Re: New member Introduction/Sharon...Diarrhea vs Constipation

[Guest guest]

Sharon,

I have had chronic diarrhea all my life. It was nothing for me to

go ten times a day. But OMW it was so much worse on gleevec. I would

just sit there and cry and cry and beg God to take it away. I tried

everything to stop it cheese, banana's, yogurt, Blackberry wine (a

stranger suggested it) that worked for a little while and eating

nothing but baby food worked for about a month. Now I have the exact

opposite. For the last year I have had severe constipation. And again

NOTHING has worked to make it easier to go. My Bowel movements are so

hard (sorry to be so graphic) and large that they have ripped my colon

several times and now there is scar tissue which does not stretch so

even when I have soft bm's if they are very big I scream like a baby,

break out in a sweat and almost pass out. It may sound silly to some,

but everytime I had to go there for awhile I was scared to death I was

going to have a heart attach and die on the toilet. I will not use it

unless someone of my immediate family is close by. I cannot describe

how bad it hurts and now I beg God to give me back the diarrhea that

was painful too but at least I didnt feel like I was going to die

everytime I had to go!

Hugs,

> >

> > Sharon,

> > There are alot of side effects to gleevec that you will only

> hear

> > about from the people taking it. The Gleevec sites do not list all

> > the side effects. From my experiance listening to people in the

> > groups I have been involved in most people gain weight on Gleevec.

> I

> > was a differant story. I had such nausea and diarrhea that I lost

> 85

> > pounds the first year that I was on gleevec. That is one thing

> about

> > gleevec and CML I have been grateful for..lol...I have always been

> > overweight and tried absolutely everything to lose, that was the

> one

> > positive I found right away!....goodluck to you. Oh and if you do

> > start retaining too much fluid you can ask your doc to put you on a

> > diuretic that helps alot.

> > Hugs,

> >

> >

> >

>

[Guest guest]

,

I can really relate to the B/M issues and constipation..I use

magnesium oxide to help with it and I also eat a flaxmeal muffin

daily..

Minute Muffin

1 egg(lg)

1/4c.ground flaxmeal

1/2 tsp.Baking Powder

1/2 tep.cinnamin

2 pkts splenda

1/8c.-1/4c.sugar free davinci syrup(any flavor Vanilla is my fav)

or you could use vanilla extract as well and maybe 1 tbsp water

1-2 tbsp.cream cheese (optional)

experiment to the right amount of moisture you prefere..

Mix all ingredients and place in sprayed(pam) bowl and Nuke for 1

minute.

I use different things to mix it up some..I may add

raisins,nuts,peanut butter,jam..very versital.Top with butter

sometimes.

This muffin has alot of fiber and omega 3's in it.Very healthy and

good tasting also..

Also... Miralax works well for some..It is not a laxative it just

allows you to go,doesn't make you go.It is ok to take daily unlike

laxitives and no perscription needed.Take stool softeners also

generic for colace..I take two daily and they don't cause cramping.

Just some things that have worked for me..ymmv

hth

SharonS

In , " " <katybug45@...> wrote:

>

> Sharon,

> I have had chronic diarrhea all my life. It was nothing for me

to

> go ten times a day. But OMW it was so much worse on gleevec. I would

> just sit there and cry and cry and beg God to take it away. I tried

> everything to stop it cheese, banana's, yogurt, Blackberry wine (a

> stranger suggested it) that worked for a little while and eating

> nothing but baby food worked for about a month. Now I have the exact

> opposite. For the last year I have had severe constipation. And

again

> NOTHING has worked to make it easier to go. My Bowel movements are

so

> hard (sorry to be so graphic) and large that they have ripped my

colon

> several times and now there is scar tissue which does not stretch so

> even when I have soft bm's if they are very big I scream like a

baby,

> break out in a sweat and almost pass out. It may sound silly to

some,

> but everytime I had to go there for awhile I was scared to death I

was

> going to have a heart attach and die on the toilet. I will not use

it

> unless someone of my immediate family is close by. I cannot describe

> how bad it hurts and now I beg God to give me back the diarrhea that

> was painful too but at least I didnt feel like I was going to die

> everytime I had to go!

> Hugs,

>

>

>

>

> > >

> > > Sharon,

> > > There are alot of side effects to gleevec that you will

only

> > hear

> > > about from the people taking it. The Gleevec sites do not list

all

> > > the side effects. From my experiance listening to people in the

> > > groups I have been involved in most people gain weight on

Gleevec.

> > I

> > > was a differant story. I had such nausea and diarrhea that I

lost

> > 85

> > > pounds the first year that I was on gleevec. That is one thing

> > about

> > > gleevec and CML I have been grateful for..lol...I have always

been

> > > overweight and tried absolutely everything to lose, that was

the

> > one

> > > positive I found right away!....goodluck to you. Oh and if you

do

> > > start retaining too much fluid you can ask your doc to put you

on a

> > > diuretic that helps alot.

> > > Hugs,

> > >

> > >

> > >

> >

>