Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Thanks for clarifying this, . That was my question. Why the 2-10 inhibit? Do you mind sharing? Jane Date: Wed, 8 Feb 2006 16:12:16 -0500 From: " Duncan" <karenduncan@...>Subject: Re: CZ reference~I think the confusion was at the 2-10 inhibit rather than 8-12 inhibit and reward that Elsa Baehr used.~ Re: Digest Number 1378Hi ,I use this placement for Pete's balance protocol. I place one active electrode at f3 and one active electrode at f4. I place the ground on an ear. I place one reference electrode at cz, hook that into a jumper, and hook the jumper into the two reference plugs on the machine.I'm curious about why you're using a an f3/cz and f4/cz setup rather than f3/a1 and f4/a2. Can you share what was on the assessment?thanks,Jane Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 I get cramps a lot. Some things I do... heat pad helps, so does movement and massage. Stretching hurts, but losens things up. I have found that calcium tablets seem to help, so does drinking lots of water. I get more cramps if I drink less. Also an asprin might help...cramps are usually caused because of lack of oxygen...therefor the heat increses circulation and get Oxygen to muscles. MJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Dear Tracey, As I was coming off the ATRA trial after 4 years, there was not even a blip on the radar screen, so I requested a mutations trial. I never heard Bobby mention she had a mutation before, either. She had failed everything. My problem was being resistant. I never failed anything, they just didn't work for me. I guess I would have to say I failed to some degree the Sprycel because of the pecardial and pleural effusions along with pneumonia, and could not tolerate the higher doses. 20 mg. a day isn't even considered a maintaince dose. For her, Sprycel worked for a while and then she started with the pleural effusions. I was in a trial with HHT, but at the time I don't think they even knew it was good for the T315i mutation, I think they stumbled upon it. Anyway, they changed the name from Homoherringtonine to Celeftonin or something similiar and another name after that. Blessings, Lottie [ ] Digest Number 1379 There are 25 messages in this issue. Topics in this digest: 1a. Just some thoughts... From: 1b. Re: Just some thoughts... From: Barb Stanley 1c. Re: Just some thoughts... From: rdfalc 2. Lottie: Latest update From: Sue 3a. Re: 9 new messages in 7 topics - digest From: vickistu 4a. Update From: Lottie Duthu 4b. Update From: mtmaynor@... 4c. Re: Update From: Sionito@... 4d. Re: Update From: china neal 5a. Mutations From: Lottie Duthu 5b. Re: Mutations From: Tracey 6. Drugs used for mutations From: Lottie Duthu 7a. Todays joke: Gone AWOL From: anita 8a. Fwd: FW: Scotch & Water From: ROBERTA DOYLE 8b. Re: Fwd: FW: Scotch & Water From: ROBERTA DOYLE 9a. Lumps From: Jo-Dee McKibben 9b. Re: Lumps From: Carol Hanson 10. Appetite Suppressants? From: fischer 11. I'm A " KEPT " Woman From: anita 12a. Insuion # 2 From: ROBERTA DOYLE 12b. Re: Insuion # 2 From: Sionito@... 12c. Re: Insuion # 2 From: china neal 13a. Hi Lottie From: Carol Hanson 14. Funny things children say From: Lottie Duthu 15a. Re: Good News!!! From: china neal Messages ________________________________________________________________________ 1a. Just some thoughts... Posted by: " " icynena@... icynena Date: Thu May 8, 2008 4:41 pm ((PDT)) Dear Friends, I was finally able to put into words some of my thoughts about CML. I posted this on my blog at Planet Cancer and I just thought I would share it with you, my dear CML family. Love, CML SECRET AGENT: I feel like a CML secret agent as I navigate throughout my life keeping my CML from everyone who is not a family member or a close friend. You might ask why I have chosen this cloak and dagger business and the answer is multifaceted. First of all, there is nothing like the look that people give you when you tell them that you have Leukemia. It is a horrified look as if your life force is dwindling right before their eyes. It is a look of pity as they thank God that it's not them who are afflicted with this disease. Lastly, it is a fumbling of words as they realize that they are wearing their horrified feelings like a Halloween mask on their face. I have grown tired of explaining to people that I have a chronic disorder that can be treated if properly monitored. I have grown tired of comforting people and reassuring them that I am not dying. (At least not this very moment that I am speaking to them and hopefully, not even from CML.) This is why I have become a CML secret agent. As far as I am concerned, people are on a " need to know " basis about my health status. After all, would they voluntarily divulge it to me if they had Herpes? I am not being facetious but rather, making a point about how I have the right to do whatever I want with my Leukemia and my right to privacy. At the end of the day, it belongs to me so I will do with it as I please. If I want to, I will wear it on my sleeve like a girl scout badge to tell the world how brave I can be. Maybe I will just put it in my pocket and think about it only when I reach in there to find change for the meter. Perhaps I will wrap it around myself and embrace that which is beyond my control. The point is that this decision will be all mine. At the end of the day, I am here to live and not to make others feel better about my prognosis when I already spend too much time trying to convince myself every single day. Messages in this topic (3) ________________________________________________________________________ 1b. Re: Just some thoughts... Posted by: " Barb Stanley " barbarastanley@... barbstanley2003 Date: Thu May 8, 2008 5:36 pm ((PDT)) Beautifully said. I know the feeling when people find out you have leukemia. They don't quite know what to say. And then, later they see you and comment " But you LOOK so good! " . Sometimes I wonder what they think I should look like.... At any rate, do your best to roll it off your sleeve and know that we, your fellow warriors, are in sympathy with you and totally understand. You know, maybe people just don't know what to say? Do you suppose? Be well my young friend, Barb > > Dear Friends, > I was finally able to put into words some of my thoughts about > CML. I posted this on my blog at Planet Cancer and I just thought I > would share it with you, my dear CML family. > > Love, > > > > CML SECRET AGENT: > > I feel like a CML secret agent as I navigate throughout my life > keeping my CML from everyone who is not a family member or a close > friend. You might ask why I have chosen this cloak and dagger > business and the answer is multifaceted. First of all, there is > nothing like the look that people give you when you tell them that > you have Leukemia. It is a horrified look as if your life force is > dwindling right before their eyes. It is a look of pity as they thank > God that it's not them who are afflicted with this disease. Lastly, > it is a fumbling of words as they realize that they are wearing their > horrified feelings like a Halloween mask on their face. I have grown > tired of explaining to people that I have a chronic disorder that can > be treated if properly monitored. I have grown tired of comforting > people and reassuring them that I am not dying. (At least not this > very moment that I am speaking to them and hopefully, not even from > CML.) This is why I have become a CML secret agent. As far as I am > concerned, people are on a " need to know " basis about my health > status. After all, would they voluntarily divulge it to me if they > had Herpes? I am not being facetious but rather, making a point about > how I have the right to do whatever I want with my Leukemia and my > right to privacy. At the end of the day, it belongs to me so I will > do with it as I please. If I want to, I will wear it on my sleeve > like a girl scout badge to tell the world how brave I can be. Maybe I > will just put it in my pocket and think about it only when I reach in > there to find change for the meter. Perhaps I will wrap it around > myself and embrace that which is beyond my control. The point is that > this decision will be all mine. At the end of the day, I am here to > live and not to make others feel better about my prognosis when I > already spend too much time trying to convince myself every single > day. > Quote Link to comment Share on other sites More sharing options...
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