RE: O'neal

[Guest guest]

I certainly hope he is still taking the pill!!!!

Uninformed obviously

Sharon

_____

From: [mailto: ] On Behalf Of Lottie

Duthu

Sent: Saturday, May 10, 2008 9:45 AM

CML

Subject: [ ] O'neal

Dear China,

Odd that you mentioned O'neal. He and Farrah are back together, taking

care of each other. I saw his daughter Tatum on a TV show and when asked

about he father, she said he took and pill and was cured. That must have

been when he stopped taking Gleevec believing he could stop taking his meds.

Shows how much communication they have with each other. LOL. I think we are

fortunate that we have each other to dialogue with and understand the

pitfalls of stopping our meds. Seems he was of the world, but not in the

world, that he thought he was different from the rest of us We know we have

to continually take our Gleevec or whatever for the rest of our lives and

when a cure is found we will be among the first to know about it. Some

people must be born under a lucky star, they follow whatever the doctor

tells them to do without question and have lived for a long time. If I had

not taken my health back from the doctor in my first trial, I wouldn't be

here, so what happens to these patients who still don't know anything about

their disease and they are able to weather the storm of CML and fare better

than those who are diligent. Is it because they don't dwell on it and let

someone else worry about it?

It would be interesting to hear the stories about these exceptional people.

Blessings,

Lottie

[Guest guest]

My heart went out to in the documentary Farrah's Story and in Barbara

Walters interview. I did notice his Gleevec face immediately. Now more

than ever he needs a support group. I sure hope that he finds one soon. He

is grief is very deep.

On Sun, Jun 28, 2009 at 2:11 AM, Lottie Duthu <lotajam@...> wrote:

>

>

> I don't know if any of you noticed O'Neal's Gleevec face. He has put

> on weight, also. He is out there so much since Farah's illness and death.

> Not everyone knows he's on Gleevec or even know what Gleevec is or the side

> effects, but in his case, it is very evident to one who does. Considering

> all of that, he still looks good and who doesn't remember him in " Love

> Story " , where his wife in the movie, Ali McGraw died of leukemia. I get

> teary eyed just thinking of that movie. He had it all and just about lost it

> all.

> Hands & hearts,

> Lottie

>

>

[Guest guest]

I noticed the puffiness in his face immediately and wondered if it was due to

Gleevec. I had just learned a few weeks before that he has CML. My husband was

quick to remind me that he hasnt necessarily led the cleanist life style and

that could contribute to the puffiness as well. Ive only been on Gleevec 1 year

and yes i have gained weight but i keep thinking i need to control my diet

better. Is this to be expected? The weight gain and the round face?

Thanks,

Karyn

>

> I don't know if any of you noticed O'Neal's Gleevec face. He has put on

weight, also. He is out there so much since Farah's illness and death. Not

everyone knows he's on Gleevec or even know what Gleevec is or the side effects,

but in his case, it is very evident to one who does. Considering all of that,

he still looks good and who doesn't remember him in " Love Story " , where his wife

in the movie, Ali McGraw died of leukemia. I get teary eyed just thinking of

that movie. He had it all and just about lost it all.

> Hands & hearts,

> Lottie

>

>

[Guest guest]

I don't think that's necessarily so, although I've sure heard that complaint

from enough folks. And the man has abused his body something awful from what I

understand. Also, he may take other prescription drugs -- steroids tend to make

a person puffy.

From: karynt@...

Date: Mon, 29 Jun 2009 03:28:04 +0000

Subject: [ ] Re: O'Neal

I noticed the puffiness in his face immediately and wondered if it was due

to Gleevec. I had just learned a few weeks before that he has CML. My husband

was quick to remind me that he hasnt necessarily led the cleanist life style and

that could contribute to the puffiness as well. Ive only been on Gleevec 1 year

and yes i have gained weight but i keep thinking i need to control my diet

better. Is this to be expected? The weight gain and the round face?

Thanks,

Karyn

>

> I don't know if any of you noticed O'Neal's Gleevec face. He has put on

weight, also. He is out there so much since Farah's illness and death. Not

everyone knows he's on Gleevec or even know what Gleevec is or the side effects,

but in his case, it is very evident to one who does. Considering all of that,

he still looks good and who doesn't remember him in " Love Story " , where his wife

in the movie, Ali McGraw died of leukemia. I get teary eyed just thinking of

that movie. He had it all and just about lost it all.

> Hands & hearts,

> Lottie

>

>

[Guest guest]

I never had puffiness in my face while on Gleevec but I had a lot of other

crap!

Sharon

_____

From: [mailto: ] On Behalf Of

karynt@...

Sent: Sunday, June 28, 2009 8:28 PM

Subject: [ ] Re: O'Neal

I noticed the puffiness in his face immediately and wondered if it was due

to Gleevec. I had just learned a few weeks before that he has CML. My

husband was quick to remind me that he hasnt necessarily led the cleanist

life style and that could contribute to the puffiness as well. Ive only been

on Gleevec 1 year and yes i have gained weight but i keep thinking i need to

control my diet better. Is this to be expected? The weight gain and the

round face?

Thanks,

Karyn

>

> I don't know if any of you noticed O'Neal's Gleevec face. He has put

on weight, also. He is out there so much since Farah's illness and death.

Not everyone knows he's on Gleevec or even know what Gleevec is or the side

effects, but in his case, it is very evident to one who does. Considering

all of that, he still looks good and who doesn't remember him in " Love

Story " , where his wife in the movie, Ali McGraw died of leukemia. I get

teary eyed just thinking of that movie. He had it all and just about lost it

all.

> Hands & hearts,

> Lottie

>

>

[Guest guest]

Gee I never even knew he had CML. I saw him a while ago and was like a lot

of older Hollywood actors and just stacked the pounds on.

Regards,

From: [mailto: ] On Behalf Of Sharon

Teichera

Sent: Monday, 29 June 2009 4:17 PM

Subject: RE: [ ] Re: O'Neal

I never had puffiness in my face while on Gleevec but I had a lot of other

crap!

Sharon

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

karynt@... <mailto:karynt%40pacbell.net>

Sent: Sunday, June 28, 2009 8:28 PM

<mailto:%40>

Subject: [ ] Re: O'Neal

I noticed the puffiness in his face immediately and wondered if it was due

to Gleevec. I had just learned a few weeks before that he has CML. My

husband was quick to remind me that he hasnt necessarily led the cleanist

life style and that could contribute to the puffiness as well. Ive only been

on Gleevec 1 year and yes i have gained weight but i keep thinking i need to

control my diet better. Is this to be expected? The weight gain and the

round face?

Thanks,

Karyn

>

> I don't know if any of you noticed O'Neal's Gleevec face. He has put

on weight, also. He is out there so much since Farah's illness and death.

Not everyone knows he's on Gleevec or even know what Gleevec is or the side

effects, but in his case, it is very evident to one who does. Considering

all of that, he still looks good and who doesn't remember him in " Love

Story " , where his wife in the movie, Ali McGraw died of leukemia. I get

teary eyed just thinking of that movie. He had it all and just about lost it

all.

> Hands & hearts,

> Lottie

>

>

[Guest guest]

Ha ha ha! I'm jealous all right, you lucky stiff!

As for O'Neal, that man is complete CLOD.

On Thu, Oct 14, 2010 at 1:26 PM, Lottie Duthu <lotajam@...> wrote:

>

>

> Oh Pat, who didn't love that movie, LOVE STORY, and it's 40 years old -

> rather timeless. It certainly is ironic that O'Neal ended up with CML.

> I read the story of the woman whom the book was about. She didn't have CML

> and she didn't marry the author, but someone else and had a lovely family.

> She has come forth to say that she is the person the book was written about

> and the character playing the part in dying was his way of letting the

> romance die, too. Very interesting article. Here's the real " " story:

>

> http://tinyurl.com/

>

> Too bad that turned out to be a cad in my estimation. He claimed that

> Farah was the love of his life, but they didn't get back together until he

> came down with CML and I think she went to help him get through it and when

> she contracted anal cancer, he was there, but she had an old college

> boyfriend that she had been seeing, a man whom refused to allow to come

> to her funeral. I don't know how he could do that legally, they were never

> legally married.

>

> After all that transpired, people thought she would leave her money to

> and she didn't. Farrah reportedly updated her will in 2007, and left

> everything to her son, Redmond, which was worth approximately $5.5 million

> dollars at that time, a paltry sum. LOL. According to British tabloid the

> Mail, " Farrah appointed two trustees to make sure the money supports her

> son's journey into sobriety rather than giving him the means to destroy

> himself. Redmond's inheritance will be tightly controlled. "

>

> could be a powerful force to enlighten people about CML, but he seems

> to not be interested in pursuing that avenue. When I first saw his picture

> after he was diagnosed, my first impression was that he had a " Gleevec "

> face. I saw his daughter on TV and she flipplantly said he was " cured " . He

> said he was " cured " in interview, too, but has to take Gleevec every day of

> his life. How misinformed he is and if he belonged to a support group, such

> as this one, he would know a heck of a lot more.

>

> I asked my home health nurse to bring me a copy of my last week's CBC, but

> she forgot to give it to me, but while I had her on the phone, I asked what

> my wbc was and she said it was only 6.1 and the other counts looked good as

> well. I have a guest here (my son's dog) and we started talking about dogs

> and she forgot to give the the whole report. I guess the real story will be

> when I get my BMB next month. They will surely want that info as I start a

> new trial. They stopped just short of doing it at my last visit because they

> found out the contracts were not ready, so here I am, CML drug free since

> the end of April. Eat your hearts out. LOL

> Carpe Diem,

> Lottie Duthu

>

>

[Guest guest]

You know, that is so amazing, when you think about it Lottie because their

chances of being directly affected by 9/11 are nil, but their chances of

being affected by cancer are in the whopping percentages.

I mean, it's dear of them to raise money for those victims and I admire them

for it. But like you, I think it would be appropriate to direct some

attention to the very real cancer threat that so many face!

On Thu, Oct 14, 2010 at 2:34 PM, Lottie Duthu <lotajam@...> wrote:

>

>

> I think Virginia Garner has a story to tell about how uninterested is

> in getting the CML subject to patients and others as well. I think it is a

> slap in the face to all the people like Virginia in CA and Sue in AU, who

> work their butts off raising money for CML causes for LLS and others, when

> the rich and famous who are affected do little to nothing to even give it a

> nod. Their voices could be so powerful. Clooney raised billions for

> the people of 9/11. I don't want to take anything away from that group, but

> couldn't they do that for cancer as well? Stand Up For Cancer didn't rake in

> that kind of money. I think they received $100 million in pledges in 2008

> and let us remember that not everyone honors their pleges; that was evident

> in Haiti. I haven't found out how much they made in 2010, but I'm sure

> someone who is smarter than me will know.

> Carpe Diem,

> Lottie Duthu

>

>

[Guest guest]

> Lottie: I agree with you on everything you have said. It is so true about

pledges given, and who really honors them. Amounts that are pledged are not

always given. 9/11 will never be forgotten by any of us, and its tragic and sad

for those we lost, and for those who lost someone. Life goes on. O'Neil

could raise money for LLS to help them get further in their fight.

He does seem to be uninterested and uninformed as to how CML and the treatments

work.

Another thing too is that I do not know of any other cancer organization

that gives financial help each year to the patients who need financial help like

LLS. Maybe I just do not know who they are.

A lot of people do not like Rush Limbaugh, as he can be crude at times, but he

raises millions each year for LLS. He talks about CML and Gleevec a lot. He

has no family member with CML, but someone told him about all the money that LLS

gets and uses appropriately. That is why he started to help out. I searched

out that information about him, as I thought he may have a close relative with

CML.

A.

> I think Virginia Garner has a story to tell about how uninterested is in

getting the CML subject to patients and others as well. I think it is a slap in

the face to all the people like Virginia in CA and Sue in AU, who work their

butts off raising money for CML causes for LLS and others, when the rich and

famous who are affected do little to nothing to even give it a nod. Their

voices could be so powerful. Clooney raised billions for the people of

9/11. I don't want to take anything away from that group, but couldn't they do

that for cancer as well? Stand Up For Cancer didn't rake in that kind of money.

I think they received $100 million in pledges in 2008 and let us remember that

not everyone honors their pleges; that was evident in Haiti. I haven't found

out how much they made in 2010, but I'm sure someone who is smarter than me will

know.

> Carpe Diem,

> Lottie Duthu

>

>

[Guest guest]

That is usually what lights a fire under someone to speak up about a disease

and energetically raise funds. The station manager of a talk radio station

out in San Francisco, KGO, has a relative with leukemia and he has been an

aggressive fundraiser. Every year the station does a telethon and everyone

gets involved. Unfortunately they just got bought by a big conglomerate and

the station manager left feeling very demoralized by their ideas, so who

knows what will happen.

On Thu, Oct 14, 2010 at 4:38 PM, A <suzzienovember@...> wrote:

>

>

>

>

>

> > Lottie: I agree with you on everything you have said. It is so true about

> pledges given, and who really honors them. Amounts that are pledged are not

> always given. 9/11 will never be forgotten by any of us, and its tragic and

> sad for those we lost, and for those who lost someone. Life goes on.

> O'Neil could raise money for LLS to help them get further in their fight.

> He does seem to be uninterested and uninformed as to how CML and the

> treatments work.

> Another thing too is that I do not know of any other cancer organization

> that gives financial help each year to the patients who need financial help

> like LLS. Maybe I just do not know who they are.

> A lot of people do not like Rush Limbaugh, as he can be crude at times, but

> he raises millions each year for LLS. He talks about CML and Gleevec a lot.

> He has no family member with CML, but someone told him about all the money

> that LLS gets and uses appropriately. That is why he started to help out. I

> searched out that information about him, as I thought he may have a close

> relative with CML.

> A.

>

>

> > I think Virginia Garner has a story to tell about how uninterested

> is in getting the CML subject to patients and others as well. I think it is

> a slap in the face to all the people like Virginia in CA and Sue in AU, who

> work their butts off raising money for CML causes for LLS and others, when

> the rich and famous who are affected do little to nothing to even give it a

> nod. Their voices could be so powerful. Clooney raised billions for

> the people of 9/11. I don't want to take anything away from that group, but

> couldn't they do that for cancer as well? Stand Up For Cancer didn't rake in

> that kind of money. I think they received $100 million in pledges in 2008

> and let us remember that not everyone honors their pleges; that was evident

> in Haiti. I haven't found out how much they made in 2010, but I'm sure

> someone who is smarter than me will know.

> > Carpe Diem,

> > Lottie Duthu

> >

> >

[Guest guest]

In Canada we have our own CML celebrity who does as much for CML support and

awareness as does. He is Blake of the Toronto Maple Leafs. A

great hockey player but never in the limelight when it comes to CML.

Zavie

Zavie (age 72)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

4.4 log reduction Apr/10

e-mail: <mailto:zmiller@...> zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

From: [mailto: ] On Behalf Of Lottie

Duthu

Sent: October-14-10 5:34 PM

CML

Subject: [ ] O'Neal

I think Virginia Garner has a story to tell about how uninterested is

in getting the CML subject to patients and others as well. I think it is a

slap in the face to all the people like Virginia in CA and Sue in AU, who

work their butts off raising money for CML causes for LLS and others, when

the rich and famous who are affected do little to nothing to even give it a

nod. Their voices could be so powerful. Clooney raised billions for

the people of 9/11. I don't want to take anything away from that group, but

couldn't they do that for cancer as well? Stand Up For Cancer didn't rake in

that kind of money. I think they received $100 million in pledges in 2008

and let us remember that not everyone honors their pleges; that was evident

in Haiti. I haven't found out how much they made in 2010, but I'm sure

someone who is smarter than me will know.

Carpe Diem,

Lottie Duthu

[Guest guest]

Are these guys afraid they'll lose fans or something? Or that agents will

assume they're too unhealthy to work?

On Thu, Oct 14, 2010 at 7:27 PM, Zavie <zmiller@...> wrote:

>

>

> In Canada we have our own CML celebrity who does as much for CML support

> and

> awareness as does. He is Blake of the Toronto Maple Leafs. A

> great hockey player but never in the limelight when it comes to CML.

>

> Zavie

>

> Zavie (age 72)

>

> 67 Shoreham Avenue

>

> Ottawa, Canada, K2G 3X3

>

> dxd AUG/99

>

> INF OCT/99 to FEB/00, CHF

>

> No meds FEB/00 to JAN/01

>

> Gleevec since MAR/27/01 (400 mg)

>

> CCR SEP/01. #102 in Zero Club

>

> 2.8 log reduction Sep/05

>

> 3.0 log reduction Jan/06

>

> 2.9 log reduction Feb/07

>

> 3.6 log reduction Apr/08

>

> 3.6 log reduction Sep/08

>

> 3.7 log reduction Jan/09

>

> 3.8 log reduction May/09

>

> 3.8 log reduction Aug/09

>

> 4.0 log reduction Dec/09

>

> 4.4 log reduction Apr/10

>

> e-mail: <mailto:zmiller@... <zmiller%40sympatico.ca>>

> zmiller@... <zmiller%40sympatico.ca>

>

> Tel: 613-726-1117

>

> Fax: 613-482-4801

>

> Cell: 613-282-0204

>

> ID: zaviem

>

> From: <%40> [mailto:

> <%40>] On Behalf Of Lottie

> Duthu

> Sent: October-14-10 5:34 PM

> CML

> Subject: [ ] O'Neal

>

>

> I think Virginia Garner has a story to tell about how uninterested is

> in getting the CML subject to patients and others as well. I think it is a

> slap in the face to all the people like Virginia in CA and Sue in AU, who

> work their butts off raising money for CML causes for LLS and others, when

> the rich and famous who are affected do little to nothing to even give it a

> nod. Their voices could be so powerful. Clooney raised billions for

> the people of 9/11. I don't want to take anything away from that group, but

> couldn't they do that for cancer as well? Stand Up For Cancer didn't rake

> in

> that kind of money. I think they received $100 million in pledges in 2008

> and let us remember that not everyone honors their pleges; that was evident

> in Haiti. I haven't found out how much they made in 2010, but I'm sure

> someone who is smarter than me will know.

> Carpe Diem,

> Lottie Duthu

>

>

[Guest guest]

O'Neil could raise money for LLS to help them get further in their fight.

> He does seem to be uninterested and uninformed as to how CML and the

treatments work.

> Another thing too is that I do not know of any other cancer organization

that gives financial help each year to the patients who need financial help like

LLS. Maybe I just do not know who they are.

__________________________

I do not think it is unusual for a famous person to NOT want to be associated

with a disease......just like some/? many of our listmates do not tell their

co-workers, etc. They do not want to be identified as a cancer patient or

'leukemia'.

O'Neil made his livelihood by being handsome and strong. I am sure that he

has the best doctors and completely understands his disease and his

treatment....but he is not going to talk about it, so it is easier to say " I am

cured " . Same goes for his family. I doubt that they are ignorant about any of

this.

The exceptions to this are J. Fox, and he could not hide his Parkinson's

and it forced him to stop working and he needs a cure! so all good reasons for

him to be a fund raiser....same for the late Reeve.

Kareem Abdul Jabar did not tell anyone about his CML for over a year and just

kept it to himself. He 'outed' himself when Novartis offered him a JOB, and big

bucks, to be a representative for their drugs.

As far as financial support for cancer patients, the American Cancer Society,

who fund raises with Light the Night, does provide financial assistance, even to

leukemia patients. When I was first going to Portland and needed to stay over

night, the American Cancer Soc. had a program to secure complimentary hotel

rooms for people getting cancer treatment, and I know they have funds for needy

patients.

C.

[Guest guest]

Yes I did forget to mention the American Cancer Society and all that they do.

You are absolutely right .

>

> O'Neil could raise money for LLS to help them get further in their

fight.

> > He does seem to be uninterested and uninformed as to how CML and the

treatments work.

> > Another thing too is that I do not know of any other cancer

organization that gives financial help each year to the patients who need

financial help like LLS. Maybe I just do not know who they are.

>

> __________________________

>

> I do not think it is unusual for a famous person to NOT want to be associated

with a disease......just like some/? many of our listmates do not tell their

co-workers, etc. They do not want to be identified as a cancer patient or

'leukemia'.

>

> O'Neil made his livelihood by being handsome and strong. I am sure that

he has the best doctors and completely understands his disease and his

treatment....but he is not going to talk about it, so it is easier to say " I am

cured " . Same goes for his family. I doubt that they are ignorant about any of

this.

>

> The exceptions to this are J. Fox, and he could not hide his

Parkinson's and it forced him to stop working and he needs a cure! so all good

reasons for him to be a fund raiser....same for the late Reeve.

>

> Kareem Abdul Jabar did not tell anyone about his CML for over a year and just

kept it to himself. He 'outed' himself when Novartis offered him a JOB, and big

bucks, to be a representative for their drugs.

>

> As far as financial support for cancer patients, the American Cancer Society,

who fund raises with Light the Night, does provide financial assistance, even to

leukemia patients. When I was first going to Portland and needed to stay over

night, the American Cancer Soc. had a program to secure complimentary hotel

rooms for people getting cancer treatment, and I know they have funds for needy

patients.

>

> C.

>

[Guest guest]

I know what you're getting at, but the fact is: 9/11 has affected everyone in

the U.S. directly, as well as other place, and many many others indirectly.

 Many deaths and injuries have followed, many countries have been affected, and

this country, for instance, has been driven to the brink of bankruptcy and the

edge of mass dementia because of it.

But, carry on.

>

>

> I think Virginia Garner has a story to tell about how uninterested is

> in getting the CML subject to patients and others as well. I think it is a

> slap in the face to all the people like Virginia in CA and Sue in AU, who

> work their butts off raising money for CML causes for LLS and others, when

> the rich and famous who are affected do little to nothing to even give it a

> nod. Their voices could be so powerful. Clooney raised billions for

> the people of 9/11. I don't want to take anything away from that group, but

> couldn't they do that for cancer as well? Stand Up For Cancer didn't rake in

> that kind of money. I think they received $100 million in pledges in 2008

> and let us remember that not everyone honors their pleges; that was evident

> in Haiti. I haven't found out how much they made in 2010, but I'm sure

> someone who is smarter than me will know.

> Carpe Diem,

> Lottie Duthu

>

>

[Guest guest]

Yes, I do have a story. I volunteer for many LLS programs and several years ago

at one of the fundraisers where celebrities are paired up with corporate teams,

left in the middle of the event--the corporate team he was supposed to be

with was left high and dry. From that moment on, my opinion of him changed

drastically. I believe that celebrities have a lot of sway and can be positive

influences in advancing a cause. If I were a celebrity, that's what I would be

doing.

>

> I think Virginia Garner has a story to tell about how uninterested is in

getting the CML subject to patients and others as well. I think it is a slap in

the face to all the people like Virginia in CA and Sue in AU, who work their

butts off raising money for CML causes for LLS and others, when the rich and

famous who are affected do little to nothing to even give it a nod. Their

voices could be so powerful. Clooney raised billions for the people of

9/11. I don't want to take anything away from that group, but couldn't they do

that for cancer as well? Stand Up For Cancer didn't rake in that kind of money.

I think they received $100 million in pledges in 2008 and let us remember that

not everyone honors their pleges; that was evident in Haiti. I haven't found

out how much they made in 2010, but I'm sure someone who is smarter than me will

know.

> Carpe Diem,

> Lottie Duthu

>

>

[Guest guest]

Good points for sure, but I'd have to say in O'Neal's case, he's blown

the young and strong image with his substance abuse and resulting dubious

behavior.

J. Fox and Reeve, I think the world of them! Neither one

of them had to do anything for anyone else but they so much, and given so

many people hope. I tried to watch a video interview with J. Fox the

other day but I just couldn't get through it. After my mom died, I sort of

forgot about her last two terrible years battling Parkinson's -- my memories

of her now are all about when she was healthy. Seeing his movements, which

were identical to hers, brought it all back.

On Thu, Oct 14, 2010 at 7:36 PM, hey00nanc <ncogan@...> wrote:

>

>

>

>

>

>

> O'Neil could raise money for LLS to help them get further in their

> fight.

> > He does seem to be uninterested and uninformed as to how CML and the

> treatments work.

> > Another thing too is that I do not know of any other cancer organization

> that gives financial help each year to the patients who need financial help

> like LLS. Maybe I just do not know who they are.

>

> __________________________

>

> I do not think it is unusual for a famous person to NOT want to be

> associated with a disease......just like some/? many of our listmates do not

> tell their co-workers, etc. They do not want to be identified as a cancer

> patient or 'leukemia'.

>

> O'Neil made his livelihood by being handsome and strong. I am sure

> that he has the best doctors and completely understands his disease and his

> treatment....but he is not going to talk about it, so it is easier to say " I

> am cured " . Same goes for his family. I doubt that they are ignorant about

> any of this.

>

> The exceptions to this are J. Fox, and he could not hide his

> Parkinson's and it forced him to stop working and he needs a cure! so all

> good reasons for him to be a fund raiser....same for the late

> Reeve.

>

> Kareem Abdul Jabar did not tell anyone about his CML for over a year and

> just kept it to himself. He 'outed' himself when Novartis offered him a JOB,

> and big bucks, to be a representative for their drugs.

>

> As far as financial support for cancer patients, the American Cancer

> Society, who fund raises with Light the Night, does provide financial

> assistance, even to leukemia patients. When I was first going to Portland

> and needed to stay over night, the American Cancer Soc. had a program to

> secure complimentary hotel rooms for people getting cancer treatment, and I

> know they have funds for needy patients.

>

> C.

>

>

>

[Guest guest]

Well, yes. Good point, Ted.

On Fri, Oct 15, 2010 at 5:58 AM, Ted Fontenot <mortycausa@...> wrote:

>

>

> I know what you're getting at, but the fact is: 9/11 has affected everyone

> in the U.S. directly, as well as other place, and many many others

> indirectly. Many deaths and injuries have followed, many countries have

> been affected, and this country, for instance, has been driven to the brink

> of bankruptcy and the edge of mass dementia because of it.

> But, carry on.

>

>

>

> >

> >

> > I think Virginia Garner has a story to tell about how uninterested

> is

> > in getting the CML subject to patients and others as well. I think it is

> a

> > slap in the face to all the people like Virginia in CA and Sue in AU, who

> > work their butts off raising money for CML causes for LLS and others,

> when

> > the rich and famous who are affected do little to nothing to even give it

> a

> > nod. Their voices could be so powerful. Clooney raised billions

> for

> > the people of 9/11. I don't want to take anything away from that group,

> but

> > couldn't they do that for cancer as well? Stand Up For Cancer didn't rake

> in

> > that kind of money. I think they received $100 million in pledges in 2008

> > and let us remember that not everyone honors their pleges; that was

> evident

> > in Haiti. I haven't found out how much they made in 2010, but I'm sure

> > someone who is smarter than me will know.

> > Carpe Diem,

> > Lottie Duthu

> >

> >

[Guest guest]

:  Sorry you had to watch your Mom suffer for 2 years with the Parkinsons

Disease, but your doing the right thing thinking about the good memories.  My

Dad was very sick for years, not with Parkinsons or anything like that.  Just a

bad heart and many aneurysym surgeries.  I just try to think of all the good

times now that he is gone.

>

>

>

>

>

>

> O'Neil could raise money for LLS to help them get further in their

> fight.

> > He does seem to be uninterested and uninformed as to how CML and the

> treatments work.

> > Another thing too is that I do not know of any other cancer organization

> that gives financial help each year to the patients who need financial help

> like LLS. Maybe I just do not know who they are.

>

> __________________________

>

> I do not think it is unusual for a famous person to NOT want to be

> associated with a disease......just like some/? many of our listmates do not

> tell their co-workers, etc. They do not want to be identified as a cancer

> patient or 'leukemia'.

>

> O'Neil made his livelihood by being handsome and strong. I am sure

> that he has the best doctors and completely understands his disease and his

> treatment....but he is not going to talk about it, so it is easier to say " I

> am cured " . Same goes for his family. I doubt that they are ignorant about

> any of this.

>

> The exceptions to this are J. Fox, and he could not hide his

> Parkinson's and it forced him to stop working and he needs a cure! so all

> good reasons for him to be a fund raiser....same for the late

> Reeve.

>

> Kareem Abdul Jabar did not tell anyone about his CML for over a year and

> just kept it to himself. He 'outed' himself when Novartis offered him a JOB,

> and big bucks, to be a representative for their drugs.

>

> As far as financial support for cancer patients, the American Cancer

> Society, who fund raises with Light the Night, does provide financial

> assistance, even to leukemia patients. When I was first going to Portland

> and needed to stay over night, the American Cancer Soc. had a program to

> secure complimentary hotel rooms for people getting cancer treatment, and I

> know they have funds for needy patients.

>

> C.

>

> 

>

[Guest guest]

Thanks, !

On Fri, Oct 15, 2010 at 4:43 PM, Armour <suzzienovember@...>wrote:

>

>

> : Sorry you had to watch your Mom suffer for 2 years with the

> Parkinsons Disease, but your doing the right thing thinking about the good

> memories. My Dad was very sick for years, not with Parkinsons or anything

> like that. Just a bad heart and many aneurysym surgeries. I just try to

> think of all the good times now that he is gone.

>

>

>

> >

> >

> >

> >

> >

> >

> > O'Neil could raise money for LLS to help them get further in their

> > fight.

> > > He does seem to be uninterested and uninformed as to how CML and the

> > treatments work.

> > > Another thing too is that I do not know of any other cancer

> organization

> > that gives financial help each year to the patients who need financial

> help

> > like LLS. Maybe I just do not know who they are.

> >

> > __________________________

> >

> > I do not think it is unusual for a famous person to NOT want to be

> > associated with a disease......just like some/? many of our listmates do

> not

> > tell their co-workers, etc. They do not want to be identified as a cancer

> > patient or 'leukemia'.

> >

> > O'Neil made his livelihood by being handsome and strong. I am sure

> > that he has the best doctors and completely understands his disease and

> his

> > treatment....but he is not going to talk about it, so it is easier to say

> " I

> > am cured " . Same goes for his family. I doubt that they are ignorant about

> > any of this.

> >

> > The exceptions to this are J. Fox, and he could not hide his

> > Parkinson's and it forced him to stop working and he needs a cure! so all

> > good reasons for him to be a fund raiser....same for the late

> > Reeve.

> >

> > Kareem Abdul Jabar did not tell anyone about his CML for over a year and

> > just kept it to himself. He 'outed' himself when Novartis offered him a

> JOB,

> > and big bucks, to be a representative for their drugs.

> >

> > As far as financial support for cancer patients, the American Cancer

> > Society, who fund raises with Light the Night, does provide financial

> > assistance, even to leukemia patients. When I was first going to Portland

> > and needed to stay over night, the American Cancer Soc. had a program to

> > secure complimentary hotel rooms for people getting cancer treatment, and

> I

> > know they have funds for needy patients.

> >

> > C.

> >

> >

> >

>

>

[Guest guest]

I hardly ever tell anyone I have CML! Just a few folks. They get the whole

wrong idea otherwise.

On Sat, Oct 16, 2010 at 2:52 AM, <nchando@...> wrote:

>

>

> C., thank you for giving the other side of the O'Neal

> discussion. I was thinking about doing the same thing. I'm one of those

> people

> you mentioned who does not tell everyone that I have cml. I could see it

> from 's side. If he wants any work in Hollywood he can't have the

> producers worried that he is " dying " . To most people, that's what the word

> leukemia means. I stick up for his right to keep his disease private just

> like I

> do, for whatever reason. How is it any better for Kareem Abdul Jabbar to

> take money from Novartis?? He certainly doesn't need the money and his

> athletic career was over anyway.

> in NY

>

>

[Guest guest]

>

> C., thank you for giving the other side of the O'Neal

> discussion. I was thinking about doing the same thing. I'm one of those

people

> you mentioned who does not tell everyone that I have cml. I could see it

> from 's side. If he wants any work in Hollywood he can't have the

> producers worried that he is " dying " . To most people, that's what the word

> leukemia means. I stick up for his right to keep his disease private just

like I

> do, for whatever reason.

___________________________________

, thanks for sharing your sentiments on this topic. Just because someone is

famous, they have no obligation to share a medical problem that they have, or to

be a promoter/fund raiser for the disease....and no one should really question

their motivation. It is just a personal choice.

And like you wrote, to use your disease for personal financial gain, like K.

Jabar, is nothing to admire. To raise awareness and funds, like J. Fox

and Reeve is an entirely different issue and to be admired.

C.

[Guest guest]

I told the world when i was dx with CML and told all my kids, this is not a

secret, let's put it on the table and talk about it and live with it.  Only

problem with this is, having had it so long, and still being here, it gives some

people I have not seen in a while a bit of a start, as they thought I had died

years ago!!  How wonderful of people like J. Fox to be able to raise

millions and to promote research.  Kudos to !  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

>

>

> C., thank you for giving the other side of the O'Neal

> discussion. I was thinking about doing the same thing. I'm one of those

> people

> you mentioned who does not tell everyone that I have cml. I could see it

> from 's side. If he wants any work in Hollywood he can't have the

> producers worried that he is " dying " . To most people, that's what the word

> leukemia means. I stick up for his right to keep his disease private just

> like I

> do, for whatever reason. How is it any better for Kareem Abdul Jabbar to

> take money from Novartis?? He certainly doesn't need the money and his

> athletic career was over anyway.

> in NY

>

>

[Guest guest]

I agree with you Bobby!!!

Sharon

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: Saturday, October 16, 2010 10:36 AM

Subject: Re: [ ] O'Neal

I told the world when i was dx with CML and told all my kids, this is not a

secret, let's put it on the table and talk about it and live with it. Only

problem with this is, having had it so long, and still being here, it gives

some people I have not seen in a while a bit of a start, as they thought I

had died years ago!! How wonderful of people like J. Fox to be able

to raise millions and to promote research. Kudos to ! Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

>

>

> C., thank you for giving the other side of the O'Neal

> discussion. I was thinking about doing the same thing. I'm one of those

> people

> you mentioned who does not tell everyone that I have cml. I could see it

> from 's side. If he wants any work in Hollywood he can't have the

> producers worried that he is " dying " . To most people, that's what the word

> leukemia means. I stick up for his right to keep his disease private just

> like I

> do, for whatever reason. How is it any better for Kareem Abdul Jabbar to

> take money from Novartis?? He certainly doesn't need the money and his

> athletic career was over anyway.

> in NY

>

>

[Guest guest]

Could not have said it better.  Its not a secret.  I told all my family and

friends.  At the time, how was I supposed to find someone for a match for a BMT

if I kept it quiet. I worked for the Oncologist who found my CML.  My whole

office knew about it.  Never did get the match for the BMT, but when I was

going through all different treatment and was so sick then of course everyone

would have known something was wrong anyhow.

How can you help others with support and prayers or whatever they need if they

do not share what they are going through? 

>

>

> C., thank you for giving the other side of the O'Neal

> discussion. I was thinking about doing the same thing. I'm one of those

> people

> you mentioned who does not tell everyone that I have cml. I could see it

> from 's side. If he wants any work in Hollywood he can't have the

> producers worried that he is " dying " . To most people, that's what the word

> leukemia means. I stick up for his right to keep his disease private just

> like I

> do, for whatever reason. How is it any better for Kareem Abdul Jabbar to

> take money from Novartis?? He certainly doesn't need the money and his

> athletic career was over anyway.

> in NY

>

>