Re: New fatigue question/Tammy

June 1, 2008

Tammy,

Honey it is here to stay! Not only does Leukemia make you tired

but so do the drugs that keep us alive. I used to run on about 4

hours of sleep, if I got more I felt terrible but 4 was just right

and I ran around and did stuff all day! Nowwwww I am lucky to be

awake four hours at a time!! EVERYTHING makes me tired, walking to

the car, walking up the steps, sweeping and mopping the floor almost

kill me. That i the one side effect of both that drives me crazy I am

tired alllll the time. I just told my son last nite that when I saw

my Neur. next month (he has CML also and is very sympathetic) I was

going to ask him to give me something I could take in the mornings

that would keep me awake ALL day. Sorry to tell you but good luck

with it!

Hugs,

>

> Is this the new normal? It sucks!!! Since DX in Aug.... I was

recovering

> from surgery. Then I was into marital problems, then holidays. So,

yeah, I

> was tired - but there was a reason. Jan, Feb and March didn't bring

much

> activity. April and May and now that it is starting to warm up... I

can't

> " DO " things that require more than a few hours. I went to help at

my

> daughter's school on Fri. from 11 - 2. By 1:30 I was wondering when

it would

> be over. I got home at 2:30 and slept until 6:00! Today we went and

walked

> around downtown from 1-3. And I came home and slept for 2 hours.

Does this

> mean I'm a wimp? Is this normal? Do I actually have to PLAN to be

totally

> exhausted after 2-3 hours of activities? Wouldn't this mean an

amusement

> park is out of the question? About a month ago, we did go to a

science

> museaum, where we watched a movie, walked around and then watched a

> different movie. Then went to walk around a mall. I was tired, but

not

> totally exhausted, though I did sleep in the car on the way home.

But the

> past couple weeks - tired!

>

> Is there something else I should be doing? I see the onc in about 2

weeks,

> I'll mention it to her. But it just doesn't seem like a 36 yo

should be this

> tired. Or is this one of those side effects that just showed up and

will

> hopefully disappear again.

>

> Sorry I'm so negative. On the way home today when had to change

plans so I

> could lay down, I heard the frustrated " OK " sighs of the 13 and 8

yos. Along

> with my own frustration, theirs made it worse.

>

> Tammy

>

> <http://geo./serv?

s=97359714/grpId=14762801/grpspId=1705061628/msgI

> d=10140/stime=1212338651/nc1=5191945/nc2=5191951/nc3=4507179>

>

June 3, 2008

My grandmother has had CML for about two years now and she had gotten down very

low. Just could hold her head up. She was in and out of the emergency room and

finally on one of her ER visits a local doctor did a thyroid test and found out

that she has a toxic multinodual goiter(hyper-thyroidism). It had run her

completely down and now she is on medicine and is still pretty weak but, doing

much better. I really didn't think she was going to make it. She is being

referred to an endocrinologist now. I say this to let everyone know to get

theirs checked. I did not know anything about the thyroid until now. It can

cause big troubles!

--

Kristie Skipper

skipper3@...

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