Re: Ladies can you help me with this???

[Guest guest]

Hi ,

It sounds like you have a wonderful doctor who is taking your problem

seriously. How refreshing to see someone actually acknowledging

a " woman problem " instead of just glossing over it. I wish there

were more doctors like him!

I don't know much about how Sprycel interacts with hormones ....well

the doctors don't seem to know much either, but I am confident that

given your situation and how wonderful your doctor is, you are in

very good hands. Just the fact that he was willing to research it on

Google himself shows an incredible dedication. You're very lucky to

have him!

Let us know how the treatments work, I hope you find a difference

soon!

Tracey

>

> Thanks so much for your reply. I appreciate it. It is so

comforting to

> talk to someone else going through it. Being only 36 I never

would have dreamed

> of having to deal with all this. I have actually been going

through it all

> since 29 when I had the hyst but I can't deny the symptoms anymore

and my

> hubby deserve a wife conditioned wife.

> I saw the DR yesterday afternoon. He said my level was a 9 and he

had never

> seen anyone that low. He said he would like it between 40-50. He

said no

> wonder I'm in such pain all the time, my bones are worse then his.

(he's

> probably early 60's). I am hoping all this will correct a lot of

my problems. He

> said the muscle/bone pain, and fatigue that I have blaming on CML

could be

> related to this critical deficiency as well.

>

> He put me on:

> --Vitamin D 50,000 units weekly times 12 weeks then 50,000 units

per month

> thereafter

> --CitraCal 2-3 tablets daily

> --Boniva 150 mg one per month

>

> As far as the estrogen stuff goes, we talked more about it last

night and I

> think I am gonna do:

> --Viville Dat 0.025mg apply new patch every 3 1/2 days (not

excited about

> having an Estrogen patch on)

> --Vagi Fen insert 1 tablet daily x 14 days then 1 tablet every 3

1/2 days.

>

> The ring thing freaks me out a bit and I really don't want

infections.

>

> He wants to see me back in 6 weeks were we will re-evaluate

everything. My

> bones will take 2 years to recover and hopefully feel better.

>

> Does this all sound reasonable?

>

>

>

> Hugs and Hope-

>

> 36

> CML 5/13/05

> Gleevec 800mg until 8/07

> Spyrcel 100 mg since 9/07

> Wife and mother of 3 (12,9,7)

> # 907 in Zavie's Zero Club

>

>

>

>

>

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