Re: Re: Request for Clarification

[Guest guest]

Thanks for the information. That's encouraging. This has been some year since

my diagnosis. It's like I've been living underwater. I didn't know how much to

be concerned. My onc said she wasn't concerned, but still...

I will ask her those questions. Thanks for the tip.

Morty

Tracey <traceyincanada@...> wrote:

Hi Morty,

Welcome to the group.

It's not at all unusual to bounce around from undetectable to

detectable. By most lab's standards, a result of 0.04 would be

considered a 3 log reduction so this is a very good result.

I would ask your doctor though, if both PCR's were done at the same

lab and what was the sensitivity of the tests. Regardless of the

answers though, I don't think you have anything to worry about. You

may well find that you continue to bounce in and out of PCRU.

Take care,

Tracey

dx Jan 2002

a fellow PCR bouncer

>

> I was diagnosed with CML last year in April. A PCR done in January

> came back negative, and another done in early March was O.04, my

Onc

> tells me. She says she isn't worried about the " step back " at this

> time. Does this have any long-term meaning? Should I be worred

that I

> went from negative to showing a low level?

>

> Thanks,

>

> Morty

>

[Guest guest]

Oops. Didn't realize using this email account would result in the publication

of my real name. If it's all the same, I think I'll just go with my real name

rather than the account name.

Again, thanks, for the response.

Ted

Ted Fontenot <mortycausa@...> wrote:

Thanks for the information. That's encouraging. This has been some

year since my diagnosis. It's like I've been living underwater. I didn't know

how much to be concerned. My onc said she wasn't concerned, but still...

I will ask her those questions. Thanks for the tip.

Morty

Tracey <traceyincanada@...> wrote:

Hi Morty,

Welcome to the group.

It's not at all unusual to bounce around from undetectable to

detectable. By most lab's standards, a result of 0.04 would be

considered a 3 log reduction so this is a very good result.

I would ask your doctor though, if both PCR's were done at the same

lab and what was the sensitivity of the tests. Regardless of the

answers though, I don't think you have anything to worry about. You

may well find that you continue to bounce in and out of PCRU.

Take care,

Tracey

dx Jan 2002

a fellow PCR bouncer

>

> I was diagnosed with CML last year in April. A PCR done in January

> came back negative, and another done in early March was O.04, my

Onc

> tells me. She says she isn't worried about the " step back " at this

> time. Does this have any long-term meaning? Should I be worred

that I

> went from negative to showing a low level?

>

> Thanks,

>

> Morty

>

[Guest guest]

Thanks for the reply. I guess I knew it, and that's what my doctor says, but

it's nice, and a relief, when it comes from the pros.

Yes, I am scheduled for another PCR. Will let you all know of the results.

Ted

doveh12 <deh12@...> wrote:

Hi, Morty.

I've had similar results -- a negative, followed by a slight positive,

followed by another negative, etc. Results can fluctuate like that

without causing concern. My doctor has advised me not to worry -- and

not to think about alternative therapies unless we see a clear trend

showing increases over several PCRs. You've had a great response --

PCRU in 9 months after diagnosis! If I were you, I wouldn't worry.

Did your doc schedule another follow-up PCR?

Warm wishes,

>

> I was diagnosed with CML last year in April. A PCR done in January

> came back negative, and another done in early March was O.04, my Onc

> tells me. She says she isn't worried about the " step back " at this

> time. Does this have any long-term meaning? Should I be worred that

I

> went from negative to showing a low level?

>

> Thanks,

>

> Morty

>