Re: where is the web site? Letter to Senator/Representative

[Guest guest]

careynkarl@... wrote: My letters are all addressed and ready to go

into the mail.

[ ] Letter to Senator/Representative

Hi gang,

OK, we're not even close to 50 who've agreed to send a letter but I

can't let those down that have agreed so I did write a letter and it's

in the " Files " section on the website for the list. It's called

" Advocacy Letter for list.doc " . You should be able to download this

to your own computer (double click on the file, then " Save as " to your

computer). If that doesn't work, open it up and copy and paste to a

document on your computer. Here's what you need to do:

Find out who your 2 senators and 1 representative are. Find your

senators and their addresses using http://

directory.usayfoundation.org/ and find your representative using this

link https://forms.house.gov/wyr/welcome.shtml

Change the name and address information in the letter, the salutation,

and your own name and address on the bottom. Also change anything in

the body of the letter that you want. Or elaborate on your own

personal story if you like--just try to keep the letter to one page as

that's kind of a rule of thumb for these types of letters.

Print and sign your letters.

Address an envelope for each letter and mail the 3 letters.

Let me know that you've sent the letters and I will let the LLS know

that you've done this. They would love to know that patients out

there are getting involved.

If anyone needs help with any of this, please feel free to email me on

the list or privately--I'll be happy to help in any way I can.

Thanks so much for the help of everyone who is doing this. Believe me

it really does make a difference. We are alive because others have

fought for funding for research in the past and we really do need to

get involved if we want to find a cure.

Best wishes,

Dorothy Emery

[Guest guest]

For those of you who don't read online here's the link for the

website where you can find the letter:

/?yguid=55763903

You might have to sign in if you haven't been there for a while (I

hope you remember your password). Look for a link that says Sign In

if you aren't logged in. Then over on the left click on the " Files "

link. Then you should see the file called " Advocacy letter for the

list " . If you can't figure out how to get to the website and the

letter--here's what the letter says:

4/14/08

The Honorable Dole

United States Senate

555 Dirksen Office Building

Washington, DC 20510

Dear Senator Dole: (or Dear Representative xxxx)

As a leukemia survivor I strongly urge you to support the public

policy initiatives of The Leukemia & Lymphoma Society. I was

diagnosed with Chronic myelogenous leukemia (CML) and am alive today

because of our country’s willingness in the past to invest in basic

research at the NIH and NCI. Before 2001 when the drug Gleevec came

on the market, my disease was considered “invariably fatal” as it had

a very low survival rate. Now the survival rate at 5 years is over

90%. I know first-hand how very important medical research is and I

urge you to do everything possible to assure that we will not fall

further behind in research funding. The discovery of Gleevec would

not have been possible without 40 years of basic research done

primarily by labs funded through the NIH and NCI. There remains much

work to be done and I am very concerned about the decreased purchasing

power of the NIH and NCI since 2003. I ask that you support at least

a 6.5% increase in funding for the NIH and a 9.5% increase for the NCI.

The negative effects of the decreased purchasing power over the past

few years at the NIH and NCI are being felt in various ways.

The percentage of successful grant applications has dropped from 1 in

3 to 1 in 4. Many are funded only after prolonged delays and

burdensome reapplications.

Young researchers are leaving the field. We are losing a whole

generation of medical researchers who see no future in medical

research. The average age of NIH grantees has risen from 39 to 51 in

the last 25 years.

Patients in clinical trials in the Community Oncology Program have

been reduced by 800 slowing progress toward new treatments.

Surely this isn’t good for cancer patients, our biotech industry, or

the overall prosperity of our country. We all benefit from medical

research when our tax dollars are used to add years to our lives and

the lives of our loved ones. Please help stop the decline of medical

research. Thank you so much for your support in this area.

Your Name

Your street address

City, State 28037

You could copy and paste from this email or copy and write the letters.

I hope this helps.

Dorothy

On Apr 13, 2008, at 4:58 PM, Fiol wrote:

>

>

> careynkarl@... wrote: My letters are all addressed and ready to

> go into the mail.

>

> [ ] Letter to Senator/Representative

>

> Hi gang,

>

> OK, we're not even close to 50 who've agreed to send a letter but I

> can't let those down that have agreed so I did write a letter and it's

> in the " Files " section on the website for the list. It's called

> " Advocacy Letter for list.doc " . You should be able to download this

> to your own computer (double click on the file, then " Save as " to your

> computer). If that doesn't work, open it up and copy and paste to a

> document on your computer. Here's what you need to do:

>

> Find out who your 2 senators and 1 representative are. Find your

> senators and their addresses using http://

> directory.usayfoundation.org/ and find your representative using this

> link https://forms.house.gov/wyr/welcome.shtml

>

> Change the name and address information in the letter, the salutation,

> and your own name and address on the bottom. Also change anything in

> the body of the letter that you want. Or elaborate on your own

> personal story if you like--just try to keep the letter to one page as

> that's kind of a rule of thumb for these types of letters.

>

> Print and sign your letters.

>

> Address an envelope for each letter and mail the 3 letters.

>

> Let me know that you've sent the letters and I will let the LLS know

> that you've done this. They would love to know that patients out

> there are getting involved.

>

> If anyone needs help with any of this, please feel free to email me on

> the list or privately--I'll be happy to help in any way I can.

>

> Thanks so much for the help of everyone who is doing this. Believe me

> it really does make a difference. We are alive because others have

> fought for funding for research in the past and we really do need to

> get involved if we want to find a cure.

>

> Best wishes,

> Dorothy Emery

>

>