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Re: Digest Number 1343

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--

that is really great news about Tom, as you know, his successes give me so

much hope for 's future. Whenever I get ready to give up hope that

she'll never be okay enough to have a 'normal' life, I think of Tom. Thank

you for sharing.

For those of you who don't know me from the old days, my daughter ,

13, spent 9 weeks in a childrens psych hospital early this year for

uncontrollable rages and OCD attacks. She is now in a special school with

six kids in a class to one teacher and one aide, a program I am incredibly

greatful for.

And to --

My husband has been out of work for 2 1/2 years out of the last three, and 8

months this last time. Not looking good for anytime soon. Like you, I found

even more inner strength, and am applying to law school for the fall

semester-- it is terrible that the only ones we can depend on are ourselves,

but there it is! Not sure how we're going to keep managing financially til

then, but somehow we all do?

And to everyone who has the strength to raise their children properly,

despite OCD--

I am proud of all of you--- I just recently decided I've had enough of the

language, and the attitude again. It is so easy to give up parenting, to not

fight for two hours over a shower, to ignore being called a name, because

everything is such a struggle, but I've decided again, to get to live

in the 'normal' world, I must.

Hope all had a good holiday.

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  • 5 weeks later...

In a message dated 1/26/02 4:03:34 AM Central Standard Time,

writes:

> FDSS stands for Family Driven Social Services. I don't know that every

> state has this, but I'm sure they has something like it. It comes under

> our local ARC. I get $600 a year from them, which I use for baby-sitting,

> purchasing books or equipment, and conferences if I choose to go.

Hi gang:

(Barging in here--haven't been paying good attention to the list, lately.) I

get basically nothing from the great state of Oklahoma (nobody out there is

from OK, are they)? But thanks for the reminder to check other resources

like ARC. State of Washington offered lots of nice extra money as you

describe.

Zach w/Dallas, age 7

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This is going to be stupid. But what does FDSS do?

I mean how do you apply; or get it?

>

> > FDSS stands for Family Driven Social Services. I

> don't know that every

> > state has this, but I'm sure they has something

> like it. It comes under

> > our local ARC. I get $600 a year from them, which

> I use for baby-sitting,

> > purchasing books or equipment, and conferences if

> I choose to go.

>

> Hi gang:

>

> (Barging in here--haven't been paying good attention

> to the list, lately.) I

> get basically nothing from the great state of

> Oklahoma (nobody out there is

> from OK, are they)? But thanks for the reminder to

> check other resources

> like ARC. State of Washington offered lots of nice

> extra money as you

> describe.

>

> Zach w/Dallas, age 7

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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  • 2 months later...
  • 1 month later...
Guest guest

Hi, Everyone!

I've been a lurker for a few weeks since joining this group and I enjoy,

thoroughly, all the info. I am currently studying to be a naturopath and

internal cleansing is my specialty. So, you are all helping me with my

education! THANK YOU!

Lenny...I have read with much interest about the 5 and 10 diet. I note that

potatoes are a part of it. In reading Dr. Rich 's Cleanse & Purify

Thyself, he recommends potatoes when you want to slow down the cleansing

process. In other words, don't eat potatoes if you want your cleansing regime

to work.

Are you finding this not so? Does anyone else have any comments on eating

potatoes during your cleansing routines?

Blessings,

Message: 20

Date: Tue, 21 May 2002 06:50:36 -0400

From: " Lenny " <lenny@...>

Subject: Re: toilet treasure pictures

Hi,

I have a page at http://www.sda-online.com/public/diet.htm

5 and 10 show organization and compatibility with the human pattern of 5 and

10.

The liver has 5 lobes.

This pattern releases energy instantly into your system. The cumulative

effects of perfect obedience yields in several weeks a greatly sharpened

intellect than when disobedient, as there you stay at a much lower systemic

voltage-power level. So since the brain activates by electricity, it

functions superior at a full voltage than in a " brownout " condition of

voltage-power.

Outward signs may be the muscular strength of smooth muscles, reflex

muscles, like the esophageal muscles, as they more powerfully sweep food

swiftly to the stomach, instead of sticking in the throat.

Hybrid foods without this pattern absorb energy in the chemical reaction,

being endergonic, or endothermic. Foods releasing energy are exergonic, or

exothermic, releasing energy, activating the intellect, giving a little

warmth to the system. Foods robbing your metabolism may almost give a

chill, sorta like poisons I read give a chill. As they also are positive and

absorb electrons from your body.

LennyGet more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

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  • 1 year later...
Guest guest

The html code for a picture would look like something like this:

{img border= " 0 " src= " hbnet.gif " align= " left " width= " 320 " height= " 80 " }

but you don't use the {} symbols. You can specify all that stuff for alignment,

size, border, or just leave it out if you want to let your image run wild.

-----------

If you're trying to put Titanium Dioxide in a lip balm for sun protection...

well, I've heard it doesn't really do anything for you. I'm not exactly sure why

that is, maybe it's the form of the TD we have available to us. But, that's just

what I've heard.

----------

As to rusting tins, uncoated tins are for candles. There are tins out there with

an FDA approved coating, those are the only ones I'd want body products to come

out of. Even if it isn't rusting, who wants stuff leaching off the metal into

their balms and onto your skin? Who knows what those tins are made of?

Traci

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  • 1 year later...

Hi all, Haven't posted for ........ can't remember, and I doubt that you can

remember me. So quick re-intro. Mother and son team, both HLAB27 pos, both

with Ank Spon and OA. Son also has Crones, psoriasis and a couple of others. I

was dx at 32, son showed signs at 9 but un-dx'd till 15, despite my screaming at

the Consults.

Son is on Remicade and a wheel barrow full of other meds, lotions and potions.

I prefer alt methods but resort to pain killers when I'm really bad. I go into

remission unlike my son who is 100 times worse than I. He came down with Crones

and all, after recieving the Remicade. It makes you wonder what he'd have been

like if he hadn't been on the drug in the first place. They've started putting

folk on it for Crones and Psoriasis here in the UK.

My lower and upper spine is fused. Middle bit is OK. I'm just getting over a

relapse and trying to asertain what the permanent damage is. This time it hit

upper spine (again). I've been left with a weak left arm that has pins and

needles all the time. Right down into my fingers. When holding something my

grip goes. Very annoying day to day, and embarrassing in company. The pins and

needles I can take, got them in both legs/hip due to nerve damage (as shown in

MRI scans). I was wondering if anyone else has experienced this, if so does the

grip strength ever return to a more normal level. I'm not expecting miricles.

I'm exercising as it seems the sensible thing to do. But I'm on my own here,

(widowed) looking after my son and my mother. A one handed carer you could say.

:)

Thanks,

Angie

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hey angie, keep on exercising and dont stop moving. all will turn out well.....

just keep a good attitude (easy to say, hard to do, but its what will keep you

going). warmest regards ~ james

greydove <angcass@...> wrote: Hi all, Haven't posted for

......... can't remember, and I doubt that you can remember me. So quick

re-intro. Mother and son team, both HLAB27 pos, both with Ank Spon and OA. Son

also has Crones, psoriasis and a couple of others. I was dx at 32, son showed

signs at 9 but un-dx'd till 15, despite my screaming at the Consults.

Son is on Remicade and a wheel barrow full of other meds, lotions and

potions. I prefer alt methods but resort to pain killers when I'm really bad.

I go into remission unlike my son who is 100 times worse than I. He came down

with Crones and all, after recieving the Remicade. It makes you wonder what he'd

have been like if he hadn't been on the drug in the first place. They've

started putting folk on it for Crones and Psoriasis here in the UK.

My lower and upper spine is fused. Middle bit is OK. I'm just getting over

a relapse and trying to asertain what the permanent damage is. This time it hit

upper spine (again). I've been left with a weak left arm that has pins and

needles all the time. Right down into my fingers. When holding something my

grip goes. Very annoying day to day, and embarrassing in company. The pins and

needles I can take, got them in both legs/hip due to nerve damage (as shown in

MRI scans). I was wondering if anyone else has experienced this, if so does the

grip strength ever return to a more normal level. I'm not expecting miricles.

I'm exercising as it seems the sensible thing to do. But I'm on my own here,

(widowed) looking after my son and my mother. A one handed carer you could say.

:)

Thanks,

Angie

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  • 2 years later...
Guest guest

K-

You are always so lively and upbeat. I aprreciate your positivity on the

site. Its refreshing...

Do you know anything about the vaccine? Its purpose, is it in trials and if

so, how is it doing? Will it help us or just attempt to prevent anyone

further?

Hugs and Hope-

36

CML 5/13/05

Gleevec 800mg until 8/07

Spyrcel 100 mg since 9/07

Wife and mother of 3 (12,9,7)

# 907 in Zavie's Zero Club

In a message dated 4/10/2008 9:01:11 A.M. Central Daylight Time,

kttweety@... writes:

Hey Sister & Brother Survivors. . .

When I was diagnosed in 2003, in spite of my morbid mortality/side

effects/etc, I realized . . .

" If there was ever a Good time to be diagnosed with our Bug, it was then;

Gleevec had been FDA approved and we were Surviving. . .

Now, 5 years later, I want ALL to know that . . .

" If there ever was a Great time to be diagnosed with our Bug. . .it is Now.

.. .with our Gold~~Gleevec, the 2nd & 3rd generation medications, the Vaccine

and BMT. . .

WE ARE SURVIVORS. . .WE AIN'T FINISHED YET ! ! !

Take care, I have ALL in my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

[Non-text portions of this message have been removed]

**************Planning your summer road trip? Check out AOL Travel Guides.

(http://travel.aol.com/travel-guide/united-states?ncid=aoltrv00030000000016)

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Guest guest

Hey Sister & Brother Survivors. . .

When I was diagnosed in 2003, in spite of my morbid mortality/side

effects/etc, I realized . . .

" If there was ever a Good time to be diagnosed with our Bug, it was then;

Gleevec had been FDA approved and we were Surviving. . .

Now, 5 years later, I want ALL to know that . . .

" If there ever was a Great time to be diagnosed with our Bug. . .it is Now. .

..with our Gold~~Gleevec, the 2nd & 3rd generation medications, the Vaccine and

BMT. . .

WE ARE SURVIVORS. . .WE AIN'T FINISHED YET ! ! !

Take care, I have ALL in my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Guest guest

Hey Sister K--

How true it is! I couldn't agree more heartily--we are indeed

blessed. By the way I have been enjoying your daily posts SO much!

I regularly send most or all of them on to my friends and family--

they all love them, too. Keep up the good work--wherever you find

them, it is a great source. You are great, too. BIG HUG!!!

Vicki

>

> Hey Sister & Brother Survivors. . .

> When I was diagnosed in 2003, in spite of my morbid

mortality/side effects/etc, I realized . . .

> " If there was ever a Good time to be diagnosed with our Bug, it

was then; Gleevec had been FDA approved and we were Surviving. . .

> Now, 5 years later, I want ALL to know that . . .

> " If there ever was a Great time to be diagnosed with our

Bug. . .it is Now. . .with our Gold~~Gleevec, the 2nd & 3rd

generation medications, the Vaccine and BMT. . .

> WE ARE SURVIVORS. . .WE AIN'T FINISHED YET ! ! !

> Take care, I have ALL in my prayers. . . " K "

>

>

> " K "

> " I AIN'T FINISHED YET " !!!

>

>

>

>

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