Re: [CMLHope] Re: Oldies newbies the least BMAs

[Guest guest]

Hello Jeanie and all on the two lists..

I have been for a week trying to figure out

how many BMB's I have had... as far as I can figure

and this may be out 5% or so one way or the other..

if I had when first dx's about four.. and one a year

for 27 years that would be 31... then for the last

4 years when I first started Hydrea one.. to see where

my CML was and how active.. then then 3 more

over one year.. and once a month when I first when on

trial for Nilotinib for about 3 months, then every 3

months till now.. Nilotinib not approved as yet in

Canada so I am still on the trial.. well as far as I

can figure about 40+ or so.. at least... then for

blood it was twice week now for 3 years.. and

receiving platelets and Hgb I am sure glad for this

port-a-cath... but that is as close as I can come..

this is rough estimate.. wish I could be more accurate

To be truthful I just never gave it much thought, I

just do what I have to..

have a great day all

SkipD

dx'ed 30 ++++

--- ICANDOALLTTC@... wrote:

>

> Hi all, I've probably gotten the least BMA.

> I've only had 2 in the 4 years of CML.

> My last one I was put to sleep.

> Didn't feel a thing.

> As for sticks, haven't kept up with it.

> Blessings to all.

> Jeanie<3

> In a message dated 4/11/2008 5:49:27 P.M. Eastern

> Daylight Time,

> Myvety2k@... writes:

>

> Dave, You have me beat. In the last 9 years I've had

> somewhere around 23 to

> 25 of them. God only no's how many blood tests.

> Their was a time I didn't

> want to get married because you had to get a blood

> test. Things do change.

> Now the blood work is a piece of cake.

>

> Best wishes

>

> Dave (Greenie) Greenberg

>

>

>

>

>

>

>

> **************It's Tax Time! Get tips, forms and

> advice on AOL Money &

> Finance.

> (http://money.aol.com/tax?NCID=aolcmp00300000002850)

>

>

--~--~---------~--~----~------------~-------~--~----~

> [CMLHope]

> A support group of http://cmlhope.com

> -------------------------------------------------

>

> You received this message because you are subscribed

> to the Google Groups " CMLHope " group.

> To post to this group, send email to

> CMLHopegooglegroups

>

[Guest guest]

Did I read that correctly- Skip has had over 40 BMBs-

Yikes. I've had 2 in 1 year and hope not to need

another for a loooonnggggg time. Each CML er is

amazing but Skip you are a miracle!!!

Chi

--- Skip Duffie <skipd_2002@...> wrote:

> Hello Jeanie and all on the two lists..

> I have been for a week trying to figure out

> how many BMB's I have had... as far as I can figure

> and this may be out 5% or so one way or the other..

> if I had when first dx's about four.. and one a year

>

> for 27 years that would be 31... then for the last

> 4 years when I first started Hydrea one.. to see

> where

> my CML was and how active.. then then 3 more

> over one year.. and once a month when I first when

> on

> trial for Nilotinib for about 3 months, then every 3

> months till now.. Nilotinib not approved as yet in

> Canada so I am still on the trial.. well as far as I

> can figure about 40+ or so.. at least... then for

> blood it was twice week now for 3 years.. and

> receiving platelets and Hgb I am sure glad for this

> port-a-cath... but that is as close as I can come..

> this is rough estimate.. wish I could be more

> accurate

> To be truthful I just never gave it much thought, I

> just do what I have to..

> have a great day all

> SkipD

> dx'ed 30 ++++

>

> --- ICANDOALLTTC@... wrote:

>

> >

> > Hi all, I've probably gotten the least BMA.

> > I've only had 2 in the 4 years of CML.

> > My last one I was put to sleep.

> > Didn't feel a thing.

> > As for sticks, haven't kept up with it.

> > Blessings to all.

> > Jeanie<3

> > In a message dated 4/11/2008 5:49:27 P.M. Eastern

> > Daylight Time,

> > Myvety2k@... writes:

> >

> > Dave, You have me beat. In the last 9 years I've

> had

> > somewhere around 23 to

> > 25 of them. God only no's how many blood tests.

> > Their was a time I didn't

> > want to get married because you had to get a blood

> > test. Things do change.

> > Now the blood work is a piece of cake.

> >

> > Best wishes

> >

> > Dave (Greenie) Greenberg

> >

> >

> >

> >

> >

> >

> >

> > **************It's Tax Time! Get tips, forms and

> > advice on AOL Money &

> > Finance.

> >

> (http://money.aol.com/tax?NCID=aolcmp00300000002850)

> >

> >

>

--~--~---------~--~----~------------~-------~--~----~

> > [CMLHope]

> > A support group of http://cmlhope.com

> > -------------------------------------------------

> >

> > You received this message because you are

> subscribed

> > to the Google Groups " CMLHope " group.

> > To post to this group, send email to

> > CMLHopegooglegroups

> >