i need help here

[Guest guest]

hi every one,, i have a daughter , she is only 19 and its been a year now that

she have leukemia, cml, and she is on 170 a day of sprycel , and she wants to

drink alcool,, is that a good idea , did any of you drink once in a wild

@...: rodorbal@...: Sun, 20 Apr 2008

10:21:51 +1000Subject: RE: [ ] Welcome Christa - Birthday diagnosis

A big happy birthday Anita!Christa - welcome also, I was dx on my 50th birthday

last July, it seemslike a million light years away now.Regards, from

Downunder

[Guest guest]

I am not on Spyrcel, I am on Gleevec and as long as it keeps me in remission

I am staying on it despite the

side effects I have with it. So I cannot tell you much about the med she is

on. I would just make sure she understands she can't go party to hard. The

thing is I was 37 when I was first diagnoised and at the time I wanted to

fill normal again so I went to one of those Sci-Fi/horror conventions I used

to go to before I was dxed and started treatment. Well like and idiot I

drank Vodka the entire night trying as I said to " feel " normal again. Well

when I woke up the next day I could barely get out of bed. Granted I was

hung over, but it was way beyond that. I use to be able to over come a hang

over pretty easy. But this time I couldn't and ended up missing the other

two days of this event(wasted $38 bucks) and was useless for two days after.

It kills me when I hear of anyone so young that gets a dx like so many of us

have had in this group. So I would just pull her doctor to the side and ask

him. If he sees no problem let her drink on occasion(if you allowed it

before) and just watch her to make sure she does not over do it. Trust me if

she drinks one night and feels like I did the next day she will not want to

over do it again. Just from my own experience with CML is since I have

started treatment in 04 I can't work and am not able to do allot of things I

used to be able to do, so at first I would do anything to fill normal again.

I miss working, I miss the money I was making. Before things went to hell

for me I was making 40k about to make 60k. Now I have to rely on Social

Security because Aetna(the company that was paying me a suppliment to that)

has stopped paying because my mother's daughter made a claim on my Social

and so they lowered the amount to only $289 a month and will not be paying

me anything for 40 months to recoup the back pay she received.

Anyway I guess what I am saying is it was hard enough on me at 37 to sort of

lose part of myself so I cannot imagine what your poor daughter is going

through being dxed at 19. I think she just wants to feel normal again. I

could be way off here but that is what I think. Take care and I hope she is

doing well.

Terry Dailey

41 years old

Dxed April of 04

On Sun, Apr 20, 2008 at 6:00 PM, <vegasrnjen@...> wrote:

> I am on Spyrcel 100mg daily and am 36. I have a beer, glass of wine or a

>

> strawberry daiquiri 1-2 times a week. I am actually drinking a

> Chill

> right now. Its tasty!

> I haven't been told not to drink. I think in moderation its okay.

>

>

>

>

>

>

>

>

>

> In a message dated 4/20/2008 5:39:11 P.M. Central Daylight Time,

> jeanny-f@... <jeanny-f%40hotmail.com> writes:

>

> hi every one,, i have a daughter , she is only 19 and its been a year now

> that she have leukemia, cml, and she is on 170 a day of sprycel , and she

> wants

> to drink alcool,, is that a good idea , did any of you drink once in a

> wild

>

> _@... <_%40groups.>@ya_ (mailto:

> @... <%40From>) :

> _rodorbal@... <_rodorbal%40westvic.rodorbal>@w_ (mailto:

> rodorbal@... <rodorbal%40westvic.com.auDate>) : Sun, 20 Apr

> 2008

> 10:21:51 +1000Subject: RE: [ ] Welcome Christa - Birthday diagnosis

>

> A big happy birthday Anita!Christa - welcome also, I was dx on my 50th

> birthday last July, it seemslike a million light years away now.Regards,A

> big

> happy birthday AnitA big happy birthday Anita!Christa - welcome also, I

> was

>

> __________________________________________________________

> Try Chicktionary, a game that tests how many words you can form from the

> letters given. Find this and more puzzles at Live Search Games!

> _http://g.msn.http://g.ms_ <http://g.msn.http//g.ms_> (

> http://g.msn.ca/ca55/207)

>

>

[Guest guest]

In regards to alcohol, I don't believe it changes the drug ( gleevec or

tasigna or what ever you take) BUT drugs are processed through the

liver. So is alcohol. I think the worry is that there is possible

damage to the liver with both. That is my take on it.

I do have an occasional glass of chardonney but I think the long term

affects on the liver are the greater concern.

Be well,

Barb in AZ

>

> I am on Spyrcel 100mg daily and am 36. I have a beer, glass of wine or

a

> strawberry daiquiri 1-2 times a week. I am actually drinking a

Chill

> right now. Its tasty!

> I haven't been told not to drink. I think in moderation its okay.

>

>

>

>

>

>

>

>

>

> In a message dated 4/20/2008 5:39:11 P.M. Central Daylight Time,

> jeanny-f@... writes:

>

>

>

>

>

> hi every one,, i have a daughter , she is only 19 and its been a year

now

> that she have leukemia, cml, and she is on 170 a day of sprycel , and

she wants

> to drink alcool,, is that a good idea , did any of you drink once in a

wild

>

> _@...@ya_ (mailto:@...) :

> _rodorbal@...@w_ (mailto:rodorbal@...) : Sun, 20 Apr 2008

> 10:21:51 +1000Subject: RE: [ ] Welcome Christa - Birthday

diagnosis

>

> A big happy birthday Anita!Christa - welcome also, I was dx on my 50th

> birthday last July, it seemslike a million light years away

now.Regards,A big

> happy birthday AnitA big happy birthday Anita!Christa - welcome also,

I was

>

> __________________________________________________________

> Try Chicktionary, a game that tests how many words you can form from

the

> letters given. Find this and more puzzles at Live Search Games!

> _http://g.msn.http://g.ms_ (http://g.msn.ca/ca55/207)

>

>