Re: Ladies can you help me with this??? Tracey maybe?

[Guest guest]

Anxious to hear what he had to say.

Glood luck

Sharon

_____

From: [mailto: ] On Behalf Of

vegasrnjen@...

Sent: Wednesday, April 09, 2008 1:27 PM

Subject: [ ] Ladies can you help me with this??? Tracey maybe?

Hey all-

I wanted to see if anyone had any ideas/suggestions about this. Its a female

issue so you " guys " could get really bored or yucked with this...

Let me first start by saying that I had a complete hysterectomy back in 2001

(7 years ago) at the age of 29 due to severe complications of endometriosis.

I then went into a state of menopause as the docs only kept me on Premerin

for 6 months as all the controversy came out with HRT treatments, so

everything was stopped. Well as I have reported before, I have every symptom

and

probably more that they haven't documented yet, of menopause. Including now

physical changes of vaginal atrophy. I am only 36 and I feel like I am going

shrivel up into an old lady by 40.

So, after not having anything done and docs not letting me do anything as

far as taking estrogen to reverse some of these symptoms, I decided to see a

new

doc in my area on Friday. He was wonderful and he was greatly concerned at

the extent of the symptoms. He went as far as to goggle Spyrcel and

estrogen replacement as he had a RN in his office working on it too. He

decided

that there was nothing stating that CML was an estrogen cancer and that he

thought for quality of Life and atrophic reason, I needed to start

something. He

gave 3 RX's and told me to read about it and pick which way I wanted to

treat

with estrogen. He wants it locally treated and not systemic estrogen. So,

I can do a patch, pills to be inserted or a ring that stays put for 3 months

at a time. Women, ya get the area I am talking about......

He also ordered a mammogram and a dexa scan/ Mamo is negative but dexa scan

shows osteoporosis and osteopenia in the hips and spine. Remember I am only

36......Ugh...

He also wanted to start a higher dose calcium and decided that he should

probably check my Vitamin D level and this had never been done.. Well, I get

a

call from him this morning and then his RN trying to get a hold of me. I

called them back and he wants to see me this afternoon as the level was

critically low and he wants to have a consult with me. Reading the side

effects of

low Vit D (muscle pain, fatigue, cancer and immunity risks) I wonder how

much

of what I put towards my CML and drug that maybe should be a blame to low

Vit

D count?

Any thoughts on all this?

Do you think the estrogen, calcium and I am sure some sort of Vit D

corrective med, is all safe to use with CML and Spyrcel???

I have to head to see him in an hour so I will report what he says........

Thanks in advance for the help.

Hugs and Hope-

36

CML 5/13/05

Gleevec 800mg until 8/07

Spyrcel 100 mg since 9/07

Wife and mother of 3 (12,9,7)

# 907 in Zavie's Zero Club

**************Planning your summer road trip? Check out AOL Travel Guides.

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[Guest guest]

hi , I'm constanly low on vitamine D my gp doc put me on

perscription D 50,000iu once a week for a month then one pill twice a

month almost 2 years ago,every time he tried to cut it my D went back

down to 12. Normal is 32 to 100. My naturopath dr said for cancer

patients it should be around th 50 range so he changed me to over the

counter d3 1000mg twice a day and fish oil with d and that seems to

be working better I don't know how long i was vitamin D deficient

before i was dx 1 to 1 1/2 years ago,but i had cml probably 8 months

befor i got dx looking back at all my labs. I have several friends in

their forty's a sister and mother and they are all vitamin D

deficient. I am 58 so i'm assuming it is hormonal.I had so much pain

everywere in my body i don't know if it was the cml or the low

vitamine D. I make sure i get the vitamine D 25 hydroxy test every 3

months but i feel much better now.As for your other situation the

gynecologist gave me a cream called estrace, you insert it twice a

week,and it helped He also said it was safe because very little of it

gets in your system. I also tried the pill you insert which was the

easiest. He also told me about the ring but he said you have to be

careful of infections with that. It's a pain having those problems

at your age when it should be the best time of your life, hope you

can get some help soon.Let us know what works

love and hugs to all

Esther

dx 10/06

Zavie #1092

>

> Anxious to hear what he had to say.

>

> Glood luck

>

> Sharon

>

>

>

> _____

>

> From: [mailto: ] On Behalf

Of

> vegasrnjen@...

> Sent: Wednesday, April 09, 2008 1:27 PM

>

> Subject: [ ] Ladies can you help me with this??? Tracey maybe?

>

>

>

> Hey all-

>

> I wanted to see if anyone had any ideas/suggestions about this. Its

a female

>

> issue so you " guys " could get really bored or yucked with this...

>

> Let me first start by saying that I had a complete hysterectomy

back in 2001

>

> (7 years ago) at the age of 29 due to severe complications of

endometriosis.

>

> I then went into a state of menopause as the docs only kept me on

Premerin

> for 6 months as all the controversy came out with HRT treatments,

so

> everything was stopped. Well as I have reported before, I have

every symptom

> and

> probably more that they haven't documented yet, of menopause.

Including now

> physical changes of vaginal atrophy. I am only 36 and I feel like I

am going

>

> shrivel up into an old lady by 40.

>

> So, after not having anything done and docs not letting me do

anything as

> far as taking estrogen to reverse some of these symptoms, I decided

to see a

> new

> doc in my area on Friday. He was wonderful and he was greatly

concerned at

> the extent of the symptoms. He went as far as to goggle Spyrcel and

> estrogen replacement as he had a RN in his office working on it

too. He

> decided

> that there was nothing stating that CML was an estrogen cancer and

that he

> thought for quality of Life and atrophic reason, I needed to start

> something. He

> gave 3 RX's and told me to read about it and pick which way I

wanted to

> treat

> with estrogen. He wants it locally treated and not systemic

estrogen. So,

> I can do a patch, pills to be inserted or a ring that stays put for

3 months

>

> at a time. Women, ya get the area I am talking about......

>

> He also ordered a mammogram and a dexa scan/ Mamo is negative but

dexa scan

> shows osteoporosis and osteopenia in the hips and spine. Remember I

am only

> 36......Ugh...

> He also wanted to start a higher dose calcium and decided that he

should

> probably check my Vitamin D level and this had never been done..

Well, I get

> a

> call from him this morning and then his RN trying to get a hold of

me. I

> called them back and he wants to see me this afternoon as the level

was

> critically low and he wants to have a consult with me. Reading the

side

> effects of

> low Vit D (muscle pain, fatigue, cancer and immunity risks) I

wonder how

> much

> of what I put towards my CML and drug that maybe should be a blame

to low

> Vit

> D count?

>

> Any thoughts on all this?

>

> Do you think the estrogen, calcium and I am sure some sort of Vit D

> corrective med, is all safe to use with CML and Spyrcel???

>

> I have to head to see him in an hour so I will report what he

says........

>

> Thanks in advance for the help.

>

>

> Hugs and Hope-

>

> 36

> CML 5/13/05

> Gleevec 800mg until 8/07

> Spyrcel 100 mg since 9/07

> Wife and mother of 3 (12,9,7)

> # 907 in Zavie's Zero Club

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

> (http://travel.

> <http://travel.aol.com/travel-guide/united-states?

ncid=aoltrv00030000000016>

> aol.com/travel-guide/united-states?ncid=aoltrv00030000000016)

>

>