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hi all, i've had eyebleeds from time to time. just noticed last night i

have another one. these are nothing to worry about right? i just freak

out when they happen cause their so darn ugly. last night it looked

like a blood spot, this morning it looks as if it is more of a blood

smear, healing already? gina d.

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Hi ,

I had a number of eye bleeds when I was on Gleevec. They came and went with no

apparent harm to my eyes. I used an eye ointment which helped them disappear

quickly. You can find an eye ointment in the drugstore -- ooey gooey gel.

I haven't had any eye bleeds on Sprycel.

[ ] eye bleed

hi all, i've had eyebleeds from time to time. just noticed last night i

have another one. these are nothing to worry about right? i just freak

out when they happen cause their so darn ugly. last night it looked

like a blood spot, this morning it looks as if it is more of a blood

smear, healing already? gina d.

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Guest guest

,

I just had another one about 2 weeks ago. Yes, they are ugly, but do no harm.

I usually get a few in a short amount of time, and then none for 6 months or

more.

@...: ginademase@...: Wed, 21 May 2008

10:51:47 +0000Subject: [ ] eye bleed

hi all, i've had eyebleeds from time to time. just noticed last night i have

another one. these are nothing to worry about right? i just freak out when they

happen cause their so darn ugly. last night it looked like a blood spot, this

morning it looks as if it is more of a blood smear, healing already? gina d.

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  • 2 years later...

Hi,

I've been on Gleevec since March 2001 and I still get the eye bleeds.

Zavie

Zavie (age 72)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

4.4 log reduction Apr/10

4.3 log reduction Oct/10

e-mail: <mailto:zmiller@...> zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

From: [mailto: ] On Behalf Of Sandy

Sent: November-08-10 3:05 PM

Subject: [ ] Eye Bleed

Hi All.

I notice that alot of you have been on Gleevec for a long time. Do you still

get eyebleed? Robyn had it in both eyes this weekend. She has been taking

Gleevec for about 2 years.

Sandi

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Hi Had one each both eyes at different times in years 3 to 4 ,nothing as I

approach year 5 in Dec 600 Gleevec

________________________________

From: Sandy <sandi3533@...>

Sent: Mon, November 8, 2010 2:04:53 PM

Subject: [ ] Eye Bleed

 

Hi All.

I notice that alot of you have been on Gleevec for a long time. Do you still get

eyebleed? Robyn had it in both eyes this weekend. She has been taking Gleevec

for about 2 years.

Sandi

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I was on gleevec for 9 years and had eye bleeds sporatically (sometimes

frequently) right up to the bitter end (of gleevec's effectiveness). Sprycel, no

such eye bleeds (or leg cramps, praxis reflux). Unfortunately I'm now dealing

with a pleural effusion. I love Sprycel and hope I don't have to give it up, but

I may.

Sent from my iPhone

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my mom has had one eye bleed and she has been on gleevec for about 5 months.

________________________________

From: Zavie <zmiller@...>

Sent: Mon, November 8, 2010 4:11:52 PM

Subject: RE: [ ] Eye Bleed

 

Hi,

I've been on Gleevec since March 2001 and I still get the eye bleeds.

Zavie

Zavie (age 72)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

4.4 log reduction Apr/10

4.3 log reduction Oct/10

e-mail: <mailto:zmiller@...> zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

From: [mailto: ] On Behalf Of Sandy

Sent: November-08-10 3:05 PM

Subject: [ ] Eye Bleed

Hi All.

I notice that alot of you have been on Gleevec for a long time. Do you still

get eyebleed? Robyn had it in both eyes this weekend. She has been taking

Gleevec for about 2 years.

Sandi

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Hi, this is strange, I have an email from karine, that says 30% off at the Gap

!!!

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Karine Vallier <karinevallier@...>

Subject: Re: [ ] Eye Bleed

Date: Monday, November 8, 2010, 11:43 PM

 

my mom has had one eye bleed and she has been on gleevec for about 5

months.

________________________________

From: Zavie <zmiller@...>

Sent: Mon, November 8, 2010 4:11:52 PM

Subject: RE: [ ] Eye Bleed

 

Hi,

I've been on Gleevec since March 2001 and I still get the eye bleeds.

Zavie

Zavie (age 72)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

4.4 log reduction Apr/10

4.3 log reduction Oct/10

e-mail: <mailto:zmiller@...> zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

From: [mailto: ] On Behalf Of Sandy

Sent: November-08-10 3:05 PM

Subject: [ ] Eye Bleed

Hi All.

I notice that alot of you have been on Gleevec for a long time. Do you still

get eyebleed? Robyn had it in both eyes this weekend. She has been taking

Gleevec for about 2 years.

Sandi

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Hi Karine

Yes I went back into remission after 2 months. It has been about a year

now. My next genetic test will be in December so hopefully the result will be

the same.

Hope your mom is doing okay. I am still working 3 days a week which has

been the best therapy for me even thought the fatigue sometimes gets to me.

I do not have to travel. Just 3 blocks to the office.

Ceil

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