to stop. (Luckily the long ones are few and far between). In a way I can understand it when they feel that our talking about it makes it worse. I guess it causes anxiety/stress. Sort of like fussing at an alcoholic about drinking and that making them (so it's said) want a drink; or fussing at a smoker about quitting and that making them want a cigarette and so on.... At least that's one way " I " can look at it when I can see " tensing up " at times when " I'm " the one talking about his OCD behaviors. So far as school - I guess there can be 2 sides to that. I am the worst " enabler " with (in 7th) as his OCD has sort of shut down his being able to write at home (long story) and " I " write all his schoolwork that he brings home. (Except for one night recently when he actually did some of it!) Anyway, there's times I've thought and even said to him that he'd fail his grade if I wasn't helping him along this way. So I got him on a 504 plan at school with a few modifications allowed. He doesn't use them all but they're there if we need them this year. So when you talk to the school, what does the school have to say? Are they allowing any accommodations for him? Keep us updated on everthing! This group is a great support and lots of different ideas and suggestions for things. I know it takes a load off my shoulders! - single mom to (12) w/OCD and dysgraphia; (12-twin) with separation anxiety; Randall (16) who has a negative attitude with me and his brothers! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 Dear I just wrote an email about and meds but I would like to speak about accommodations at school. has an IEP with a few accommodations that he can leave class with a pass if his OCD is out of control and he has a resource room class where he can do homework. I strongly feel that b/c 's disability is so odd to staff that they do not really believe how difficult it is for him to sit in a classroom. I have given the school system literature and a video on OCD and Schools, but I don't think staff viewed it. It boils down to the school systems special education system is under staffed and not supported by administrative staff. I have got them to allow to do his vocational training at a State run fish hatchery. This is new for the school and I feel a positive step. This all hinges on passing his classes this term and that is questionable. I wish we could home school him, but I know he would not be motivated to do the work. We keep encouraging to make it through school so he can meet his goal of being in the fishing industry. Thanks, --- @... wrote: > Hi , welcome! I have a 12 y/o son, , > who also does NOT > like to talk about his OCD or like ME to talk about > it. And, > depending on my mood/patience, I'll do either! LOL > > I, at times, feel like ignores it; sort of > just goes along > with his OCD behavior until he can finish it. And > then I feel like > he's not trying. On the other hand, when at times > here/there he has > really had prolonged episodes (like having to repeat > an action over & > over), I can actually see how tired he gets (tearful > sometimes), just > wanting to get through it and be able to stop. > (Luckily the long > ones are few and far between). > > In a way I can understand it when they feel that our > talking about it > makes it worse. I guess it causes anxiety/stress. > Sort of like > fussing at an alcoholic about drinking and that > making them (so it's > said) want a drink; or fussing at a smoker about > quitting and that > making them want a cigarette and so on.... At least > that's one > way " I " can look at it when I can see > " tensing up " at times > when " I'm " the one talking about his OCD behaviors. > > > So far as school - I guess there can be 2 sides to > that. I am the > worst " enabler " with (in 7th) as his OCD has > sort of shut > down his being able to write at home (long story) > and " I " write all > his schoolwork that he brings home. (Except for one > night recently > when he actually did some of it!) Anyway, there's > times I've thought > and even said to him that he'd fail his grade if I > wasn't helping him > along this way. So I got him on a 504 plan at > school with a few > modifications allowed. He doesn't use them all but > they're there if > we need them this year. > > So when you talk to the school, what does the school > have to say? > Are they allowing any accommodations for him? > > Keep us updated on everthing! This group is a great > support and lots > of different ideas and suggestions for things. I > know it takes a > load off my shoulders! > > > - single mom to (12) w/OCD and dysgraphia; > (12-twin) > with separation anxiety; Randall (16) who has a > negative attitude > with me and his brothers! - > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 Dear Phyllis, My heart goes out to your daughter. Kids can be so mean. My son, , had always been a social child. When he was young he had to always have friends around. He got in trouble in the eighth grade. He did something impulsively which changed our lives and made his OCD hit hard. A kid brought an unloaded gun to school and held on to it for a class. Needless to say he was expelled for a year and this started depression and stronger OCD. We have overcome all that, but now doesn't hang out with a lot of people. In fact, he just has a few friends and is nowhere as near as social as he use to be. The greatest thing right now for is he is dating a very nice girl that is from a different school system. I wish there were more educational alternatives for kids with emotional needs. My experience with public education has been terrible and I do not have a lot of thoughts on different accomodations. Have you ask your daughter what she thinks she needs to be successful at school. Is home schooling an option? We are home schooling my youngest son who is 11 and has a learning disability. It has been great for him but he is also a very motivated young man and works hard. We do this with me working full time and my husband to be working part-time. Good Luck, --- ppepe40 <ppepe40@...> wrote: > Hi & Marlys, > > My name is Phyllis, and my almost 16-yr old > daughter, Chelle > has TS, OCD, & ADHD. Her name gets added to the > list after > and as a child who also has been in > denial, > doesn't want me to advocate for her in school, > doesn't want > E & RP therapy, and doesn't like me to talk about OCD > because > she says that makes it worse. She says she doesn't > think > about it unless I mention it. Of course, I see the > behavior > that results from it that she doesn't see. > > Do your kids have many friends; or, as Chelle, only > one > friend? She is slowly warming up to a couple of > girls in > her school, but they live about 1/2 hour away from > us. > > Chelle takes meds, finally after many years, without > a > terrible struggle. The meds have helped > tremendously with > her symptoms, especially her TS tics. I'm not sure > what to > attribute it to, because she receives Dexedrine > prior to > coming home from school; but she is wiped out after > school > and sleeps sometimes until 7 or 8 o'clock. Needless > to say, > homework rarely gets done. She's very bright but > failing > school. > > We did have a major breakthrough last week. Chelle > went to > her first OCD support group for children and teens. > There > were 6 kids there including Chelle. This was the > first time > she met other kids who were diagnosed with OCD. > They were > just like other kids, except for a few noticable > quirks. > She got along well with them and said she wants to > go back > next week. I think she felt rather safe with them. > This > may give her some of the emotional security she > needs with > peers. > > I have found that school has been an extremely > difficult > place for her since 1st grade. Middle school was > the worst > you could imagine. She was teased and taunted > unmercifully. Things are not quite so bad now that > she's > in 10th grade, but she's still considered a " problem > child " > and her teachers are not as supportive as she needs. > > Are your kids in the public schools? What kinds of > accomodations do you have on their IEP's? Chelle's > currently in an alternative school that is not > working for > her. We're looking for an approved private school > for her > to attend, but I don't know if that is the answer > either. I > want her to be able to experience as much of a > normal teen > time as possible, but I'm so concerned about her > emotional > health in the public school system. I absolutely > cannot > stand how our kids are treated by their peers, > teachers, and > the system. > > We have another IEP meeting coming up in about three > weeks. > Any one have any words of wisdom for me? > > Progress, not perfection > Phyllis > ppepe40@... > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 : I posted last week about a seminar I attended on treatment of mentally ill children. The main speaker was Dr. Xavier Amador who spoke about getting kids into treatment. If you go into the archives, you should be able to find my post. If not, write me off-list and I will send you a copy. Dr. Amador has written a book you may be interested in called I'm Not Sick! I Don't Need Help! You may wish to read it. I was very impressed with what he had to say. Jule Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi Carolyn I'm glad you joined this great supportive group and to meet you here again. We are in the middle of getting a diagnosis for Fabio - I gave them all the Disability Solution Report on DS and Autism and told them they have to read and study it before meeting Fabio. http://www.disabilitysolutions.org/3-5.htm http://www.altonweb.com/cs/downsyndrome/autism.html http://www.altonweb.com/cs/downsyndrome/howlin.html Hugs from Switzerland to New Zealand with Tanja 12, Fabio 10 with DS/? and Elena 7 New Member Hello everyone, I am Carolyn from New Zealand. My DH Tony and I have 4 children and our youngest 2 girls both have Ds. Emma is 5 and Nicki is 4. My concern right now is with Emma. After and meeting with Emma's Developmental Pediatrician, I am concerned that Emma may have Austism as well as Ds. I have read as much as I can about what to look for and have joined this group to find out more. I find parents a much better source of info than most specialists since we live with it 24/7. Emma will be assessed for Autism in the near future and I am educating myself so I can contribute and assist with this Dx. On the checklist Emma does jiggle socks, string and even knickers. She did lose her speech at about age 3 and is still non verbal at 5 1/2 (she uses about 30 words spontaneously and repeats words after you say them). Her behaviour is sometimes erratic and disruptive and she is sensitive to laughter although this is improving since her tubes have gone in. Most of her behaviour I have put down to frustration in her lack of language but in the past month she has discovered the purpose of language is using her words more effectively. We have just started using PECS which has been great. She has certain routines that we have to follow but when does routine become ritual? My question is: How much of the above can one put down to Emma having Ds and when do you cross the line into the Dx of Autism? Thanks for reading and I am thrilled to find this list! Carolyn Mum to on, , Emma (Ds) and Nicki (Ds) www.geocities.com/nz_mom/sykesfamily.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Welcome Carolyn , Glad you have found this list , glad to have you on board . We are many that can relate and your Emma does sound alot like our kids . Glad you found out while she is young to proceed with the services needed , if possible . I've found many of our answers through the autism route than the Down sydrome . You are certainly correct PARENTS are the best resources . Luck with future Assessements for Autism and always prayers for answers . Irma, 13,DS/ASD. > Hello everyone, > > I am Carolyn from New Zealand. My DH Tony and I have 4 children and our youngest 2 girls both have Ds. Emma is 5 and Nicki is 4. > > My concern right now is with Emma. After and meeting with Emma's Developmental Pediatrician, I am concerned that Emma may have Austism as well as Ds. I have read as much as I can about what to look for and have joined this group to find out more. I find parents a much better source of info than most specialists since we live with it 24/7. > > Emma will be assessed for Autism in the near future and I am educating myself so I can contribute and assist with this Dx. > > On the checklist Emma does jiggle socks, string and even knickers. She did lose her speech at about age 3 and is still non verbal at 5 1/2 (she uses about 30 words spontaneously and repeats words after you say them). Her behaviour is sometimes erratic and disruptive and she is sensitive to laughter although this is improving since her tubes have gone in. Most of her behaviour I have put down to frustration in her lack of language but in the past month she has discovered the purpose of language is using her words more effectively. We have just started using PECS which has been great. She has certain routines that we have to follow but when does routine become ritual? > > My question is: How much of the above can one put down to Emma having Ds and when do you cross the line into the Dx of Autism? > > Thanks for reading and I am thrilled to find this list! > > Carolyn > Mum to on, , Emma (Ds) and Nicki (Ds) > www.geocities.com/nz_mom/sykesfamily.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Hi : Thanks for introducing yourself and . Please tell I have heard quite a few times about the poking in the eye obsession so he is definitely not alone. OUr son, Steve, only really got going on his E & RP after the third try (begun about 9 months after the first try began). In fact the standard research protocol of 16 weeks would definitely not have been able to get the improvement that has been achieved after much longer treatment. In fact E & RP is a way of life for him. From how 's compulsions are sticking it seems that he would benefit from some more E & RP followed up with a relapse prevention plan. Not wanting to deal with OCD, or avoidance is just part of the disorder. YOu can discuss this with his CBT therapist and work together on designing suitable interventions. When is fishing does OCD leave him alone? It is wonderful when they have something they like as it gives us an opportunity to reinforce their E & RP work by rewards related to their interests. Steve likes computer games so we could use more time on the computer or a new game as an incentive for hard E & RP. You can work out something similar for with fishing time and equipment. Good luck, aloha, kathy (h) kathyh@... > Hi, > > My name is , and I am the parent of a 16 year > old boy,, who has OCD. His OCD is a little > unusual in that his fear are of things poking him in > the eyes. He normally will cover up is face or wear > things around his face for protection. He also covers > and moves object in our home that disturb him. He > really has trouble with writing objects so school is > an on going struggle. He absolutely hates school and > it is a trigger for his OCD along with driving a car > and other stresses. He takes 70 mg. of Prozac, but he > feels like a Zombie. He found relief from > exposure/response therapy. He began feeling better > and then decided to go off meds. Bad ideal. He went > back on meds but is struggling. He is in denial. He > doesn't like me to speak of it b/c he thinks that > makes it worse. I try to advocate for him at school, > but he does a little as he can to get by. I find it > very difficult to know if I am enabling him or not > advocating enough for him at school. I know he is > suffering, but he makes everything so difficult with a > negative attitude. The only thing that keeps him in > school is goal to be in the fishing industry. He > absolutely loves to fish and is very good at it. Do > any of you have other children that do not want to > deal with their OCD and try to ignore it? > > Sincerely, > > Quote Link to comment Share on other sites More sharing options...
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