Re: Letter to Senator/Representative

[Guest guest]

My letters are all addressed and ready to go into the mail.

[ ] Letter to Senator/Representative

Hi gang,

OK, we're not even close to 50 who've agreed to send a letter but I

can't let those down that have agreed so I did write a letter and it's

in the " Files " section on the website for the list. It's called

" Advocacy Letter for list.doc " . You should be able to download this

to your own computer (double click on the file, then " Save as " to your

computer). If that doesn't work, open it up and copy and paste to a

document on your computer. Here's what you need to do:

Find out who your 2 senators and 1 representative are. Find your

senators and their addresses using http://

directory.usayfoundation.org/ and find your representative using this

link https://forms.house.gov/wyr/welcome.shtml

Change the name and address information in the letter, the salutation,

and your own name and address on the bottom. Also change anything in

the body of the letter that you want. Or elaborate on your own

personal story if you like--just try to keep the letter to one page as

that's kind of a rule of thumb for these types of letters.

Print and sign your letters.

Address an envelope for each letter and mail the 3 letters.

Let me know that you've sent the letters and I will let the LLS know

that you've done this. They would love to know that patients out

there are getting involved.

If anyone needs help with any of this, please feel free to email me on

the list or privately--I'll be happy to help in any way I can.

Thanks so much for the help of everyone who is doing this. Believe me

it really does make a difference. We are alive because others have

fought for funding for research in the past and we really do need to

get involved if we want to find a cure.

Best wishes,

Dorothy Emery

[Guest guest]

Thanks so much! Can you tell me who your senators and representative

are so I can put them in a list and tell the advocacy group at LLS who

got a letter?

Thanks again.

Dorothy

On Apr 13, 2008, at 11:24 AM, careynkarl@... wrote:

> My letters are all addressed and ready to go into the mail.

>

> [ ] Letter to Senator/Representative

>

> Hi gang,

>

> OK, we're not even close to 50 who've agreed to send a letter but I

> can't let those down that have agreed so I did write a letter and it's

> in the " Files " section on the website for the list. It's called

> " Advocacy Letter for list.doc " . You should be able to download this

> to your own computer (double click on the file, then " Save as " to your

> computer). If that doesn't work, open it up and copy and paste to a

> document on your computer. Here's what you need to do:

>

> Find out who your 2 senators and 1 representative are. Find your

> senators and their addresses using http://

> directory.usayfoundation.org/ and find your representative using this

> link https://forms.house.gov/wyr/welcome.shtml

>

> Change the name and address information in the letter, the salutation,

> and your own name and address on the bottom. Also change anything in

> the body of the letter that you want. Or elaborate on your own

> personal story if you like--just try to keep the letter to one page as

> that's kind of a rule of thumb for these types of letters.

>

> Print and sign your letters.

>

> Address an envelope for each letter and mail the 3 letters.

>

> Let me know that you've sent the letters and I will let the LLS know

> that you've done this. They would love to know that patients out

> there are getting involved.

>

> If anyone needs help with any of this, please feel free to email me on

> the list or privately--I'll be happy to help in any way I can.

>

> Thanks so much for the help of everyone who is doing this. Believe me

> it really does make a difference. We are alive because others have

> fought for funding for research in the past and we really do need to

> get involved if we want to find a cure.

>

> Best wishes,

> Dorothy Emery

>

>

[Guest guest]

Hi Dorothy,

Again, I would like to thank you for all the hard work you are doing.

I put my letters to both senators and state representative in the mail

this morning so you can mark me off your list.

Please let me know if there is anything else I can do to assist.

Blessings,

Don Adkins

>

> Hi gang,

>

> OK, we're not even close to 50 who've agreed to send a letter but I

> can't let those down that have agreed so I did write a letter and it's

> in the " Files " section on the website for the list. It's called

> " Advocacy Letter for list.doc " . You should be able to download this

> to your own computer (double click on the file, then " Save as " to your

> computer). If that doesn't work, open it up and copy and paste to a

> document on your computer. Here's what you need to do:

>

> Find out who your 2 senators and 1 representative are. Find your

> senators and their addresses using http://

> directory.usayfoundation.org/ and find your representative using this

> link https://forms.house.gov/wyr/welcome.shtml

>

> Change the name and address information in the letter, the salutation,

> and your own name and address on the bottom. Also change anything in

> the body of the letter that you want. Or elaborate on your own

> personal story if you like--just try to keep the letter to one page as

> that's kind of a rule of thumb for these types of letters.

>

> Print and sign your letters.

>

> Address an envelope for each letter and mail the 3 letters.

>

> Let me know that you've sent the letters and I will let the LLS know

> that you've done this. They would love to know that patients out

> there are getting involved.

>

> If anyone needs help with any of this, please feel free to email me on

> the list or privately--I'll be happy to help in any way I can.

>

> Thanks so much for the help of everyone who is doing this. Believe me

> it really does make a difference. We are alive because others have

> fought for funding for research in the past and we really do need to

> get involved if we want to find a cure.

>

> Best wishes,

> Dorothy Emery

>

[Guest guest]

My Senators are Burr and Dole.? So far I have sent one letter

to Representative Virginia Foxx but I will get letters out to the rest of the NC

Reps too.

Thank you so much again for putting the letter together for us!

Carey

[ ] Letter to Senator/Representative

>

> Hi gang,

>

> OK, we're not even close to 50 who've agreed to send a letter but I

> can't let those down that have agreed so I did write a letter and it's

> in the " Files " section on the website for the list. It's called

> " Advocacy Letter for list.doc " . You should be able to download this

> to your own computer (double click on the file, then " Save as " to your

> computer). If that doesn't work, open it up and copy and paste to a

> document on your computer. Here's what you need to do:

>

> Find out who your 2 senators and 1 representative are. Find your

> senators and their addresses using http://

> directory.usayfoundation.org/ and find your representative using this

> link https://forms.house.gov/wyr/welcome.shtml

>

> Change the name and address information in the letter, the salutation,

> and your own name and address on the bottom. Also change anything in

> the body of the letter that you want. Or elaborate on your own

> personal story if you like--just try to keep the letter to one page as

> that's kind of a rule of thumb for these types of letters.

>

> Print and sign your letters.

>

> Address an envelope for each letter and mail the 3 letters.

>

> Let me know that you've sent the letters and I will let the LLS know

> that you've done this. They would love to know that patients out

> there are getting involved.

>

> If anyone needs help with any of this, please feel free to email me on

> the list or privately--I'll be happy to help in any way I can.

>

> Thanks so much for the help of everyone who is doing this. Believe me

> it really does make a difference. We are alive because others have

> fought for funding for research in the past and we really do need to

> get involved if we want to find a cure.

>

> Best wishes,

> Dorothy Emery

>

>

[Guest guest]

Hi Carey,

You only need to send to one representative--only the one for the

district in which you live.

This is the link to find your representative:

https://forms.house.gov/wyr/welcome.shtml

You put in your state and zip code and it gives the name and address

of your own representative.

BTW, we live in the same state--I'm in North Carolina as well. I'm

north of Charlotte (Lake Norman)--where are you?

Dorothy

On Apr 14, 2008, at 9:19 AM, careynkarl@... wrote:

> My Senators are Burr and Dole.? So far I have sent

> one letter to Representative Virginia Foxx but I will get letters

> out to the rest of the NC Reps too.

>

> Thank you so much again for putting the letter together for us!

>

> Carey

>

> [ ] Letter to Senator/Representative

> >

> > Hi gang,

> >

> > OK, we're not even close to 50 who've agreed to send a letter but I

> > can't let those down that have agreed so I did write a letter and

> it's

> > in the " Files " section on the website for the list. It's called

> > " Advocacy Letter for list.doc " . You should be able to download this

> > to your own computer (double click on the file, then " Save as " to

> your

> > computer). If that doesn't work, open it up and copy and paste to a

> > document on your computer. Here's what you need to do:

> >

> > Find out who your 2 senators and 1 representative are. Find your

> > senators and their addresses using http://

> > directory.usayfoundation.org/ and find your representative using

> this

> > link https://forms.house.gov/wyr/welcome.shtml

> >

> > Change the name and address information in the letter, the

> salutation,

> > and your own name and address on the bottom. Also change anything in

> > the body of the letter that you want. Or elaborate on your own

> > personal story if you like--just try to keep the letter to one

> page as

> > that's kind of a rule of thumb for these types of letters.

> >

> > Print and sign your letters.

> >

> > Address an envelope for each letter and mail the 3 letters.

> >

> > Let me know that you've sent the letters and I will let the LLS know

> > that you've done this. They would love to know that patients out

> > there are getting involved.

> >

> > If anyone needs help with any of this, please feel free to email

> me on

> > the list or privately--I'll be happy to help in any way I can.

> >

> > Thanks so much for the help of everyone who is doing this. Believe

> me

> > it really does make a difference. We are alive because others have

> > fought for funding for research in the past and we really do need to

> > get involved if we want to find a cure.

> >

> > Best wishes,

> > Dorothy Emery

> >

> >

[Guest guest]

Hi Don,

Thanks so much for sending the letters! What state are you in and who

is your representative? I'm putting together a list of which senators/

congressmen got letters so I can let the LLS advocacy group know.

They like to know when they have this kind of support.

Best wishes,

Dorothy

On Apr 14, 2008, at 8:24 AM, Don Adkins wrote:

> Hi Dorothy,

>

> Again, I would like to thank you for all the hard work you are doing.

>

> I put my letters to both senators and state representative in the mail

> this morning so you can mark me off your list.

>

> Please let me know if there is anything else I can do to assist.

>

> Blessings,

> Don Adkins

>

>

> >

> > Hi gang,

> >

> > OK, we're not even close to 50 who've agreed to send a letter but I

> > can't let those down that have agreed so I did write a letter and

> it's

> > in the " Files " section on the website for the list. It's called

> > " Advocacy Letter for list.doc " . You should be able to download this

> > to your own computer (double click on the file, then " Save as " to

> your

> > computer). If that doesn't work, open it up and copy and paste to a

> > document on your computer. Here's what you need to do:

> >

> > Find out who your 2 senators and 1 representative are. Find your

> > senators and their addresses using http://

> > directory.usayfoundation.org/ and find your representative using

> this

> > link https://forms.house.gov/wyr/welcome.shtml

> >

> > Change the name and address information in the letter, the

> salutation,

> > and your own name and address on the bottom. Also change anything in

> > the body of the letter that you want. Or elaborate on your own

> > personal story if you like--just try to keep the letter to one

> page as

> > that's kind of a rule of thumb for these types of letters.

> >

> > Print and sign your letters.

> >

> > Address an envelope for each letter and mail the 3 letters.

> >

> > Let me know that you've sent the letters and I will let the LLS know

> > that you've done this. They would love to know that patients out

> > there are getting involved.

> >

> > If anyone needs help with any of this, please feel free to email

> me on

> > the list or privately--I'll be happy to help in any way I can.

> >

> > Thanks so much for the help of everyone who is doing this. Believe

> me

> > it really does make a difference. We are alive because others have

> > fought for funding for research in the past and we really do need to

> > get involved if we want to find a cure.

> >

> > Best wishes,

> > Dorothy Emery

> >

>

>

>

[Guest guest]

Hi Dorothy, I sent letters to Senators Sherrod Brown, and Voinovich and

representative Dennis Kusinich. Bobby

Dorothy Emery <doemery@...> wrote: Hi Carey,

You only need to send to one representative--only the one for the

district in which you live.

This is the link to find your representative:

https://forms.house.gov/wyr/welcome.shtml

You put in your state and zip code and it gives the name and address

of your own representative.

BTW, we live in the same state--I'm in North Carolina as well. I'm

north of Charlotte (Lake Norman)--where are you?

Dorothy

On Apr 14, 2008, at 9:19 AM, careynkarl@... wrote:

> My Senators are Burr and Dole.? So far I have sent

> one letter to Representative Virginia Foxx but I will get letters

> out to the rest of the NC Reps too.

>

> Thank you so much again for putting the letter together for us!

>

> Carey

>

> [ ] Letter to Senator/Representative

> >

> > Hi gang,

> >

> > OK, we're not even close to 50 who've agreed to send a letter but I

> > can't let those down that have agreed so I did write a letter and

> it's

> > in the " Files " section on the website for the list. It's called

> > " Advocacy Letter for list.doc " . You should be able to download this

> > to your own computer (double click on the file, then " Save as " to

> your

> > computer). If that doesn't work, open it up and copy and paste to a

> > document on your computer. Here's what you need to do:

> >

> > Find out who your 2 senators and 1 representative are. Find your

> > senators and their addresses using http://

> > directory.usayfoundation.org/ and find your representative using

> this

> > link https://forms.house.gov/wyr/welcome.shtml

> >

> > Change the name and address information in the letter, the

> salutation,

> > and your own name and address on the bottom. Also change anything in

> > the body of the letter that you want. Or elaborate on your own

> > personal story if you like--just try to keep the letter to one

> page as

> > that's kind of a rule of thumb for these types of letters.

> >

> > Print and sign your letters.

> >

> > Address an envelope for each letter and mail the 3 letters.

> >

> > Let me know that you've sent the letters and I will let the LLS know

> > that you've done this. They would love to know that patients out

> > there are getting involved.

> >

> > If anyone needs help with any of this, please feel free to email

> me on

> > the list or privately--I'll be happy to help in any way I can.

> >

> > Thanks so much for the help of everyone who is doing this. Believe

> me

> > it really does make a difference. We are alive because others have

> > fought for funding for research in the past and we really do need to

> > get involved if we want to find a cure.

> >

> > Best wishes,

> > Dorothy Emery

> >

> >

[Guest guest]

Hi Dorothy,

I live in Aurora, Colorado and my state rep is Tom Tancredo. Two

state senators are Ken Salazar and Wayne Allard.

Healing thoughts your way,

Don

> > >

> > > Hi gang,

> > >

> > > OK, we're not even close to 50 who've agreed to send a letter but I

> > > can't let those down that have agreed so I did write a letter and

> > it's

> > > in the " Files " section on the website for the list. It's called

> > > " Advocacy Letter for list.doc " . You should be able to download this

> > > to your own computer (double click on the file, then " Save as " to

> > your

> > > computer). If that doesn't work, open it up and copy and paste to a

> > > document on your computer. Here's what you need to do:

> > >

> > > Find out who your 2 senators and 1 representative are. Find your

> > > senators and their addresses using http://

> > > directory.usayfoundation.org/ and find your representative using

> > this

> > > link https://forms.house.gov/wyr/welcome.shtml

> > >

> > > Change the name and address information in the letter, the

> > salutation,

> > > and your own name and address on the bottom. Also change anything in

> > > the body of the letter that you want. Or elaborate on your own

> > > personal story if you like--just try to keep the letter to one

> > page as

> > > that's kind of a rule of thumb for these types of letters.

> > >

> > > Print and sign your letters.

> > >

> > > Address an envelope for each letter and mail the 3 letters.

> > >

> > > Let me know that you've sent the letters and I will let the LLS know

> > > that you've done this. They would love to know that patients out

> > > there are getting involved.

> > >

> > > If anyone needs help with any of this, please feel free to email

> > me on

> > > the list or privately--I'll be happy to help in any way I can.

> > >

> > > Thanks so much for the help of everyone who is doing this. Believe

> > me

> > > it really does make a difference. We are alive because others have

> > > fought for funding for research in the past and we really do need to

> > > get involved if we want to find a cure.

> > >

> > > Best wishes,

> > > Dorothy Emery

> > >

> >

> >

> >

>

>

>

>

[Guest guest]

Thank you so much for the help Dorothy, my Rep is Sue Myrick. I will get a

letter off to her ASAP.

I cannot believe you live in Lake Norman!! I live in NE Charlotte right on the

burg boarder.

[ ] Letter to Senator/Representative

> >

> > Hi gang,

> >

> > OK, we're not even close to 50 who've agreed to send a letter but I

> > can't let those down that have agreed so I did write a letter and

> it's

> > in the " Files " section on the website for the list. It's called

> > " Advocacy Letter for list.doc " . You should be able to download this

> > to your own computer (double click on the file, then " Save as " to

> your

> > computer). If that doesn't work, open it up and copy and paste to a

> > document on your computer. Here's what you need to do:

> >

> > Find out who your 2 senators and 1 representative are. Find your

> > senators and their addresses using http://

> > directory.usayfoundation.org/ and find your representative using

> this

> > link https://forms.house.gov/wyr/welcome.shtml

> >

> > Change the name and address information in the letter, the

> salutation,

> > and your own name and address on the bottom. Also change anything in

> > the body of the letter that you want. Or elaborate on your own

> > personal story if you like--just try to keep the letter to one

> page as

> > that's kind of a rule of thumb for these types of letters.

> >

> > Print and sign your letters.

> >

> > Address an envelope for each letter and mail the 3 letters.

> >

> > Let me know that you've sent the letters and I will let the LLS know

> > that you've done this. They would love to know that patients out

> > there are getting involved.

> >

> > If anyone needs help with any of this, please feel free to email

> me on

> > the list or privately--I'll be happy to help in any way I can.

> >

> > Thanks so much for the help of everyone who is doing this. Believe

> me

> > it really does make a difference. We are alive because others have

> > fought for funding for research in the past and we really do need to

> > get involved if we want to find a cure.

> >

> > Best wishes,

> > Dorothy Emery

> >

> >

[Guest guest]

Hi Bobby,

Thanks so much!

Dorothy

On Apr 14, 2008, at 1:03 PM, ROBERTA DOYLE wrote:

> Hi Dorothy, I sent letters to Senators Sherrod Brown, and

> Voinovich and representative Dennis Kusinich. Bobby

>

> Dorothy Emery <doemery@...> wrote: Hi Carey,

>

> You only need to send to one representative--only the one for the

> district in which you live.

> This is the link to find your representative:

> https://forms.house.gov/wyr/welcome.shtml

>

> You put in your state and zip code and it gives the name and address

> of your own representative.

>

> BTW, we live in the same state--I'm in North Carolina as well. I'm

> north of Charlotte (Lake Norman)--where are you?

>

> Dorothy

>

> On Apr 14, 2008, at 9:19 AM, careynkarl@... wrote:

>

> > My Senators are Burr and Dole.? So far I have sent

> > one letter to Representative Virginia Foxx but I will get letters

> > out to the rest of the NC Reps too.

> >

> > Thank you so much again for putting the letter together for us!

> >

> > Carey

> >

> > [ ] Letter to Senator/Representative

> > >

> > > Hi gang,

> > >

> > > OK, we're not even close to 50 who've agreed to send a letter

> but I

> > > can't let those down that have agreed so I did write a letter and

> > it's

> > > in the " Files " section on the website for the list. It's called

> > > " Advocacy Letter for list.doc " . You should be able to download

> this

> > > to your own computer (double click on the file, then " Save as " to

> > your

> > > computer). If that doesn't work, open it up and copy and paste

> to a

> > > document on your computer. Here's what you need to do:

> > >

> > > Find out who your 2 senators and 1 representative are. Find your

> > > senators and their addresses using http://

> > > directory.usayfoundation.org/ and find your representative using

> > this

> > > link https://forms.house.gov/wyr/welcome.shtml

> > >

> > > Change the name and address information in the letter, the

> > salutation,

> > > and your own name and address on the bottom. Also change

> anything in

> > > the body of the letter that you want. Or elaborate on your own

> > > personal story if you like--just try to keep the letter to one

> > page as

> > > that's kind of a rule of thumb for these types of letters.

> > >

> > > Print and sign your letters.

> > >

> > > Address an envelope for each letter and mail the 3 letters.

> > >

> > > Let me know that you've sent the letters and I will let the LLS

> know

> > > that you've done this. They would love to know that patients out

> > > there are getting involved.

> > >

> > > If anyone needs help with any of this, please feel free to email

> > me on

> > > the list or privately--I'll be happy to help in any way I can.

> > >

> > > Thanks so much for the help of everyone who is doing this. Believe

> > me

> > > it really does make a difference. We are alive because others have

> > > fought for funding for research in the past and we really do

> need to

> > > get involved if we want to find a cure.

> > >

> > > Best wishes,

> > > Dorothy Emery

> > >

> > >

[Guest guest]

Well it looks like we are practically neighbors! I live in Denver. I

visited with Sue Myrick's office last Tuesday in Washington and she is

very helpful. She will like to get the letter. Thanks so much, Carey.

Dorothy

On Apr 14, 2008, at 2:08 PM, careynkarl@... wrote:

>

> Thank you so much for the help Dorothy, my Rep is Sue Myrick. I will

> get a letter off to her ASAP.

>

> I cannot believe you live in Lake Norman!! I live in NE Charlotte

> right on the burg boarder.

>

> [ ] Letter to Senator/Representative

> > >

> > > Hi gang,

> > >

> > > OK, we're not even close to 50 who've agreed to send a letter

> but I

> > > can't let those down that have agreed so I did write a letter and

> > it's

> > > in the " Files " section on the website for the list. It's called

> > > " Advocacy Letter for list.doc " . You should be able to download

> this

> > > to your own computer (double click on the file, then " Save as " to

> > your

> > > computer). If that doesn't work, open it up and copy and paste

> to a

> > > document on your computer. Here's what you need to do:

> > >

> > > Find out who your 2 senators and 1 representative are. Find your

> > > senators and their addresses using http://

> > > directory.usayfoundation.org/ and find your representative using

> > this

> > > link https://forms.house.gov/wyr/welcome.shtml

> > >

> > > Change the name and address information in the letter, the

> > salutation,

> > > and your own name and address on the bottom. Also change

> anything in

> > > the body of the letter that you want. Or elaborate on your own

> > > personal story if you like--just try to keep the letter to one

> > page as

> > > that's kind of a rule of thumb for these types of letters.

> > >

> > > Print and sign your letters.

> > >

> > > Address an envelope for each letter and mail the 3 letters.

> > >

> > > Let me know that you've sent the letters and I will let the LLS

> know

> > > that you've done this. They would love to know that patients out

> > > there are getting involved.

> > >

> > > If anyone needs help with any of this, please feel free to email

> > me on

> > > the list or privately--I'll be happy to help in any way I can.

> > >

> > > Thanks so much for the help of everyone who is doing this. Believe

> > me

> > > it really does make a difference. We are alive because others have

> > > fought for funding for research in the past and we really do

> need to

> > > get involved if we want to find a cure.

> > >

> > > Best wishes,

> > > Dorothy Emery

> > >

> > >

[Guest guest]

Dorothy ~

Thank you so much for writing the letter! I have sent my three

letters out today to our two Michigan senators and my representative.

Phyllis in MI

dx 2003

> >

> > >

> > > Hi gang,

> > >

> > > OK, we're not even close to 50 who've agreed to send a letter

but I

> > > can't let those down that have agreed so I did write a letter

and

> > it's

> > > in the " Files " section on the website for the list. It's called

> > > " Advocacy Letter for list.doc " . You should be able to download

this

> > > to your own computer (double click on the file, then " Save as "

to

> > your

> > > computer). If that doesn't work, open it up and copy and paste

to a

> > > document on your computer. Here's what you need to do:

> > >

> > > Find out who your 2 senators and 1 representative are. Find

your

> > > senators and their addresses using http://

> > > directory.usayfoundation.org/ and find your representative

using

> > this

> > > link https://forms.house.gov/wyr/welcome.shtml

> > >

> > > Change the name and address information in the letter, the

> > salutation,

> > > and your own name and address on the bottom. Also change

anything in

> > > the body of the letter that you want. Or elaborate on your own

> > > personal story if you like--just try to keep the letter to

one

> > page as

> > > that's kind of a rule of thumb for these types of letters.

> > >

> > > Print and sign your letters.

> > >

> > > Address an envelope for each letter and mail the 3 letters.

> > >

> > > Let me know that you've sent the letters and I will let the

LLS know

> > > that you've done this. They would love to know that patients

out

> > > there are getting involved.

> > >

> > > If anyone needs help with any of this, please feel free to

email

> > me on

> > > the list or privately--I'll be happy to help in any way I can.

> > >

> > > Thanks so much for the help of everyone who is doing this.

Believe

> > me

> > > it really does make a difference. We are alive because others

have

> > > fought for funding for research in the past and we really do

need to

> > > get involved if we want to find a cure.

> > >

> > > Best wishes,

> > > Dorothy Emery

> > >

> >

> >

> >

>

>

>

>

[Guest guest]

Hi Phyllis,

Thanks so much for doing this! Can you tell me how your

representative is?

Best wishes,

Dorothy

dx 2000

On Apr 14, 2008, at 8:10 PM, Phyllis wrote:

> Dorothy ~

> Thank you so much for writing the letter! I have sent my three

> letters out today to our two Michigan senators and my representative.

> Phyllis in MI

> dx 2003

>

> > >

> > > >

> > > > Hi gang,

> > > >

> > > > OK, we're not even close to 50 who've agreed to send a letter

> but I

> > > > can't let those down that have agreed so I did write a letter

> and

> > > it's

> > > > in the " Files " section on the website for the list. It's called

> > > > " Advocacy Letter for list.doc " . You should be able to download

> this

> > > > to your own computer (double click on the file, then " Save as "

> to

> > > your

> > > > computer). If that doesn't work, open it up and copy and paste

> to a

> > > > document on your computer. Here's what you need to do:

> > > >

> > > > Find out who your 2 senators and 1 representative are. Find

> your

> > > > senators and their addresses using http://

> > > > directory.usayfoundation.org/ and find your representative

> using

> > > this

> > > > link https://forms.house.gov/wyr/welcome.shtml

> > > >

> > > > Change the name and address information in the letter, the

> > > salutation,

> > > > and your own name and address on the bottom. Also change

> anything in

> > > > the body of the letter that you want. Or elaborate on your own

> > > > personal story if you like--just try to keep the letter to

> one

> > > page as

> > > > that's kind of a rule of thumb for these types of letters.

> > > >

> > > > Print and sign your letters.

> > > >

> > > > Address an envelope for each letter and mail the 3 letters.

> > > >

> > > > Let me know that you've sent the letters and I will let the

> LLS know

> > > > that you've done this. They would love to know that patients

> out

> > > > there are getting involved.

> > > >

> > > > If anyone needs help with any of this, please feel free to

> email

> > > me on

> > > > the list or privately--I'll be happy to help in any way I can.

> > > >

> > > > Thanks so much for the help of everyone who is doing this.

> Believe

> > > me

> > > > it really does make a difference. We are alive because others

> have

> > > > fought for funding for research in the past and we really do

> need to

> > > > get involved if we want to find a cure.

> > > >

> > > > Best wishes,

> > > > Dorothy Emery

> > > >

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

Dorothy ~ My representative is Thaddeus McCotter, and Michigan's two

senators are Carl Levin and Debbie Stabenow.

Phyllis

In , Dorothy Emery <doemery@...> wrote:

>

> Hi Phyllis,

>

> Thanks so much for doing this! Can you tell me how your

> representative is?

>

> Best wishes,

> Dorothy

> dx 2000

>

> On Apr 14, 2008, at 8:10 PM, Phyllis wrote:

>

> > Dorothy ~

> > Thank you so much for writing the letter! I have sent my three

> > letters out today to our two Michigan senators and my

representative.

> > Phyllis in MI

> > dx 2003

> >

> > > >

> > > > >

> > > > > Hi gang,

> > > > >

> > > > > OK, we're not even close to 50 who've agreed to send a

letter

> > but I

> > > > > can't let those down that have agreed so I did write a

letter

> > and

> > > > it's

> > > > > in the " Files " section on the website for the list. It's

called

> > > > > " Advocacy Letter for list.doc " . You should be able to

download

> > this

> > > > > to your own computer (double click on the file, then " Save

as "

> > to

> > > > your

> > > > > computer). If that doesn't work, open it up and copy and

paste

> > to a

> > > > > document on your computer. Here's what you need to do:

> > > > >

> > > > > Find out who your 2 senators and 1 representative are. Find

> > your

> > > > > senators and their addresses using http://

> > > > > directory.usayfoundation.org/ and find your representative

> > using

> > > > this

> > > > > link https://forms.house.gov/wyr/welcome.shtml

> > > > >

> > > > > Change the name and address information in the letter, the

> > > > salutation,

> > > > > and your own name and address on the bottom. Also change

> > anything in

> > > > > the body of the letter that you want. Or elaborate on your

own

> > > > > personal story if you like--just try to keep the letter to

> > one

> > > > page as

> > > > > that's kind of a rule of thumb for these types of letters.

> > > > >

> > > > > Print and sign your letters.

> > > > >

> > > > > Address an envelope for each letter and mail the 3 letters.

> > > > >

> > > > > Let me know that you've sent the letters and I will let the

> > LLS know

> > > > > that you've done this. They would love to know that

patients

> > out

> > > > > there are getting involved.

> > > > >

> > > > > If anyone needs help with any of this, please feel free to

> > email

> > > > me on

> > > > > the list or privately--I'll be happy to help in any way I

can.

> > > > >

> > > > > Thanks so much for the help of everyone who is doing this.

> > Believe

> > > > me

> > > > > it really does make a difference. We are alive because

others

> > have

> > > > > fought for funding for research in the past and we really

do

> > need to

> > > > > get involved if we want to find a cure.

> > > > >

> > > > > Best wishes,

> > > > > Dorothy Emery

> > > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

>

> > My letters are all addressed and ready to go into the mail.

> >

> > [ ] Letter to Senator/Representative

> >

> > Hi gang,

> >

> > OK, we're not even close to 50 who've agreed to send a letter but

I

> > can't let those down that have agreed so I did write a letter and

it's

> > in the " Files " section on the website for the list. It's called

> > " Advocacy Letter for list.doc " . You should be able to download

this

> > to your own computer (double click on the file, then " Save as " to

your

> > computer). If that doesn't work, open it up and copy and paste to

a

> > document on your computer. Here's what you need to do:

> >

> > Find out who your 2 senators and 1 representative are. Find your

> > senators and their addresses using http://

> > directory.usayfoundation.org/ and find your representative using

this

> > link https://forms.house.gov/wyr/welcome.shtml

> >

> > Change the name and address information in the letter, the

salutation,

> > and your own name and address on the bottom. Also change anything

in

> > the body of the letter that you want. Or elaborate on your own

> > personal story if you like--just try to keep the letter to one

page as

> > that's kind of a rule of thumb for these types of letters.

> >

> > Print and sign your letters.

> >

> > Address an envelope for each letter and mail the 3 letters.

> >

> > Let me know that you've sent the letters and I will let the LLS

know

> > that you've done this. They would love to know that patients out

> > there are getting involved.

> >

> > If anyone needs help with any of this, please feel free to email

me on

> > the list or privately--I'll be happy to help in any way I can.

> >

> > Thanks so much for the help of everyone who is doing this.

Believe me

> > it really does make a difference. We are alive because others have

> > fought for funding for research in the past and we really do need

to

> > get involved if we want to find a cure.

> >

> > Best wishes,

> > Dorothy Emery

> >

> >

[Guest guest]

My rep is Abney Culberson and the two senators are Kay Hutchison and

Cornyn for Houston, Texas

My letters are in the mail today so are my daughters and my dad.

My dad's rep for Pasadena, Texas is Honorable Gene Green and he has the same

senators as myself.

[ ] Letter to Senator/Representative

Hi gang,

OK, we're not even close to 50 who've agreed to send a letter but I

can't let those down that have agreed so I did write a letter and it's

in the " Files " section on the website for the list. It's called

" Advocacy Letter for list.doc " . You should be able to download this

to your own computer (double click on the file, then " Save as " to your

computer). If that doesn't work, open it up and copy and paste to a

document on your computer. Here's what you need to do:

Find out who your 2 senators and 1 representative are. Find your

senators and their addresses using http://

directory.usayfound ation.org/ and find your representative using this

link https://forms. house.gov/ wyr/welcome. shtml

Change the name and address information in the letter, the salutation,

and your own name and address on the bottom. Also change anything in

the body of the letter that you want. Or elaborate on your own

personal story if you like--just try to keep the letter to one page as

that's kind of a rule of thumb for these types of letters.

Print and sign your letters.

Address an envelope for each letter and mail the 3 letters.

Let me know that you've sent the letters and I will let the LLS know

that you've done this. They would love to know that patients out

there are getting involved.

If anyone needs help with any of this, please feel free to email me on

the list or privately--I' ll be happy to help in any way I can.

Thanks so much for the help of everyone who is doing this. Believe me

it really does make a difference. We are alive because others have

fought for funding for research in the past and we really do need to

get involved if we want to find a cure.

Best wishes,

Dorothy Emery

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Thanks so much, Anita! I'm so glad you got your daughter and dad to

participate as well.

Best wishes,

Dorothy

On Apr 17, 2008, at 3:50 PM, anita wrote:

> My rep is Abney Culberson and the two senators are Kay

> Hutchison and Cornyn for Houston, Texas

> My letters are in the mail today so are my daughters and my dad.

> My dad's rep for Pasadena, Texas is Honorable Gene Green and he has

> the same senators as myself.

>

> [ ] Letter to Senator/Representative

>

> Hi gang,

>

> OK, we're not even close to 50 who've agreed to send a letter but I

> can't let those down that have agreed so I did write a letter and it's

> in the " Files " section on the website for the list. It's called

> " Advocacy Letter for list.doc " . You should be able to download this

> to your own computer (double click on the file, then " Save as " to your

> computer). If that doesn't work, open it up and copy and paste to a

> document on your computer. Here's what you need to do:

>

> Find out who your 2 senators and 1 representative are. Find your

> senators and their addresses using http://

> directory.usayfound ation.org/ and find your representative using this

> link https://forms. house.gov/ wyr/welcome. shtml

>

> Change the name and address information in the letter, the salutation,

> and your own name and address on the bottom. Also change anything in

> the body of the letter that you want. Or elaborate on your own

> personal story if you like--just try to keep the letter to one page as

> that's kind of a rule of thumb for these types of letters.

>

> Print and sign your letters.

>

> Address an envelope for each letter and mail the 3 letters.

>

> Let me know that you've sent the letters and I will let the LLS know

> that you've done this. They would love to know that patients out

> there are getting involved.

>

> If anyone needs help with any of this, please feel free to email me on

> the list or privately--I' ll be happy to help in any way I can.

>

> Thanks so much for the help of everyone who is doing this. Believe me

> it really does make a difference. We are alive because others have

> fought for funding for research in the past and we really do need to

> get involved if we want to find a cure.

>

> Best wishes,

> Dorothy Emery

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

[Guest guest]

Dorthy thank you so much for all the time and effort you have put to this.

I know only good can come out of it.

God Bless you

Anita

Re: [ ] Letter to Senator/Representative

Thanks so much, Anita! I'm so glad you got your daughter and dad to

participate as well.

Best wishes,

Dorothy

...

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ