Re: Re: Tasigna- From Barb in AZ

[Guest guest]

Hi Barb. Loewenkamp here. So glad you're doing wonderful well on

Tasigna. I'm on Sprycel now and doing very well, too. I, too, had debilitating

Gleevec side effects (bone pain) and also lost my response to it. So good to

know that there's yet another option.

All the best,

[ ] Re: Tasigna- From Barb in AZ

Hello ,

I was on gleevec for 5 years. I have been on tasigna for 6 months. I

have a diary I kept while on the 800 mg for two weeks and then the 400

mg. The side effects were pretty severe on the 800. My oncologist took

me off for five days and back on at 400 mg. a day. I have NO side

effects at all. I have also held PCRU the entire time. I have found

enormous information on the Novartis web site. I would be glad to

answer questions you may have either here or privately. For me, it has

been the best change in my life in a long time. I was thinking I would

have to quit work because of the side effects of gleevec. As it is, I

have a whole new view of how long I can continue to teach. And the work

is so important to me.

I wish you the best of luck on tasigna. I hope it does for you what you

need and without too many life disruptions. It is absolutely wonderful

that we have so many options today while we live with CML.

Keep us all informed and the best of luck.

Barb in AZ

>

> Hi. I haven't posted in a while and I have a long story to tell. I

don't

> have time to write it all now, but the main point is that I will be

starting

> Tasigna as soon as I can find a pharmacy that can get some for me. I'd

like

> to hear from some others on Tasigna. My dr. will start me at 400 mg.

with the

> hopes to move up to 800. Please feel free to e-mail me with some info

or

> personal experiences. I'll give more details soon.

>

> Thanks,

> in NY

> dx. 1/2004

> Gleevec 400 until now

>

>

> In a message dated 6/4/2008 4:24:07 A.M. Eastern Daylight Time,

> writes:

>

>

> _CML SUPPORT AND INFORMATION _

>

(;_ylc=X3oDMTJlOXVzanR0BF9TAzk3MzU5NzE\

1BGdycElkAzE0NzYyODAxBGdycHNwSWQDMTcwNTA2MTYyOARzZWM

> DaGRyBHNsawNocGgEc3RpbWUDMTIxMjU2NzgyMQ--)

>

> Messages In This Digest (25 Messages)

>

> 1a.

> _Re: and Chris: sex and cml_ (mip://03ef4c18/default.html#1a)

From:

> letitbe@...

> 1b.

> _Re: ...Pa_ (mip://03ef4c18/default.html#1b) From: china neal

> 1c.

> _Re: and Chris: sex and cml_ (mip://03ef4c18/default.html#1c)

From:

> suehurt28

> 2a.

> _Re: sex and cml Hats off to all the loving partners!!!_

> (mip://03ef4c18/default.html#2a) From: china neal

> 2b.

> _Re: sex and cml Hats off to all the loving partners!!!_

> (mip://03ef4c18/default.html#2b) From:

> 3a.

> _Re: sex and cml_ (mip://03ef4c18/default.html#3a) From:

> 4a.

> _Re: Zavie_ (mip://03ef4c18/default.html#4a) From:

> 5a.

> _Re: Kenalog_ (mip://03ef4c18/default.html#5a) From: snipandtip

> 6.1.

> _Re: New member Introduction/Sharon...Diarrhea vs Constipation_

> (mip://03ef4c18/default.html#6.1) From: serenitywon

> 6.2.

> _Re: New member Introduction/Sharon.S...../Salmonella_

> (mip://03ef4c18/default.html#6.2) From:

> 6.3.

> _Re: New member Introduction/Sharon.S...../Salmonella_

> (mip://03ef4c18/default.html#6.3) From: serenitywon

> 7.1.

> _Re: New member Introduction_ (mip://03ef4c18/default.html#7.1) From:

> serenitywon

> 8.1.

> _Re: Amusement Parks, Sex etc_ (mip://03ef4c18/default.html#8.1) From:

> serenitywon

> 9a.

> _Re: New drugs_ (mip://03ef4c18/default.html#9a) From: serenitywon

> 10a.

> _Re: weight gain_ (mip://03ef4c18/default.html#10a) From: serenitywon

> 10b.

> _Re: weight gain_ (mip://03ef4c18/default.html#10b) From: serenitywon

> 10c.

> _Re: weight gain_ (mip://03ef4c18/default.html#10c) From: serenitywon

> 10d.

> _Re: weight gain_ (mip://03ef4c18/default.html#10d) From: serenitywon

> 10e.

> _Re: weight gain_ (mip://03ef4c18/default.html#10e) From: serenitywon

> 11a.

> _Re: Chat Reminder - Tuesday June 3, 2008 Eastern_

> (mip://03ef4c18/default.html#11a) From: serenitywon

> 12a.

> _Re: Happy Birthday Zavie_ (mip://03ef4c18/default.html#12a) From:

> serenitywon

> 13a.

> _Re: BMB_ (mip://03ef4c18/default.html#13a) From: serenitywon

> 14a.

> _Re: Help with Lab info needed Please_

(mip://03ef4c18/default.html#14a)

> From: serenitywon

> 15a.

> _Zavie's birthday_ (mip://03ef4c18/default.html#15a) From: Lottie

Duthu

> 15b.

> _Re: Zavie's birthday_ (mip://03ef4c18/default.html#15b) From: Giora

>

> _View All Topics_

>

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> zZwRzbGsDYXRwYwRzdGltZQMxMjEyNTY3ODIy?xm=1 & m=p & tidx=1) | _Create New

Topic_

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> MxMjEyNTY3ODIy)

> Messages

>

> 1a.

> _Re: and Chris: sex and cml _

>

(/message/10297;_ylc=X3oDMTJzODRqcHRuB\

F9TAzk3MzU5NzE1BGdycElkAzE0NzYyODAxBGdycHNwSWQD

>

MTcwNTA2MTYyOARtc2dJZAMxMDI5NwRzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMjEyNTY3\

ODIy)

> Posted by: " letitbe@... " _letitbe@... _

> (mailto:letitbe@...?Subject=

Re:%20%20and%20Chris:%20%20sex%20and%20cml) _iknoey _

> (iknoey)

> Tue Jun 3, 2008 8:19 pm (PDT)

> Thanks Sue, BTW, my son and I are on the road this week from FL to

Carlisle,

> PA for a car show in an Australian Falcon hardtop. Not sure if you

remember

> those from the 70's? But, for fun, I am into old cars and have a real

> passion for the Aussie Falcon's!

> Chris

>

> ************************<WBR>**Get trade secrets for amazing burgers.

Wat

> Tyler Florence " on AOL Food.

>

(_http://food.http://food.<Whttp://fohttp://f & <WBR>NCID=aolfod<WBR>NCID_

>

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

)

>

>