Re: Zavie Lottie Group

[Guest guest]

WOW! SKIP, 30 ++++ YEARS? YOU MUST HAVE INVENTED THE WORD SURVIVOR.

CONGRATULATIONS! I THOUGHT I HAD SOME YEARS IN, 13, I'M A BABY NEXT TO YOU.

ALSO ON SPRYCEL, BUT ABOUT TO COME OFF IT, I AM NO LONGER IN CCR, SINCE SEP.

TOO BAD, I LOVE THIS DRUG, WITH THE EXCEPTION OF PLEURAL EFFUSION WHICH DID NOT

HAPPEN FOR 2 1/ 2 YEARS, I'VE HAD NO SIDE EFFECTS. I'M HOPING TO ENTER A NEW

TRIAL SHORTLY, PERHAPS ARIAD?

CONTINUED GOOD LUCK TO YOU, BOBBY DOYLE

Hello Zavie and all :-

just a note to let you know that I may, in a couple of

week, be taken off Nilotinib and put on Dasatinib

(Sprycel). My Doctor is not happy with the results,

but says no worries, I had a chest x-ray today in

preparation and will need another BMB within two

weeks.

The drug is quite expensive, but my drug plan will

cover most of it. $5000 for 60 pills. I am not sure

if that is the standard price in all drug stores.

The doctor also increased my Exjade up to 2000mg a

day, that is another very expensive drug. I am fast

becomming the 3 million dollar man. MY ferritin count

jumped up to 2837 as of last Thursday. Just too many

infusions of HGB.

I was given an infusion of HGB yesterday and today

before seeing the Doctor I was given platelets. I

sure hope that this new way of the blood service

getting and processing blood products will slow my

getting so many infusions, not sure about that. In

case you did not know about this process it is called

BUFFY COAT . not sure why it is called that..

The two doctors I see are getting my history they plan

on doing some type of paper on how I survived

so many years without all these modern drugs. In fact

my first Hematologists retired this year, gosh he was

about my age when we first met, I may have been a

couple of years older than he was..

Well that is an update for now... will let you know

if anything happens between now and the couple of

weeks he takes to make up his mind about changing

drugs..

I go back to see him at the end of this month ..

Be safe all have a great day, I have been assured that

warm weather is to arrive here before August.

Skip D

Dx'ed 30 ++++ years

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

[Guest guest]

Skip and all,

here is info from Wikipedia about buffy coat.

" After centrifugation, one can distinguish a layer of clear fluid

(the plasma), a layer of red fluid containing most of the red blood

cells, and a thin layer in between, making up less than 1% of the

total volume of the blood sample, the buffy coat (so-called because

it is usually buff in hue), with most of the white blood cells and

platelets. The buffy coat is used, for example, to extract DNA from

the blood of mammals (since mammalian red blood cells are anucleate

and do not contain DNA).

The buffy coat is usually whitish in color but sometimes green, if

the blood sample contains large amounts of neutrophils, which are

high in green myeloperoxidase. "

I have heard it referred to often in the dictation that I transcribe,

but wasn't sure myself what it referred to. Thanks for bringing it

up so I could learn something too.

You hang in there! We will get through this one, too. You have

survived a long time, so you know about these ups and downs.

Take care, and prayers for your good health.

Vicki

>

> WOW! SKIP, 30 ++++ YEARS? YOU MUST HAVE INVENTED THE WORD SURVIVOR.

> CONGRATULATIONS! I THOUGHT I HAD SOME YEARS IN, 13, I'M A BABY

NEXT TO YOU. ALSO ON SPRYCEL, BUT ABOUT TO COME OFF IT, I AM NO

LONGER IN CCR, SINCE SEP. TOO BAD, I LOVE THIS DRUG, WITH THE

EXCEPTION OF PLEURAL EFFUSION WHICH DID NOT HAPPEN FOR 2 1/ 2

YEARS, I'VE HAD NO SIDE EFFECTS. I'M HOPING TO ENTER A NEW TRIAL

SHORTLY, PERHAPS ARIAD?

> CONTINUED GOOD LUCK TO YOU, BOBBY DOYLE

>

>

>

>

> Hello Zavie and all :-

> just a note to let you know that I may, in a couple of

> week, be taken off Nilotinib and put on Dasatinib

> (Sprycel). My Doctor is not happy with the results,

> but says no worries, I had a chest x-ray today in

> preparation and will need another BMB within two

> weeks.

> The drug is quite expensive, but my drug plan will

> cover most of it. $5000 for 60 pills. I am not sure

> if that is the standard price in all drug stores.

>

> The doctor also increased my Exjade up to 2000mg a

> day, that is another very expensive drug. I am fast

> becomming the 3 million dollar man. MY ferritin count

> jumped up to 2837 as of last Thursday. Just too many

> infusions of HGB.

>

> I was given an infusion of HGB yesterday and today

> before seeing the Doctor I was given platelets. I

> sure hope that this new way of the blood service

> getting and processing blood products will slow my

> getting so many infusions, not sure about that. In

> case you did not know about this process it is called

> BUFFY COAT . not sure why it is called that..

>

> The two doctors I see are getting my history they plan

> on doing some type of paper on how I survived

> so many years without all these modern drugs. In fact

> my first Hematologists retired this year, gosh he was

> about my age when we first met, I may have been a

> couple of years older than he was..

>

> Well that is an update for now... will let you know

> if anything happens between now and the couple of

> weeks he takes to make up his mind about changing

> drugs..

> I go back to see him at the end of this month ..

> Be safe all have a great day, I have been assured that

> warm weather is to arrive here before August.

>

> Skip D

> Dx'ed 30 ++++ years

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

>

>

>

>