RE: Jeannythanks lota jam

June 9, 2008

thanks for responding, all the letter i got made me feel way better, thank you

so much for caring,

one thing for sure,, she better live longer then me,, im selfish,, i would never

, i meen never be able to see one of my kids go aways from this planet, without

me going first,

i do wish it was me instead of her, it would be way easier on me, im having such

a hard time with this, i can not and will not acept that my daughter have

cancer, i know i have to deal with it, but dang,, its hard, she is my every

thing, we are best friend, we always talk about every thing, and she is very

very close to me, im her ideal of a mother , she loves me to death and i love

her to death, i have never had any thing wen i was young,, i had a ruff life,

but i have live true her like i would of love my life to be,, and beleive me she

is spoiled,, lol,, and still is,, even more now ,

thanks for caring and hope to ear from you again,

@...: lotajam@...: Sat, 7 Jun 2008 22:21:41

-0500Subject: [ ] Jeanny

Dear Jeanny,Please don't worry about your English, we understand you very well.

CML is universal, it doesn't matter where you live, it can happen to you or a

loved one any time. We are here for you to lean on.You can expect your daughter

to live a long life. With all the emerging treatments there is no reason to

believe otherwise. I will be 80 in July and I will also celebrate my 12th CML

anniversary. I just wanted to reassure you that it is possible to live a pretty

normal life, especially if it's caught and treated early. For most patients, the

first drug of choice is Gleevec because it has 10 years of information compiled

and for the most part, thousands of patients have benefited from it. There are

second generation drugs coming after Gleevec that is also helping patients who

do not respond to Gleevec. Now they are working on third generation of drugs

that will kill off the immature white cells. There are patients who have lived

with CML longer than me. Skip in Nova Scotia has been living 32 plus years, what

a fighter he is and what a trooper he is. Bobby has been around over 13 years

and there are many more, but they do not belong to this group, so take heart,

Jeanny, you will have your daughter for a long time. Your writing and asking

questions does not offend anyone, have no fear of that. Blessings and may you

find peace in your anxious moments,Lottie[Non-text portions of this message have

been removed]

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