Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Hi, I started treatment on sprycel but the first months were rough. I was super tired too and had some rough headaches. It has gotten much better although as others may have said it's a new normal and learning to balance your energy levels takes practice. It does get better... It takes time, and you may have a time where the docs take you off the drug for a break, but our bodies seem to adjust somehow and over time i has more energy than in the first few weeks. Im only a few months ahead of you but it has been a long 7 months of learning and there are new things to learn and laugh at every day. Sometimes we play count the bruises since i seem to bruise easily. Kinda crazy but it helps to be silly in the midst of all these new side effects! Rest well and know that we are with you on this journey. Rhonda Sent from my Verizon Wireless BlackBerry [ ] Cross post question Hello Everyone, I started Gleevec last Friday and am getting headaches pretty regularly and am absolutely worn out Beyond my norman anemic drag ass state.I do B-12 injections twice a week and take daily B-12 sublinguals..Is this normal after starting Gleevec? I am more tired now on treatment than before starting treatment..Does it get better? Thanks SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Yes the longer the less side effects.Are you on 400! dx 12/23/05 600 Gleevec in Tenn. Good luck [ ] Cross post question Hello Everyone, I started Gleevec last Friday and am getting headaches pretty regularly and am absolutely worn out Beyond my norman anemic drag ass state.I do B-12 injections twice a week and take daily B-12 sublinguals. .Is this normal after starting Gleevec? I am more tired now on treatment than before starting treatment..Does it get better? Thanks SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Everyone is different - keep your doc updated on your symptoms . Things were rocky for me but they did get better. Chi --- serenitywon <serenitywon@...> wrote: > Hello Everyone, > > I started Gleevec last Friday and am getting > headaches pretty > regularly and am absolutely worn out Beyond my > norman anemic drag ass > state.I do B-12 injections twice a week and take > daily B-12 > sublinguals..Is this normal after starting Gleevec? > I am more tired now > on treatment than before starting treatment..Does it > get better? > > Thanks > SharonS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 G'day Sharon, It is still only early days so hopefully everything will settle down for you. I am one of the 1% who gets severe headaches ~ migraines and take various medications to assist to manage them. I have required several Glivec breaks and at present am on only 200mg, which I am tolerating. I am OK until I get the lovely tadpole eyes and get headaches and burning pain around my ® eye, which isn't relieved by fluid tablets. You need to tell your haematologist and get some medication to help. You should only ever take medication that has been given the OK - this is very important! I take codeine and panadol - the Aussie Drs allow this, while US Drs prefer others, as our med combinations are not the same. The unfortunate fact is that Glivec will make you feel really tired and takes a while to become adjusted to it - that's where this group is a great resource. I wasn't sick at all when I was diagnosed last July, so was a complete shock to the system to start taking a drug which changed your quality of life. Regards, Down Under _____ From: [mailto: ] On Behalf Of serenitywon Sent: Thursday, 12 June 2008 12:25 PM Subject: [ ] Cross post question Hello Everyone, I started Gleevec last Friday and am getting headaches pretty regularly and am absolutely worn out Beyond my norman anemic drag ass state.I do B-12 injections twice a week and take daily B-12 sublinguals..Is this normal after starting Gleevec? I am more tired now on treatment than before starting treatment..Does it get better? Thanks SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Rhonda, Thanks for sharing..LOL..I play the same bruise game..I give insulin injections daily and B-12 injections twice a week and bruise anytime I give shot.I also have tons of unexplained bruided throughout.. Thanks SharonS In , Sionito@... wrote: > > Hi, > I started treatment on sprycel but the first months were rough. I was super tired too and had some rough headaches. It has gotten much better although as others may have said it's a new normal and learning to balance your energy levels takes practice. > It does get better... It takes time, and you may have a time where the docs take you off the drug for a break, but our bodies seem to adjust somehow and over time i has more energy than in the first few weeks. Im only a few months ahead of you but it has been a long 7 months of learning and there are new things to learn and laugh at every day. Sometimes we play count the bruises since i seem to bruise easily. Kinda crazy but it helps to be silly in the midst of all these new side effects! > > Rest well and know that we are with you on this journey. > > Rhonda > Sent from my Verizon Wireless BlackBerry > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 , I take (4) 100 mg. Daily.. Thanks SharonS In , Shipley <paulorkay@...> wrote: > > Yes the longer the less side effects.Are you on 400! > dx 12/23/05 600 Gleevec in Tenn. Good luck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Thanks Chi,I will do that.. SharonS In , china neal <chimera46@...> wrote: > > Everyone is different - keep your doc updated on your > symptoms . Things were rocky for me but they did get > better. > > Chi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 , Sorry to hear about the issues you are having with treatment.I will keep an eye on the headaches and report to the Dr.I take M.S.Contin and Norco for pain relief.Hope you continue to improve. Thanks SharonS In , " Malseed " <rodorbal@...> wrote: > > G'day Sharon, > > > > It is still only early days so hopefully everything will settle down for > you. I am one of the 1% who gets severe headaches ~ migraines and take > various medications to assist to manage them. I have required several Glivec > breaks and at present am on only 200mg, which I am tolerating. I am OK until > I get the lovely tadpole eyes and get headaches and burning pain around my > ® eye, which isn't relieved by fluid tablets. > > > > You need to tell your haematologist and get some medication to help. You > should only ever take medication that has been given the OK - this is very > important! I take codeine and panadol - the Aussie Drs allow this, while US > Drs prefer others, as our med combinations are not the same. > > > > The unfortunate fact is that Glivec will make you feel really tired and > takes a while to become adjusted to it - that's where this group is a great > resource. I wasn't sick at all when I was diagnosed last July, so was a > complete shock to the system to start taking a drug which changed your > quality of life. > > > > > > Regards, > > > > Down Under > > > > > > _____ > > From: [mailto: ] On Behalf Of > serenitywon > Sent: Thursday, 12 June 2008 12:25 PM > > Subject: [ ] Cross post question > > > > Hello Everyone, > > I started Gleevec last Friday and am getting headaches pretty > regularly and am absolutely worn out Beyond my norman anemic drag ass > state.I do B-12 injections twice a week and take daily B-12 > sublinguals..Is this normal after starting Gleevec? I am more tired now > on treatment than before starting treatment..Does it get better? > > Thanks > SharonS > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 --hi Sharon, with me everything got better within 3 months. What do you take the B-12 shots for? I got one last week,but that was because my B-12 was low according to my blood work. Do they give you energy? It seems like since i've been on Gleevec my vitamine D is low,my B-12 is low and my colesteral has come down[ from 262 to 200],but that is a good thing. I think you will feel better as the leukemia cells die off. Hang in there. Esther - In , china neal <chimera46@...> wrote: > > Everyone is different - keep your doc updated on your > symptoms . Things were rocky for me but they did get > better. > > Chi > > > --- serenitywon <serenitywon@...> wrote: > > > Hello Everyone, > > > > I started Gleevec last Friday and am getting > > headaches pretty > > regularly and am absolutely worn out Beyond my > > norman anemic drag ass > > state.I do B-12 injections twice a week and take > > daily B-12 > > sublinguals..Is this normal after starting Gleevec? > > I am more tired now > > on treatment than before starting treatment..Does it > > get better? > > > > Thanks > > SharonS > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Esther, I take B-12 because I have had Gastric Bypass surgery and malabsorb food,vits and minerals.I have to supplement heavily.The B vites help keep the ferritin levels up(Iron Storage).Helps with treating anemia.I also take 10,000iu daily of sublingual Vit.D as I am defiencient in that as well.I take A,D,E,C,Magnesium oxide,magnesium citrate,calcium,b-12,b-6,folic acid,pantothenic acid,multi vit(liquid).I don't get my vits from food.I also have to drink 60-90 grams of Whey protein shakes daily..I take about 30 pills a day plus my diabetis injections and B-12 injections..Seems like alot but I have to or my health deteriorates.. Thanks for sharing the info..Try to get your vit D level up..Don't need osteoporosis ar any other trouble from lack of D.. Thanks SharonS In , snipandtip <no_reply@...> wrote: > > --hi Sharon, with me everything got better within 3 months. What do > you take the B-12 shots for? I got one last week,but that was because > my B-12 was low according to my blood work. Do they give you energy? > It seems like since i've been on Gleevec my vitamine D is low,my B- 12 > is low and my colesteral has come down[ from 262 to 200],but that is > a good thing. I think you will feel better as the leukemia cells die > off. > Hang in there. > Esther > > > > > > > Quote Link to comment Share on other sites More sharing options...
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