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Dear Sharon,

I am on sprycel and have put on 20 pounds that I really can't afford to

have since I am 5feet 5. My current weight has reached 180. I did go

to weight watcher for awhile but to now avail. I don't eat alot at

meals but I do graze alot during the day. A little here and a little

there. I know the meds do make you put on weight also but can't blame

it all on that. So I guess I just accept it and thank the Lord that I

get up each day in remission. Hang in there. I liked the idea someone

posted of having a weight support group.

God Bless You and yours

Carolyn

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Hi Bobbie, you are so funny you bring a lot of joy to all of us.

Face in the Mirror " is a group of women that help cancer patients by making

t hem look pretty with make up and do other nice things for them so that

they can feel good about themselves again. It is only in Arizona that I

know of. My mother could have used someone like that when she was dying 6

years ago of cancer. It was awful to see her go as she did.

Go to Faceinthemirror.com and see if you can read about it. Or just google

Face in the Mirrow

sharon

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: Tuesday, June 03, 2008 8:35 AM

Subject: RE: [ ] weight gain

HI SHARON, NO, I HAVE NOT HEARD OF " FACE IN THE MIRROR " - BUT THE OTHER DAY

I SAW MY ENTIRE BODY IN THE MIRROR AND WONDERED WHO THE HECK IT WAS!

COULDN'T BE ME, I'M NOT THAT FAT - HA HA, YES I AM. 195, SO I DEFINITELY

NEED HELP!!!!! BOBBY

Sharon & Denny <onthewtrdiscobay (DOT) <mailto:onthewtr%40discobay.net> net>

wrote: I am all for a weight support group. Since I started Tsigne 90 days

ago I

have gained 10 pounds.. I hate it. I am only 5 ft and I weigh 135..

I know I eat a lot. The Tsigna gives me a huge appitite. My husband can not

believe how much I eat.but he thinks it is good for me. He doesn't care what

I weigh. I Do!!!! When I can't fit in my jeans anymore I get frightened. I

have been cutting back and trying to eat healthy. And I have been drinking a

lot of water. I broke my foot about 5 weeks ago so I have not been able to

do much exercise but now that my cast is off I will start. My son and his

family bought me a bike for mothers day. I am anxious to start that.I HATE

EXERCISE!!!!!!

Let's support each other.

By the way---has any of you ever heard of the foundation called " face in the

Mirror " ?????what a wonderful wonderful thing it is. I would like to see it

started in Calif.

Sharon T

_____

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

ROBERTA DOYLE

Sent: Tuesday, June 03, 2008 8:03 AM

groups (DOT) <mailto:%40> com

Subject: Re: [ ] weight gain

HI EVERYONE, I THINK THAT WAS ME WITH THE WEIGHT SUPPORT GROUP AND I STARTED

TODAY!!! HAD TO FAST ANYWAY TO HAVE SEVERAL TESTS DONE. ON THE WAY HOME I

PULLED INTO A PANERA'S TO EAT - AND THEN PULLED RIGHT OUT, BECAUSE I KNEW I

WOULD GO FOR A STICKY BUN. INSTEAD I CAME HOME AND SCRAMBLED EGGS AND HAD A

SMALL PIECE OF SAUSAGE, NO TOAST, NO BREAD. SO! THAT'S A START....BOBBY

carolyn_kuptz2000 <carolyn_kuptz2000@ <mailto:carolyn_kuptz2000%40>

> wrote: Dear Sharon,

I am on sprycel and have put on 20 pounds that I really can't afford to

have since I am 5feet 5. My current weight has reached 180. I did go

to weight watcher for awhile but to now avail. I don't eat alot at

meals but I do graze alot during the day. A little here and a little

there. I know the meds do make you put on weight also but can't blame

it all on that. So I guess I just accept it and thank the Lord that I

get up each day in remission. Hang in there. I liked the idea someone

posted of having a weight support group.

God Bless You and yours

Carolyn

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

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Hi

Carolyn and Everyone!

I'm one of the veteran CML warriors in the group and I'm in the process of

taking off 20 pounds I gained during the last 9 months to a year. I don't blame

Sprycel for the gain although it may be a culprit in the difficulty of taking it

off! I, too, was on Gleevec and gained enormous amounts of weight. It didn't

matter how little I ate it just wouldn't come off until one day, with no

apparent reason, the weight started dropping off and of a sudden I was back to

my normal 135 pounds. Go figure.

Anyway, I thought I would pass along a few tips that I've used successfully that

may or may not help you. I live very near a Bally Total Fitness gym which I

joined recently. They're all over the place and you can join for $25 then pay

$18 a month to work out 3 days a week which is plenty for me. I use

counterweight machines for strength and toning and will begin using the indoor

pool one day out of my 3 to do water calisthenics and just swim. I'm 62 years

old. Both hips have been ruined by BMBs and I have a bum knee. Therefore, I am

very kind to myself and do not set the bar too terribly high so that I don't get

disappointed and quit.

I'm an ice cream lover and I chose that and potato chips to give up during this

diet. I replaced it with yogurt which I also love and occasionally I eat

potatoes cooked without very much oil instead of stuffing my face with greasy,

salty, crunchy chips. Lays didn't do me any favors by putting out a new product

-- extra crunchy chips. Yum.

I also love hamburgers. I eat them with all the fixings minus the bun.

Tomatoes, lettuce, pickles and onions. Just no bread. They're still really

good.

I also gave up cheese except for cottage cheese.

Hope this helps someone. Be good to yourself. Remember. We already have to

sacrifice so much.

Good luck!

[ ] weight gain

Dear Sharon,

I am on sprycel and have put on 20 pounds that I really can't afford to

have since I am 5feet 5. My current weight has reached 180. I did go

to weight watcher for awhile but to now avail. I don't eat alot at

meals but I do graze alot during the day. A little here and a little

there. I know the meds do make you put on weight also but can't blame

it all on that. So I guess I just accept it and thank the Lord that I

get up each day in remission. Hang in there. I liked the idea someone

posted of having a weight support group.

God Bless You and yours

Carolyn

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Wow! That's really encouraging. Thanks!

From: seloew12@...

Date: Tue, 3 Jun 2008 12:30:23 -0400

Subject: Re: [ ] weight gain

Hi

Carolyn and Everyone!

I'm one of the veteran CML warriors in the group and I'm in the process of

taking off 20 pounds I gained during the last 9 months to a year. I don't blame

Sprycel for the gain although it may be a culprit in the difficulty of taking it

off! I, too, was on Gleevec and gained enormous amounts of weight. It didn't

matter how little I ate it just wouldn't come off until one day, with no

apparent reason, the weight started dropping off and of a sudden I was back to

my normal 135 pounds. Go figure.

Anyway, I thought I would pass along a few tips that I've used successfully that

may or may not help you. I live very near a Bally Total Fitness gym which I

joined recently. They're all over the place and you can join for $25 then pay

$18 a month to work out 3 days a week which is plenty for me. I use

counterweight machines for strength and toning and will begin using the indoor

pool one day out of my 3 to do water calisthenics and just swim. I'm 62 years

old. Both hips have been ruined by BMBs and I have a bum knee. Therefore, I am

very kind to myself and do not set the bar too terribly high so that I don't get

disappointed and quit.

I'm an ice cream lover and I chose that and potato chips to give up during this

diet. I replaced it with yogurt which I also love and occasionally I eat

potatoes cooked without very much oil instead of stuffing my face with greasy,

salty, crunchy chips. Lays didn't do me any favors by putting out a new product

-- extra crunchy chips. Yum.

I also love hamburgers. I eat them with all the fixings minus the bun.

Tomatoes, lettuce, pickles and onions. Just no bread. They're still really

good.

I also gave up cheese except for cottage cheese.

Hope this helps someone. Be good to yourself. Remember. We already have to

sacrifice so much.

Good luck!

[ ] weight gain

Dear Sharon,

I am on sprycel and have put on 20 pounds that I really can't afford to

have since I am 5feet 5. My current weight has reached 180. I did go

to weight watcher for awhile but to now avail. I don't eat alot at

meals but I do graze alot during the day. A little here and a little

there. I know the meds do make you put on weight also but can't blame

it all on that. So I guess I just accept it and thank the Lord that I

get up each day in remission. Hang in there. I liked the idea someone

posted of having a weight support group.

God Bless You and yours

Carolyn

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Carolyn,

Thanks for sharing your experience with me.Sorry to hear of the

weight gain but like you stated remission is much more important.If

you ever need any recipes for good tasting healthy foods just let me

know..I love to cook..Can't eat much now but still enjoy cooking..

Thanks

SharonS

In , " carolyn_kuptz2000 " <carolyn_kuptz2000@...>

wrote:

>

> Dear Sharon,

>

> I am on sprycel and have put on 20 pounds that I really can't

afford to

> have since I am 5feet 5. My current weight has reached 180. I did

go

> to weight watcher for awhile but to now avail. I don't eat alot at

> meals but I do graze alot during the day. A little here and a

little

> there. I know the meds do make you put on weight also but can't

blame

> it all on that. So I guess I just accept it and thank the Lord

that I

> get up each day in remission. Hang in there. I liked the idea

someone

> posted of having a weight support group.

> God Bless You and yours

> Carolyn

>

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Guest guest

Bobby,

Great choice to pass on the Panera..I have never tried that

restraunt but have one fairly local.You made a much healthier

choice.How did the support group go?

SharonS

- In , ROBERTA DOYLE <rcd1929@...> wrote:

>

> HI EVERYONE, I THINK THAT WAS ME WITH THE WEIGHT SUPPORT GROUP AND I

STARTED TODAY!!! HAD TO FAST ANYWAY TO HAVE SEVERAL TESTS DONE. ON THE

WAY HOME I PULLED INTO A PANERA'S TO EAT - AND THEN PULLED RIGHT OUT,

BECAUSE I KNEW I WOULD GO FOR A STICKY BUN. INSTEAD I CAME HOME AND

SCRAMBLED EGGS AND HAD A SMALL PIECE OF SAUSAGE, NO TOAST, NO BREAD.

SO! THAT'S A START....BOBBY

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Sharon T,

I got a bike for Mothers Day year before last from my son(18).I

absolutely love it.An additional plus was that my son rides with me

at times and we get quality time together.I am not a huge fan of

exercise either.I enjoy my bike and it is fun not like the usuall

dread with the E word..Hope you enjoy it just as much and shed the 10

pounds in no time..

SharonS

In , " Sharon & Denny " <onthewtr@...> wrote:

>

> I am all for a weight support group. Since I started Tsigne 90 days

ago I

> have gained 10 pounds.. I hate it. I am only 5 ft and I weigh 135..

>

> I know I eat a lot. The Tsigna gives me a huge appitite. My husband

can not

> believe how much I eat.but he thinks it is good for me. He doesn't

care what

> I weigh. I Do!!!! When I can't fit in my jeans anymore I get

frightened. I

> have been cutting back and trying to eat healthy. And I have been

drinking a

> lot of water. I broke my foot about 5 weeks ago so I have not been

able to

> do much exercise but now that my cast is off I will start. My son

and his

> family bought me a bike for mothers day. I am anxious to start

that.I HATE

> EXERCISE!!!!!!

>

> Let's support each other.

>

> By the way---has any of you ever heard of the foundation

called " face in the

> Mirror " ?????what a wonderful wonderful thing it is. I would like

to see it

> started in Calif.

>

>

>

>

>

> Sharon T

>

>

>

> _____

>

> From: [mailto: ] On Behalf

Of

> ROBERTA DOYLE

> Sent: Tuesday, June 03, 2008 8:03 AM

>

> Subject: Re: [ ] weight gain

>

>

>

> HI EVERYONE, I THINK THAT WAS ME WITH THE WEIGHT SUPPORT GROUP AND

I STARTED

> TODAY!!! HAD TO FAST ANYWAY TO HAVE SEVERAL TESTS DONE. ON THE WAY

HOME I

> PULLED INTO A PANERA'S TO EAT - AND THEN PULLED RIGHT OUT, BECAUSE

I KNEW I

> WOULD GO FOR A STICKY BUN. INSTEAD I CAME HOME AND SCRAMBLED EGGS

AND HAD A

> SMALL PIECE OF SAUSAGE, NO TOAST, NO BREAD. SO! THAT'S A

START....BOBBY

>

> carolyn_kuptz2000 <carolyn_kuptz2000@ <mailto:carolyn_kuptz2000%

40>

> > wrote: Dear Sharon,

>

> I am on sprycel and have put on 20 pounds that I really can't

afford to

> have since I am 5feet 5. My current weight has reached 180. I did

go

> to weight watcher for awhile but to now avail. I don't eat alot at

> meals but I do graze alot during the day. A little here and a

little

> there. I know the meds do make you put on weight also but can't

blame

> it all on that. So I guess I just accept it and thank the Lord that

I

> get up each day in remission. Hang in there. I liked the idea

someone

> posted of having a weight support group.

> God Bless You and yours

> Carolyn

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

>

>

>

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Sharon T,

That sounds like a wonderful group..My B/f mother whom I hospice

cared for died last year from cancer and loved it when I did her

makeup for her and rubbed lotion all over her body for her.No one

else did the special things for her like I did and she really loved

and appreciated it.It makes a difference..

SharonS

In , " Sharon & Denny " <onthewtr@...> wrote:

>

> Hi Bobbie, you are so funny you bring a lot of joy to all of us.

>

> Face in the Mirror " is a group of women that help cancer patients

by making

> t hem look pretty with make up and do other nice things for them

so that

> they can feel good about themselves again. It is only in Arizona

that I

> know of. My mother could have used someone like that when she was

dying 6

> years ago of cancer. It was awful to see her go as she did.

>

> Go to Faceinthemirror.com and see if you can read about it. Or just

google

> Face in the Mirrow

>

> sharon

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Guest guest

,

Good luck with reaching your goal and getting the gain off.You

offered some really great tips..

I like to eat my cottage cheese with splenda and cinnamin sprinkled

on it..Tastes like a desert.Sounds strange but is good..

SharonS

In , " seloew12 " <seloew12@...> wrote:

>

> Hi

> Carolyn and Everyone!

>

> I'm one of the veteran CML warriors in the group and I'm in the

process of taking off 20 pounds I gained during the last 9 months to

a year. I don't blame Sprycel for the gain although it may be a

culprit in the difficulty of taking it off! I, too, was on Gleevec

and gained enormous amounts of weight. It didn't matter how little I

ate it just wouldn't come off until one day, with no apparent reason,

the weight started dropping off and of a sudden I was back to my

normal 135 pounds. Go figure.

>

> Anyway, I thought I would pass along a few tips that I've used

successfully that may or may not help you. I live very near a Bally

Total Fitness gym which I joined recently. They're all over the

place and you can join for $25 then pay $18 a month to work out 3

days a week which is plenty for me. I use counterweight machines for

strength and toning and will begin using the indoor pool one day out

of my 3 to do water calisthenics and just swim. I'm 62 years old.

Both hips have been ruined by BMBs and I have a bum knee. Therefore,

I am very kind to myself and do not set the bar too terribly high so

that I don't get disappointed and quit.

>

> I'm an ice cream lover and I chose that and potato chips to give up

during this diet. I replaced it with yogurt which I also love and

occasionally I eat potatoes cooked without very much oil instead of

stuffing my face with greasy, salty, crunchy chips. Lays didn't do

me any favors by putting out a new product -- extra crunchy chips.

Yum.

>

> I also love hamburgers. I eat them with all the fixings minus the

bun. Tomatoes, lettuce, pickles and onions. Just no bread. They're

still really good.

>

> I also gave up cheese except for cottage cheese.

>

> Hope this helps someone. Be good to yourself. Remember. We

already have to sacrifice so much.

>

> Good luck!

>

>

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Guest guest

-

Hi bobby great idea for the support group and thanks Tracey for

starting it I've already joined.

-- In , " serenitywon " <serenitywon@...> wrote:

>

> Bobby,

> Great choice to pass on the Panera..I have never tried that

> restraunt but have one fairly local.You made a much healthier

> choice.How did the support group go?

> SharonS

>

>

> - In , ROBERTA DOYLE <rcd1929@> wrote:

> >

> > HI EVERYONE, I THINK THAT WAS ME WITH THE WEIGHT SUPPORT GROUP

AND I

> STARTED TODAY!!! HAD TO FAST ANYWAY TO HAVE SEVERAL TESTS DONE. ON

THE

> WAY HOME I PULLED INTO A PANERA'S TO EAT - AND THEN PULLED RIGHT

OUT,

> BECAUSE I KNEW I WOULD GO FOR A STICKY BUN. INSTEAD I CAME HOME

AND

> SCRAMBLED EGGS AND HAD A SMALL PIECE OF SAUSAGE, NO TOAST, NO

BREAD.

> SO! THAT'S A START....BOBBY

>

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