Re: sex and cml

June 2, 2008

OMG I had no idea! I thought it was just me! I must say it's caused me to pull

the plug on any future relationships.

From: janicemuir@...

Date: Mon, 2 Jun 2008 08:45:15 +1200

Subject: [ ] sex and cml

I have found I have no interest at sex at all, apparently it's a

real side

effect from the glivec drug

What have others experienced with being on the drug glivec?

Janice

June 2, 2008

okay say it ain't so...is that what I have to look

forward to? I've been dating a great guy- it is a

long distance relationship but I had high hopes for

the future. Evenn though I have been celibate since

last year( using my energy to stay alive after dx...)

All systems appear to be functioning and there is

plans for a test run in the near future. I'm not ready

to give up that part of me yet- I'm only 56-lol.

--- Rosen Lum <rrosenlum@...> wrote:

>

> OMG I had no idea! I thought it was just me! I must

> say it's caused me to pull the plug on any future

> relationships.

>

> From: janicemuir@...

> Date: Mon, 2 Jun 2008 08:45:15 +1200

> Subject: [ ] sex and cml

>

> I have found I have no interest at sex

> at all, apparently it's a real side

>

> effect from the glivec drug

>

> What have others experienced with being on the drug

> glivec?

>

> Janice

>

> [Non-text portions of this message have been

> removed]

>

_________________________________________________________________

> Give to a good cause with every e-mail. Join the i’m

> Initiative from Microsoft.

>

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>

> [Non-text portions of this message have been

> removed]

>

> ------------------------------------

>

June 2, 2008

Wow. You're my age. Do you mind my asking, do you take hrt? I feel like I'm too

young to feel like this!

From: chimera46@...

Date: Sun, 1 Jun 2008 19:04:01 -0700

Subject: RE: [ ] sex and cml

okay say it ain't so...is that what I have to look

forward to? I've been dating a great guy- it is a

long distance relationship but I had high hopes for

the future. Evenn though I have been celibate since

last year( using my energy to stay alive after dx...)

All systems appear to be functioning and there is

plans for a test run in the near future. I'm not ready

to give up that part of me yet- I'm only 56-lol.

--- Rosen Lum <rrosenlum@...> wrote:

>

> OMG I had no idea! I thought it was just me! I must

> say it's caused me to pull the plug on any future

> relationships.

>

> From: janicemuir@...

> Date: Mon, 2 Jun 2008 08:45:15 +1200

> Subject: [ ] sex and cml

>

> I have found I have no interest at sex

> at all, apparently it's a real side

>

> effect from the glivec drug

>

> What have others experienced with being on the drug

> glivec?

>

> Janice

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________________

> Give to a good cause with every e-mail. Join the i’m

> Initiative from Microsoft.

>

http://im.live.com/Messenger/IM/Join/Default.aspx?souce=EML_WL_

> GoodCause

>

> [Non-text portions of this message have been

> removed]

>

> ------------------------------------

>

June 2, 2008

Okay, without divulging TMI, what age are we talking about? I'm 36, not real

interested (though haven't been in quite a few years.) DH is NOT liking the

direction of this conversation.

Tammy

_____

From: [mailto: ] On Behalf Of janice

Sent: Sunday, June 01, 2008 4:45 PM

Subject: [ ] sex and cml

I have found I have no interest at sex at all, apparently it's a real side

effect from the glivec drug

What have others experienced with being on the drug glivec?

Janice

June 2, 2008

At 46 I used to love sex and still do but my body is saying other things right

now - thin skin bleeding easily (I only have to rub my shin on something and

that's it, bang goes full thickness skin gone), loss of hair colour, looking

most of the time like a tired out white freak with red facial blotches when hot,

red and puffy eyes, the ol' botty problems and tiredness and fatigue most of the

day.I'm beginning to think this is a common problem with drugs, though Glivec is

certainly taking its toll in many ways.Sex is still a huge part of my agenda and

hubby would have it three times a day if I let him, but I still think that

Glivec takes the incentive away. By the time I've showered in the morning and

then cleaned myself up before sex the enjoyment has gone out of it.

Anybody else feel that way?

@...: tammy@...: Sun, 1 Jun 2008

22:51:09 -0400Subject: RE: [ ] sex and cml

Okay, without divulging TMI, what age are we talking about? I'm 36, not

realinterested (though haven't been in quite a few years.) DH is NOT liking

thedirection of this conversation. Tammy _____ From:

[mailto: ] On Behalf Of janiceSent: Sunday, June 01, 2008

4:45 PM@...: [ ] sex and cmlI have found I have

no interest at sex at all, apparently it's a real sideeffect from the glivec

drugWhat have others experienced with being on the drug glivec?Janice[Non-text

portions of this message have been removed][Non-text portions of this message

have been removed]

_________________________________________________________________

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June 2, 2008

I took hrt -plant based estrogen for about two years

and then the nurses study came out- so I stopped. The

funny thing is when I started having hot sweats from

the CML I just thought it was a return of my menopause

symptoms.

I have no problem with desire...drive. Emotional fear

yes physical problems no-lol. Maybe that will change

the longer I take the meds. It was a year in March.

Have you ruled everything out with docs, no physical

reason? I have heard that gleevec can impact sexual

desire but that has not been my problem.

I've been telling people that I am going to write an

article called " Dating in the time of Cancer " - my own

experience was finding a great guy after my dx who

said- you don't scare me. He was an LAPD 20 year

veteran. But you know how sick we are when we start

the meds, and my levels were low, no immune systems

etc. He couldn't handle it- he was afraid he would

make me sick. I couldn't go out to dinner etc. So I

went on hiatus-smile. But I'm sticking my toe back in

the dating pool. He is a smart, funny 60 year old man

who doesn't seem to mind my swollen eyelids, and

swollen legs, faint rash that covers my body blah blah

blah. He on the other hand has the body of an athletic

45 year old and competes in equestrian events. Dating

someone with cancer is not for the faint of heart, we

need warriors. As for the physical part- I don't

know if there will be problems. The spirit is willing

let's hope my body is of the same mind.

Stay Tuned.

--- Rosen Lum <rrosenlum@...> wrote:

>

> Wow. You're my age. Do you mind my asking, do you

> take hrt? I feel like I'm too young to feel like

> this!

>

> From: chimera46@...

> Date: Sun, 1 Jun 2008 19:04:01 -0700

> Subject: RE: [ ] sex and cml

>

> okay say it ain't so...is that what I

> have to look

>

> forward to? I've been dating a great guy- it is a

>

> long distance relationship but I had high hopes for

>

> the future. Evenn though I have been celibate

> since

>

> last year( using my energy to stay alive after

> dx...)

>

> All systems appear to be functioning and there is

>

> plans for a test run in the near future. I'm not

> ready

>

> to give up that part of me yet- I'm only 56-lol.

>

> --- Rosen Lum <rrosenlum@...> wrote:

>

> >

>

> > OMG I had no idea! I thought it was just me! I

> must

>

> > say it's caused me to pull the plug on any future

>

> > relationships.

>

> >

>

> >

>

> > From: janicemuir@...

>

> > Date: Mon, 2 Jun 2008 08:45:15 +1200

>

> > Subject: [ ] sex and cml

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__________________________________________________________

>

=== message truncated ===

June 2, 2008

Oh great..I already have that problem and haven't even started the

meds yet..

SharonS

In , " janice " <janicemuir@...> wrote:

>

> I have found I have no interest at sex at all, apparently it's a

real side

> effect from the glivec drug

>

> What have others experienced with being on the drug glivec?

>

> Janice

>

June 2, 2008

Maybe I am a freak of nature, but I am in a long distance

relationship and I can't stop thinking about sex...LOL!!! No issues

in that department when we're together either....aside from the gas

issue...;)Don't worry ...not all side effects are

universal! good luck with you long distance love...it can work

out...that's for sure

>

> >

> > OMG I had no idea! I thought it was just me! I must

> > say it's caused me to pull the plug on any future

> > relationships.

> >

> > From: janicemuir@...

> > Date: Mon, 2 Jun 2008 08:45:15 +1200

> > Subject: [ ] sex and cml

> >

> > I have found I have no interest at sex

> > at all, apparently it's a real side

> >

> > effect from the glivec drug

> >

> > What have others experienced with being on the drug

> > glivec?

> >

> > Janice

> >

> > [Non-text portions of this message have been

> > removed]

> >

> _________________________________________________________________

> > Give to a good cause with every e-mail. Join the i'm

> > Initiative from Microsoft.

> >

> http://im.live.com/Messenger/IM/Join/Default.aspx?souce=EML_WL_

> > GoodCause

> >

> > [Non-text portions of this message have been

> > removed]

> >

> > ------------------------------------

> >

June 2, 2008

Yeah do not freak out quite yet, granted I am male, but at 41 CML

has not effected me sexually, and as Genie pointed out not all side effects

are the same for everyone.

Terry

On Mon, Jun 2, 2008 at 6:55 AM, Genie <genie1000@...> wrote:

> Maybe I am a freak of nature, but I am in a long distance

> relationship and I can't stop thinking about sex...LOL!!! No issues

> in that department when we're together either....aside from the gas

> issue...;)Don't worry ...not all side effects are

> universal! good luck with you long distance love...it can work

> out...that's for sure

>

> >

> > >

> > > OMG I had no idea! I thought it was just me! I must

> > > say it's caused me to pull the plug on any future

> > > relationships.

> > >

> > > <%40>

> > > From: janicemuir@...

> > > Date: Mon, 2 Jun 2008 08:45:15 +1200

> > > Subject: [ ] sex and cml

> > >

> > > I have found I have no interest at sex

> > > at all, apparently it's a real side

> > >

> > > effect from the glivec drug

> > >

> > > What have others experienced with being on the drug

> > > glivec?

> > >

> > > Janice

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > __________________________________________________________

> > > Give to a good cause with every e-mail. Join the i'm

> > > Initiative from Microsoft.

> > >

> > http://im.live.com/Messenger/IM/Join/Default.aspx?souce=EML_WL_

> > > GoodCause

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > > ------------------------------------

> > >

June 2, 2008

re: sex and cml... i barely have energy to go to the store much less find a new

willing partner! ?it's hard to date with a new case of cml.? it seems others

have the key...?i'd love to know?their secret for finding someone!??

?

re: fatigue...

it's a?whole new normal.? i wouldn't even try to go to an amusement park at the

moment (six months from dx).??i am working (but not much lately).??since i'm a

single mom, everything depends on me (shopping, maintenance, bills, etc.).?

can't say?we have had the time, money or energy for amusement parks lately.? i

am hoping that everyone is right in a few years i won't even be able to remember

this so very tired time.

?

at the moment i have a sinus infection from hell.? i think my teeth are being

pushed outta my head by all the pressure from the fluid inside.? all the hot

liquids, meds, etc.?aren't working well enough to relieve the pain.? don't

really want to?go to MDACC for a sinus infection, but?it's hard to know what

meds we should and shouldn't take.??can't take decongestants because of the

heart racing.? trying mucinex?and pain meds.? ugh.? i'm all tapped out of energy

that's for sure.? the cough?is?gross and fluidy too.? perhaps?i'll call the

leukemia clinic today just to be sure.? thy don't like the fluid and cough stuff

on sprycel.

?

later gaters,

r?

[ ] sex and cml

& gt; & gt; & gt;

& gt; & gt; & gt; I have found I have no interest at sex

& gt; & gt; & gt; at all, apparently it's a real side

& gt; & gt; & gt;

& gt; & gt; & gt; effect from the glivec drug

& gt; & gt; & gt;

& gt; & gt; & gt; What have others experienced with being on the drug

& gt; & gt; & gt; glivec?

& gt; & gt; & gt;

& gt; & gt; & gt; Janice

& gt; & gt; & gt;

& gt; & gt; & gt; [Non-text portions of this message have been

& gt; & gt; & gt; removed]

& gt; & gt; & gt;

& gt; & gt; __________________________________________________________

& gt; & gt; & gt; Give to a good cause with every e-mail. Join the i'm

& gt; & gt; & gt; Initiative from Microsoft.

& gt; & gt; & gt;

& gt; & gt; http://im.live.com/Messenger/IM/Join/Default.aspx?souce=EML_WL_

& gt; & gt; & gt; GoodCause

& gt; & gt; & gt;

& gt; & gt; & gt; [Non-text portions of this message have been

& gt; & gt; & gt; removed]

& gt; & gt; & gt;

& gt; & gt; & gt; ------------------------------------

& gt; & gt; & gt;

June 2, 2008

i wonder where all those questions marks come from??

hummm.? they weren't there when i sent the email.?

a computer gremlin aye.? sorry.

[ ] sex and cml

& gt; & gt; & gt;

& gt; & gt; & gt; I have found I have no interest at sex

& gt; & gt; & gt; at all, apparently it's a real side

& gt; & gt; & gt;

& gt; & gt; & gt; effect from the glivec drug

& gt; & gt; & gt;

& gt; & gt; & gt; What have others experienced with being on the drug

& gt; & gt; & gt; glivec?

& gt; & gt; & gt;

& gt; & gt; & gt; Janice

& gt; & gt; & gt;

& gt; & gt; & gt; [Non-text portions of this message have been

& gt; & gt; & gt; removed]

& gt; & gt; & gt;

& gt; & gt; __________________________________________________________

& gt; & gt; & gt; Give to a good cause with every e-mail. Join the i'm

& gt; & gt; & gt; Initiative from Microsoft.

& gt; & gt; & gt;

& gt; & gt; http://im.live.com/Messenger/IM/Join/Default.aspx?souce=EML_WL_

& gt; & gt; & gt; GoodCause

& gt; & gt; & gt;

& gt; & gt; & gt; [Non-text portions of this message have been

& gt; & gt; & gt; removed]

& gt; & gt; & gt;

& gt; & gt; & gt; ------------------------------------

& gt; & gt; & gt;

June 2, 2008

I wondered about those question marks, and here's another I keep seeing: ?nsbn,

or something similar, over and over. weird....

Sionito@... wrote: i wonder where all those questions marks come

from??

hummm.? they weren't there when i sent the email.?

a computer gremlin aye.? sorry.

[ ] sex and cml

& gt; & gt; & gt;

& gt; & gt; & gt; I have found I have no interest at sex

& gt; & gt; & gt; at all, apparently it's a real side

& gt; & gt; & gt;

& gt; & gt; & gt; effect from the glivec drug

& gt; & gt; & gt;

& gt; & gt; & gt; What have others experienced with being on the drug

& gt; & gt; & gt; glivec?

& gt; & gt; & gt;

& gt; & gt; & gt; Janice

& gt; & gt; & gt;

& gt; & gt; & gt; [Non-text portions of this message have been

& gt; & gt; & gt; removed]

& gt; & gt; & gt;

& gt; & gt; __________________________________________________________

& gt; & gt; & gt; Give to a good cause with every e-mail. Join the i'm

& gt; & gt; & gt; Initiative from Microsoft.

& gt; & gt; & gt;

& gt; & gt; http://im.live.com/Messenger/IM/Join/Default.aspx?souce=EML_WL_

& gt; & gt; & gt; GoodCause

& gt; & gt; & gt;

& gt; & gt; & gt; [Non-text portions of this message have been

& gt; & gt; & gt; removed]

& gt; & gt; & gt;

& gt; & gt; & gt; ------------------------------------

& gt; & gt; & gt;

June 2, 2008

I was reading through the mound of post and it is so interesting how many

are affected and how many are not affected the same. I am wondering about the

sex question and the genders? Being male, I feel pretty normal in the dept,

but I realize somewhat diminished, I just attribute to age and longevity of

my relationship and where she is at age wise (our early 40's) as well. I did

worry after the Dx and once I was feeling amorous again IF she would be

scared? Could not blame her if she was, she was great, as I was in 2000 with

her

cervical cancer. Seems the big " C " loves us! =) All the while these have

been such hardships, I still feel so lucky and grateful that I am doing pretty

well, working full time and am about to take off on a father/son trip this

week to celebrate his 8th grade graduation. So, I am feeling pretty darn lucky

today, ever mindful of the CML, but doing my best to let it be part of me,

so long as it does not define me. Been an interesting 15 months, that is for

sure. One thing, I can honestly say I am way more in tune with my world and

life than ever.

Cheers,

Chris

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

June 3, 2008

Chris-

You are brave wading in on this topic. It is nice to

have a man's point of view. Bless you both for being

there for each other. You guys are an inspiration.

Chi

--- letitbe@... wrote:

> I was reading through the mound of post and it is so

> interesting how many

> are affected and how many are not affected the same.

> I am wondering about the

> sex question and the genders? Being male, I feel

> pretty normal in the dept,

> but I realize somewhat diminished, I just attribute

> to age and longevity of

> my relationship and where she is at age wise (our

> early 40's) as well. I did

> worry after the Dx and once I was feeling amorous

> again IF she would be

> scared? Could not blame her if she was, she was

> great, as I was in 2000 with her

> cervical cancer. Seems the big " C " loves us! =)

> All the while these have

> been such hardships, I still feel so lucky and

> grateful that I am doing pretty

> well, working full time and am about to take off on

> a father/son trip this

> week to celebrate his 8th grade graduation. So, I

> am feeling pretty darn lucky

> today, ever mindful of the CML, but doing my best to

> let it be part of me,

> so long as it does not define me. Been an

> interesting 15 months, that is for

> sure. One thing, I can honestly say I am way more

> in tune with my world and

> life than ever.

>

> Cheers,

> Chris

>

> **************Get trade secrets for amazing burgers.

> Watch " Cooking with

> Tyler Florence " on AOL Food.

>

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

>

> [Non-text portions of this message have been

> removed]

>

June 3, 2008

thanks Chi! I figured what the heck? Though, I did consult with Tab, she

said I was playing with fire to post on a topic like this that mostly the

ladies where. But, she knows I am brave! lol Her having had a full

hysterectomy

at 32, we had already had/have our share of dysfunction in that dept. But,

as I assured her post surgery, there is way more to our relationship than just

sex. While it is way important at any age, it was hard on her, I know,

because of her age of the surgery. But for me as her husband, and I assured

her

then and still believe it today, if there was never anymore sex, that was ok

compared to loosing her. I promise you all this, her cancer and the prospect

of loosing her was way harder on me than my CML. Hindsight, what I went

through with her has helped me understand what she is going though with my CML.

How scared she was/is.

Part of why I am posting these comments, maybe assure you all that if the

sex is not what it used to be, your spouse may very well miss the sex, of

course, who wouldn't, but that is such a non-factor compared to loosing their

soul

mate. I really mean this and thought perhaps a male point of view might be

helpful.

When I was in the hospital at time of diagnosis, you know, if the CML where

not enough, I had lost almost all my eyesight and we were told it may get

worse and may be permanent, then there was the whole being in A-Fib heart beat

deal, had the have my heart stopped - restarted. I mean this was a scary

deal. Tab's closest girl friend told me recently how Tab had broken down

outside, was crying she was going to loose her best friend. I know how she

felt, I

felt the same way during her illness. My point being, hopefully most spouses

are so happy we are doing well, that even some little dysfunctions are ok,

compared to not having their spouse around.

Cheers,

Chris

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

June 3, 2008

HI ALL, HOW RIGHT YOU ARE. BEING HERE AND BEING ABLE TO JUST BE TOGETHER IS

WHAT IT'S ALL ABOUT. MY SON IN LAW HAS PARKINSON'S. HE IS 55, MY DAUGHTER IS

46. SOME DAYS FOR HIM ARE GOOD, SOME ARE NOT. ONE DAY LAST WEEK HE PARKED HIS

TRUCK AND FORGOT WHERE HE PUT IT. HE FINALLY MADE A REPORT TO THE POLICE AND

THEY FOUND IT FOR HIM. THEN THAT NIGHT SHE WAS SUPPOSED TO PICK ME UP AND TAKE

ME TO ANN ARBOR , MI. FOR MY TREATMENT. SHE CALLED AND SAID SHE COULD NOT FIND

HER HUSBAND, SHE WOULD BE BY WHEN SHE DID! HER LIFE HAS SO CHANGED IN EVERY

WAY, I PRAY EVERY DAY FOR HER TO BE ABLE TO STAY STRONG AND BE ABLE TO HANDLE

THIS NEW LIFE OF HERS. SHE SETS THE ALARM ON HER PHONE FOR EVERY THREE HOURS,

AND NO MATTER WHERE SHE IS OR WHAT SHE IS DOING, SHE CALLS HIM TO TELL HIM TO

TAKE HIS MEDS. IF HER BUSINESS LIFE HAS CHANGED SO, I CANNOT IMAGINE HOW HER

PERSONAL LIFE HAS CHANGED. IT'S TIMES LIKE THAT YOU REALIZE WHAT IS IMPORTANT

IN LIFE, AND A MARRIAGE IS DIFFICULT ENOUGH TO

GET THROUGH, WITHOUT THROWING IN A SERIOUS ILLNESS. I HAVE NOT HAD A PARTNER

IN YEARS, HAT'S OFF TO THOSE OF YOU THAT DO AND CAN SURVIVE THESE DIFFICULT

TIMES. AND THAT'S MY TWO CENTS WORTH, BOBBY

letitbe@... wrote: thanks Chi! I figured what the heck? Though, I

did consult with Tab, she

said I was playing with fire to post on a topic like this that mostly the

ladies where. But, she knows I am brave! lol Her having had a full hysterectomy

at 32, we had already had/have our share of dysfunction in that dept. But,

as I assured her post surgery, there is way more to our relationship than just

sex. While it is way important at any age, it was hard on her, I know,

because of her age of the surgery. But for me as her husband, and I assured her

then and still believe it today, if there was never anymore sex, that was ok

compared to loosing her. I promise you all this, her cancer and the prospect

of loosing her was way harder on me than my CML. Hindsight, what I went

through with her has helped me understand what she is going though with my CML.

How scared she was/is.

Part of why I am posting these comments, maybe assure you all that if the

sex is not what it used to be, your spouse may very well miss the sex, of

course, who wouldn't, but that is such a non-factor compared to loosing their

soul

mate. I really mean this and thought perhaps a male point of view might be

helpful.

When I was in the hospital at time of diagnosis, you know, if the CML where

not enough, I had lost almost all my eyesight and we were told it may get

worse and may be permanent, then there was the whole being in A-Fib heart beat

deal, had the have my heart stopped - restarted. I mean this was a scary

deal. Tab's closest girl friend told me recently how Tab had broken down

outside, was crying she was going to loose her best friend. I know how she felt,

I

felt the same way during her illness. My point being, hopefully most spouses

are so happy we are doing well, that even some little dysfunctions are ok,

compared to not having their spouse around.

Cheers,

Chris

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

June 4, 2008

Amen to everything you said, Chris. You're a good man. Warmest

wishes,

>

> thanks Chi! I figured what the heck? Though, I did consult with

Tab, she

> said I was playing with fire to post on a topic like this that

mostly the

> ladies where. But, she knows I am brave! lol Her having had a

full hysterectomy

> at 32, we had already had/have our share of dysfunction in that

dept. But,

> as I assured her post surgery, there is way more to our

relationship than just

> sex. While it is way important at any age, it was hard on her, I

know,

> because of her age of the surgery. But for me as her husband, and

I assured her

> then and still believe it today, if there was never anymore sex,

that was ok

> compared to loosing her. I promise you all this, her cancer and

the prospect

> of loosing her was way harder on me than my CML. Hindsight, what

I went

> through with her has helped me understand what she is going though

with my CML.

> How scared she was/is.

>

> Part of why I am posting these comments, maybe assure you all that

if the

> sex is not what it used to be, your spouse may very well miss the

sex, of

> course, who wouldn't, but that is such a non-factor compared to

loosing their soul

> mate. I really mean this and thought perhaps a male point of view

might be

> helpful.

>

> When I was in the hospital at time of diagnosis, you know, if the

CML where

> not enough, I had lost almost all my eyesight and we were told it

may get

> worse and may be permanent, then there was the whole being in A-

Fib heart beat

> deal, had the have my heart stopped - restarted. I mean this was

a scary

> deal. Tab's closest girl friend told me recently how Tab had

broken down

> outside, was crying she was going to loose her best friend. I

know how she felt, I

> felt the same way during her illness. My point being, hopefully

most spouses

> are so happy we are doing well, that even some little dysfunctions

are ok,

> compared to not having their spouse around.

>

> Cheers,

> Chris

>

> **************Get trade secrets for amazing burgers. Watch " Cooking

with

> Tyler Florence " on AOL Food.

> (http://food.aol.com/tyler-florence?video=4?

& NCID=aolfod00030000000002)

>

June 4, 2008

Dear Friends,

Besides being a little more tired and achy than before CML, my

intimate relationship with my husband is still as wonderful as

always. If anything, I am so thankful that I have been able to

continue with my life, as close to usual as possible, that I relish

in maintaining normalcy in these special areas. Upon diagnosis, I

was afraid that my husband would not see me as a whole person anymore

because I was " defective. " I know this is stupid but I was

vulnerable. Not only has he dispelled all of this nonsense but has

also gone on to remind me daily how sexy I am despite my oversized

edema ankles and my new water balloon feet. LOL Ladies, thank God

for our wonderful husbands because they truly contribute so much to

our well being. Even if they get on our nerves once in awhile.

Wink, wink.

Love,

NYC

> >

> > thanks Chi! I figured what the heck? Though, I did consult with

> Tab, she

> > said I was playing with fire to post on a topic like this that

> mostly the

> > ladies where. But, she knows I am brave! lol Her having had a

> full hysterectomy

> > at 32, we had already had/have our share of dysfunction in that

> dept. But,

> > as I assured her post surgery, there is way more to our

> relationship than just

> > sex. While it is way important at any age, it was hard on her,

I

> know,

> > because of her age of the surgery. But for me as her husband,

and

> I assured her

> > then and still believe it today, if there was never anymore sex,

> that was ok

> > compared to loosing her. I promise you all this, her cancer and

> the prospect

> > of loosing her was way harder on me than my CML. Hindsight,

what

> I went

> > through with her has helped me understand what she is going

though

> with my CML.

> > How scared she was/is.

> >

> > Part of why I am posting these comments, maybe assure you all

that

> if the

> > sex is not what it used to be, your spouse may very well miss the

> sex, of

> > course, who wouldn't, but that is such a non-factor compared to

> loosing their soul

> > mate. I really mean this and thought perhaps a male point of

view

> might be

> > helpful.

> >

> > When I was in the hospital at time of diagnosis, you know, if the

> CML where

> > not enough, I had lost almost all my eyesight and we were told it

> may get

> > worse and may be permanent, then there was the whole being in A-

> Fib heart beat

> > deal, had the have my heart stopped - restarted. I mean this

was

> a scary

> > deal. Tab's closest girl friend told me recently how Tab had

> broken down

> > outside, was crying she was going to loose her best friend. I

> know how she felt, I

> > felt the same way during her illness. My point being, hopefully

> most spouses

> > are so happy we are doing well, that even some little

dysfunctions

> are ok,

> > compared to not having their spouse around.

> >

> > Cheers,

> > Chris

> >

> > **************Get trade secrets for amazing burgers.

Watch " Cooking

> with

> > Tyler Florence " on AOL Food.

> > (http://food.aol.com/tyler-florence?video=4?

> & NCID=aolfod00030000000002)

> >

June 7, 2008

Hey Group. . .

During my prime, I was married to a much older man; and now I have our bug and

numerous other Chronic Illnesses. . .

" IF YOU DON'T USE IT. . .YOU MAY LOSE IT " ! ! !

I am not a Doctor, never portrayed one on TV; nor do I aspire to be a

Physician in another life. FYI/my 2 cents only. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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