Insurance

[Guest guest]

You can visit the files section for some good articles...

Plagiocephaly/files/%20Experimental/

What kind of band will your son be wearing? If it is a DOC band, the

cranial tech website (www.cranialtech.com) has some great information that

says bands are not experimental. You can also get plenty of before and

after pictures to show that bands work. Good luck.

Gail, Sam and Sara's mom, DOC grads

Insurance

> My son is 7 month old and going for his casting tomorrow. We are

> very nervous because we have heard some horror stories. We have BCBS

> in Connecticut. They rejected our claim saying it was experimental.

> Does anyone know of any articles or information to help our appeal.

> Thanks

>

[Guest guest]

It is the DOC band. How was the casting experience? Thanks for the response

-----Original Message-----From: Gail [mailto:momofivftwins@...]Sent: Monday, July 15, 2002 9:38 AMPlagiocephaly Subject: Re: InsuranceYou can visit the files section for some good articles...Plagiocephaly/files/%20Experimental/What kind of band will your son be wearing? If it is a DOC band, thecranial tech website (www.cranialtech.com) has some great information thatsays bands are not experimental. You can also get plenty of before andafter pictures to show that bands work. Good luck.Gail, Sam and Sara's mom, DOC grads Insurance> My son is 7 month old and going for his casting tomorrow. We are> very nervous because we have heard some horror stories. We have BCBS> in Connecticut. They rejected our claim saying it was experimental.> Does anyone know of any articles or information to help our appeal.> Thanks>For more plagio info

[Guest guest]

Just wondering if you are going to Dr Persing's office at Yale University in

New Haven. That is where we went with my son.

The casting experience was tough for my son. He cried through the whole

process. They put a stocking over their face, with a hole for the nose

and mouth, and casted over that. After, we bathed him. They have the

facilities there for that. It would help to bring a favorite toy, pacifier,

blanket...to comfort your baby.

Good luck.

ann/

NJ

DOCband 2 weeks 5 days

> Message: 11

> Date: Mon, 15 Jul 2002 09:42:04 -0400

> From: " Zaffaro, J. " <ajz@...>

> Subject: RE: Insurance

>

> It is the DOC band. How was the casting experience? Thanks for the

> response

>

[Guest guest]

Hello and welcome to the group. Sorry to hear about the trouble with the

insurance, however, it is unfortunately an all too common thing. Since it is a

DOCband you should be able to get materials from the CT clinic when you go for

the casting. Ask them specifically for material that shows that the band is not

experimental. Definitely check out our files section and also check out

www.plagiocephaly.org/support for some more insurance help information. You

might also want to check out our Bookmarks section.

You have the right to appeal and usually the appeals process is a several level

process. So even if you lose the first appeal you usually have two or three more

tries. Definitely keep after it - so many people here have appealed and won (I'm

one of them!). Keep good records, document ALL phone calls and keep copies of

everything.

The casting process is usually a little stressful, but it is very quick and is

over before you know it. The most important thing to remember is that even

though your baby might get mad or upset, he is not being harmed or hurt in any

way. Try to take someone with you and take some comfort items (bottle, pacifier,

blanket, stuffed toy) and also take some toys that make noise or music to

distract him. After the casting is over he will get to take a bath so you might

want to take your own shampoo and towels.

Best of luck and please let us know how the casting goes!!

Marci (Mom to )

Oklahoma

[Guest guest]

Hi there! Are you from Connecticut? Are you going to Cranial Technologies

in Clinton? If so, Lynne Ball is great. Our casting with Timmy was at 9

months and went much better than we had expected. We'll actually be there

tomorrow morning for an adjustment.

Sorry, can't help with the insurance. I actually have Anthem BCBS of CT,

but I'm not covered right now because I'm on child-rearing leave from work.

So, we're covered under my husband's (Oxford) and they paid 75% without any

problems. Good luck to you!!

~~

Insurance

My son is 7 month old and going for his casting tomorrow. We are

very nervous because we have heard some horror stories. We have BCBS

in Connecticut. They rejected our claim saying it was experimental.

Does anyone know of any articles or information to help our appeal.

Thanks

For more plagio info

[Guest guest]

We did see him and thought my son should get the DOC band. We are

going to CT for the casting. Thanks for your response.

> Just wondering if you are going to Dr Persing's office at Yale

University in

> New Haven. That is where we went with my son.

>

> The casting experience was tough for my son. He cried through the

whole

> process. They put a stocking over their face, with a hole for the

nose

> and mouth, and casted over that. After, we bathed him. They have

the

> facilities there for that. It would help to bring a favorite toy,

pacifier,

> blanket...to comfort your baby.

>

> Good luck.

> ann/

> NJ

> DOCband 2 weeks 5 days

>

>

> > Message: 11

> > Date: Mon, 15 Jul 2002 09:42:04 -0400

> > From: " Zaffaro, J. " <ajz@c...>

> > Subject: RE: Insurance

> >

> > It is the DOC band. How was the casting experience? Thanks for

the

> > response

> >

[Guest guest]

We are going tomorrow afternoon. Thanks for the reassurance.

-- In Plagiocephaly@y..., " Jagos " <ejagos@a...> wrote:

> Hi there! Are you from Connecticut? Are you going to Cranial

Technologies

> in Clinton? If so, Lynne Ball is great. Our casting with Timmy

was at 9

> months and went much better than we had expected. We'll actually

be there

> tomorrow morning for an adjustment.

>

> Sorry, can't help with the insurance. I actually have Anthem BCBS

of CT,

> but I'm not covered right now because I'm on child-rearing leave

from work.

> So, we're covered under my husband's (Oxford) and they paid 75%

without any

> problems. Good luck to you!!

>

> ~~

>

>

> Insurance

>

>

> My son is 7 month old and going for his casting tomorrow. We are

> very nervous because we have heard some horror stories. We have

BCBS

> in Connecticut. They rejected our claim saying it was experimental.

> Does anyone know of any articles or information to help our appeal.

> Thanks

>

>

>

> For more plagio info

[Guest guest]

Dear Sandie,

Thank you sooooooooo much for all your information. This is a great support

group and I truly appreciate your sharing, because it's good to know that Ed

will be insured and you never know how many people you have extended a hand to.

You could have kept it to yourself. I will pass this on to my son, who only has

major medical. He is paying for all of his medical bills out of his pocket and

although he thought he was invincible, a few weeks ago, he found out he wasn't.

The C of C, who woulda thunk it? My DIL is an accountant and my nephew is an

attorney, so I will tell him he will need them to do the leg work, too. He

already has the corporations for his businesses, so he can probably run it

through one of them; however, there is the possibility with our state laws that

he will have to offer it to all his employees. It's a start if he wants to

follow through.

As for Jimmy, this wasn't a good day for him either because he said he

hasn't been sleeping and is exhausted. The food is tasteless because it isn't

seasoned. Normally we have good hospital food here. They had me on a

restricted diet when I had a stroke and heart attack and I told them if they

brought me another tasteless meal, I would refuse to eat it. He needed someone

to stay with him because he's been having panic attacks, so I hired a sitte and

she came immediately, so that was luck. I don't think I could last the night in

that chair and the temperature. I used a pillow to shield my chest from the

cold and I was wearing a wood blazer besides. If anyone can tell me how to

fight the cold, I would pay a king's ransom. Maybe I am missing a vitamin or

mineral. I know it's my hemoglobin, but there must be something that can spike

it. I was never this cold on any other trial.

What an advocate you are to Ed and anyone who experiences the same problem.

You not only have nursing skills, but business acumen, a good combination.

Jimmy was taken down the hall for a walk, held up by two CNA's, which is not

much, but I guess it's a start. They come by several times a day and also give

him inhalation therapy and blowing into that plastic contraption that looks like

it could be a hampster playground. LOL I tried to help him up, but he teeter

totted all over the place and I lay him back down. I can't hold him up.

I hope Ed is doing well on Gleevec, does he have another BMA scheduled soon?

I hope he has few side effects. There's lots of hope out there, Sandie, and new

trials in California. The cancer centers along the coasts seem to have all the

trials. MDACC has a clinic in a hospital in New Orleans, so I may look into

that to see what kinds of specialists they will be having. Beats driving to

Houston and 3 tanks of gas. Keep us posted as to Ed's progress, as well.

Thanks a bunch xoxoxox

Lottie