Re: Gleevec and Memory and disposition

[Guest guest]

I have issues with the memory all the time as well. I am trying to just

slow down a little and also, I had started writing things down, even before my

Diagnosis '07 March 1. Tracey had mentioned before about maybe we are not

really forgetting as much as temporarily being distracted. Only thing with me,

I often really do not remember. I too, am finding this very frustrating and

too, work in a job as a sales rep where I cannot afford screw-up's as many

clients are counting on me to get it right.

Another issue recently has been brought to my attention and am very curious

if anyone has experienced anything that remotely resembles this, on Gleevec.

My wife recently commented that I have interrupted her, to the point that I

was borderline rude. This is way not whom I ever have been. She said it has

been getting worse. I had really not noticed, but at times I have noticed

being eager to get my point it, with whatever the discussion may be. This

seriously bothered me as I have always had such a laid back disposition and had

a reputation of being the easy going one of our group of friends, even the

most level headed and always been the " go to guy " for anything and everything

others could not work out.

I asked why she had not said something sooner? I think partially it is

because perhaps I have done this more, recently. Also, been under tremendous

pressure with my job as my selling season gets into and sales have been a bit

harder to come by with the economic state of affairs. Now that is part of my

take, she told me I did not seem as approachable lately. WOW, that really

bothered me to hear from a lady I have been side by side with for nearly 20

years. Me, not approachable? Wow, I am an open book and always had an ear for

anyone.

Anyhow, this has made me slow down and take inventory of a few things.

Anyone else have anything similar? I was a little hesitant to post this

situation, however, this forum has always been so non-judge-mental and I have

always

felt I could ask anything here.

Anyhow, am I reaching for straws on this, a connection between Gleevec and

let's call this, a little over eagerness?

Regards,

Chris

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

Thanks everyone for the responses and hope to read more of them. I AM NOT

ALONE! lol I read them all to Tab. She sat here and nodded. She is not

angry with me or anything, but I do think I was hurting her feelings and she

finally had, had enough. I know she felt bad after letting the cat out, but I

assured her that is much better to get matters on the table, otherwise they

will never get solved. I have always felt it was more important for someone to

let me know they had an issue with me or something I had done than to walk

around upset with me, or worse, not want to be around me. So I am very glad

for the open discussion.

It was funny when I was reading the comments on having to hurry up and get

the comment out, so it would not be forgotten. She said she sees me doing

that and it now makes sense to her.

So again, thanks to all!

Cheers,

Chris

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

I have experienced the same type of thing from my family. I have

always been the strong female in the family that everyone has come to solve

their problems. Until I looked back, I didn't realize that maybe my attitude

has unconsciously changed since being diagnosed with a non curable cancer

that will be with me the rest of my life. I no longer stress about things

that I used to and I didn't realize my treatment of my family had changed

until they brought it to my attention. We can say we will continue our life

as we did before diagnosis but let's be honest here. How can we really do

that when this illness sits in the background waiting to do who knows what

to our body, energy, minds, etc. I don't dwell on my illness, but I now

know it really has affected my life in many areas. I try to adjust as I go,

but silently I really get tired of having to deal with it and that usually

comes out somewhere else in a different form. I know I can't work a 40 hour

job because of the fatigue and concentration issues, but I do have a little

home based business so I have a little control over when I work. I'm sure

as a man supporting a family it's a little harder because you feel you have

to continue as before. Give yourself a break and realize it's ok to not be

the same as your were because you're not. Sometimes, because we don't look

sick, our friends and families expect us to be the same person we were

before CML. Well, IT JUST AIN'T SO!!!!!!!!!!! So when someone tells me

I'm different I just tell them YES I AM, and I try not to hurt feelings, so

please excuse me but that' s just one of my side effects. It's really easy

to pull away from family because they just don't get it because you look

like before. That's why this group is so great, because we all understand

and most of us have or will " been there done that " . Take care of yourself

and give yourself permission to be different. IT'S OK.

Just my 2 cents worth.

Barbara

_____

From: [mailto: ] On Behalf Of

letitbe@...

Sent: Friday, April 25, 2008 6:00 AM

Subject: Re: [ ] Re: Gleevec and Memory and disposition

I have issues with the memory all the time as well. I am trying to just

slow down a little and also, I had started writing things down, even before

my

Diagnosis '07 March 1. Tracey had mentioned before about maybe we are not

really forgetting as much as temporarily being distracted. Only thing with

me,

I often really do not remember. I too, am finding this very frustrating and

too, work in a job as a sales rep where I cannot afford screw-up's as many

clients are counting on me to get it right.

Another issue recently has been brought to my attention and am very curious

if anyone has experienced anything that remotely resembles this, on Gleevec.

My wife recently commented that I have interrupted her, to the point that I

was borderline rude. This is way not whom I ever have been. She said it has

been getting worse. I had really not noticed, but at times I have noticed

being eager to get my point it, with whatever the discussion may be. This

seriously bothered me as I have always had such a laid back disposition and

had

a reputation of being the easy going one of our group of friends, even the

most level headed and always been the " go to guy " for anything and

everything

others could not work out.

I asked why she had not said something sooner? I think partially it is

because perhaps I have done this more, recently. Also, been under tremendous

pressure with my job as my selling season gets into and sales have been a

bit

harder to come by with the economic state of affairs. Now that is part of my

take, she told me I did not seem as approachable lately. WOW, that really

bothered me to hear from a lady I have been side by side with for nearly 20

years. Me, not approachable? Wow, I am an open book and always had an ear

for

anyone.

Anyhow, this has made me slow down and take inventory of a few things.

Anyone else have anything similar? I was a little hesitant to post this

situation, however, this forum has always been so non-judge-mental and I

have always

felt I could ask anything here.

Anyhow, am I reaching for straws on this, a connection between Gleevec and

let's call this, a little over eagerness?

Regards,

Chris

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos. <http://autos.aol.com/used?NCID=aolcmp00300000002851>

aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

Hi

You're right, you can ask anything here and you'll almost always get

an answer from someone who understands what you're going through.

Could it be that you're interrupting your wife to get your point

across not because you're rude or impatient but because you fear that

if you don't say what's on your mind right away, you won't remember

what your point was later on?

I've also done this. At times I'll try to wait to make my point (so

that I don't appear rude) although I find when I do this that I'm no

longer paying attention to the rest of the conversation but rather

mentally going over my response (so that I don't forget it). I guess

I just can't win, either I'm rude for interrupting or I'm rude

because I'm no longer paying attention to the other person but either

way it's not intentional.

Take care,

Tracey

>

> I have issues with the memory all the time as well. I am trying

to just

> slow down a little and also, I had started writing things down,

even before my

> Diagnosis '07 March 1. Tracey had mentioned before about maybe we

are not

> really forgetting as much as temporarily being distracted. Only

thing with me,

> I often really do not remember. I too, am finding this very

frustrating and

> too, work in a job as a sales rep where I cannot afford screw-up's

as many

> clients are counting on me to get it right.

>

> Another issue recently has been brought to my attention and am very

curious

> if anyone has experienced anything that remotely resembles this,

on Gleevec.

> My wife recently commented that I have interrupted her, to the

point that I

> was borderline rude. This is way not whom I ever have been. She

said it has

> been getting worse. I had really not noticed, but at times I have

noticed

> being eager to get my point it, with whatever the discussion may

be. This

> seriously bothered me as I have always had such a laid back

disposition and had

> a reputation of being the easy going one of our group of friends,

even the

> most level headed and always been the " go to guy " for anything and

everything

> others could not work out.

>

> I asked why she had not said something sooner? I think partially

it is

> because perhaps I have done this more, recently. Also, been under

tremendous

> pressure with my job as my selling season gets into and sales have

been a bit

> harder to come by with the economic state of affairs. Now that is

part of my

> take, she told me I did not seem as approachable lately. WOW,

that really

> bothered me to hear from a lady I have been side by side with for

nearly 20

> years. Me, not approachable? Wow, I am an open book and always

had an ear for

> anyone.

>

> Anyhow, this has made me slow down and take inventory of a few

things.

> Anyone else have anything similar? I was a little hesitant to

post this

> situation, however, this forum has always been so non-judge-mental

and I have always

> felt I could ask anything here.

>

> Anyhow, am I reaching for straws on this, a connection between

Gleevec and

> let's call this, a little over eagerness?

>

> Regards,

> Chris

>

>

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

>

>

[Guest guest]

I get that too. Usually my 'rudeness' comes from the need to say something

right then, or I'm going to forget it! This isn't as horrible with just my

husband, but in a group of 3 or more people... it becomes a lot worse. And

I'm not trying to monopolize the conversation, its just that if I try to

'hold onto' what I'm thinking about saying AND try to remember and listen to

what the other person is saying... it just isn't done.

For my job, it requires a lot of thinking and remembering too. Luckily for

me, not too many people know what I am doing... so they haven't noticed it

is more difficult for me. I notice and I get frustrated. My husband notices.

My kids notice in other ways.

One of the things I have noticed - is that occasionally I " SMELL " cigerette

smoke or something similiar, like a smelly smoldering fire. No one else

smells it. That new Febreze air and surface sometimes will help - though my

family thinks I'm crazy

Good luck, and as others have said - write it down. (I hate lists- but I

have to use them now.)

Tammy

_____

From: [mailto: ] On Behalf Of

letitbe@...

Sent: Friday, April 25, 2008 6:00 AM

Subject: Re: [ ] Re: Gleevec and Memory and disposition

I have issues with the memory all the time as well. I am trying to just

slow down a little and also, I had started writing things down, even before

my

Diagnosis '07 March 1. Tracey had mentioned before about maybe we are not

really forgetting as much as temporarily being distracted. Only thing with

me,

I often really do not remember. I too, am finding this very frustrating and

too, work in a job as a sales rep where I cannot afford screw-up's as many

clients are counting on me to get it right.

Another issue recently has been brought to my attention and am very curious

if anyone has experienced anything that remotely resembles this, on Gleevec.

My wife recently commented that I have interrupted her, to the point that I

was borderline rude. This is way not whom I ever have been. She said it has

been getting worse. I had really not noticed, but at times I have noticed

being eager to get my point it, with whatever the discussion may be. This

seriously bothered me as I have always had such a laid back disposition and

had

a reputation of being the easy going one of our group of friends, even the

most level headed and always been the " go to guy " for anything and

everything

others could not work out.

I asked why she had not said something sooner? I think partially it is

because perhaps I have done this more, recently. Also, been under tremendous

pressure with my job as my selling season gets into and sales have been a

bit

harder to come by with the economic state of affairs. Now that is part of my

take, she told me I did not seem as approachable lately. WOW, that really

bothered me to hear from a lady I have been side by side with for nearly 20

years. Me, not approachable? Wow, I am an open book and always had an ear

for

anyone.

Anyhow, this has made me slow down and take inventory of a few things.

Anyone else have anything similar? I was a little hesitant to post this

situation, however, this forum has always been so non-judge-mental and I

have always

felt I could ask anything here.

Anyhow, am I reaching for straws on this, a connection between Gleevec and

let's call this, a little over eagerness?

Regards,

Chris

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos. <http://autos.aol.com/used?NCID=aolcmp00300000002851>

aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

thanks for perspective, . Tab is pretty good about it all, but is was

very apparent even she could no longer stay silent and had to let me know

this was becoming an issue. I appreciate her doing so, better to talk about it

than have her walking around miserable over it. Part of why started dialog

on this was to let her know I am concerned about and sort of apologize for the

situation. I think now having it identified and in the open, it will only

get better and she and I have come up with a code word (nick name) for when I

am getting close to the rudeness line, so I that I am reminded to slow down

and be aware. Now, I just hope she does not get trigger happy with that! lol

=)

Chris

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

I had really not noticed, but at times I have noticed

being eager to get my point it, with whatever the discussion may be. This

seriously bothered me as I have always had such a laid back disposition and

had

a reputation of being the easy going one of our group of friends, even the

most level headed and always been the " go to guy " for anything and everything

others could not work out.

_____________________

Hi

I think that Gleevec does affect our nervous system in a way.....that it

makes us a bit more irritable or less patient. Sometimes it is subtle, but

you can see it in how you respond to people. I do not think this is 'having

cancer' as some might say. Most of us have adjusted to the fact that we

have cancer. I will tell you that when I am seen at OHSU (every 3 months,

just recently 6 months) on their questionnaire about side effects, they

always ask " how's your mood " . I think our normal filters about how we

behave and how we act are a bit dulled. One solution is to maybe always

count to 3 before you say something.....just a little pause. Also if you

wife knows that the drug probably contributes to this, it should be easier

for her to accept and adjust to.

C.

[Guest guest]

I need to chime in on this one also. Just today, my husband told me that I am

just not paying attention to what he is saying. It isn't that I'm not paying

attention, it's just that i just don't " get " what he is saying. It just doesn't

register. I also can't always remember what it is what I was going to tell

someone. I just thought that it was my age catching up with me, 57.

@...: tammy@...: Fri, 25 Apr 2008

09:15:25 -0400Subject: RE: [ ] Re: Gleevec and Memory and disposition

I get that too. Usually my 'rudeness' comes from the need to say

somethingright then, or I'm going to forget it! This isn't as horrible with just

myhusband, but in a group of 3 or more people... it becomes a lot worse. AndI'm

not trying to monopolize the conversation, its just that if I try to'hold onto'

what I'm thinking about saying AND try to remember and listen towhat the other

person is saying... it just isn't done. For my job, it requires a lot of

thinking and remembering too. Luckily forme, not too many people know what I am

doing... so they haven't noticed itis more difficult for me. I notice and I get

frustrated. My husband notices.My kids notice in other ways.One of the things I

have noticed - is that occasionally I " SMELL " cigerettesmoke or something

similiar, like a smelly smoldering fire. No one elsesmells it. That new Febreze

air and surface sometimes will help - though myfamily thinks I'm crazy :)Good

luck, and as others have said - write it down. (I hate lists- but Ihave to use

them now.)Tammy_____ From: [mailto: ] On

Behalf Ofletitbe@...: Friday, April 25, 2008 6:00 AMTo:

@...: Re: [ ] Re: Gleevec and Memory and dispositionI

have issues with the memory all the time as well. I am trying to just slow down

a little and also, I had started writing things down, even beforemy Diagnosis

'07 March 1. Tracey had mentioned before about maybe we are not really

forgetting as much as temporarily being distracted. Only thing withme, I often

really do not remember. I too, am finding this very frustrating and too, work in

a job as a sales rep where I cannot afford screw-up's as many clients are

counting on me to get it right.Another issue recently has been brought to my

attention and am very curious if anyone has experienced anything that remotely

resembles this, on Gleevec.My wife recently commented that I have interrupted

her, to the point that I was borderline rude. This is way not whom I ever have

been. She said it has been getting worse. I had really not noticed, but at times

I have noticed being eager to get my point it, with whatever the discussion may

be. This seriously bothered me as I have always had such a laid back disposition

andhad a reputation of being the easy going one of our group of friends, even

the most level headed and always been the " go to guy " for anything andeverything

others could not work out. I asked why she had not said something sooner? I

think partially it is because perhaps I have done this more, recently. Also,

been under tremendouspressure with my job as my selling season gets into and

sales have been abit harder to come by with the economic state of affairs. Now

that is part of mytake, she told me I did not seem as approachable lately. WOW,

that really bothered me to hear from a lady I have been side by side with for

nearly 20 years. Me, not approachable? Wow, I am an open book and always had an

earfor anyone. Anyhow, this has made me slow down and take inventory of a few

things. Anyone else have anything similar? I was a little hesitant to post this

situation, however, this forum has always been so non-judge-mental and Ihave

always felt I could ask anything here.Anyhow, am I reaching for straws on this,

a connection between Gleevec and let's call this, a little over eagerness?

Regards,Chris**************Need a new ride? Check out the largest site for U.S.

used car listings at AOL Autos. (http://autos.

<http://autos.aol.com/used?NCID=aolcmp00300000002851>aol.com/used?NCID=aolcmp003\

00000002851)

[Guest guest]

Hi all,

I have not noticed any memory problems since starting... oh geez...

you know the stuff to make us feel better from ....double geez....

the thing making us sick. Well maybe there is a time or two I forget,

but it is not too often and when I do remember I don't know why.

> >

> > I have issues with the memory all the time as well. I am trying

> to just

> > slow down a little and also, I had started writing things down,

> even before my

> > Diagnosis '07 March 1. Tracey had mentioned before about maybe

we

> are not

> > really forgetting as much as temporarily being distracted. Only

> thing with me,

> > I often really do not remember. I too, am finding this very

> frustrating and

> > too, work in a job as a sales rep where I cannot afford screw-

up's

> as many

> > clients are counting on me to get it right.

> >

> > Another issue recently has been brought to my attention and am

very

> curious

> > if anyone has experienced anything that remotely resembles this,

> on Gleevec.

> > My wife recently commented that I have interrupted her, to the

> point that I

> > was borderline rude. This is way not whom I ever have been.

She

> said it has

> > been getting worse. I had really not noticed, but at times I

have

> noticed

> > being eager to get my point it, with whatever the discussion may

> be. This

> > seriously bothered me as I have always had such a laid back

> disposition and had

> > a reputation of being the easy going one of our group of

friends,

> even the

> > most level headed and always been the " go to guy " for anything

and

> everything

> > others could not work out.

> >

> > I asked why she had not said something sooner? I think partially

> it is

> > because perhaps I have done this more, recently. Also, been under

> tremendous

> > pressure with my job as my selling season gets into and sales

have

> been a bit

> > harder to come by with the economic state of affairs. Now that

is

> part of my

> > take, she told me I did not seem as approachable lately. WOW,

> that really

> > bothered me to hear from a lady I have been side by side with for

> nearly 20

> > years. Me, not approachable? Wow, I am an open book and always

> had an ear for

> > anyone.

> >

> > Anyhow, this has made me slow down and take inventory of a few

> things.

> > Anyone else have anything similar? I was a little hesitant to

> post this

> > situation, however, this forum has always been so non-judge-

mental

> and I have always

> > felt I could ask anything here.

> >

> > Anyhow, am I reaching for straws on this, a connection between

> Gleevec and

> > let's call this, a little over eagerness?

> >

> > Regards,

> > Chris

> >

> >

> >

> > **************Need a new ride? Check out the largest site for

U.S.

> used car

> > listings at AOL Autos.

> > (http://autos.aol.com/used?NCID=aolcmp00300000002851)

> >

> >

> >

[Guest guest]

Thanks !! This says it all!!

Tammy

_____

From: [mailto: ] On Behalf Of M

Sent: Friday, April 25, 2008 8:27 PM

Subject: [ ] Re: Gleevec and Memory and disposition

Hi all,

I have not noticed any memory problems since starting... oh geez...

you know the stuff to make us feel better from ....double geez....

the thing making us sick. Well maybe there is a time or two I forget,

but it is not too often and when I do remember I don't know why.

>

> Hi

>

> You're right, you can ask anything here and you'll almost always

get

> an answer from someone who understands what you're going through.

>

> Could it be that you're interrupting your wife to get your point

> across not because you're rude or impatient but because you fear

that

> if you don't say what's on your mind right away, you won't remember

> what your point was later on?

>

> I've also done this. At times I'll try to wait to make my point

(so

> that I don't appear rude) although I find when I do this that I'm

no

> longer paying attention to the rest of the conversation but rather

> mentally going over my response (so that I don't forget it). I

guess

> I just can't win, either I'm rude for interrupting or I'm rude

> because I'm no longer paying attention to the other person but

either

> way it's not intentional.

>

> Take care,

> Tracey

>

>

> --- In groups (DOT) <mailto:%40> com, letitbe@

wrote:

> >

> > I have issues with the memory all the time as well. I am trying

> to just

> > slow down a little and also, I had started writing things down,

> even before my

> > Diagnosis '07 March 1. Tracey had mentioned before about maybe

we

> are not

> > really forgetting as much as temporarily being distracted. Only

> thing with me,

> > I often really do not remember. I too, am finding this very

> frustrating and

> > too, work in a job as a sales rep where I cannot afford screw-

up's

> as many

> > clients are counting on me to get it right.

> >

> > Another issue recently has been brought to my attention and am

very

> curious

> > if anyone has experienced anything that remotely resembles this,

> on Gleevec.

> > My wife recently commented that I have interrupted her, to the

> point that I

> > was borderline rude. This is way not whom I ever have been.

She

> said it has

> > been getting worse. I had really not noticed, but at times I

have

> noticed

> > being eager to get my point it, with whatever the discussion may

> be. This

> > seriously bothered me as I have always had such a laid back

> disposition and had

> > a reputation of being the easy going one of our group of

friends,

> even the

> > most level headed and always been the " go to guy " for anything

and

> everything

> > others could not work out.

> >

> > I asked why she had not said something sooner? I think partially

> it is

> > because perhaps I have done this more, recently. Also, been under

> tremendous

> > pressure with my job as my selling season gets into and sales

have

> been a bit

> > harder to come by with the economic state of affairs. Now that

is

> part of my

> > take, she told me I did not seem as approachable lately. WOW,

> that really

> > bothered me to hear from a lady I have been side by side with for

> nearly 20

> > years. Me, not approachable? Wow, I am an open book and always

> had an ear for

> > anyone.

> >

> > Anyhow, this has made me slow down and take inventory of a few

> things.

> > Anyone else have anything similar? I was a little hesitant to

> post this

> > situation, however, this forum has always been so non-judge-

mental

> and I have always

> > felt I could ask anything here.

> >

> > Anyhow, am I reaching for straws on this, a connection between

> Gleevec and

> > let's call this, a little over eagerness?

> >

> > Regards,

> > Chris

> >

> >

> >

> > **************Need a new ride? Check out the largest site for

U.S.

> used car

> > listings at AOL Autos.

> > (http://autos. <http://autos.aol.com/used?NCID=aolcmp00300000002851>

aol.com/used?NCID=aolcmp00300000002851)

> >

> >

> >