Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 My understanding is that you should not utilize LDN with steroids. Aletha [low dose naltrexone] Steroids > can be used LDN with steroids? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 Although on paper steroids would seems to work against LDN Dr Bihari has found in practice they compliment eachother in times of relapse. When my husband took steroids Dr B recomended staying on the LDN for the duration. To recap .. my husband has PPMS and despite one pseudo relapse (old symptoms returned with vengeance) as a result of personal stress .. he has not one brand new symptom since starting LDN in september 2002. all the best www.marybradleybooks.com > can be used LDN with steroids? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Cherie, Do you have a heating pad? . . . If not, maybe soaking in a tub of hot water will help! Sterioids aren't good for your long term health. Have you been taking pain meds? Gentle stretches may help. . . I wish there was something quick and easy! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Cherie, If the prednisone was going to fix your pain permanently, I'd say go for it, despite that it is a terrible drug. The problem is that your symptoms are only going to return once the prednisone wears off. Then what will you do? At some point you need to detox and take care of yourself. You've come so far. Kenda > Hi girls - I know we talked about this before, but I am beginning to > get desperate again. I am in so much pain - I am allergic to all pain > killers, even the prescription one I was taking I am beginning to get > asthma from. I have Prednisone in my cupboard, and I know that within > hours I could be feeling better if I started a 10-day taper now. I know > it suppresses my immune system - I just don't know what to do. I feel > like a knife is jabbed into my shoulder blade and coming out the front > (which has always been my problem). I have no range of motion at all, > even sitting still hurts. I guess I just need some convincing why I > should not take a dose of steroids right now. I can't go back to the > rheumatologist, because he doesn't believe the source and wants to put > me on methotrexate permanently. I appreciate that you are always there > to help, and I know you have all been through this - and so much worse > probably, so I know you understand. > Thanks > Cherie > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > health care professionals. Consult your physician or licensed health care > professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. > Find out what the facts are, and make your own decisions about how to live a > happy life and how to work for a better world. " - Linus ing, two-time > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Cherie, I just got out of a hot tub soak. I feel a little better. I can only take darvocet, and I try to stay away from that as much as I can. Cherie <cheriesut@...> wrote: Hi girls - I know we talked about this before, but I am beginning to get desperate again. I am in so much pain - I am allergic to all pain killers, even the prescription one I was taking I am beginning to get asthma from. I have Prednisone in my cupboard, and I know that within hours I could be feeling better if I started a 10-day taper now. I know it suppresses my immune system - I just don't know what to do. I feel like a knife is jabbed into my shoulder blade and coming out the front (which has always been my problem). I have no range of motion at all, even sitting still hurts. I guess I just need some convincing why I should not take a dose of steroids right now. I can't go back to the rheumatologist, because he doesn't believe the source and wants to put me on methotrexate permanently. I appreciate that you are always there to help, and I know you have all been through this - and so much worse probably, so I know you understand.ThanksCherie Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi Cherie: I don't know how bad the pain is that you're going through right now, but I sure can relate to the `even sitting still hurts' and `stabbing pain' parts. I would try to stay away from the steroids as long as you can, certainly if you'd been on them for a longer period of time (or on and off again), but I don't know your history with Prednisone (yet). I am not a MD, so I don't know how bad a 10-day treatment of steroids will be for your system, but I do know Prednisone is not a great medicine when it comes to side effects. I just came of a 30 mg/day dose, which I have been taking since March. I am in a horrible amount of pain now too and very tired. The meds are also still in my cupboard. But I am not going back to the steroids!! I urge you not to do so either – please be strong. In the long term, you'll get all kinds of side effects, and it is really bad for your bones! I dislike all the nasty hair that has grown onto my face (especially jaws/ face) and also `down south' it's gone completely out of hand in a couple of months time! All hair has grown a lot on my arms/legs; except for my head (that wouldn't have been much of a problem ey, why don't you get side-effect with medication that is very WELCOME?!) I gained over 25 pounds (20 in the first month of using pred), mostly on my stomach – which is now FAT – and I always took pride in my super flat belly (I had a very athletic build, one of the reasons I did not have much breast tissue to begin with). I don't fit in most of my clothing anymore, and don't know if I can get rid of the weight. If it would have `cured' me than I surely would have felt less 'resentful' – but prednisone did not help taking away the origin of my pain at all (although it did some good for my lungs – my pulmonary tests have improved significantly). Other parts of my bod have changed too: in a couple of months, I totally lost the fat of my butt, so I look disproportioned in a way (or when compared to before starting Prednisone) My face is much fatter, though luckily I don't have a moon face, but anybody could develop one. My sweating has worsened a lot while on Prednisone. Luckily my bone density tested showed everything is fine in that department, but you have to make sure your intake of calcium is around 1500 mg a day (if you don't use that much, you have to take supplements). Cherie, please be strong and stay away from the Prednisone. One woman I know cannot get off it at all anymore – each time they lower the dose, she's in so much pain she really cannot stand it at all (screaming and yelling all the time), so they keep her on a higher dose constantly (she's treated at the Mayo at Rochester). I think the electrical blanket is a good advice – I cannot live without those at all! I sleep on them. Best are the ones where you can put a hot, wet towel in between the blanked and the painful spot – lie down and try to relax (I know it is extremely hard). I use velcro strips to attatch those to my neck and upperback/ shoulder area while typing e.g.. Hot tubs or shouwer are great too (I sometimes get nauseous though while taking a hot bath). I have to try to do some stretches still too. Let's say we both go lie on our hot wet electrical blankets for a while (or take a hot shower now) before trying to stretch our painful limbs/backs and necks just a little – even a slight /brief movement and we are still on our way of conquering this horrible disease, right?! Let's try and do this `together' in the next hour! Wishing you a lot of strength and less pain! Cheers, Audrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Audrey, I think the buddy system suggestion is awesome, very creative. Nothing motivates like having someone to do some stretches with, even if you're miles and miles away from Cherie. Cool idea!! Sis > > > Hi Cherie: > > I don't know how bad the pain is that you're going through right now, > but I sure can relate to the `even sitting still hurts' and `stabbing > pain' parts. I would try to stay away from the steroids as long as you > can, certainly if you'd been on them for a longer period of time (or > on and off again), but I don't know your history with Prednisone > (yet). I am not a MD, so I don't know how bad a 10-day treatment of > steroids will be for your system, but I do know Prednisone is not a > great medicine when it comes to side effects. > > I just came of a 30 mg/day dose, which I have been taking since March. > I am in a horrible amount of pain now too and very tired. The meds are > also still in my cupboard. But I am not going back to the steroids!! I > urge you not to do so either – please be strong. In the long term, > you'll get all kinds of side effects, and it is really bad for your > bones! > > I dislike all the nasty hair that has grown onto my face (especially > jaws/ face) and also `down south' it's gone completely out of hand in > a couple of months time! All hair has grown a lot on my arms/legs; > except for my head (that wouldn't have been much of a problem ey, why > don't you get side-effect with medication that is very WELCOME?!) > > I gained over 25 pounds (20 in the first month of using pred), mostly > on my stomach – which is now FAT – and I always took pride in my super > flat belly (I had a very athletic build, one of the reasons I did not > have much breast tissue to begin with). I don't fit in most of my > clothing anymore, and don't know if I can get rid of the weight. If it > would have `cured' me than I surely would have felt less 'resentful' – > but prednisone did not help taking away the origin of my pain at all > (although it did some good for my lungs – my pulmonary tests have > improved significantly). > > Other parts of my bod have changed too: in a couple of months, I > totally lost the fat of my butt, so I look disproportioned in a way > (or when compared to before starting Prednisone) > My face is much fatter, though luckily I don't have a moon face, but > anybody could develop one. > > My sweating has worsened a lot while on Prednisone. > > Luckily my bone density tested showed everything is fine in that > department, but you have to make sure your intake of calcium is around > 1500 mg a day (if you don't use that much, you have to take supplements). > > Cherie, please be strong and stay away from the Prednisone. One woman > I know cannot get off it at all anymore – each time they lower the > dose, she's in so much pain she really cannot stand it at all > (screaming and yelling all the time), so they keep her on a higher > dose constantly (she's treated at the Mayo at Rochester). > > I think the electrical blanket is a good advice – I cannot live > without those at all! I sleep on them. Best are the ones where you can > put a hot, wet towel in between the blanked and the painful spot – lie > down and try to relax (I know it is extremely hard). I use velcro > strips to attatch those to my neck and upperback/ shoulder area while > typing e.g.. Hot tubs or shouwer are great too (I sometimes get > nauseous though while taking a hot bath). > > I have to try to do some stretches still too. Let's say we both go > lie on our hot wet electrical blankets for a while (or take a hot > shower now) before trying to stretch our painful limbs/backs and necks > just a little – even a slight /brief movement and we are still on our > way of conquering this horrible disease, right?! Let's try and do this > `together' in the next hour! > > Wishing you a lot of strength and less pain! > > Cheers, > > Audrey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi Cherie, I'm sorry you've having such a tough time. I'll say a great big prayer for you tonight. Hang in there, you are so strong for all you've been through. Sis > Hi girls - I know we talked about this before, but I am beginning to > get desperate again. I am in so much pain - I am allergic to all pain > killers, even the prescription one I was taking I am beginning to get > asthma from. I have Prednisone in my cupboard, and I know that within > hours I could be feeling better if I started a 10-day taper now. I know > it suppresses my immune system - I just don't know what to do. I feel > like a knife is jabbed into my shoulder blade and coming out the front > (which has always been my problem). I have no range of motion at all, > even sitting still hurts. I guess I just need some convincing why I > should not take a dose of steroids right now. I can't go back to the > rheumatologist, because he doesn't believe the source and wants to put > me on methotrexate permanently. I appreciate that you are always there > to help, and I know you have all been through this - and so much worse > probably, so I know you understand. > Thanks > Cherie > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Okay - I won't do it. I guess I am getting impatient about healing. Everything is just so hard when you are in so much pain, isn't it? I have been sitting in a comfy chair with a heating pad - and my husband made me a cup of green tea. I just have so many things to do to take care of my family, and I hate being like an invalid. Audrey, thank you for the support. I haven't even welcomed you yet. I really appreciate that you shared - though I am sorry for what you are going through, it definitely makes me feel better to feel like we're all in this together. I want to feel like I've come so far to build up my immune system, with eating right and juicing, but the fact is that I don't feel it yet. I have to go try to get comfy again. You've all helped me resist them again. Thank you. Cherie > > > Hi Cherie: > > I don't know how bad the pain is that you're going through right now, > but I sure can relate to the `even sitting still hurts' and `stabbing > pain' parts. I would try to stay away from the steroids as long as you > can, certainly if you'd been on them for a longer period of time (or > on and off again), but I don't know your history with Prednisone > (yet). I am not a MD, so I don't know how bad a 10-day treatment of > steroids will be for your system, but I do know Prednisone is not a > great medicine when it comes to side effects. > > I just came of a 30 mg/day dose, which I have been taking since March. > I am in a horrible amount of pain now too and very tired. The meds are > also still in my cupboard. But I am not going back to the steroids!! I > urge you not to do so either – please be strong. In the long term, > you'll get all kinds of side effects, and it is really bad for your > bones! > > I dislike all the nasty hair that has grown onto my face (especially > jaws/ face) and also `down south' it's gone completely out of hand in > a couple of months time! All hair has grown a lot on my arms/legs; > except for my head (that wouldn't have been much of a problem ey, why > don't you get side-effect with medication that is very WELCOME?!) > > I gained over 25 pounds (20 in the first month of using pred), mostly > on my stomach – which is now FAT – and I always took pride in my super > flat belly (I had a very athletic build, one of the reasons I did not > have much breast tissue to begin with). I don't fit in most of my > clothing anymore, and don't know if I can get rid of the weight. If it > would have `cured' me than I surely would have felt less 'resentful' – > but prednisone did not help taking away the origin of my pain at all > (although it did some good for my lungs – my pulmonary tests have > improved significantly). > > Other parts of my bod have changed too: in a couple of months, I > totally lost the fat of my butt, so I look disproportioned in a way > (or when compared to before starting Prednisone) > My face is much fatter, though luckily I don't have a moon face, but > anybody could develop one. > > My sweating has worsened a lot while on Prednisone. > > Luckily my bone density tested showed everything is fine in that > department, but you have to make sure your intake of calcium is around > 1500 mg a day (if you don't use that much, you have to take supplements). > > Cherie, please be strong and stay away from the Prednisone. One woman > I know cannot get off it at all anymore – each time they lower the > dose, she's in so much pain she really cannot stand it at all > (screaming and yelling all the time), so they keep her on a higher > dose constantly (she's treated at the Mayo at Rochester). > > I think the electrical blanket is a good advice – I cannot live > without those at all! I sleep on them. Best are the ones where you can > put a hot, wet towel in between the blanked and the painful spot – lie > down and try to relax (I know it is extremely hard). I use velcro > strips to attatch those to my neck and upperback/ shoulder area while > typing e.g.. Hot tubs or shouwer are great too (I sometimes get > nauseous though while taking a hot bath). > > I have to try to do some stretches still too. Let's say we both go > lie on our hot wet electrical blankets for a while (or take a hot > shower now) before trying to stretch our painful limbs/backs and necks > just a little – even a slight /brief movement and we are still on our > way of conquering this horrible disease, right?! Let's try and do this > `together' in the next hour! > > Wishing you a lot of strength and less pain! > > Cheers, > > Audrey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Thanks Sis, so are you. I like the buddy idea too. Cherie > > Hi girls - I know we talked about this before, but I am > beginning to > > get desperate again. I am in so much pain - I am allergic to all > pain > > killers, even the prescription one I was taking I am beginning to > get > > asthma from. I have Prednisone in my cupboard, and I know that > within > > hours I could be feeling better if I started a 10-day taper now. I > know > > it suppresses my immune system - I just don't know what to do. I > feel > > like a knife is jabbed into my shoulder blade and coming out the > front > > (which has always been my problem). I have no range of motion at > all, > > even sitting still hurts. I guess I just need some convincing why > I > > should not take a dose of steroids right now. I can't go back to > the > > rheumatologist, because he doesn't believe the source and wants to > put > > me on methotrexate permanently. I appreciate that you are always > there > > to help, and I know you have all been through this - and so much > worse > > probably, so I know you understand. > > Thanks > > Cherie > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given > by licensed health care professionals. Consult your physician or > licensed health care professional before commencing any medical > treatment. > > > > " Do not let either the medical authorities or the politicians > mislead you. Find out what the facts are, and make your own > decisions about how to live a happy life and how to work for a > better world. " - Linus ing, two-time Nobel Prize Winner (1954, > Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for access at this link: > > http://.shutterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Cherie I am really sorry that you are experiencing all this pain. Try to hang in there and keep off the steroids. I know at times I would do anything to get out of pain so I know how you feel. I am praying for you. love, Kathy --- In , " Cherie " <cheriesut@y...> wrote: > > Hi girls - I know we talked about this before, but I am beginning to > get desperate again. I am in so much pain - I am allergic to all pain > killers, even the prescription one I was taking I am beginning to get > asthma from. I have Prednisone in my cupboard, and I know that within > hours I could be feeling better if I started a 10-day taper now. I know > it suppresses my immune system - I just don't know what to do. I feel > like a knife is jabbed into my shoulder blade and coming out the front > (which has always been my problem). I have no range of motion at all, > even sitting still hurts. I guess I just need some convincing why I > should not take a dose of steroids right now. I can't go back to the > rheumatologist, because he doesn't believe the source and wants to put > me on methotrexate permanently. I appreciate that you are always there > to help, and I know you have all been through this - and so much worse > probably, so I know you understand. > Thanks > Cherie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Audrey, Thank you so much for sharing your experience with Prednisone. I think we need to be reminded over and over again how nasty this drug can be, even though it seems like a godsend at times when suffering from so much pain. Your explanation of what it has done to you is about the most clearest one I have seen yet. Again, thank you for taking the time to share that. It is so important. I never took steroids, but I was also very fortunate that I did not suffer the pain that so many of you have. I know that pain can be absolutely debilitating to an unbearable degree. In fact, sadly, I know an implant victim here in Las Vegas who died from an overdose of pain medication,and she was in unrelenting pain from her implants. Hearing about her death was like getting kicked in the gut. And she left two small children. I wish this pain was not a part of the implant experience for some women, and even more, I wish we had answers for those that do suffer. We have some suggestions, (such as coffee enemas that have a reputation of reducing pain considerably), and detoxing in general should help, but each woman has to find her own comfort zone. Take care, Patty > > > Hi Cherie: > > I don't know how bad the pain is that you're going through right now, > but I sure can relate to the `even sitting still hurts' and `stabbing > pain' parts. I would try to stay away from the steroids as long as you > can, certainly if you'd been on them for a longer period of time (or > on and off again), but I don't know your history with Prednisone > (yet). I am not a MD, so I don't know how bad a 10-day treatment of > steroids will be for your system, but I do know Prednisone is not a > great medicine when it comes to side effects. > > I just came of a 30 mg/day dose, which I have been taking since March. > I am in a horrible amount of pain now too and very tired. The meds are > also still in my cupboard. But I am not going back to the steroids!! I > urge you not to do so either – please be strong. In the long term, > you'll get all kinds of side effects, and it is really bad for your > bones! > > I dislike all the nasty hair that has grown onto my face (especially > jaws/ face) and also `down south' it's gone completely out of hand in > a couple of months time! All hair has grown a lot on my arms/legs; > except for my head (that wouldn't have been much of a problem ey, why > don't you get side-effect with medication that is very WELCOME?!) > > I gained over 25 pounds (20 in the first month of using pred), mostly > on my stomach – which is now FAT – and I always took pride in my super > flat belly (I had a very athletic build, one of the reasons I did not > have much breast tissue to begin with). I don't fit in most of my > clothing anymore, and don't know if I can get rid of the weight. If it > would have `cured' me than I surely would have felt less 'resentful' – > but prednisone did not help taking away the origin of my pain at all > (although it did some good for my lungs – my pulmonary tests have > improved significantly). > > Other parts of my bod have changed too: in a couple of months, I > totally lost the fat of my butt, so I look disproportioned in a way > (or when compared to before starting Prednisone) > My face is much fatter, though luckily I don't have a moon face, but > anybody could develop one. > > My sweating has worsened a lot while on Prednisone. > > Luckily my bone density tested showed everything is fine in that > department, but you have to make sure your intake of calcium is around > 1500 mg a day (if you don't use that much, you have to take supplements). > > Cherie, please be strong and stay away from the Prednisone. One woman > I know cannot get off it at all anymore – each time they lower the > dose, she's in so much pain she really cannot stand it at all > (screaming and yelling all the time), so they keep her on a higher > dose constantly (she's treated at the Mayo at Rochester). > > I think the electrical blanket is a good advice – I cannot live > without those at all! I sleep on them. Best are the ones where you can > put a hot, wet towel in between the blanked and the painful spot – lie > down and try to relax (I know it is extremely hard). I use velcro > strips to attatch those to my neck and upperback/ shoulder area while > typing e.g.. Hot tubs or shouwer are great too (I sometimes get > nauseous though while taking a hot bath). > > I have to try to do some stretches still too. Let's say we both go > lie on our hot wet electrical blankets for a while (or take a hot > shower now) before trying to stretch our painful limbs/backs and necks > just a little – even a slight /brief movement and we are still on our > way of conquering this horrible disease, right?! Let's try and do this > `together' in the next hour! > > Wishing you a lot of strength and less pain! > > Cheers, > > Audrey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 > > Hi, my name is Kortney. I have not posted here before but I have been learning a lot so thanks to all of you. After hearing what all of you had to say and reading on my own I have decided to go on LDN for RRMS. My family doctor was very receptive to it and he did his own research. He prescribed it for me a couple of weeks ago. I found a compounding pharmacy in New York. Unfortunately the weather and stress got to me and the day I got my LDN in the mail I had to go on Solumedrol, and now I am tapering off with prednisone. I go off of the prednisone next week. My question is do I need to wait a few days before going on the LDN or can I start it the next day? > > Thanks to everyone for all of your help, > Kortney > ========= You can start LDN tonight if you like. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 > > Hi, my name is Kortney. I have not posted here before but I have been learning a lot so thanks to all of you. After hearing what all of you had to say and reading on my own I have decided to go on LDN for RRMS. My family doctor was very receptive to it and he did his own research. He prescribed it for me a couple of weeks ago. I found a compounding pharmacy in New York. Unfortunately the weather and stress got to me and the day I got my LDN in the mail I had to go on Solumedrol, and now I am tapering off with prednisone. I go off of the prednisone next week. My question is do I need to wait a few days before going on the LDN or can I start it the next day? > > Thanks to everyone for all of your help, > Kortney > ========= You can start LDN tonight if you like. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Hi, Gee, I was so happy to have Dr. Talpaz take me off all those steroids. Now my GP has put me on 10 mg, X 6,5,4,3,2,1 for 6 days, for the bronchial infection. Also a steroid inhalator, so here I am back with the jitters and UGLY TEMPER, even the dog leaves the room when my voice starts to get loud. I am off to a Mother's Day dinner with one of my daughters, her boy friend and his mom, I hope I manage to manage myself according to the rules of how to manage yourself in public when out to dinner with your kids, and are on steroids and have a numb tongue!! tee hee love, Bobby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 sorry bout that but this isnt the same thing In a message dated 3/2/2011 7:41:36 P.M. Eastern Standard Time, kdeanstudios@... writes: My friend's son had mold illness, WDB, CRIS, and apergillas in the sinuses. The Dr did not know better , and gave him steroids, it caused the aspergillas to go invasive, lost bone, and organ failure do to toxic overload. May not live. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 I am so sorry for this . That is truly sad. This is why it is so important that physicians be educated about this subject. God Bless !! dragonflymcs Mayleen ________________________________ From: carondeen <kdeanstudios@...> Sent: Wed, March 2, 2011 7:39:04 PM Subject: [] Re: Death Sentence My friend's son had mold illness, WDB, CRIS, and apergillas in the sinuses. The Dr did not know better , and gave him steroids, it caused the aspergillas to go invasive, lost bone, and organ failure do to toxic overload. May not live. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Here is an article I found : Chronic Obstructive Pulmonary Disease (COPD) are increasingly being prescribed inhaled corticosteroids to control exacerbations of the disease, but a new study finds that the anti-inflammatory drugs increase the chances that these patients will be hospitalized for pneumonia. " In a large cohort of patients with COPD, we found that current inhaled corticosteroid use was associated with a significant 70 percent increase in the risk of being hospitalized for pneumonia, " said the researchers. " Furthermore, for the severest pneumonias leading to death within 30 days of hospitalization, the risk with current inhaled corticosteroid use was also significantly increased. " In their report, the researchers noted that the admission rate for pneumonia increased with higher doses of inhaled steroids and that reduction in risk was observed once the medications were stopped. Among all patients taking inhaled steroids, there was a 53 percent increase in pneumonia deaths within 30 days of being admitted to the hospital. The investigators noted that these findings are particularly relevant, given that pneumonia is the third leading cause of hospitalization in the United States and that inhaled corticosteroid use among patients with COPD increased from 13.2 to 41.4 percent from 1987 to 1995. " Adverse effects of inhaled corticosteroids in patients with COPD, " the authors said, " are particularly troublesome given the limited evidence for their efficacy. http://www.sciencedaily.com/releases/2007/07/070716132725.htm God Bless !! dragonflymcs Mayleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Did he tell you why you're on steroids? Is it because of adrenal insufficiency? I had almost no cortisol in my body and had to take replacement cortisone. If you have adrenal insufficiency, you also should have an MRI of your pituitary gland. I just had a very large tumor removed that caused me almost to die and was pressing on my optic nerve. My eyesight miraculously has returned. I'm being monitored by an endocrinologist now for hormonal levels. It's mostly the steroid inhalers that can be dangerous if you have COPD. Yes, prednisone is not a good drug to take, but in cases like mine, it was a life saver and necessary just to live. May I ask why you were hospitalized? I wound up in ER in excruciating pain due to lack of cortisol. Barth www.presenting.net/sbs/sbs.html SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html --- Copyright 2011. The content of this post is considered the property of the author and shall not be reproduced, copied, or shared with another e-mail list, public forum, or individual without the written permission of the author. All rights reserved. j> Can anyone tall me the harm that steroids does to us mold sufferers? I am hospitalized right now and have a steroid doctor taking care of me. Steroids do nothing but harm to me and he doesn't,t j> get or won,t even do research on the subject. I just fired him, but what harm do the steroids do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 PAtricia, are you still on replacement cortisol? ________________________ On 2011-03-07 11:51:11 +1100 Patilla DaHun <glypella@...> wrote: > > Did he tell you why you're on steroids? Is it because of adrenal > insufficiency? I had almost no cortisol in my body and had to take > replacement cortisone. If you have adrenal insufficiency, you also > should have an MRI of your pituitary gland. I just had a very large > tumor removed that caused me almost to die and was pressing on my > optic nerve. My eyesight miraculously has returned. I'm being > monitored by an endocrinologist now for hormonal levels. > > It's mostly the steroid inhalers that can be dangerous if you have > COPD. Yes, prednisone is not a good drug to take, but in cases like > mine, it was a life saver and necessary just to live. > > May I ask why you were hospitalized? I wound up in ER in excruciating > pain due to lack of cortisol. > > Barth > > www.presenting.net/sbs/sbs.html > > SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html > > --- > Copyright 2011. The content of this post is considered the property > of the author and shall not be reproduced, copied, or shared with > another e-mail list, public forum, or individual without the written > permission of the author. All rights reserved. > > > j> Can anyone tall me the harm that steroids does to us mold sufferers? I am > hospitalized right now and have a steroid doctor taking care of me. Steroids > do nothing but harm to me and he doesn't,t > j> get or won,t even do research on the subject. I just fired him, but what > harm do the steroids do? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 It is not the steroid inhalers if you have COPD. It is not just that, It is the fact we have CIRS that affects us. That it can lead to invasive aspergillosis ot some other invasive fungus or discriminated fugal form. What is the name of the steroid you were taking ?? Prednisone ?? God Bless !! dragonflymcs Mayleen ________________________________ From: Patilla DaHun <glypella@...> jodirego < > Sent: Sun, March 6, 2011 6:48:03 PM Subject: Re: [] Steroids Did he tell you why you're on steroids? Is it because of adrenal insufficiency? I had almost no cortisol in my body and had to take replacement cortisone. If you have adrenal insufficiency, you also should have an MRI of your pituitary gland. I just had a very large tumor removed that caused me almost to die and was pressing on my optic nerve. My eyesight miraculously has returned. I'm being monitored by an endocrinologist now for hormonal levels. It's mostly the steroid inhalers that can be dangerous if you have COPD. Yes, prednisone is not a good drug to take, but in cases like mine, it was a life saver and necessary just to live. May I ask why you were hospitalized? I wound up in ER in excruciating pain due to lack of cortisol. Barth www.presenting.net/sbs/sbs.html SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html --- Copyright 2011. The content of this post is considered the property of the author and shall not be reproduced, copied, or shared with another e-mail list, public forum, or individual without the written permission of the author. All rights reserved. j> Can anyone tall me the harm that steroids does to us mold sufferers? I am hospitalized right now and have a steroid doctor taking care of me. Steroids do nothing but harm to me and he doesn't,t j> get or won,t even do research on the subject. I just fired him, but what harm do the steroids do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 again I am on prednisone right now as my asthma is out of control. It keeps me breathing Janet ps only a short course I havent used it in two years In a message dated 3/6/2011 11:26:19 P.M. Eastern Standard Time, deb172@... writes: You may want to consult with Dr. Shoemaker or contact them via the Surviving Mold website (www.survivingmold.com). P 68 of his book, Surviving Mold states " one reason that I've used the expression 'giving cortisol to these patients is like throwing gasoline on the fire,' is that extra cortisol taken by mouth in the form of prednisone or hydrocortisone or Quote Link to comment Share on other sites More sharing options...
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