Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Dear , I am so sorry to read of Bob's condition. You are both in my prayers. love, Kathy > > Hello dear friends, > > Well, not much good news. Bob is in a health care facility for long term > care. He will not come home again. As far as his CML, Dr Paquette says > even tho he cannot take the Sprycel he will not relapse for at least a > year. Bob cannot take the Sprycel because he has a feeding tube and > Sprycel cannot be crushed. He is still on Hydrea for high platelets and > they are under control. Of course, he has not had a BMB or PCR test since > last December, so we don't have any new numbers. > A few weeks ago he went into the hospital again, to the ER with a temp of > 103.5 deg. Dehydrated, etc. He stayed for 10 days. They pumped him full > of antibiotics, IVs, etc. He cannot swallow any more. The mechanism is > there, but his brain just won't tell him to swallow. So that is why he > has the feeding tube in his stomach. After that surgery he kinda crashed > and they took him to ICU and he got some better there. Then he came back > to the nursing home and it doesn't look good. He had a transfusion last > week, but he is not bleeding internally. Dr Paquette says it's probably > the infection (whatever that may be) that prevents his blood from making > more. His son and I have decided that he will get no more transfusions. > We will continue with the feeding tube, of course, but we have a DNR in > place. They will not revive him if he stops breathing or if his heart > stops, but I sure wasn't going to let him starve to death, hence the > feeding tube. He is no longer getting antibiotics, so I hope the horrible > yeast infection he has in the groin area will go away. Bob doesn't seem > to be in pain, and sometimes he can answer my questions and he smiles on > good days. And on really good days, I can get him to wink at me! It's so > cute! > So I thank you all for all your help through the years, your jokes, your > advice, your encouragement. I've made many cyber friends here and I love > you all very much. We may never meet in person, but you will always be in > my heart. > > take care and blessed be nancy wilhelm > > ps. I wrote this last week and tried to send it but it came back. Guess > I had the wrong address. > Bob is doing even worse now. He has a staph infection and is on > antibiotics again. He sleeps most of the time and doesn't even wake up > when they change him or his bed. I shaved him today and he slept thru it! > He doesn't wink at me or smile anymore. Just sleeps. Maybe when these > antibiotics kick in, his fever will go down and he will be more > responsive. > > So now I am praying that God's will be done, but just hurry it up a bit, > because if Bob could make a decision he would not want to live this way. > > again thanks and blessed be nancy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Dearest , So sorry to hear about Bob's frail health. You are so loving and supportive, Bob is lucky to have you by his side during this journey. Tears flowed as i read of Bob's precious winks and more tears came when you wrote about the winks ceasing. At least the meds will keep him as comfortable as possible. Please know you and your family are being wrapped in loving thoughts and healing prayers. Peace and strengh for the journey, Rhonda Sent from my Verizon Wireless BlackBerry [ ] Update on Bob Wilhelm Hello dear friends, Well, not much good news. Bob is in a health care facility for long term care. He will not come home again. As far as his CML, Dr Paquette says even tho he cannot take the Sprycel he will not relapse for at least a year. Bob cannot take the Sprycel because he has a feeding tube and Sprycel cannot be crushed. He is still on Hydrea for high platelets and they are under control. Of course, he has not had a BMB or PCR test since last December, so we don't have any new numbers. A few weeks ago he went into the hospital again, to the ER with a temp of 103.5 deg. Dehydrated, etc. He stayed for 10 days. They pumped him full of antibiotics, IVs, etc. He cannot swallow any more. The mechanism is there, but his brain just won't tell him to swallow. So that is why he has the feeding tube in his stomach. After that surgery he kinda crashed and they took him to ICU and he got some better there. Then he came back to the nursing home and it doesn't look good. He had a transfusion last week, but he is not bleeding internally. Dr Paquette says it's probably the infection (whatever that may be) that prevents his blood from making more. His son and I have decided that he will get no more transfusions. We will continue with the feeding tube, of course, but we have a DNR in place. They will not revive him if he stops breathing or if his heart stops, but I sure wasn't going to let him starve to death, hence the feeding tube. He is no longer getting antibiotics, so I hope the horrible yeast infection he has in the groin area will go away. Bob doesn't seem to be in pain, and sometimes he can answer my questions and he smiles on good days. And on really good days, I can get him to wink at me! It's so cute! So I thank you all for all your help through the years, your jokes, your advice, your encouragement. I've made many cyber friends here and I love you all very much. We may never meet in person, but you will always be in my heart. take care and blessed be nancy wilhelm ps. I wrote this last week and tried to send it but it came back. Guess I had the wrong address. Bob is doing even worse now. He has a staph infection and is on antibiotics again. He sleeps most of the time and doesn't even wake up when they change him or his bed. I shaved him today and he slept thru it! He doesn't wink at me or smile anymore. Just sleeps. Maybe when these antibiotics kick in, his fever will go down and he will be more responsive. So now I am praying that God's will be done, but just hurry it up a bit, because if Bob could make a decision he would not want to live this way. again thanks and blessed be nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Dear , I remember you from the old List and your reports on Bob there. I'm sorry that his health has taken such a terrible turn. You are so fortunate to have each other during this sad time. My thoughts are with you as you care for your beloved Bob. Love, Loewenkamp [ ] Update on Bob Wilhelm Hello dear friends, Well, not much good news. Bob is in a health care facility for long term care. He will not come home again. As far as his CML, Dr Paquette says even tho he cannot take the Sprycel he will not relapse for at least a year. Bob cannot take the Sprycel because he has a feeding tube and Sprycel cannot be crushed. He is still on Hydrea for high platelets and they are under control. Of course, he has not had a BMB or PCR test since last December, so we don't have any new numbers. A few weeks ago he went into the hospital again, to the ER with a temp of 103.5 deg. Dehydrated, etc. He stayed for 10 days. They pumped him full of antibiotics, IVs, etc. He cannot swallow any more. The mechanism is there, but his brain just won't tell him to swallow. So that is why he has the feeding tube in his stomach. After that surgery he kinda crashed and they took him to ICU and he got some better there. Then he came back to the nursing home and it doesn't look good. He had a transfusion last week, but he is not bleeding internally. Dr Paquette says it's probably the infection (whatever that may be) that prevents his blood from making more. His son and I have decided that he will get no more transfusions. We will continue with the feeding tube, of course, but we have a DNR in place. They will not revive him if he stops breathing or if his heart stops, but I sure wasn't going to let him starve to death, hence the feeding tube. He is no longer getting antibiotics, so I hope the horrible yeast infection he has in the groin area will go away. Bob doesn't seem to be in pain, and sometimes he can answer my questions and he smiles on good days. And on really good days, I can get him to wink at me! It's so cute! So I thank you all for all your help through the years, your jokes, your advice, your encouragement. I've made many cyber friends here and I love you all very much. We may never meet in person, but you will always be in my heart. take care and blessed be nancy wilhelm ps. I wrote this last week and tried to send it but it came back. Guess I had the wrong address. Bob is doing even worse now. He has a staph infection and is on antibiotics again. He sleeps most of the time and doesn't even wake up when they change him or his bed. I shaved him today and he slept thru it! He doesn't wink at me or smile anymore. Just sleeps. Maybe when these antibiotics kick in, his fever will go down and he will be more responsive. So now I am praying that God's will be done, but just hurry it up a bit, because if Bob could make a decision he would not want to live this way. again thanks and blessed be nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Dear - I am new to this list but we are all one community. Much love to you and Bob. May we all have someone so loving beside us. Chi --- seloew12 <seloew12@...> wrote: > Dear , > > I remember you from the old List and your reports on > Bob there. I'm sorry that his health has taken such > a terrible turn. You are so fortunate to have each > other during this sad time. > > My thoughts are with you as you care for your > beloved Bob. > > Love, > Loewenkamp > [ ] Update on Bob Wilhelm > > > Hello dear friends, > > Well, not much good news. Bob is in a health care > facility for long term > care. He will not come home again. As far as his > CML, Dr Paquette says > even tho he cannot take the Sprycel he will not > relapse for at least a > year. Bob cannot take the Sprycel because he has a > feeding tube and > Sprycel cannot be crushed. He is still on Hydrea > for high platelets and > they are under control. Of course, he has not had > a BMB or PCR test since > last December, so we don't have any new numbers. > A few weeks ago he went into the hospital again, > to the ER with a temp of > 103.5 deg. Dehydrated, etc. He stayed for 10 days. > They pumped him full > of antibiotics, IVs, etc. He cannot swallow any > more. The mechanism is > there, but his brain just won't tell him to > swallow. So that is why he > has the feeding tube in his stomach. After that > surgery he kinda crashed > and they took him to ICU and he got some better > there. Then he came back > to the nursing home and it doesn't look good. He > had a transfusion last > week, but he is not bleeding internally. Dr > Paquette says it's probably > the infection (whatever that may be) that prevents > his blood from making > more. His son and I have decided that he will get > no more transfusions. > We will continue with the feeding tube, of course, > but we have a DNR in > place. They will not revive him if he stops > breathing or if his heart > stops, but I sure wasn't going to let him starve > to death, hence the > feeding tube. He is no longer getting antibiotics, > so I hope the horrible > yeast infection he has in the groin area will go > away. Bob doesn't seem > to be in pain, and sometimes he can answer my > questions and he smiles on > good days. And on really good days, I can get him > to wink at me! It's so > cute! > So I thank you all for all your help through the > years, your jokes, your > advice, your encouragement. I've made many cyber > friends here and I love > you all very much. We may never meet in person, > but you will always be in > my heart. > > take care and blessed be nancy wilhelm > > ps. I wrote this last week and tried to send it > but it came back. Guess > I had the wrong address. > Bob is doing even worse now. He has a staph > infection and is on > antibiotics again. He sleeps most of the time and > doesn't even wake up > when they change him or his bed. I shaved him > today and he slept thru it! > He doesn't wink at me or smile anymore. Just > sleeps. Maybe when these > antibiotics kick in, his fever will go down and he > will be more > responsive. > > So now I am praying that God's will be done, but > just hurry it up a bit, > because if Bob could make a decision he would not > want to live this way. > > again thanks and blessed be nancy > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 , My thoughts and prayers are with you and Bob. I am so sorry you have to go through such hard times. I know that God is with you both. Hugs and love, Genie > > Hello dear friends, > > Well, not much good news. Bob is in a health care facility for long term > care. He will not come home again. As far as his CML, Dr Paquette says > even tho he cannot take the Sprycel he will not relapse for at least a > year. Bob cannot take the Sprycel because he has a feeding tube and > Sprycel cannot be crushed. He is still on Hydrea for high platelets and > they are under control. Of course, he has not had a BMB or PCR test since > last December, so we don't have any new numbers. > A few weeks ago he went into the hospital again, to the ER with a temp of > 103.5 deg. Dehydrated, etc. He stayed for 10 days. They pumped him full > of antibiotics, IVs, etc. He cannot swallow any more. The mechanism is > there, but his brain just won't tell him to swallow. So that is why he > has the feeding tube in his stomach. After that surgery he kinda crashed > and they took him to ICU and he got some better there. Then he came back > to the nursing home and it doesn't look good. He had a transfusion last > week, but he is not bleeding internally. Dr Paquette says it's probably > the infection (whatever that may be) that prevents his blood from making > more. His son and I have decided that he will get no more transfusions. > We will continue with the feeding tube, of course, but we have a DNR in > place. They will not revive him if he stops breathing or if his heart > stops, but I sure wasn't going to let him starve to death, hence the > feeding tube. He is no longer getting antibiotics, so I hope the horrible > yeast infection he has in the groin area will go away. Bob doesn't seem > to be in pain, and sometimes he can answer my questions and he smiles on > good days. And on really good days, I can get him to wink at me! It's so > cute! > So I thank you all for all your help through the years, your jokes, your > advice, your encouragement. I've made many cyber friends here and I love > you all very much. We may never meet in person, but you will always be in > my heart. > > take care and blessed be nancy wilhelm > > ps. I wrote this last week and tried to send it but it came back. Guess > I had the wrong address. > Bob is doing even worse now. He has a staph infection and is on > antibiotics again. He sleeps most of the time and doesn't even wake up > when they change him or his bed. I shaved him today and he slept thru it! > He doesn't wink at me or smile anymore. Just sleeps. Maybe when these > antibiotics kick in, his fever will go down and he will be more > responsive. > > So now I am praying that God's will be done, but just hurry it up a bit, > because if Bob could make a decision he would not want to live this way. > > again thanks and blessed be nancy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Dear , God Bless you both. Eva From: china neal Sent: Thursday, June 19, 2008 11:52 AM Subject: Re: [ ] Update on Bob Wilhelm Dear - I am new to this list but we are all one community. Much love to you and Bob. May we all have someone so loving beside us. Chi --- seloew12 <seloew12@...> wrote: > Dear , > > I remember you from the old List and your reports on > Bob there. I'm sorry that his health has taken such > a terrible turn. You are so fortunate to have each > other during this sad time. > > My thoughts are with you as you care for your > beloved Bob. > > Love, > Loewenkamp > [ ] Update on Bob Wilhelm > > > Hello dear friends, > > Well, not much good news. Bob is in a health care > facility for long term > care. He will not come home again. As far as his > CML, Dr Paquette says > even tho he cannot take the Sprycel he will not > relapse for at least a > year. Bob cannot take the Sprycel because he has a > feeding tube and > Sprycel cannot be crushed. He is still on Hydrea > for high platelets and > they are under control. Of course, he has not had > a BMB or PCR test since > last December, so we don't have any new numbers. > A few weeks ago he went into the hospital again, > to the ER with a temp of > 103.5 deg. Dehydrated, etc. He stayed for 10 days. > They pumped him full > of antibiotics, IVs, etc. He cannot swallow any > more. The mechanism is > there, but his brain just won't tell him to > swallow. So that is why he > has the feeding tube in his stomach. After that > surgery he kinda crashed > and they took him to ICU and he got some better > there. Then he came back > to the nursing home and it doesn't look good. He > had a transfusion last > week, but he is not bleeding internally. Dr > Paquette says it's probably > the infection (whatever that may be) that prevents > his blood from making > more. His son and I have decided that he will get > no more transfusions. > We will continue with the feeding tube, of course, > but we have a DNR in > place. They will not revive him if he stops > breathing or if his heart > stops, but I sure wasn't going to let him starve > to death, hence the > feeding tube. He is no longer getting antibiotics, > so I hope the horrible > yeast infection he has in the groin area will go > away. Bob doesn't seem > to be in pain, and sometimes he can answer my > questions and he smiles on > good days. And on really good days, I can get him > to wink at me! It's so > cute! > So I thank you all for all your help through the > years, your jokes, your > advice, your encouragement. I've made many cyber > friends here and I love > you all very much. We may never meet in person, > but you will always be in > my heart. > > take care and blessed be nancy wilhelm > > ps. I wrote this last week and tried to send it > but it came back. Guess > I had the wrong address. > Bob is doing even worse now. He has a staph > infection and is on > antibiotics again. He sleeps most of the time and > doesn't even wake up > when they change him or his bed. I shaved him > today and he slept thru it! > He doesn't wink at me or smile anymore. Just > sleeps. Maybe when these > antibiotics kick in, his fever will go down and he > will be more > responsive. > > So now I am praying that God's will be done, but > just hurry it up a bit, > because if Bob could make a decision he would not > want to live this way. > > again thanks and blessed be nancy > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Dear , I am so sorry to hear of Bob's condition. I Hope that he finds relief soon. Please know that you and Bob are in my prayers. Take care, Zazzy > > Dearest , > > So sorry to hear about Bob's frail health. You are so loving and supportive, Bob is lucky to have you by his side during this journey. > > Tears flowed as i read of Bob's precious winks and more tears came when you wrote about the winks ceasing. At least the meds will keep him as comfortable as possible. > > Please know you and your family are being wrapped in loving thoughts and healing prayers. > > Peace and strengh for the journey, > Rhonda > Sent from my Verizon Wireless BlackBerry > > [ ] Update on Bob Wilhelm > > > Hello dear friends, > > Well, not much good news. Bob is in a health care facility for long term > care. He will not come home again. As far as his CML, Dr Paquette says > even tho he cannot take the Sprycel he will not relapse for at least a > year. Bob cannot take the Sprycel because he has a feeding tube and > Sprycel cannot be crushed. He is still on Hydrea for high platelets and > they are under control. Of course, he has not had a BMB or PCR test since > last December, so we don't have any new numbers. > A few weeks ago he went into the hospital again, to the ER with a temp of > 103.5 deg. Dehydrated, etc. He stayed for 10 days. They pumped him full > of antibiotics, IVs, etc. He cannot swallow any more. The mechanism is > there, but his brain just won't tell him to swallow. So that is why he > has the feeding tube in his stomach. After that surgery he kinda crashed > and they took him to ICU and he got some better there. Then he came back > to the nursing home and it doesn't look good. He had a transfusion last > week, but he is not bleeding internally. Dr Paquette says it's probably > the infection (whatever that may be) that prevents his blood from making > more. His son and I have decided that he will get no more transfusions. > We will continue with the feeding tube, of course, but we have a DNR in > place. They will not revive him if he stops breathing or if his heart > stops, but I sure wasn't going to let him starve to death, hence the > feeding tube. He is no longer getting antibiotics, so I hope the horrible > yeast infection he has in the groin area will go away. Bob doesn't seem > to be in pain, and sometimes he can answer my questions and he smiles on > good days. And on really good days, I can get him to wink at me! It's so > cute! > So I thank you all for all your help through the years, your jokes, your > advice, your encouragement. I've made many cyber friends here and I love > you all very much. We may never meet in person, but you will always be in > my heart. > > take care and blessed be nancy wilhelm > > ps. I wrote this last week and tried to send it but it came back. Guess > I had the wrong address. > Bob is doing even worse now. He has a staph infection and is on > antibiotics again. He sleeps most of the time and doesn't even wake up > when they change him or his bed. I shaved him today and he slept thru it! > He doesn't wink at me or smile anymore. Just sleeps. Maybe when these > antibiotics kick in, his fever will go down and he will be more > responsive. > > So now I am praying that God's will be done, but just hurry it up a bit, > because if Bob could make a decision he would not want to live this way. > > again thanks and blessed be nancy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 Hi - my heart and prayers go out to you and Bob. You've had a wonderful life together and you have always been his " rock " . May he be in peace. And you're right, it's just existing at this point in your lives, it isn't quality anymore. God Bless you, . Judy P. in Calgary __________________________________________________________________ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 , I am with you--praying that God's will be done...bless you and Bob, and may you be comforted by His presence at your side. Isn't it great that God promises that he will be with us through these types of heartbreaking trials? We aren't alone, and of course all your friends here on the list are with you too. Best wishes and you'll both be in my prayers daily. Vicki Schepman > > Hello dear friends, > > Well, not much good news. Bob is in a health care facility for long term > care. He will not come home again. As far as his CML, Dr Paquette says > even tho he cannot take the Sprycel he will not relapse for at least a > year. Bob cannot take the Sprycel because he has a feeding tube and > Sprycel cannot be crushed. He is still on Hydrea for high platelets and > they are under control. Of course, he has not had a BMB or PCR test since > last December, so we don't have any new numbers. > A few weeks ago he went into the hospital again, to the ER with a temp of > 103.5 deg. Dehydrated, etc. He stayed for 10 days. They pumped him full > of antibiotics, IVs, etc. He cannot swallow any more. The mechanism is > there, but his brain just won't tell him to swallow. So that is why he > has the feeding tube in his stomach. After that surgery he kinda crashed > and they took him to ICU and he got some better there. Then he came back > to the nursing home and it doesn't look good. He had a transfusion last > week, but he is not bleeding internally. Dr Paquette says it's probably > the infection (whatever that may be) that prevents his blood from making > more. His son and I have decided that he will get no more transfusions. > We will continue with the feeding tube, of course, but we have a DNR in > place. They will not revive him if he stops breathing or if his heart > stops, but I sure wasn't going to let him starve to death, hence the > feeding tube. He is no longer getting antibiotics, so I hope the horrible > yeast infection he has in the groin area will go away. Bob doesn't seem > to be in pain, and sometimes he can answer my questions and he smiles on > good days. And on really good days, I can get him to wink at me! It's so > cute! > So I thank you all for all your help through the years, your jokes, your > advice, your encouragement. I've made many cyber friends here and I love > you all very much. We may never meet in person, but you will always be in > my heart. > > take care and blessed be nancy wilhelm > > ps. I wrote this last week and tried to send it but it came back. Guess > I had the wrong address. > Bob is doing even worse now. He has a staph infection and is on > antibiotics again. He sleeps most of the time and doesn't even wake up > when they change him or his bed. I shaved him today and he slept thru it! > He doesn't wink at me or smile anymore. Just sleeps. Maybe when these > antibiotics kick in, his fever will go down and he will be more > responsive. > > So now I am praying that God's will be done, but just hurry it up a bit, > because if Bob could make a decision he would not want to live this way. > > again thanks and blessed be nancy > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.