Letter to Senator/Representative

April 13, 2008

Hi gang,

OK, we're not even close to 50 who've agreed to send a letter but I

can't let those down that have agreed so I did write a letter and it's

in the " Files " section on the website for the list. It's called

" Advocacy Letter for list.doc " . You should be able to download this

to your own computer (double click on the file, then " Save as " to your

computer). If that doesn't work, open it up and copy and paste to a

document on your computer. Here's what you need to do:

Find out who your 2 senators and 1 representative are. Find your

senators and their addresses using http://

directory.usayfoundation.org/ and find your representative using this

Change the name and address information in the letter, the salutation,

and your own name and address on the bottom. Also change anything in

the body of the letter that you want. Or elaborate on your own

personal story if you like--just try to keep the letter to one page as

that's kind of a rule of thumb for these types of letters.

Print and sign your letters.

Address an envelope for each letter and mail the 3 letters.

Let me know that you've sent the letters and I will let the LLS know

that you've done this. They would love to know that patients out

there are getting involved.

If anyone needs help with any of this, please feel free to email me on

the list or privately--I'll be happy to help in any way I can.

Thanks so much for the help of everyone who is doing this. Believe me

it really does make a difference. We are alive because others have

fought for funding for research in the past and we really do need to

get involved if we want to find a cure.

Best wishes,

Dorothy Emery

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