Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Hi Sharon, My first suggestion is to get a new doctor. You should not have gone 3-4 weeks without a blood test right after you started treatment. You have no idea how you're going to react to the drug and any doctor who knows what they're doing will test you each week until you're stabilized. This could take a couple of weeks or even a couple of months. For all you know, your platelets could have crashed causing you to bruise everywhere. This could be a serious problem if your platelets are low enough so you really need to be followed closely at the beginning. I don't mean to scare you but you really do need a doctor who knows what they're doing, especially since you have other health issues to juggle. Take care, Tracey > > Hello Everyone, > I have been on Gleevec for 3 weeks now.I take 4 100mg tablets > daily.The last two nights I have woke from my sleep with excessive > itching.I took Benadryl and went back to bed.I have also had excessive > bruising(20 or so in unusual bruising locations)Lately.Is this a side > effect from Gleevec? An allergic reaction etc? Or not related? Any > ideas? My Onc appt is July 1st. My first follow up since Dx.Can anyone > suggest questions for me to ask my DR?I really have no clue what types > of questions I should be asking.I don't believe he is a CML specialist > he doesn't offer info unless I ask specific questions.What should I be > asking? Any help would be great.I am making a list to take with me.. > Thanks > SharonS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Hi Sharon, I agree with Tracey. I had blood work every week for about 3-4 months after diagnosis. He did not space my bloodwork out until I had the same stable readings for at least 6 weeks. I would question this doctor - and ask him to do the blood work. You also can request a copy ( I have a copy of every test since diagnosis 5-5-2002) to compare your own data. There is a good book on leukemia, and that explains the blood results well. You can find it on Amazon. It is called Adult Leukemia by Barbara Lackritz. It answered absolutely every question I had about ALL the treatment options for me. And I close wishing you so much good health....Take a deep breath, relax and know that all will be well. Barb > > > > Hello Everyone, > > I have been on Gleevec for 3 weeks now.I take 4 100mg tablets > > daily.The last two nights I have woke from my sleep with excessive > > itching.I took Benadryl and went back to bed.I have also had > excessive > > bruising(20 or so in unusual bruising locations)Lately.Is this a > side > > effect from Gleevec? An allergic reaction etc? Or not related? Any > > ideas? My Onc appt is July 1st. My first follow up since Dx.Can > anyone > > suggest questions for me to ask my DR?I really have no clue what > types > > of questions I should be asking.I don't believe he is a CML > specialist > > he doesn't offer info unless I ask specific questions.What should I > be > > asking? Any help would be great.I am making a list to take with me.. > > Thanks > > SharonS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 Tracey, Thanks for this info..I have unexplained bruises all over.I seem to bruise easily anywyas but have way more than usuall. Thanks again.I am trying to find a specialist near me.I live in a small town so not much options here. Thanks SharonS In , " Tracey " <traceyincanada@...> wrote: > > Hi Sharon, > > My first suggestion is to get a new doctor. You should not have gone > 3-4 weeks without a blood test right after you started treatment. > You have no idea how you're going to react to the drug and any doctor > who knows what they're doing will test you each week until you're > stabilized. This could take a couple of weeks or even a couple of > months. For all you know, your platelets could have crashed causing > you to bruise everywhere. This could be a serious problem if your > platelets are low enough so you really need to be followed closely at > the beginning. > > I don't mean to scare you but you really do need a doctor who knows > what they're doing, especially since you have other health issues to > juggle. > > Take care, > Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 Barb, Thanks for the info..I am already in a habit of requesting lab copies and tracking them closely due to other health issues.Now to get the DR. to do the blood work.. I will find a copy of that book and read it all.There is so much to learn.Everyone says be proactive and ask questions..Problem is I have no idea what questions to ask..So I am asking here until I glean enough info to best help myself.. Thanks to you and all the others here who have ben so informative and helpful I might learn this stuff yet.. Thanks SharonS In , " Barb Stanley " <barbarastanley@...> wrote: > > > Hi Sharon, > > I agree with Tracey. I had blood work every week for about 3-4 months > after diagnosis. He did not space my bloodwork out until I had the same > stable readings for at least 6 weeks. > I would question this doctor - and ask him to do the blood work. You > also can request a copy ( I have a copy of every test since diagnosis > 5-5-2002) to compare your own data. There is a good book on leukemia, > and that explains the blood results well. You can find it on Amazon. It > is called Adult Leukemia by Barbara Lackritz. It answered absolutely > every question I had about ALL the treatment options for me. > > And I close wishing you so much good health....Take a deep breath, relax > and know that all will be well. > > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 Fwiw, I was advised to take my thyroid first thing in the a.m. on an empty stomach and with no other pills (btw Gleevec diminishes the effect of thyroid to a degree). I was also advised to take Gleevec at one end of the day and my anti-depressant at the other. From: serenitywon@... Date: Mon, 18 May 2009 04:59:33 +0000 Subject: [ ] Gleevec Question Hello everyone, I was wondering if it is ok to take all my medications at the same time as my Gleevec? I take 2 100mg tablets in the A.m and 2 100mg in the P.M.I take them with all my other medications like diabetis,acid reflux pain pills,IBS meds etc. Thanks in advance for any info SharonS _________________________________________________________________ Hotmail® goes with you. http://windowslive.com/Tutorial/Hotmail/Mobile?ocid=TXT_TAGLM_WL_HM_Tutorial_Mob\ ile1_052009 Quote Link to comment Share on other sites More sharing options...
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