Zavie Lottie Group

[Guest guest]

Hello Zavie and all :-

just a note to let you know that I may, in a couple of

week, be taken off Nilotinib and put on Dasatinib

(Sprycel). My Doctor is not happy with the results,

but says no worries, I had a chest x-ray today in

preparation and will need another BMB within two

weeks.

The drug is quite expensive, but my drug plan will

cover most of it. $5000 for 60 pills. I am not sure

if that is the standard price in all drug stores.

The doctor also increased my Exjade up to 2000mg a

day, that is another very expensive drug. I am fast

becomming the 3 million dollar man. MY ferritin count

jumped up to 2837 as of last Thursday. Just too many

infusions of HGB.

I was given an infusion of HGB yesterday and today

before seeing the Doctor I was given platelets. I

sure hope that this new way of the blood service

getting and processing blood products will slow my

getting so many infusions, not sure about that. In

case you did not know about this process it is called

BUFFY COAT . not sure why it is called that..

The two doctors I see are getting my history they plan

on doing some type of paper on how I survived

so many years without all these modern drugs. In fact

my first Hematologists retired this year, gosh he was

about my age when we first met, I may have been a

couple of years older than he was..

Well that is an update for now... will let you know

if anything happens between now and the couple of

weeks he takes to make up his mind about changing

drugs..

I go back to see him at the end of this month ..

Be safe all have a great day, I have been assured that

warm weather is to arrive here before August.

Skip D

Dx'ed 30 ++++ years

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