Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Sue, I just have to say Australia is one place I want to see during my lifetime..Heard it's beautiful..My comments are inline next to yours. In , " Sue " <hollie@...> wrote: > > Goodness me Sharon > > I was exhausted just reading the list of health issues that you have. > > As for all, it is obviously essential to have a good working relationship with your specialist (CML) > and other medicos so that they can share-care for you. ====================== I am trying to et them all on the same page.Have set up appoinments with everyone to discuss this.. > Like Marcos I seem to get colds regularly - and have a beauty at the moment - just continually coughing. > Second this year. > > Perhaps that is another hint - keep well away from babies and toddlers who have colds - this is where I got this one============================== That's not good.Hope you feel better soon.I will try to stay away from the sick ones..lol a close friend currently has pnumonia..Terrible > I can understand your being worried about putting on weight with glivec since you already had an operation to help > reduce same. Perhaps speaking with a clinical dietician would help. =================== Yes,I am concerned and have an appt on Wed to try to get a plan in place.I can physically eat very little so I am hoping to just watch it very closely and do as much as I can physically to help..I need to cut out am\ll my extra snacks(choco addict here) to help myself. > Weight - I put on about 1 stone initially - even though on a salt skip program www.saltmatters.org for low sodium so I do not have to > have diurectics. After an operation this year, I was off glivec for 2 weeks, since being back on glivec and my 600mg dose have > only put on about 5 ibs which could be eating and nothing to do with glivec at all. ==================== Not sure what a stone is exactly(maybe 6 pounds?) sorry...Hope you are able to drop it without much effort.Weightlose has always been extremely difficult for me..My body just doesn't like to give it up.. > With glivec you do have to eat first - and then have enough food and water to assist the breakdown of the chemicals in the drug. > This also assists with not feeling queesy at times. I no longer have milk products at time of taking glivec, as this did not agree with me. +++++++++++++++++++++++ I will definately take it as perscribed.I have very little stomach and intestine to do the absorbing so will do what I can to help that issue..I can't physically eat alot and certain types of foods due to my surgery as they don't go down not due to allergies or anything else..Certain foods cause severe pain after eating so I completely avoid them.. > Keep as well as you are able. We are interested in how you are and how you get on with glivec. > > Sue (Australia) > ================= Thanks again Sue,I will keep you all updated.I'm sure I will have tons more questions for everyone.. SharonS > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 You know what girls? Maybe we could sort of get together on this weight loss issue . They say Misery Likes Company! Well so do dieters! We all know what we should or should not eat, but maybe if we made an agreement between us, honor system, it may work better than WW. I blamed my latest weight gain on all the steroids I was on - well I'm not on them anymore and have put on 10 more lbs. Maybe we could support each other? Just an idea, I think I'll start tomorrow - I have to fast for 5 hours before having 4 vascular tests done , so can't eat anyway, LOL. Besides eating everything in sight, I don't get much exercise due to bad circulation in the legs, so what I eat stays with me. Then I keep telling myself, " a, you're 78 yrs. old, who the hell cares how fat you are? " But you girls know the answer to that, WE care. So, I'm gonna think of all of you tomorrow when I can finally eat, and hope I can restrain myself enough to stick with a salad.......Bobby serenitywon <serenitywon@...> wrote: Sue, I just have to say Australia is one place I want to see during my lifetime..Heard it's beautiful..My comments are inline next to yours. In , " Sue " <hollie@...> wrote: > > Goodness me Sharon > > I was exhausted just reading the list of health issues that you have. > > As for all, it is obviously essential to have a good working relationship with your specialist (CML) > and other medicos so that they can share-care for you. ====================== I am trying to et them all on the same page.Have set up appoinments with everyone to discuss this.. > Like Marcos I seem to get colds regularly - and have a beauty at the moment - just continually coughing. > Second this year. > > Perhaps that is another hint - keep well away from babies and toddlers who have colds - this is where I got this one============================== That's not good.Hope you feel better soon.I will try to stay away from the sick ones..lol a close friend currently has pnumonia..Terrible > I can understand your being worried about putting on weight with glivec since you already had an operation to help > reduce same. Perhaps speaking with a clinical dietician would help. =================== Yes,I am concerned and have an appt on Wed to try to get a plan in place.I can physically eat very little so I am hoping to just watch it very closely and do as much as I can physically to help..I need to cut out am\ll my extra snacks(choco addict here) to help myself. > Weight - I put on about 1 stone initially - even though on a salt skip program www.saltmatters.org for low sodium so I do not have to > have diurectics. After an operation this year, I was off glivec for 2 weeks, since being back on glivec and my 600mg dose have > only put on about 5 ibs which could be eating and nothing to do with glivec at all. ==================== Not sure what a stone is exactly(maybe 6 pounds?) sorry...Hope you are able to drop it without much effort.Weightlose has always been extremely difficult for me..My body just doesn't like to give it up.. > With glivec you do have to eat first - and then have enough food and water to assist the breakdown of the chemicals in the drug. > This also assists with not feeling queesy at times. I no longer have milk products at time of taking glivec, as this did not agree with me. +++++++++++++++++++++++ I will definately take it as perscribed.I have very little stomach and intestine to do the absorbing so will do what I can to help that issue..I can't physically eat alot and certain types of foods due to my surgery as they don't go down not due to allergies or anything else..Certain foods cause severe pain after eating so I completely avoid them.. > Keep as well as you are able. We are interested in how you are and how you get on with glivec. > > Sue (Australia) > ================= Thanks again Sue,I will keep you all updated.I'm sure I will have tons more questions for everyone.. SharonS > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 a, Support is so helpful..I belong to about 10-12 online support groups related to my WLS stuff and now this group.I don't know what I would do without the support.I think I would be extremely lonely.I'm not much into going out etc.I am a homebody and enjoy it..lol.. You are so right when you say WE care how we look.I feel it is a direct correlation to how we feel.When I get up and shower, fix my hair,do makeup or whatever I feel so much better than the days I lay in bed in my P.J.'s.. Weight loss for me has been a lifelong battle.It is alot of work and so frustrating.Being honest with myself is very hard.Like you said it is easier to blame the _________ fill in the blank.I keep working at it.Let me know if I can help in any way.. SharonS In , ROBERTA DOYLE <rcd1929@...> wrote: > > You know what girls? Maybe we could sort of get together on this weight loss issue . > They say Misery Likes Company! Well so do dieters! We all know what we should or should not eat, but maybe if we made an agreement between us, honor system, it may work better than WW. I blamed my latest weight gain on all the steroids I was on - well I'm not on them anymore and have put on 10 more lbs. Maybe we could support each other? > Just an idea, I think I'll start tomorrow - I have to fast for 5 hours before having 4 vascular tests done , so can't eat anyway, LOL. Besides eating everything in sight, I don't get much exercise due to bad circulation in the legs, so what I eat stays with me. Then I keep telling myself, " a, you're 78 yrs. old, who the hell cares how fat you are? " But you girls know the answer to that, WE care. So, I'm gonna think of all of you tomorrow when I can finally eat, and hope I can restrain myself enough to stick with a salad.......Bobby > > Quote Link to comment Share on other sites More sharing options...
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