Re: TASAGNA AND PANCREAS-constipation

[Guest guest]

Hi Matt,

Have you tried taking magnesium for the constipation? I keep trying

to take it to help with the cognitive fog and muscle cramps but it

(along with the Gleevec), keeps me running to the bathroom. In your

case, and for others on Tasigna, this might be a good thing.

Tracey

>

>

> Jean:

>

> I have found that Tasigna is much easier on the intestines

> thank Gleevec. In fact, Gleevec gave me daily diarrhea and

> Tasigna gives me the opposite. I do take stool softeners.

> (fun stuff to write about huh?). I had an initial increase in

> pancreatic enzymes, but they subsided after 30 days on

> the drug.

>

> I get flush for a few hours right after taking each dose (I take

> 400 mg, two times a day, 8 hours apart) and I have some

> fatigue. In fact, the bone pain, muscle cramping and queasy

> stomach all disappeared when I began Tasigna.

>

> I would recommend stool softeners, Gatorade (to balance

> electrolytes) and staring on a lower dose and building to

> a higher one. They are looking at the efficacy of Tasigna

> on a lower maintenance dose for those who reach PCRU.

>

> Good luck.

>

> Matt

>

>

> In a message dated 5/22/2008 4:38:57 P.M. Eastern Daylight Time,

> jmcallister35@... writes:

>

>

>

>

> hi sharon, i am new to the group altho not to CML (9 yrs in 8/08).

> never thought i'd live to say that as my 1st dr told me one

ususlly

> lives only about 4yrs.your post interested me as my dr wants to put

> me on tasagna because gleevec is lowing my platelets and making me

> anemic plus other annoying side effects.i told her i have had

these

> problems for almost the whole time i have had CML (9years), but i

> think she is being the typical dr, covering all bases, and

informing

> the patient. which i understand. i am going to get the results of

my

> latest blood work in about a week, and then we will decide.after i

> read you post and saw the reference to the pancreas,now i think i

> have another concern lol. i told the dr i wasn't to keen on

starting

> another high-powered medicine and having another set of side

effects

> as i have queasy intestines, both large and small.any tips will be

> appreciated. thanks jean

>

>

>

>

>

>

>

>

>

>

> **************Get trade secrets for amazing burgers. Watch " Cooking

with

> Tyler Florence " on AOL Food.

> (http://food.aol.com/tyler-florence?video=4 & ?

NCID=aolfod00030000000002)

>

>

>

[Guest guest]

Tracey:

Great idea, what sort of dosage?

With warmest regards,

With warm regards,

Matt

ville, FL

DX January 2005

Gleevec March 2005

Tasigna November 2008

In a message dated 5/22/2008 9:17:08 P.M. Eastern Daylight Time,

traceyincanada@... writes:

Hi Matt,

Have you tried taking magnesium for the constipation? I keep trying

to take it to help with the cognitive fog and muscle cramps but it

(along with the Gleevec), keeps me running to the bathroom. In your

case, and for others on Tasigna, this might be a good thing.

Tracey

--- In _@..._ (mailto: ) , mtmaynor@...

wrote:

>

>

> Jean:

>

> I have found that Tasigna is much easier on the intestines

> thank Gleevec. In fact, Gleevec gave me daily diarrhea and

> Tasigna gives me the opposite. I do take stool softeners.

> (fun stuff to write about huh?). I had an initial increase in

> pancreatic enzymes, but they subsided after 30 days on

> the drug.

>

> I get flush for a few hours right after taking each dose (I take

> 400 mg, two times a day, 8 hours apart) and I have some

> fatigue. In fact, the bone pain, muscle cramping and queasy

> stomach all disappeared when I began Tasigna.

>

> I would recommend stool softeners, Gatorade (to balance

> electrolytes) and staring on a lower dose and building to

> a higher one. They are looking at the efficacy of Tasigna

> on a lower maintenance dose for those who reach PCRU.

>

> Good luck.

>

> Matt

>

>

> In a message dated 5/22/2008 4:38:57 P.M. Eastern Daylight Time,

> jmcallister35@ jmcallister35@

>

>

>

>

> hi sharon, i am new to the group altho not to CML (9 yrs in 8/08).

> never thought i'd live to say that as my 1st dr told me one

ususlly

> lives only about 4yrs.your post interested me as my dr wants to put

> me on tasagna because gleevec is lowing my platelets and making me

> anemic plus other annoying side effects.i told her i have had

these

> problems for almost the whole time i have had CML (9years), but i

> think she is being the typical dr, covering all bases, and

informing

> the patient. which i understand. i am going to get the results of

my

> latest blood work in about a week, and then we will decide.after i

> read you post and saw the reference to the pancreas,now i think i

> have another concern lol. i told the dr i wasn't to keen on

starting

> another high-powered medicine and having another set of side

effects

> as i have queasy intestines, both large and small.any tips will be

> appreciated. thanks jean

>

>

>

>

>

>

>

>

>

>

> ************ ************<WBR>**Get trade secrets for amazing burger

with

> Tyler Florence " on AOL Food.

> (_http://food.http://food.<Whttp://fohttp:// & ?_

(http://food.aol.com/tyler-florence?video=4 & ?)

NCID=aolfod00030000NCID=ao

>

>

> [Non-text portions of this message have been removed]

>

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Hi Matt,

I took 250mg twice a day and never left the bathroom so then I tried

250mg once a day and was able to leave briefly, but still didn't

appreciate the effect so now I take 250mg once a week and I'm ok with

that.

Take care,

Tracey

> >

> >

> > Jean:

> >

> > I have found that Tasigna is much easier on the intestines

> > thank Gleevec. In fact, Gleevec gave me daily diarrhea and

> > Tasigna gives me the opposite. I do take stool softeners.

> > (fun stuff to write about huh?). I had an initial increase in

> > pancreatic enzymes, but they subsided after 30 days on

> > the drug.

> >

> > I get flush for a few hours right after taking each dose (I take

> > 400 mg, two times a day, 8 hours apart) and I have some

> > fatigue. In fact, the bone pain, muscle cramping and queasy

> > stomach all disappeared when I began Tasigna.

> >

> > I would recommend stool softeners, Gatorade (to balance

> > electrolytes) and staring on a lower dose and building to

> > a higher one. They are looking at the efficacy of Tasigna

> > on a lower maintenance dose for those who reach PCRU.

> >

> > Good luck.

> >

> > Matt

> >

> >

> > In a message dated 5/22/2008 4:38:57 P.M. Eastern Daylight Time,

> > jmcallister35@ jmcallister35@

> >

> >

> >

> >

> > hi sharon, i am new to the group altho not to CML (9 yrs in

8/08).

> > never thought i'd live to say that as my 1st dr told me one

> ususlly

> > lives only about 4yrs.your post interested me as my dr wants to

put

> > me on tasagna because gleevec is lowing my platelets and making

me

> > anemic plus other annoying side effects.i told her i have had

> these

> > problems for almost the whole time i have had CML (9years), but

i

> > think she is being the typical dr, covering all bases, and

> informing

> > the patient. which i understand. i am going to get the results

of

> my

> > latest blood work in about a week, and then we will decide.after

i

> > read you post and saw the reference to the pancreas,now i think

i

> > have another concern lol. i told the dr i wasn't to keen on

> starting

> > another high-powered medicine and having another set of side

> effects

> > as i have queasy intestines, both large and small.any tips will

be

> > appreciated. thanks jean

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ************ ************<WBR>**Get trade secrets for amazing

burger

> with

> > Tyler Florence " on AOL Food.

> > (_http://food.http://food.<Whttp://fohttp:// & ?_

> (http://food.aol.com/tyler-florence?video=4 & ?)

> NCID=aolfod00030000NCID=ao

> >

> >

> > [Non-text portions of this message have been removed]

> >

>

>

>

>

>

>

>

>

>

>

>

> **************Get trade secrets for amazing burgers. Watch " Cooking

with

> Tyler Florence " on AOL Food.

> (http://food.aol.com/tyler-florence?video=4 & ?

NCID=aolfod00030000000002)

>

>

>