Sue

[Guest guest]

Hey Sue,

Funny you mentioned the watery left eye....I have this right now its

been back for 4 days after a couple of months break from it. It

usually lasts a month but drives me flipping crazy. I saw my Onc

today and didn't bother to mention it as it sounds so crazy. I hate

my puffy eyelids and weight gain too but I still feel lucky to have

minimal bone pain. Is there anything you have discovered that helps

the eye and how long does yours usually last?

Regards,

Donna

>

> Good Morning Basil

>

> Welcome to the group

>

> Like South Africa, Australia has only a small group of people with

CML - something like 200 - 350 per year diagnosed compared to outher

types

> of Leukaemias.

>

> Like yourself, I too suffer terribly from eye oedemia and puffy

face.

> I at times also have a watery left eye, so now do not wear make-up

as I never know when the

> water eye attack will take place.

> Over the period of time on glivec I have had short term side

effects so hopefully these have all

> stopped.

>

>

> I am on a Salt Skip Program so that I do not have to use diuretics

for the water retention I still store water

> retention weight - so imagine how big I would be if not on this

program as I have some weight gain from glivec.

> Low sodium eating. www.saltmatters.org

>

> I have had 14 days off from glivec (Australia spelling) - due to

emergency surgery.

> What a difference no glivec taking makes.

> You actually feel like yourself, and within days, had lost heaps of

weight, eyelids and face back to normal

> with actual eyelids and cheekbones plus all the energy that I now

have even recuperating from the operation.

>

> I have returned to taking glivec - 600mg - first 2 weeks on 400mg

and then returning to my normal dose.

> I have been on the 600mg for two days - and amazingly - my eyelids

are already starting to puff. What a drag.

> Just a visual problem of body image but the glivec face is not me

and you actually forget what your

> normal face should be until it returns.

>

> Glad to chat Basil - speak soon

>

> Sue

> (Australia)

>

>

>

>

>

[Guest guest]

You know, I always wonder about that. Is it that people don't give a hoot, or

are they unaware? Maybe one's eyesight fails around the time the hair follicles

begin to proliferate? I always tell my daughters not to let me leave the house

like that when I get to that stage of life (presuming I'm that lucky!).

From: redbudln@...

Date: Mon, 25 May 2009 17:47:14 -0500

Subject: [ ] Sue

Regarding the hair, you have my permission to post it.

Years ago, I was a real estate agent and had two elderly spinsters as

clients. They both had such heavy facial hair that they almost looked like

a man. My young broker in the office referred to them as " bearded ladies. "

Obviously, they weren't bothered by their facial hair.

Margot