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Sharon T

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Hi Sharon T,

I had intended the e-mail for Sharon S :) she said she did get it.

thanks though x

Donna x

> > >

> > > Hello group,

> > >

> > > I am recently diagnosed (April 2008) and have just completed my

> > first month on Gleevec 400, without any problematic side effects

> > (other than the puffy eyes)...so far. Maybe taking it with my

> morning

> > oatmeal does the trick!

> > >

> > > Diagnosis was seemingly by chance (as I am sure is true for

many)

> > and a real surprise. But I believe it was discovered early enough

to

> > give me reason to have a very positive outlook for the future.

> > >

> > > I do want to thank all of you who have traveled this path

before

> me.

> > If it were not for all your clinical trials and

experience....well,

> > thank you very much. Lucky to be diagnosed now and not 10 years

ago!

> > >

> > > And thank you for the discussion here about dealing with it all.

> > >

> > > By the way, I am 59 and a change-of-career graduate student,

> hoping

> > to finish a PhD within the next year (docs say that the CML

> shouldn't

> > hold me up very much).

> > >

> > > Thank you all,

> > > Martha B

> > >

> >

>

>

>

>

>

>

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  • 2 months later...

Thanks, you are right, it is :  www.imtooyoungforthis.org

I think I'm to old to be passing out info that isn't right!  thanks, Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840  -   Zavie's Zero Club

09/2006 -  out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

 

From: mtmaynor@... <mtmaynor@...>

Subject: Re: [ ] Sharon T

Date: Saturday, August 23, 2008, 12:55 PM

Thanks for that tidbit. I talk with some older

parents and see younger kids in some of the

specialty clinics and that is an awesome site

to share. However, are you sure it is not

_http://www.imtooyou ngforthis. org/_ (http://www.imtooyou ngforthis. org/) ?

Can you now find one that is something like

_www.iamttoooldforC ML.org_ (http://www.iamttooo ldforCML. org) ?

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 8/23/2008 11:54:38 A.M. Eastern Daylight Time,

rcd1929sbcglobal (DOT) net writes:

www.Imtooyoungforca www.Imto

************ **It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047)

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