Re: TASAGNA AND PANCREAS-constipation (TRACEY)

May 23, 2008

Hi, Tracey. Is it doing anything for the brain fog? Warm regards.

> > >

> > > Jean:

> > >

> > > I have found that Tasigna is much easier on the intestines

> > > thank Gleevec. In fact, Gleevec gave me daily diarrhea and

> > > Tasigna gives me the opposite. I do take stool softeners.

> > > (fun stuff to write about huh?). I had an initial increase in

> > > pancreatic enzymes, but they subsided after 30 days on

> > > the drug.

> > >

> > > I get flush for a few hours right after taking each dose (I

take

> > > 400 mg, two times a day, 8 hours apart) and I have some

> > > fatigue. In fact, the bone pain, muscle cramping and queasy

> > > stomach all disappeared when I began Tasigna.

> > >

> > > I would recommend stool softeners, Gatorade (to balance

> > > electrolytes) and staring on a lower dose and building to

> > > a higher one. They are looking at the efficacy of Tasigna

> > > on a lower maintenance dose for those who reach PCRU.

> > >

> > > Good luck.

> > >

> > > Matt

> > >

> > > In a message dated 5/22/2008 4:38:57 P.M. Eastern Daylight

Time,

> > > jmcallister35@ jmcallister35@

> > >

> > > hi sharon, i am new to the group altho not to CML (9 yrs in

> 8/08).

> > > never thought i'd live to say that as my 1st dr told me one

> > ususlly

> > > lives only about 4yrs.your post interested me as my dr wants

to

> put

> > > me on tasagna because gleevec is lowing my platelets and

making

> me

> > > anemic plus other annoying side effects.i told her i have had

> > these

> > > problems for almost the whole time i have had CML (9years),

but

> i

> > > think she is being the typical dr, covering all bases, and

> > informing

> > > the patient. which i understand. i am going to get the results

> of

> > my

> > > latest blood work in about a week, and then we will

decide.after

> i

> > > read you post and saw the reference to the pancreas,now i

think

> i

> > > have another concern lol. i told the dr i wasn't to keen on

> > starting

> > > another high-powered medicine and having another set of side

> > effects

> > > as i have queasy intestines, both large and small.any tips

will

> be

> > > appreciated. thanks jean

> > >

> > > ************ ************<WBR>**Get trade secrets for amazing

> burger

> > with

> > > Tyler Florence " on AOL Food.

> > > (_http://food.http://food.<Whttp://fohttp:// & ?_

> > (http://food.aol.com/tyler-florence?video=4 & ?)

> > NCID=aolfod00030000NCID=ao

> > >

> > > [Non-text portions of this message have been removed]

> > >

> >

> > **************Get trade secrets for amazing burgers.

Watch " Cooking

> with

> > Tyler Florence " on AOL Food.

> > (http://food.aol.com/tyler-florence?video=4 & ?

> NCID=aolfod00030000000002)

> >

May 23, 2008

Hi ,

Yes I do think that it's helped with the brain fog. I just wish I

could tolerate it better and take more of it without having to add

Imodium to the mix.

Take care,

Tracey

> > > >

> > > > Jean:

> > > >

> > > > I have found that Tasigna is much easier on the intestines

> > > > thank Gleevec. In fact, Gleevec gave me daily diarrhea and

> > > > Tasigna gives me the opposite. I do take stool softeners.

> > > > (fun stuff to write about huh?). I had an initial increase in

> > > > pancreatic enzymes, but they subsided after 30 days on

> > > > the drug.

> > > >

> > > > I get flush for a few hours right after taking each dose (I

> take

> > > > 400 mg, two times a day, 8 hours apart) and I have some

> > > > fatigue. In fact, the bone pain, muscle cramping and queasy

> > > > stomach all disappeared when I began Tasigna.

> > > >

> > > > I would recommend stool softeners, Gatorade (to balance

> > > > electrolytes) and staring on a lower dose and building to

> > > > a higher one. They are looking at the efficacy of Tasigna

> > > > on a lower maintenance dose for those who reach PCRU.

> > > >

> > > > Good luck.

> > > >

> > > > Matt

> > > >

> > > > In a message dated 5/22/2008 4:38:57 P.M. Eastern Daylight

> Time,

> > > > jmcallister35@ jmcallister35@

> > > >

> > > > hi sharon, i am new to the group altho not to CML (9 yrs in

> > 8/08).

> > > > never thought i'd live to say that as my 1st dr told me one

> > > ususlly

> > > > lives only about 4yrs.your post interested me as my dr wants

> to

> > put

> > > > me on tasagna because gleevec is lowing my platelets and

> making

> > me

> > > > anemic plus other annoying side effects.i told her i have

had

> > > these

> > > > problems for almost the whole time i have had CML (9years),

> but

> > i

> > > > think she is being the typical dr, covering all bases, and

> > > informing

> > > > the patient. which i understand. i am going to get the

results

> > of

> > > my

> > > > latest blood work in about a week, and then we will

> decide.after

> > i

> > > > read you post and saw the reference to the pancreas,now i

> think

> > i

> > > > have another concern lol. i told the dr i wasn't to keen on

> > > starting

> > > > another high-powered medicine and having another set of side

> > > effects

> > > > as i have queasy intestines, both large and small.any tips

> will

> > be

> > > > appreciated. thanks jean

> > > >

> > > > ************ ************<WBR>**Get trade secrets for

amazing

> > burger

> > > with

> > > > Tyler Florence " on AOL Food.

> > > > (_http://food.http://food.<Whttp://fohttp:// & ?_

> > > (http://food.aol.com/tyler-florence?video=4 & ?)

> > > NCID=aolfod00030000NCID=ao

> > > >

> > > > [Non-text portions of this message have been removed]

> > > >

> > >

> > > **************Get trade secrets for amazing burgers.

> Watch " Cooking

> > with

> > > Tyler Florence " on AOL Food.

> > > (http://food.aol.com/tyler-florence?video=4 & ?

> > NCID=aolfod00030000000002)

> > >

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